Please join us at the @ikccorg.bsky.social World Kidney Cancer Symposium on the 18th June at 1.00pmm BST. It could not be easier to register, simply follow the link below: actionkidneycancer.org/get-involved... #kidneycancer #bypatientsforpatients #StrongerTogether #WKCD2026 #ShareYourWeather

We are really delighted that friends Karolina and Karmen will run the Edinburgh half marathon 2026 for us and to raise awareness of #kidneycancer on May 24th, they are joining us from sweden. Please read their story and support their efforts: www.gofundme.com/f/action-kid...

We are delighted that Aoife Murray is running in The Edinburgh Marathon on Sunday the 24th May, the second one in a month. Please take the time to read why she set herself this challenge, you may wish to donate to her fundraising by following the link below: www.justgiving.com/fundraising/...

We are absolutely delighted to have four runners in this years Edinburgh Marathon.Cara Hope is doing the double, she ran in the London marathon earlier this month in memory of her dad David. To read more about Cara and her why: www.justgiving.com/team/cara-ho... #kidneycancer

Save the date of 18th June 2026 for @ikccorg.bsky.social World Kidney Cancer. This years theme is 'Kidney Cancer and Emotional Wellbeing' To find out how to be involved please follow the link: actionkidneycancer.org/get-involved... #WKCD #kidneycancer #bypatientsforpatients #StrongerTogether

Long-term results from two studies (FASTRACK and FASTRACK II) suggest that a treatment called SABR, a highly targeted form of radiotherapy, may be a good treatment option for some people with #kidneycancer who cannot have surgery safely. Read more information: actionkidneycancer.org/long-term-ou...

Steve Pointon has just added a new episode to his Living With and Beyond Cancer podcast, Steve talks with Richard Barker about his journey with #kidneycancer, including his experience as a caregiver, post-operative recovery, and life changes. to listen: podcasts.apple.com/.../episode-....

We really appreciate our fundraisers who are often patients or family members. This year we have 4 runners in the Edinburgh Marathon which is wonderful. To register for next year please follow the link: actionkidneycancer.org/.../edinburg... #kidneycancer #bypatientsforpatients #StrongerTogether

We hosted a #kidneycancer Patient Information day in Edinburgh with the support from the CNSs from the Edinburgh Cancer Centre on May 1st. The day was a great success with a full agenda of relevant topics and much more... To find out about these days: actionkidneycancer.org/.../patient-...

Thank you and well done to Claire Evans for completing the IOW Challenge on Sat the 2nd May for us, we think you are AMAZING! Thank you to all of your supporters who've been very generous with their donations and raised a fantastic £1928. Claire's challenge: www.justgiving.com/page/claire-...

A new rapid one-minute immunotherapy injection is now available on the NHS for patients with more than a dozen types of cancer, offering significant benefits to tens of thousands of individuals. Read more on our website here: actionkidneycancer.org/injectable-f...

On the 29th April the Tobacco and Vapes Bill became law. This is great news for future generations, who are set to benefit from reduced risks associated with smoking. The govt is also investing in support for the UK’s smokers who want to stop. Read more: actionkidneycancer.org/tobacco-and-...?

We are thinking of Claire today as she walks 106km around the Isle Of White to complete the last leg of her massive challenge to walk 550 miles. Claire is raising awareness and funds to help us continue to support families affected by #kidneycancer Read her story: www.justgiving.com/page/claire-...

Would you or a family member like a challenge to raise funds for us? The 2026 Ultra Challenge Series is offering a discount 50% OFF full charity sponsorship participant registration fees on their Sept events.The promotion runs from 25/4/26 – 31/5/26. For info: actionkidneycancer.org/.../ultra-ch...

Thank you Lynne Ewart for sharing your story with us, Lynne was diagnosed with #kidneycancer 20 years ago and her story will inspire many. Please take the time to read about her experience and the impact this diagnosis had on her life. Read Lynne's story: actionkidneycancer.org/stories/lynne/

We are asked where to find travel insurance at a reasonable cost following a diagnosis of #kidneycancer. Visit our webpage and scroll down for an informative help sheet listing insurance companies that may provide travel insurance for people with cancer. actionkidneycancer.org/help-support...

