PCE has launched a new physical activity and pancreatic cancer video series created for people living with pancreatic cancer. 🏌‍♀️ 🚴‍♂️  📽️ Video 1 kicks off the series by answering a simple but important question: What is physical activity? Learn more: https://shorturl.at/6Pm7L

Clinical trials look at new ways to prevent, detect, or treat disease to advance kidney cancer care. Participating in a clinical trial can be a way to access a new or otherwise unavailable treatment. (1/2)

A new approach to diagnosing #kidneycancer, called the Cambridge kidney One-Stop Mass Investigation Clinic, was trialled at Addenbrooke’s Hospital in Cambridge halving the time from biopsy to treatment decision. Read more about the trial here: actionkidneycancer.org/cambridge-ki...

Happy Holidays from all of us at IKCC! Please note that we will be closed from 22 December until 5 January.

It’s officially six months until World Kidney Cancer Day 2026! Stay tuned for more details and plans for 18 June 2026. #WKCD2026

2025 was a busy year for IKCC, with World Kidney Cancer Day, the Global Kidney Cancer Summit in Madrid, the Global Patient Survey Highlights Report and much more. Read Olivier Exertier’s reflections in this LinkedIn article: www.linkedin.com/pulse/end-ye... #KidneyCancer

When asked about barriers to treatment, 55% of Global Patient Survey respondents said they experienced a barrier that affected their treatment. The most common barriers cited were cost of treatment (23%) and waiting times for treatment (22%). (1/3)

The IKCC team is fully mobilised for #ESMOAsia25 in Singapore. Dr Munisamy Murallitharan shared the results from the IKCC global patient survey on “knowledge gaps and disparities in kidney cancer across Asia”, during a session chaired by Ravindran Kanesvaran. (1/3)

Today in Singapore, IKCC was honoured to join the APAC Oncology Summit on Genitourinary Cancer, focusing on “Bridging the Molecular Testing Gap to Drive Better Outcomes”. Congratulations to Prof Ravindran Kanesvaran, member of the IKCC Medical Advisory Board, for organising such a high-level event.

We are looking forward to #ESMOAsia25 this week in Singapore. Eric Jonasch, Anne Wilson and Olivier Exertier will represent IKCC at this event with oncology experts from across the Asia-Pacific region.

On Tuesday, IKCC visited the National Cancer Centre Singapore with Prof Ravindran Kanesvaran and Kwang Cheak Tan, CEO of the Singapore Cancer Society. (1/2)

On Tuesday, IKCC met in Melbourne with Telix to discuss priorities and collaborations related to #KidneyCancer in 2026. Thank you to Simone Leyden for welcoming us at their headquarters.

Claudia Ungarelli, IKCC’s Vice-Chair, is attending the European Cancer Summit 2025 this week in Brussels. This year’s theme, "Cancer in a Changing Global Landscape: Challenges and Commitments,” underscores the importance of strong collaboration and aligned action. (1/2)

At the World Cancer Leader's Summit in Melbourne, IKCC is honoured to endorse the World Cancer Declaration 2025–2035. (1/3)

This week at the World Cancer Leaders’ Summit in Melbourne, IKCC is represented by Olivier Exertier, Anne Wilson, and Carmen Vallejo Auste, with Vandana Gupta from the V Care Foundation also in attendance. (1/2)

The start of November marked several leadership changes in the IKCC Board of Directors. (1/10)

Congratulations to Dr Michael Jewett, our Past Chair, on receiving the Nicholas J. Vogelzang Humanitarian Award at #IKCSNA25! This award was named after the late co-founder of the Kidney Cancer Association, and we were honoured to be at the event where he received this prestigious recognition. (1/2)

It's great to be at #IKCSNA25 in Denver. We've met with many leaders, including Gretchen Vaughan, President & CEO of the Kidney Cancer Association, and presented a poster on the IKCC Global Patient Survey. (Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan) #KidneyCancer

We are excited to once again collaborate with @theaacr.bsky.social to support the AACR Scholar-in-Training Award. This award is focused on supporting early-career researchers from around the world to attend the AACR Annual Meeting and participate in this premier clinical event. (1/3)

We are looking forward to attending the European Cancer Summit 2025. The Coalition will be represented by Claudia Ungarelli, the new Vice-Chair of IKCC, at the annual event of the European Cancer Organisation. #EuropeanCancerSummit

Join us in recognising Malnutrition Awareness Week. We’re looking forward to learning about this important issue during a webinar on Thursday, which includes Karin Kastrati from Nierenkrebs-Netzwerk Deutschland (IKCC Partner Organization): european-nutrition.org/landing-page... #MAW2025

We are looking forward to the World Cancer Leaders' Summit 2025 next week in Melbourne. Olivier Exertier, Anne Wilson and Carmen Vallejo Auste will represent IKCC at this event organised by UICC.

