What’s next for PIPAC in the U.S.? 🌎 Dr. Mustafa Raoof of City of Hope, Duarte Cancer Center, will share the latest updates and future directions at the 2025 #AppendixCancer Multi-Regional Symposium. Save Your Spot: events.zoom.us/ev/AlbNeGm7q... #PIPAC #CityofHope

The AROD Strong Kickball Tournament, Walk, and BBQ raised more than $7,300 to honor Anthony "AROD"’s memory and support appendix cancer research, education, and awareness. Thank you to everyone who joined, played, and supported this amazing day. 💛 #AppendixCancer #ARODStrong

💛 #AppendixCancer Awareness Month 2025 = Global Impact. ✨ 143 landmarks lit in 4 countries ✨ 58 new recurring donors ✨ 332 news outlets + 101 radio stations ✨ 8M reached in our first global ad campaign Thank you for standing with us. Watch the full recap! #AmberforAppendixCancer

This clinical trial of a vaccine as a potential new treatment for PMP is supported in part by an ACPMP Catalyst Research Grant awarded to Dr. Flatmark. We are grateful to our donors for making this support possible, and to Dr. Flatmark and her team for their years of dedication! #pseudovax

🎗️ History Made in Wisconsin 🎗️ @govevers.wisconsin.gov has issued an official proclamation declaring August as #AppendixCancer Awareness Month in Wisconsin - Our first-ever statewide proclamation! This was made possible by Deborah Stalsberg, ACPMP volunteer, patient, and proud Wisconsin resident 💛

Please join us in celebrating ACPMP Medical Advisory Board member Dr. John Paul Shen, a physician-scientist at @mdanderson.bsky.social, for being recognized by @conquercancer.bsky.social, for his work to improve outcomes for patients w/ #appendixcancer! Read more: www.conquer.org/cancer-resea...

ACPMP is proud to fund two $50K Catalyst Research Grants through the @nordrare.bsky.social #RareDisease Research Program. These grants will support scientific and/or clinical research related to #AppendixCancer/PMP Apps due: October 12, 2025 Apply now: rarediseases.org/advancing......

#Appendixcancer patients & caregivers: we want to hear from YOU 💛 Dr. Kimberly Kopecky's new CRS/HIPEC study aims to improve care & support, and your feedback can help shape it. 10 mins to complete: uab.co1.qualtrics.com/jfe/form/SV_... *Funded by ACPMP: $25K @socsurgonc.bsky.social YI Award*

Registration is now open for the 2025 Appendix Cancer Symposium – our biggest educational event of the year! 📅 Friday, Oct 17 | 10 AM–4:30 PM ET | Online & Free events.zoom.us/ev/AlbNeGm7q... Moderated by Atrium Health Levine Cancer, @huntsmancancer.bsky.social & @yaleschoolofmed.bsky.social

ACPMP is yet again funding the $100K Lisa Kurtz Luciano Clinical Investigator Award + $25K @socsurgonc.bsky.social Young Investigator Award—both focused solely on #appendixcancer & PMP. Applications now open: surgonc.org/resources/re... #RareCancer #RareDiseaseResearch

Join us TONIGHT at 7 PM EST! Get your questions about CRS/HIPEC answered. events.zoom.us/ev/AkYvSm_lq...

Facing appendiceal cancer brings tough decisions & emotions for patients and caregivers. Join us for an open convo with Drs. Greenbaum & Kopecky on what to expect before surgery & the important role caregivers play. This free webinar includes a live Q&A - Register: events.zoom.us/ev/AkYvSm_lq...

Our Scientific Advisory Board Chair, @drholowatyj.bsky.social, recently spoke with @nc5official.bsky.social about the new research showing that Gen X-ers & older Millennials are 3-4 times more likely to be diagnosed with #appendixcancer compared to previous generations. Watch:

A study led by our Scientific Advisory Board Chair, @drholowatyj.bsky.social, found that #appendixcancer rates have quadrupled among Millennials. ACPMP is proud to have contributed funding to this research alongside NIH. www.acpjournals.org/doi/10.7326/... @nytimes.com @oncodaily.bsky.social

Join us in congratulating the Chair of ACPMP's Scientific Advisory Board, @drholowatyj.bsky.social, on her well-deserved '40 Under 40 in Cancer' award! Dr. Holowatyj's research is focused on early-onset cancers, including #appendixcancer #raredisease @natrevcancer.nature.com @oncoalert.bsky.social

So many cancer patients share the same emotional struggles, yet often feel alone in them. 💛 #PatientPower shares real insights in this survey from those impacted by cancer and loss. #NoOneFightsAlone #cancersurvivor

💛May is National Cancer Research Month! At ACPMP, we don’t just celebrate research—we invest in it. Applications are now open for our $150K Changemaker Grant to fund bold, high-impact #appendixcancer & PMP research. 📅 Apply by Sept 1, 2025 👉 acpmp.org/research/150... #cancerresearch #rarecancer

ACPMP exhibited at the 2025 @theaacr.bsky.social Annual Meeting in Chicago, April 25-30! We connected with nearly 150 new healthcare professionals, gave out educational materials & shared about our new $150K Grant. ACPMP’s presence continues to amplify the conversation around this #raredisease.

