The 2025 NKCA reveals that only 1% of kidney cancer patients in England joined clinical trials from 2020 to 2022. We are raising awareness to help more #kidneycancer patients access innovative treatments through trial participation. Read more here: actionkidneycancer.org/audit-of-nhs...

I is for..... In our own words, in this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of #kidneycancer Watch the videos: actionkidneycancer.org/help.../in-o... #bypatientsforpatients #StrongerTogether

A recent study compares real world data on the outcomes of advanced #kidneycancer patients treated with an immunotherapy combination as a first-line treatment followed by a second-line TKI. To read more: actionkidneycancer.org/impact-of-fi...

Benmelstobart a new immunotherapy, which blocks the action of the immunosuppressant, PD-L1, in combination with a TKI called anlotinib was compared with sunitinib as first-line treatment for advanced #kidneycancer Read More: actionkidneycancer.org/first-line-b...

We are delighted that our trustee Samra Turajlic is New Director of the Cancer Research UK Manchester Institute. #kidneycancer oncodaily.com/career/samra...

Researchers from the University of California in Los Angeles have developed a new kind of immunotherapy that uses specially engineered immune cells that attack #kidneycancer tumours without the need to customise treatment for each individual patient. To read: actionkidneycancer.org/new-immunoth...

Julia one of our team was delighted to meet and thank three generations of the the Pointon family, Dave, Steve and special helper Ernie, along with Clive Read & Jonnie Briggs from Crewe soul club and venue manager Phil Taylor who made the event a resounding success and raised a fantastic £2056.

T is for ... Treatment, we have a section on our website where you will find information about available #kidneycancer treatments. The section includes surgical options, medicines, clinical trials and much more. actionkidneycancer.org/.../kidney-c... #StrongerTogether #bypatientsforpatients

We are supporting the One Cancer Voice NHS Cancer Plan campaign which was presented in parliament. #OneCancerVoice #kidneycancer #StrongerTogether

C is for.. Clinical trials, if you would like to find out more about #kidneycancer trials, see where they are being held in the UK and read real patients experiences of being on one, we have a section on our website that provides this information. actionkidneycancer.org/res.../about...

Fumarate hydratase-deficient rcc is a rare and aggressive type of #kidneycancer Because of this treatment is not clear. This phase two study shows treatment with a combination of immunotherapy and tyrosine kinase inhibitor, showed promise in patients. actionkidneycancer.org/combination-...

In this series of 21 short videos, experts in the treatment and care of #kidneycancer patients answer your questions Why not grab a cuppa, watch a video and have some of your questions answered. To watch the videos: actionkidneycancer.org/help-support... #StrongerTogether

A massive THANK YOU to the Pointon Family, the DJ's and all the volunteers who supported the 6th Northern Soul and Motown Charity Event in Crew on the 10th August. They raised a fantastic £2,056.04 for us an everyone enjoyed a fantastic day of music and dance. #kidneycancer

A massive THANK YOU to Michelle & her sister Donna who recently completed a skydive in memory of their beloved sister Sarah to raise funds for us. Thanks to their friends and family who helped them raise an amazing £1895. Read more: kcsn.enthuse.com/pf/michelle-... #kidneycancer #StrongerTogether

There are still some tickets for this years 5th Anniversary Northern Soul Charity Event We are delighted that the Pointon family have organised another fabulous event, the sixth, to raise funds for us. Please buy your tickets: actionkidneycancer.org/.../norther-... #kidneycancer #StrongerTogether

@simplyoncology.bsky.social Back 🗣️#renalcancer SABR with @harshanigreen.bsky.social from @royalmarsden.org We discuss the FASTRACK II trial and the work of Prof Shankar Siva We discuss this & more 💡(+Mike produces a Magic Lamp) @actionkidneycancer.bsky.social

A phase 2 clinical trial has shown that radiotherapy directed at metastases resulted in promising survival rates and low side effects for patients with metastatic clear cell #kidneycancer who had up to 5 metastases without the need for anti-cancer medication. actionkidneycancer.org/metastasis-d...