Yesterday our colleague represented us at the House of Lords for an evaluation of the Safe Sick pay campaign. There is still more to do and we will continue to offer our support to help cancer patients receive good sick pay and employment rights. Read more: actionkidneycancer.org/safe-sick-pa...

Spring is definitely in the air, with this in mind maybe you would like to help us by doing some fundraising, or maybe a family member would like to do this on your behalf. Please take a look at our fundraising section for inspiration: actionkidneycancer.org/get-involved... #kidneycancer

Thank you Benefact Group, and to our supporters, without your votes this would not have been possible. We have won £1000 this will help us continue to provide our Clinical trials database which allows patients and families to search for new and innovative treatments that may be available to them.

We sent a speaker to the EAU conference held in London. Our colleague Steve Pointon joined the panel who discussed the importance of shared decision making for patients. The panel included top professionals in #kidneycancer we contributed by ensuring they understood the patient perspective.

C is for Cancer podcasts We appreciate podcasts are a popular way people learn and find reliable information. To help we have identified and added some to the Help and support area of our website. actionkidneycancer.org/.../patient-... #kidneycancer #bypatientsforpatients #StrongerTogether

Final results from the COSMIC-313 study have been published. A triple combination as a first treatment for advanced #kidneycancer helped people by keeping their cancer under control for longer compared to just the two immunotherapy drugs. Find out more: actionkidneycancer.org/cabozantinib...

Our latest Ask the expert video explains how Immunotherapy works and explores why immunotherapy can be effective for some people with #kidneycancer, but cause severe side effects or fail to work in others. To watch the video: actionkidneycancer.org/help-support... #StrongerTogether

Last week the Government published the National Cancer Plan for England. We welcome the plan and are committed to working together to ensure it delivers for people affected by cancer. #kidneycancer #OneCancerVoice #bypatientsforpatients #StrongerTogether

The new National Cancer Plan for England,has a particular focus on rare and less common cancers like #kidneycancer We welcome the plan’s specific commitments to improve diagnosis, focus on research, and improve access to specialist care. To read more: actionkidneycancer.org/new-national...

World Cancer Day theme this year is United by Unique. We know this through the people we have helped, supported and made friends with along the way. Please follow the link to read their individual stories. actionkidneycancer.org/help-support... #UnitedByUnique #StrongerTogether

A is for .. Ask the expert, we have added a new video. In this video/slide presentation Lindsey Allan, highlights the importance of good nutrition, a healthy gut microbiome, and a balanced diet for people undergoing treatment for #kidneycancer To watch actionkidneycancer.org/help-support...

The National Cancer Patient Experience Survey is now open for people who have recently been treated for cancer in England. For more information and to complete the survey: actionkidneycancer.org/national-can...

Warm wishes for the festive season to all of the patients and families whose lives we have touched and those we have yet to meet, our fundraisers, supporters and everyone we have worked with throughout the year. If you need help/support: actionkidneycancer.org #kidneycancer

A new approach to diagnosing #kidneycancer, called the Cambridge kidney One-Stop Mass Investigation Clinic, was trialled at Addenbrooke’s Hospital in Cambridge halving the time from biopsy to treatment decision. Read more about the trial here: actionkidneycancer.org/cambridge-ki...

There is still time to order one of our timeless glass hearts, green ribbon pins or one of our charity wristbands, as a gesture to family and friends who have helped make a difference. To find out more: actionkidneycancer.org/.../greeting... #kidneycancer #bypatientsforpatients

Smoking is one of the risk factors for the development of many cancers including #kidneycancer The NHS is launching a Quit smoking campaign this New Year, including an app with a free personal quit plan to help people make healthier choices. Read more: actionkidneycancer.org/quit-smoking...

Is there someone special in your life you would like to show your appreciation to? Our glass hearts are a great way to do this, it could not be easier, to find out how to do this, please follow the link below: actionkidneycancer.org/get-involved...

