If you are a #cancer #patient, please consider taking this 5-minute survey to help us help people live better lives. Follow this link go.osu.edu/pits or scan QR below - thanks!

There’s a global shift happening in research, and Canada is ready. Through the Canada Leads progrgam, UHN has recruited 70+ scientists from around the world, strengthening Canada’s position as a destination for top talent. More in @theglobeandmail.com: https://tgam.ca/3QNDopF @uhnresearch.ca

Fascinating project to recognize and learn from "the deep, hard-won practical wisdom that patients develop through years of living with their conditions." Applies equally well to chronic cancer conditions, long-term #survivorship #cansky #patientengagement

More is not More. Except when it comes to the added toxicity. #QoL #kidneycancer Thank you @yukselurun.bsky.social

This work in #shareddecisionmaking in #kidneycancer uncovered unique country-level barriers influencing HCPs: eg.,..."not all major treatment options were always presented, often influenced by resource limitations and financial incentives favouring surgery"

Fantastic international work on #shareddecisionmaking in #kidneycancer Research powered by patient evidence, HCP interviews and the passion to do more so that all patients have a voice. Well done team! @ikccorg.bsky.social @uroweb.org #EAU26

Tons of respect for patient advocate Joyce Graff and all she has done for the #VHL and #kidneycancer communities globally. Was instrumental with @ikccorg.bsky.social with connections around the world. Thank you @smartpatients.bsky.social

That third point. Amazing that it has to be said, but yes. In an era of #shareddecisionmaking, patient preferences require a thoughtful discussion of patient goals, expectations, risk tolerances. What matters most to you? #GU26

At the German Cancer Congress last week, Karin Kastrati presented about the CARE1 Pragmatic Clinical Trial. We’re proud to support this important work. #KidneyCancer

Really an excellent example of how country-specific data within the @ikccorg.bsky.social Global Patient Survey can identify variances, gaps, and work to address unmet needs for patients with #kidneycancer I hear Canada made a similar presentation recently at Canadian research meeting. Good to hear

Kudos to @htaiorg.bsky.social and the Patient and Citizen Involvement group (PCIG), book editors and the many contributors. This is quite the comprehensive volume on #HTA with many global perspectives. #patientengagement #healthtechnologyassessment #globalhealth

New open access book “Patient Involvement in Health Technology Assessment” has just been published (Jan 2026) on link.springer.com/book/10.1007.... @htaiorg.bsky.social @ippin.bsky.social

"Canada thrives because We Are Canadian". 🍁 💪

The Mark Carney Davos speech that everyone is talking about: www.youtube.com/watch?v=uStu... The speech that rang around the world. #MarkCarney #Davos #Canada

This is important. Please share. "What do Ontario NDP, Liberal and Green MPPs have in common? Pharmacare... ...This morning, we sent a letter to the Premier and Minister Jones calling on our province to join the national plan for birth control and diabetes." #OnPoli #OnHealth

Fantastic work to improve standards for Patient Reported Outcomes, QoL across #clinicaltrials for all types of #cancer. Toolkit will be welcomed by patient advocates globally. We can and must do better for patients than "well tolerated". Two words that carry little meaning. #oncsky #cansky

Interesting study re reducing risk of #kidneycancer in general population and amongst higher risk groups. One more piece of prevention puzzle? So many confounding factors...dietary recall a big one IMHO. #cansky

We talk about survival, Patients talk about life. We must learn patients’ language…

An important read from @thelancetoncol.bsky.social that will resonate with patient orgs and cancer patients and caregivers globally. Towards a more human-centred approach that allows for compassion, psychological support, dignity. Bravo! #cansky #shareddecisionmaking #Qol

IKCC kindly invites you to complete the survey by Friday, 7 November 2025. It takes less than three minutes. forms.office.com/Pages/Respon... @GlobalCCN_org (2/2)

LAST CHANCE TO PROVIDE YOUR OPINION. Following an event at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. (1/2)

More for Dark Age 2.0... Scientists had to change more than 700 grant titles to receive NIH funding. www.statnews.com/2025/10/29/n... "They are trying to make people afraid to use the word ‘equity.’ They’re trying to make people afraid to use the term ‘transgender.’"

Congrats to @uiccofficial.bsky.social and 88 international authors for this new educational resource. Pleasure to join the panel today to represent cancer patients, advocates, charitable orgs. Moderated by the insightful @avisfavaro.bsky.social #carrythefire #princessmargaretfoundation #Cancer

Anyone else want this unsolicited garbage to stop being sent in the mail? This from the "Cancer Research Society" in Ottawa. Huge envelope. Junk. Socks. Gloves. Returning it all. #cancer #fundraising cancerresearchsociety.ca?gad_source=1...