We are thinking of and thanking Donna and Michelle, today they are doing a skydive to raise funds for us. They are doing the skydive to honour their sisters Sarah’s memory on what would have been her 46th birthday. Please read about Sarah: actionkidneycancer.org/.../a-skydiv... #kidneycancer

In a European study of second-line treatments for metastatic #kidneycancer that does not respond to first-line treatment, or becomes resistant to first-line treatment, cabozantinib was the most commonly used treatment and results in good patient outcomes. actionkidneycancer.org/cabozantinib...

Great news - Hundreds of people in Wakefield and across the region will benefit from life-saving abdomen scans following new funding from Yorkshire Cancer Research. To read more: actionkidneycancer.org/screening-pr...

Would like to help us support patients and families affected by #kidneycancer If so, why not host a Mad Hatters Tea Party? To get started please follow the link below, where you will find lots of great ideas or email [email protected] actionkidneycancer.org/get.../mad-h...

Thank you FROGS ( Friends Of Renal Oncology Group) for taking part in this years @ikccorg.bsky.social #WKCD2025 They joined the global symposium and wore green to raise awareness of #kidneycancer who new there are so many shades! More about patients groups: actionkidneycancer.org/help-support...

More than 500 people have already viewed yesterdays @ikccorg.bsky.social Global Patient & Carer Symposium! To watch the recording please follow the link: actionkidneycancer.org/get-involved... #WKCD2025 #kidneycancer

Thank you to everyone who helped us raise awareness of @ikccorg.bsky.social #WKCD2025 it has made a difference. Like other hospitals Leighton Hospital in Crew have been busy talking to #kidneycancer patients on how to 'Show your kidneys some love' For info: actionkidneycancer.org/.../world-ki...

@ikccorg.bsky.social have identified that if you can maintain a healthy weight this reduces your risk of cancers Our videos, Diet and kidney cancer one & two discuss a healthy diet for people with #kidneycancer Watch the videos: actionkidneycancer.org/.../. actionkidneycancer.org/.../. #WKCD2025

The theme for @IKCCorg #WKCD2025 is 'Love your kidneys' This video which talks about the difference between kidney disease and #kidneycancer is very informative. To watch the video, please follow the link: actionkidneycancer.org/help-support... #bypatientsforpatients #StrongerTogether

To 'Show your kidneys some love' @IKCCorg have created a useful checklist for #WKCD2025 you can take this to your doctor to check your kidney health. To find out more and to download the checklist please follow the link below: actionkidneycancer.org/.../world-ki... #kidneycancer

As @ikccorg.bsky.social #WKCD2025 is 'Show your kidneys some love' we interviewed our founder Rose Woodward. Rose has experienced problems with her kidney health 20+ years following a radical nephrectomy for #kidneycancer To watch: actionkidneycancer.org/get-involved... #StrongerTogether

Today is @ikccorg.bsky.social #WorldKidneyCancerDay this years theme is 'Show your kidney's some love' Throughout the day we will be signposting you to useful resources related to this topic. Visit our website: actionkidneycancer.org/get-involved... #kidneycancer #bypatientsforpatients #WKCD2025

There is still time to register and join us at the Global Symposium tomorrow, where we will be discussing looking after your kidney health as part of @ikccorg.bsky.social #WKCD2025 Note the start time is 1.00pm BST. We hope to see you there! Register to join: worldkidneycancerday.org

A massive THANK YOU to Gary Wigglesworth and his friends who recently cycled and completed all 364km of the Trans Pennine Trail, thank you to Gary's friends, family and supporters they've raised £2,260 which is amazing! To donate: www.justgiving.com/page/gary-wi... #kidneycancer

There is still time to join the @ikccorg.bsky.social Global Symposium where experts and patients will be discussing kidney health for those living with #kidneycancer. The symposium starts at 1 pm (BST) on 19 June 2025. To join us follow the link: actionkidneycancer.org/get-involved... #WKCD2025