(ESMO) has published a patient guide on immune-related side effects and their management. This will help families affected by kidney cancer better understand immunotherapy-related side effects and management. To find out more: actionkidneycancer.org/patient-guid...

Please save the date for our annual Northern Soul and Motown Charity All Day event on Sunday 10 August in Crewe for a full day of great music and dancing organised by the Pointon family. For info: actionkidneycancer.org/event/northe... #kidneycancer #bypatientsforpatients #StrongerTogether

A small study has shown that patients with advanced #kidneycancer who ate a diet high in fibre lived longer when treated with certain cancer drugs called immunotherapies. Read more: actionkidneycancer.org/high-fibre-d...

Is there someone special in your life you would like to show your appreciation to? Our glass hearts are a great way to do this, it could not be easer, to find out more please follow the link below: justgiving.com/campaign/gif... #giftaheart #kidneycancer #bypatientsforpatients

Please support us by wearing one of our charity wristbands or green ribbon pins, these are a great way to raise awareness of #kidneycancer To find out more and to make a purchase please follow the link below: actionkidneycancer.org/get-involved... #bypatientsforpatients #StrongerTogether

Please gift a heart to your friends and family this Christmas. These timeless glass hearts are symbols of kindness, friendship, support and thanks. For information please follow the link below: actionkidneycancer.org/get-involved... #giftaheart #kidneycancer #StrongerTogether

We supported the renal oncology CNS and health care professionals from The Royal Surrey Cancer Centre to host a #kidneycancer patient day. This is a great way for patients and carers to share their experiences, learn about, treatments, dietary advice, exercise and much more. #StrongerTogether

Some affiliates of the @ikccorg.bsky.social attended the recent European Society for Medical Oncology Congress which was in Berlin. They attended to keep dated with the care and treatment of patients with #kidneycancer To read the kidney cancer highlights: actionkidneycancer.org/kidney-cance...

On the 13th October we hosted a #kidneycancer patient day in Sheffield with the Uro-Oncology team at Weston Park Hospital. Thank you to the patients and speakers who joined us on the day, their contribution ensured the day was excellent. Find out more actionkidneycancer.org/.../patient-...

We would like to say a massive thank you to Joanna and Mikaela who completed on the 12th October the Bournemouth Supernova 5K run to raise funds for us. We would also like to thank everyone who contributed to their fund raising. #kidneycancer #bypatientsforpatients #StrongerTogether

Earlier this week we hosted a #kidneycancer patient day in Truro with the help and support of the staff from Royal Cornwall Trust. We had speakers on a range of related topics and patients shared their experience of living with kidney cancer. Read more: actionkidneycancer.org/.../patient-...

#Stoptober, started today. People across the country are taking steps to stop smoking. Stopping isn't easy - but there is free NHS support, advice and tools that can make your journey easier. To find out more and get support: nhs.uk/better-healt... #Stoptober

As members of the Coalition for Reducing Bureaucracy in Clinical Trials, we have been working hard to reduce bureaucracy in clinical trials, both for clinical researchers & patients, focussing on: informed consent, safety reporting & regulatory guidelines. actionkidneycancer.org/coalition-fo...

We've been working hard with the National Institute for Health and Care Excellence, to create guide lines which aim to reduce variation in treatment between hospitals and prevent unnecessary surgery for the removal of kidney tumours. About the guideline: actionkidneycancer.org/first-nice-g...

Stoptober starts in one weeks time, to get the support you need to quit for good. Find out more: nhs.uk/better-healt...

The 2025 NKCA reveals that only 1% of kidney cancer patients in England joined clinical trials from 2020 to 2022. We are raising awareness to help more #kidneycancer patients access innovative treatments through trial participation. Read more here: actionkidneycancer.org/audit-of-nhs...

I is for..... In our own words, in this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of #kidneycancer Watch the videos: actionkidneycancer.org/help.../in-o... #bypatientsforpatients #StrongerTogether