Applications now open for new $150K 2-Year Global Changemaker Grant for #appendixcancer /PMP research! Focus areas align with ACPMP Think Tank priorities ( @drholowatyj.bsky.social et al. @natrevcancer.nature.com, 2025). Apply by 9/1/25! Learn more: acpmp.org/research/150... @oncoalert.bsky.social

Dr. Muhammad Talha Waheed of @cityofhope.bsky.social spoke with #CancerNetwork about new research presented at #SSO2025. His findings suggest staged colectomy may offer survival benefits over upfront colectomy in #appendixcancer. Full article & transcript: www.cancernetwork.com/view/staged-...

🚨 Expert Recommendation 🚨 @drholowatyj.bsky.social @acpmpresearch.bsky.social et al. explore the unique challenges of studying #appendicealcancer & propose a framework to advance research on this #raredisease. Now FREE to access! 👇

We're "hunting a rare cancer" 🍃🗺️‼️ How? Get the FREE article here: nature.com/articles/s41... Inspired by the first research map for #appendicealcancer to chart us to groundbreaking discoveries for our pts, 🔎 at creative cover art on @natrevcancer.bsky.social April issue! @acpmpresearch.bsky.social

🎗 Our Clinical Trials Database Just Got Bigger! We’ve updated the status of trials listed previously and added close to 150 new trials to our #ClinicalTrials Database, offering patients more opportunities to explore clinical trials for #appendixcancer. Explore: acpmp.org/research/cli...

In this Expert Recommendation, @drholowatyj.bsky.social &Co cover the current state of the field in #AppendicealCancer and propose a conceptual research framework to advance knowledge of this rare cancer to deliver better outcomes for patients. #RareDiseaseDay @acpmpresearch.bsky.social#AppendicealCancer#RareDiseaseDay 📖 ⬇️

Calling all researchers! The Oxford-Harrington Rare Disease Scholar Award is accepting applications - this could be a great opportunity for researchers studying #rarediseases like #appendixcancer. Learn more & apply: www.oxfordharrington.org/funding/over... #RareCancerResearch #ResearchFunding

Today is #RareDiseaseDay 🌍🎗️ We stand in solidarity with the global community to raise awareness for those affected by rare diseases, including #appendixcancer and PMP. Learn more: acpmp.org/event/rare-d... #ShowYourStripes

“I’ve learned that life isn’t about avoiding challenges, but about how we face them.” Watch Melissa's inspiring story in honor of Rare Disease Day this Friday, February 28th here: youtu.be/gWRPuCOVgqw #RareDiseaseDay #PatientStory #ShowYourStripes #AppendixCancer

BREAKING: Announcing a @natrevcancer.bsky.social article from Scientific Think Tank sponsored by ACPMP & led by @drholowatyj.bsky.social .This landmark research roadmap defines key priorities to advance #AppendixCancer research, diagnosis & treatment! learn more: acpmp.org/the-appendix...

Honored to sponsor the 2025 @socsurgonc.bsky.social ACT Conference ! ACPMP funded the inaugural $100K Lisa Kurtz Luciano CIA award, awarded to Dr. Oliver Eng & $25K YIA awarded to Dr. Kimberly Kopecky! Congrats also to 8 ACPMP-funded travel award recipients at #ACT2025! #AppendixCancer

Thanks to the generosity of our donors, ACPMP is proud to fund two 2025 @socsurgonc.bsky.social research grants focused solely on #appendixcancer & PMP, including one brand new & significant $100K grant named in memory of our founder! Congrats to all recipients of the 2025 SSO Research Grants!

A study published in npj Precision Oncology identified a favorable response of BRAF-mutant appendiceal adenocarcinoma to BRAF-targeted therapy.Led by Dr.John Paul Shen, a member of ACPMP's Medical Advisory Board, this research offers potential promise for #appendixcancer patients w/ a BRAF mutation

Please join us in welcoming Dr. Reetesh Pai to the ACPMP Medical Advisory Board! Dr. Pai is a Professor of Pathology at Pittsburgh School of Medicine & Director of GI Pathology @upmc.com & is internationally known for his expertise in appendiceal & colorectal #pathology. acpmp.org/about-us/med...

