Rachel’s Rule seeks to prevent people with complex cancer histories from slipping through the gaps by ensuring annual hereditary risk reviews within the NHS. You can read the full proposal and support the petition here ⬇️ www.change.org/RachelsRule

October is #LiverCancerAwarenessMonth. 17 people in the UK are diagnosed with #LiverCancer every day. Early diagnosis saves lives, so this month is an important opportunity to raise awareness. @britishlivertrust.bsky.social Find out more here👇 livercanceruk.org/liver-cancer-awareness-month

October is #LiverCancerAwarenessMonth, please join us to raise awareness of this often overlooked disease - the fastest growing cause of cancer death in the UK. From ordering posters, to hosting a coffee morning, there are loads of ways to raise awareness: livercanceruk.org/liver-cancer...

Today's article by The Guardian shows three in four English hospitals are failing to hit two cancer targets in league tables. Alfie Bailey-Bearfield, the interim chair of the Taskforce, said treatment delays were unacceptable. Read Alfie's full response ⬇️🔗 shorturl.at/Ynm2Z

On behalf of the APPG on Less Survivable Cancers, please find below its latest newsletter. 📰Visit the APPG website for further information and updates.🔗➡️ shorturl.at/xgdlH

"Only then can we improve survival rates for people facing these devastating diseases." Read our full statement on why we're joining the #OneCancerVoice in urging the government to deliver a National Cancer Plan that meets our collective six tests here ➡️ shorturl.at/LQfzK

The recent Less Survivable Cancers APPG report highlighted the difficulty in diagnosing and detecting less survivable cancers early. Read our recommendations to the Government on addressing this and more in the full report here: shorturl.at/c3c4Z

"Extending the opening hours of Community Diagnostic Centres is a vital step forwards for diagnosing a variety of conditions, including cancer - the leading cause of death from disease in this country." Read our full statement ➡️ shorturl.at/tX5jL

A new study from @lshtm.bsky.social highlights the disparity of survival rates between cancer types, including less survivable cancers. “The National Cancer Plan must… make meaningful strides in improving outcomes for all patients.” Read our full statement here ➡️ shorturl.at/JFlFb

August is Gastroparesis Awareness Month, a condition impacting the stomach. A side effect of many of the cancers we represent, it is important to raise awareness about this condition. Head to @gutscharityuk.bsky.social and their website to learn more ➡ shorturl.at/toVKk

The past few weeks have been busy for the Taskforce with key policy developments occurring and a significant positive win in Wales. Throughout it all we remain dedicated to continuing our work to advocate for better outcomes for people with less survivable cancers. #lesssurvivable

Today marks the start of Gastroparesis Awareness Month 💚 Find out more about gastroparesis via the link here: https://ow.ly/2Oeb50WxSOU (🧵1/5)

This year the APPG on Less Survivable Cancers produced a powerful report looking into earlier detection and faster diagnosis. It contains key recommendations to the Government on improving outcomes. To read the full report click here ➡️https://lesssurvivablecancers.org.uk/news/

Only 16% of people diagnosed with some of the less survivable cancers survive beyond 5 years. The #RareCancersBill is a unique opportunity to tackle this and more. We are pleased to have supported this Bill throughout its journey and will continue to do so as it progresses.

Living with a health condition, or caring for someone who does, can be challenging. On #InternationalSelfCareDay, and every day, it's worth remembering that it's OK to take a moment for yourself if you need to. And remember, we're here for you if you want to talk: ow.ly/EkLp50Wuzhw

The Rare Cancers Bill has passed its third reading in Parliament. 🎉 We will continue to support the Bill as it progresses through the next stages of the legislative process. Read our statement ➡️https://shorturl.at/ZPxth

Big thanks to Gregory Stafford MP for highlighting the importance of the Rare Cancers Bill in improving earlier diagnosis for the less survivable cancers. #RareCancersBill

We thank the Prime Minister for sharing his personal story of supporting his brother through stage four lung cancer. Sharing stories like this helps break the silence and fuels the urgency for action to change the outcomes for people with less survivable cancers.

The Taskforce supports the Rare Cancers Bill. The Bill reaches its 3rd reading in Parliament tomorrow, Friday 12 July and we need at least 40 MPs in Westminster to ensure it progresses. 👉 We are calling on all MPs to attend and support the Bill.

As the Less Survivable Cancers Taskforce, we warmly welcome the government's commitment to deliver neighbourhood health services in the most deprived areas of the country, where life expectancy is lowest, and where people often face the greatest barriers to care. #10YearPlan

The Taskforce welcomes news today that an important diagnostic test for oesophageal cancer is going to be piloted for use in pharmacies. Read our recommendations for improving early diagnosis➡️https://shorturl.at/SENvp

For the 90,000 people diagnosed each year with less survivable cancers, the 10-Year Plan’s focus on early diagnosis is welcome, but success will depend on the detail. Read @paulettehamiltonmp.bsky.social's response as Chair of the APPG on Less Survivable Cancers ➡️ shorturl.at/rhP72

The focus on early diagnosis and detection in the 10-Year Health Plan for England is a welcome step. Now what we really need to see is how this will deliver for people with less survivable cancers in the National Cancer Plan. See full statement ➡️https://shorturl.at/2ytEr

We welcome the introduction of ‘innovator passports’ announced today by the Department of Health and Social Care. Ensuring that innovations in faster diagnosis are adopted by the NHS, in a timely manner, is an essential part of driving improvements in survival for our cancer types. shorturl.at/wQhM4

The Taskforce welcomes the announcement about the roll out of a national lung cancer screening programme in Wales. Earlier detection and faster diagnosis is crucial in saving lives and this programme is a significant step in tackling health inequalities. ➡️https://shorturl.at/lFcPq

The DHSC's announcement that the #10YearPlan will include a commitment to faster, fairer access to clinical trials is a vital step forward. It must reach people with less survivable cancers, where research has long been limited and outcomes remain poor. #CancerResearch

The Taskforce welcomes today’s announcement that NHS patients will be the first in Europe to access histotripsy, a non-invasive treatment for liver cancer. www.bbc.com/news/article...