It’s been a busy month for us at IKCC! Read all the latest in our newsletter: mailchi.mp/ikcc/newslet... #KidneyCancer

People with kidney cancer are concerned about kidney function. (1/4)

IKCC Medical Advisory Board member Prof Laurence Albiges and others spoke about long-term survival in advanced renal cell carcinoma at #ESMO25. Watch the video here: oncologypro.esmo.org/video-series... (ESMO account required) @myesmo.bsky.social

LAST CHANCE TO PROVIDE YOUR OPINION. Following an event at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. (1/2)

IKCC is pleased to share the Summary of Kidney Cancer Highlights from #ESMO25 created by members of the IKCC Medical Advisory Board. Learn more in this LinkedIn article: www.linkedin.com/pulse/reflec... #KidneyCancer

Some affiliates of the @ikccorg.bsky.social attended the recent European Society for Medical Oncology Congress which was in Berlin. They attended to keep dated with the care and treatment of patients with #kidneycancer To read the kidney cancer highlights: actionkidneycancer.org/kidney-cance...

IKCC presented a poster discussing results from the 2025 Global Patient Survey at #JADPROLive. This poster focused on shared decision-making and patient understanding of their #KidneyCancer and treatment options, as well as the patient adherence with oral targeted therapies as prescribed. (1/2)

IKCC was happy to represent the voice of #KidneyCancer patients at the Patient Advocate Council organised by the Advanced Practitioner Society for Hematology and Oncology (APSHO). APSHO is actively engaging patient advocates to bring the patient voice to its members. (1/2)

Following an event last week at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. IKCC kindly invites you to complete the survey by the end of October 2025. (1/2)

We were honoured to present a poster at #ESMO25 on the IKCC Global Patient Survey. You can read the Highlights Report on our website: ikcc.org/wp-content/u... Photo: Olivier Exertier (IKCC), Salvatore La Rosa (Kidney Cancer Association) and Eric Jonasch (IKCC). #KidneyCancer

Under the guidance of Axel Bex (Vice-Chair of IKCC MAB), key opinion leaders in #KidneyCancer convened at #ESMO25 in Berlin to discuss the next steps for the International Neoadjuvant Kidney Cancer Consortium.

The Medical Advisory Board (MAB) of IKCC convened at #ESMO25 in Berlin to discuss priorities for 2026. The MAB Chair, Dr Stênio de Cássio Zequi (Brazil), and Vice-Chair, Prof Axel Bex (UK/NL), expressed their gratitude to four colleagues who have completed their terms: (1/2)

To launch #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen organised a collaborative event on shared decision-making with other global cancer coalitions. (1/2)

Olivier Exertier, IKCC’s Executive Director, presented yesterday in Barcelona, on behalf of the DISCERN project, his contribution to the Cluster "Understanding Risk Factors & Determinants" of cancer with the participation of five European consortia. (1/2)

🌍 Join us in welcoming the @ikccorg.bsky.social to our Humanitarian PACT—a growing alliance of global partners committed to expanding access to cancer care in low- and middle-income countries. 🔗 Learn more about the Humanitarian PACT: themaxfoundation.org/humanitarian... #TheMaxFoundation

We are excited to announce a new Memorandum of Understanding with the Max Foundation. Learn more in this LinkedIn article: www.linkedin.com/pulse/max-fo... #KidneyCancer @themaxfoundation.org

A course on Cancer Genomic Epidemiology is being organised by leaders from the International Agency for Research on Cancer (WHO IARC) and the Wellcome Sanger Institute. Learn more: coursesandconferences.wellcomeconnectingscience.org/event/cancer... #Cancer

When asked if they were as involved as they wanted to be in decisions about their treatment, a majority (55%) said ‘Yes, definitely’ in the most recent Global Patient Survey. This is an increase from the last survey in 2022, when only 48% said the same. (1/2)

We join with Digestive Cancers Europe and others around the world in recognising #WorldMentalHealthDay. We’re proud to be involved with the #DISCERN project, which aims to discover the causes of three poorly understood cancers in Europe. Learn more below. @digestivecancerseu.bsky.social

We’re looking forward to #ESMO25 in Berlin! The IKCC team will include Dr Eric Jonasch, Claudia Ungarelli, Caleb Egwuenu and Olivier Exertier. Let’s connect!

Board member Margie Hickey led the IKCC quarterly Connect and Share webinar, with participants joining from four continents. The topic discussed was how to work with the pharmaceutical industry. (1/2)

We had many good meetings last week, including with AstraZeneca in Washington, DC. We discussed priorities and collaborations related to #KidneyCancer for the upcoming year.

Last Thursday, IKCC met in Philadelphia with the Merck-MSD team to discuss priorities and collaborations related to #KidneyCancer in 2026.

IKCC met last Wednesday in Princeton, New Jersey, USA, with the team at Bristol Myers Squibb to discuss priorities for 2026 related to #KidneyCancer.

IKCC Board members and our Executive Director met the KidneyCAN team in Philadelphia this week. During our working trip in the US, we discussed Bryan Lewis’s efforts to raise funds for #KidneyCancer research there. Congratulations on your dedication and engagement. @kidneycan.bsky.social

Our latest newsletter is now available! It includes details on a new look for IKCC, new members of the Board of Directors, results from World Kidney Cancer Day, and more. mailchi.mp/ikcc/newslet... #KidneyCancer

Really look forward to further exploration of "intentional non-adherence" within the context of quality of life goals and RWE with oral therapies. Think we all accept that current HRQoL tools/data are not telling the full picture. #kidneycancer

We are pleased to share the new IKCC visual identity. This is the first brand refresh since the Coalition was founded 16 years ago this month. It is a modernised look and represents IKCC’s mission + values and meets current accessibility standards. Learn more: www.linkedin.com/pulse/new-lo...