Please join us on #WorldKidneyCancerDay for the Global Patient & Carer Symposium. To register please follow the link: worldkidneycancerday.org #WKCD2025 #StrongerTogether @ikccorg.bsky.social

@ikccorg.bsky.social is hosting a Global Patient & Carer Symposium with experts & patients discussing kidney health for those living with #kidneycancer Please join us at 1 pm (BST) on 19 June 2025. Please register to join by following the link below: www.worldkidneycancerday.org #StrongerTogether

Today Gary and his friends are completing the last leg of the Trans Pennine Way to raise funds to help us support #kidneycancer patients and their families. To read more about Gary and to donate to his fundraising page please follow the link below: actionkidneycancer.org/.../garys-tr...

It is two weeks today until World Kidney Cancer Day on the 19th June 2025, this years theme is 'Show your kidneys some love' Please visit our website for more information and to register for the Global Symposium by following the link below: actionkidneycancer.org/get-involved...

In the lead up to IKCC World Kidney Cancer Day on the 19th June 2025, there are some things you can do. Please follow the link where you will find three kidney tests you can do and possible lifestyle changes to consider. actionkidneycancer.org/get-involved... #WKCD2025 #kidneycancer

Following on from the Safe Sick Pay campaign that Steve Pointon our colleague was involved with, Steve was asked to share his story with Mission Remission for a series of articles and interviews about the financial implications of a #kidneycancer diagnosis. actionkidneycancer.org/the-financia...

We are supporting the @ikccorg.bsky.social World Kidney Cancer Day, please save the date. This year the theme is ‘Show your kidneys some love' To find out how to get involved please follow the link below: actionkidneycancer.org/get-involved... #kidneycancer #bypatientsforpatients #StrongerTogether

It is lovely to see the sunshine, this is a great time to start thinking of meeting up with friends and loved ones. Please plan to host a Mad Hatters Tea Party big or small and raise some funds for us. To get started please follow the link: actionkidneycancer.org/get-involved... #kidneycancer

We are delighted that Gary Wigglesworth & his three friends will be riding 346 km along the Trans Pennine Trail on the 2nd June to challenge themselves and raise funds for us to help families affected by #kidneycancer To find out more please follow the link: actionkidneycancer.org/event/garys-

The Benefact Group have just informed us to saythe prize award for the winners to £5,000 Please take a minute over the weekend and do so. The voting closes at midnight on Sunday the 4th of May, thank you. Please use the link to vote: health.movementforgood.com/index.php?cn...

Please can you give us one minute of your time and nominate us to receive a donation of £1000 in the Movement for Good Awards. It is very easy to do please follow the link below and complete your personal information and vote for us. Thank you! movementforgood.com/index.php?cn...

Great news for patients on nivolumab: The Medicines and Healthcare products Regulatory Agency (MHRA) in the UK has approved an injectable form of nivolumab for the treatment of solid tumours, including advanced #kidneycancer. Read more on our website: actionkidneycancer.org/uk-regulator...

We are delighted that sisters Michelle and Donna are doing a skydive on July 14th 2025 to raise funds for us. Thank you! On December 27th 2024 Michelle and Donna lost their beautiful sister Sarah to #kidneycancer. To read more about Sarah: actionkidneycancer.org/.../a-skydiv...

We've had a busy few weeks sharing the #kidneycancer patient perspective to help ensure their needs are met. We recently talked at the East of England Urological Nurse meeting, this was a great opportunity to share how we can help them, and help support kidney cancer patients. #StrongerTogether

We are back from the @ikccorg.bsky.social Global Conference, we've had a great 3 days of learning and sharing our thoughts the IKCC affiliates from around the world. We plan to use this learning to help shape how we continue supporting #kidneycancer patients and their families.#IKCC2025

@ikccorg.bsky.social This was a great topic to kick off the Sumit with. #IKCC25

It's the last day of the @ikccorg.bsky.social Global Conference. We've been connecting with patient organisations, sharing experiences and learning from each other, how to continue supporting #kidneycancer patients in the UK. We also caught up with friends old and new. #IKCC2025