I’m proud to support the @lesssurvivable.bsky.social APPG’s report on how the Govt can detect the deadliest cancers earlier and faster. Early detection saves lives, and should be an important part of the National Cancer Plan. I encourage the Govt to take the report's recommendations forward.

People diagnosed with less survivable cancers face a 5 year survival rate of just 16% and late diagnosis is a key reason for this. The National Cancer Plan offers a chance to change this. The APPG sets out 12 steps to boost faster diagnosis and save lives: shorturl.at/F82fk

Thank you to @paulettehamiltonmp.bsky.social for her support in the delivery of the inquiry, as she mentions, this is a "crucial moment for transforming patient outcomes and accelerating survival rates for the less survivable cancers". www.standard.co.uk/news/science...

Great to see the APPG Inquiry report featured in the media. Earlier detection and faster diagnosis are critical for improving people's access to treatment and ultimately their chance of survival. @itvx.com ⬇️ www.itv.com/news/2025-06...

🚨NEW REPORT🚨The Less Survivable Cancers APPG has just launched its inquiry report on earlier detection and faster diagnosis! We're calling on the Government to take decisive action to transform patient outcomes and accelerate survival rates. Read here ➡️https://shorturl.at/29vPH

“As we advocate for increased awareness and focus on the less survivable cancers, we are encouraged by the launch of this advancement that represents a significant leap in lung cancer care.” Alfie Bailey-Bearfield, Chair of the Less Survivable Cancers Taskforce. www.thetimes.com/article/5670...

Great news about a new test that reduces diagnosis time for certain types of brain tumour. This highlights the importance of continued research to improve earlier diagnosis and faster detection for the less survivable cancers. www.bbc.co.uk/news/article...

The final Lung Health Check evaluation is clear: targeted lung screening works in Wales. With strong evidence now in place, we urge the Cabinet Secretary to back a phased roll-out. A vital step toward fairer, faster cancer care. #LungHealthCheck #Wales

Yesterday the APPG on Less Survivable Cancers held a spotlight session on 'Unlocking Innovation: Promoting a Research-Friendly Environment.' Thanks to chair @paulettehamiltonmp.bsky.social and vice-chair Charlie Maynard and all the members and experts who attended for their valuable contributions.

The APPG on Less Survivable Cancers met last week. Big thanks to all attendees and @paulettehamiltonmp.bsky.social for chairing the meeting. You can now make a written submission to contribute to the mini-inquiry into early detection and faster diagnosis. Find out more 👉 shorturl.at/Otm6v

Help us breakdown the barriers to decades of research underfunding for less survivable cancers. We want to hear how you view the role and value of research. Please complete our survey to support greater research breakthroughs and improve survival outcomes - 👉https://shorturl.at/0Dyut

We're encouraged by efforts to streamline clinical trials and improve access to data. This is a step towards breaking down barriers in increasing research into less survivable cancers. We'll work to ensure our 6 cancers are represented in the new service. shorturl.at/c1Idt

Great international coverage by Protothema in Greece highlighting the urgent need for immediate action to improve survivable rates for patients with less survivable cancers.⬇️ en.protothema.gr/2025/04/02/t...

Less survivable cancers have faced decades of research underfunding. To improve outcomes, patients need timely access to new research breakthroughs. We want to hear how you perceive the role and value of research and the key barriers to progress ➡️ shorturl.at/0Dyut

This week the All Party Parliamentary Group (APPG) on Less Survivable Cancers held their first roundtable session into early detection and faster diagnosis of less survivable cancers. Thanks to chair @paulettehamiltonmp.bsky.social and all members and experts that attended. shorturl.at/pyw55

We celebrate the progression of the Rare Cancers Bill to the next stage. Big thanks to @drscottarthurmp.bsky.social for leading this vital piece of legislation. #RareCancersBill

Great coverage by by @the-independent.com on how the progression of the Bill could enable life-saving research in rare cancers. #RarceCancersBill www.independent.co.uk/news/uk/home...

The second reading of the Rare Cancers Bill is happening today. We’re supporting this crucial step towards better research, and treatment for those affected by rare cancers. Together, we can drive change. #RareCancersBill

Rare cancers, including many less survivable cancers, make up 47% of UK cancer diagnoses but account for 55% of cancer-related deaths. The Rare Cancers Bill presents a unique opportunity to address the chronic underfunding and lack of research into rare cancers. #RareCancersBill

A great article in @thehousemag.bsky.social by the LSCT Chair and Deputy Chair, Anna Jewell and Cameron Miller, on the transformative impact the Rare Cancers Bill will have on reducing inequalities of treatments and research for rare cancers. Read the article: www.politicshome.com/thehouse/art...

The Rare Cancers Bill was published this week - a crucial step forward for people with rare cancers! Alongside 30 charities, we've been working to build cross-party support for this vital legislation ahead of Second Reading in Parliament on Friday. #RareCancersBill

The Rare Cancers Bill Second Reading is happening on Friday 14th March. Write to your MP and encourage them to attend the Second Reading of the Bill and vote in favour to ensure its progression. Support the #RareCancersBill.

Take our #LessSurvivableCancers research survey. From 2016 - 2021, these cancers got less than half the funding of other common cancers, despite a similar number of deaths. Whether or not you've joined a clinical trial or study, we want to hear from you. 👇 shorturl.at/tSRwP