Really an incredible resource for cancer patients. Discussion of evidence, clinical trials, real world toxicities. And support/moderation that keeps misinformation off the platform. #cansky #kidneycancer

A powerful essay on being "a difficult patient" and the grace we seek as we come to terms. Applicable to many here in the #cansky community (And #kidneycancer for sure.)

Gotta love the "Stupid Tariffs" tip jar at my local coffee shop. Made the coffee taste even better! #Guelph #shoplocal #planetbean #coffee #elbowsup #stupidtarrifs

Proud of fellow Canadian Dr Danny Heng, one of the kindest, most humble (and brilliant) oncologists in the global #kidneycancer community. Always supportive of the patient voice. A wonderful collaborator and communicator @ikccorg.bsky.social #oncosky

51st State, My Fucking Ass!!! 😀🥰🍁💪 Thank you,Rod!!

Thrilled to see @ikccorg.bsky.social build its volunteer Board with international expertise and strong focus on addressing global disparities in #kidneycancer care. Thank you Dr van Goudoever for your commitment. #kcsm #globalcancer #strongertogether

Mand has just gone and got herself an emotional support chicken. What more does a woman need?! Good friends who knows what makes you tick, are invaluable. Even more so when you live with metastatic cancer. #cansky #oncsky

🍁 Thinking about your next getaway? Explore Canada—where stunning landscapes, vibrant cities, and welcoming communities are just the beginning. From the rugged coastlines of Newfoundland to the alpine peaks of British Columbia, Canada is a country that gives you space to breathe and wonder.

Hey #cansky and all out there supporting others with #cancer #scanxiety. I'm the patient. A very good friend knows of my upcoming scans, study results, and decisions... This amazing gift is what she assembled for me. A Scanxiety Distraction Kit that includes... wait for it...

Congratulations to  Drs Simon Tanguay and Dr. Yasser Riazalhosseini and all collaborators, including patient partners. This mportant work will benefit #kidneycancer patients across Canada and beyond. #oncsky #cancer #research

"A fifth of researchers reported including PPI partners as co-authors, less than half provided remuneration, and over a third did not reimburse partners." #ppi #patientengagement #cansky

Recommended viewing for #kidneycancer patients and their families. Kidney function is something we all keep an eye on... sometimes with worry. Good evidence-based info here from @ikccorg.bsky.social #CKD

Happy Canada Day to those who celebrate. We are strong and free and we have a great sense of humour and understand humour and colour are spelled with a U. 🇨🇦 💪

How do you take care of yourself? 🧘🏽 June 26 is #NationalCancerWellnessAwarenessDay, so let’s talk about the importance of self-care. Trying to live well and stay as healthy as possible can be hard when #cancer is a part of your life.

Mr Angus says best what is on every Canadian minds. And I am sure a majority of Americans and others worldwide will agree.

Join the more than 500 people who have already viewed today's Global Patient & Carer Symposium! The recording is available at www.youtube.com/watch?v=-1LX... #WorldKidneyCancerDay #WKCD25

Recommending this to the global #kidneycancer community - patients, caregivers, and yes, you too HCPs! Did you know how worried we are about our kidney function? A Nephrologist, Uro-Onc, and Med Onc discuss with patients, caregivers. #WKCD2025

Patient partners in research, we've got a long way to go! #ppi #clinicaltrials #patientengagement "A fifth of researchers reported including PPI partners as co-authors, less than half provided remuneration, and over a third did not reimburse partners."

Every year, over 400,000 people are diagnosed with #kidneycancer around the world. Behind every diagnosis is a story—a family, a future, a fight for more time. 💚

Today is #WorldKidneyCancerDay. #CCTG is committed to advancing kidney cancer research through clinical trials that improve treatment and patient outcomes. Our ongoing work helps shape evidence-based care for patients across Canada. #SolvingCancerTogether

It's about time someone brought a sense of humour to #kidneycancer! Well done Italy! #worldkidneycancerday #WKCD25

It’s #WorldKidneyCancerDay. Thinking about all the patients with #kidneycancer and their families; and all the scientists, clinicians, allied health professionals and advocates dedicated to improving outcomes for patients. actionkidneycancer.org/get-involved... #WKCD2025 @IKCCorg @ACTION4KC

Great and fun video on the importance of your kidneys! Remember to show your kidneys some love today and every day. www.youtube.com/watch?v=uDCz... #WorldKidneyCancerDay #WKCD25

There is still time to register and join us at the Global Symposium tomorrow, where we will be discussing looking after your kidney health as part of @ikccorg.bsky.social #WKCD2025 Note the start time is 1.00pm BST. We hope to see you there! Register to join: worldkidneycancerday.org

Why Every Rare Cancer Patient Deserves Molecular Profiling? - Vivek Subbiah @viveksubbiah.bsky.social oncodaily.com/insight/vive... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #RareCancers #MolecularProfiling

New STAT story about NIH rescinding the institution-wide anti-DEI term and condition that had been added to Notices of Award. www.statnews.com/2025/06/09/n... 1/n