Dr. Joseph Misdraji, a pathologist at @yaleschoolofmed.bsky.social is retiring from his distinguished medical career & his role on ACPMP's Medical Advisory Board. We thank him for his many years of service, patient advocacy, & commitment to advancing treatment & research in #appendixcancer. 🎗️

We are proud to fund these up-and-coming researchers to attend the SSO ACT conference and present their research, covering diverse areas of inquiry to drive new approaches to diagnosing and treating #appendixcancer! Congrats, recipients! #[email protected]

February is National Cancer Prevention Month 🎗️ Explore resources, tips, and strategies for prevention: acpmp.org/national-can... #cancerprevention #appendixcancer #appendicealcancer

🎗 Major update! Our Find a Specialist tool now includes an additional 49 additional surgical oncologists, 27 medical oncologists, and specialists in 3 more states + internationally. A powerful resource for #appendixcancer patients & caregivers! Find a specialist: acpmp.org/patients/fin...

New research from @drholowatyj.bsky.social, ACPMP Scientific Advisory Board Chair & co-authors highlights patients with #appendixcancer have a 7.5% risk of 2nd primary cancer within 10 years. Awareness & continued research are key to better outcomes for survivors! @curetoday.bsky.social

I’ll share this forever. Listen to your body. Trust your intuition. I wrote off my symptoms as being a woman. Nope. stage IV cancer. If your doctor ignores or dismisses you, get a new one. Young people are often dismissed as we’re not supposed to get cancer. This prolongs diagnosis and treatment.

Early detection of #appendixcancer can save lives. Symptoms like abdominal pain, bloating, increased girth, hernia, ascites, and pelvic pain in women are often misdiagnosed. If you have any of these, consult your healthcare provider & ask about appendix cancer. acpmp.org/about-appendix-cancer/

Save the date! 🗓️ Join us for the 2025 #AppendixCancer Global Walk, June 7th-15th. Let’s walk together to raise awareness, fund research and support those impacted by appendix cancer. Every step counts! 💙 Early registration coming soon! #AppendixCancerWalk25 #RareCancer #RareDisease

🌟 New Year, Same Mission 🌟 As we step into 2025, we want to welcome new followers & remind everyone why we’re here: To Fund & Support Critical #AppendixCancer Research, Education & Awareness with the ultimate goal of finding a cure for all. View your impact from 2024: acpmp.org/.../2024/12/...

🧬 New findings suggest that although appendiceal adenocarcinoma appears less likely to shed ctDNA than other types of cancer, it has some clinical utility. Detectable #ctDNA was found more frequently in high-grade, signet ring & colonic-types of #appendixcancer pubmed.ncbi.nlm.nih.gov/39679931/

🎉 Big news! We're excited to welcome Kim Rowsome, M.P.A. & Dustin Royster to the ACPMP Board! Their passion, expertise & dedication will help us advance research, support patients, and inspire hope. 🧡 Join us in giving them a warm welcome! Learn more: acpmp.org/about-us/boa... #AppendixCancer

🌟 For the 1st time, we've opened a 2nd Catalyst Grant cycle in the same year & funded a 3rd $50K grant! Congrats to Dr. Andrew Lowy (UCSD) for his research: Exploring Novel CDK 4/6 Inhibitor Combinations for Mucinous #AppendixCancer. Learn more: acpmp.org/research-ga/... #AppendixCancerResearch

🌟 Thank you for an incredible #GivingTuesday! 🌟 With your support & the generosity of the Living4Lindsey Foundation’s $10K matching donation, we raised an incredible $27,939.38 for #appendixcancer research & education, surpassing our $20K goal! #raredisease @givingtuesday.bsky.social

The Living 4 Lindsey Foundation has generously pledged a $10K matching donation for #GivingTuesday in memory of Lindsey Jacob, after a brave battle with appendix cancer. Double Your Donation now through Dec 3: secure.acpmp.org/campaign/631... #appendixcancer #findacure #raredisease #rarecancer

In honor of National Family Caregivers Month, remember that your well-being matters! Here are five essential self-care tips to help you recharge and stay balanced: 1️⃣Set Boundaries 2️⃣Practice Mindfulness 3️⃣Seek Support 4️⃣Prioritize Physical Health 5️⃣Indulge in Hobbies

Let’s debunk some common myths about appendix cancer! From its rarity to treatment options, understanding the facts can help raise awareness and support those affected. Together, we can spread knowledge and hope! 💙

🎨 Less than one week to join our Shades of Amber: Creative Contest for a Cure for #GivingTuesday! Submit your amber-inspired artwork by Nov 17. Voting: Nov 18 - Dec 3 Entry: $15+ donation Prizes for top 3 https://secure.acpmp.org/campaign/631770/donate

Calling all artists! Join #ShadesofAmber: Creative Contest for a Cure! Need some inspiration? Here are some creative prompts to help spark your amber-themed artwork. Apply by Nov 17: https://acpmp.org/event/shades-of-amber-2024/#ShadesofAmber#appendixcancer #artcontest #callforartists...