As a part of #WorldHealthDay, check out this article from @mdanderson.bsky.social w/ insights from Dr. John Paul Shen & Dr. Beth Helmink. Their expertise highlights why #appendixcancer is so difficult to diagnose and why continued education and research matter. www.mdanderson.org/cancerwise/3...

20 Years of Making a Difference: Join the 2026 #AppendixCancer Global Walk. Walk where you are or join a State Walk event! June 13-21, 2026. Register today: secure.acpmp.org/appendixcancerwalk2026

Join our upcoming webinar with Dr. Laura Lambert & team at NYU Langone Health reviewing #NCCN updates relevant to #AppendixCancer. Evidence-based guidance supports informed care decisions. Register today: events.zoom.us/ev/ApL5GXBWt... #RareDisease #CancerGuidelines

The first dedicated #AppendixCancer Patient-Powered Registry is advancing research through real-world data. Participation helps researchers better understand diagnosis, treatment, and survivorship. Learn more: acpmpregistry.iamrare.org

On @rarediseaseday.bsky.social , we’re proud to spotlight a new #CME course developed in partnership w/ @medicalcollegeofwi.bsky.social: The Neoplastic Appendix: When to Watch, When to Act, When to Refer. Learn more & Register here: ocpe.mcw.edu/node/229093... #AppendixCancer #AppendicealCancer

Have you been diagnosed with cancer in the past 2 years & met with a surgeon about possible surgery? Researchers at UAB are conducting a brief, anonymous survey about how patients experience conversations around cancer surgery. uab.co1.qualtrics.com/jfe/form/SV_... #appendixcancer #cancerresearch

Honored to be a sponsor yet again for the 2026 @socsurgonc.bsky.social ACT Conference! ACPMP funded the $100K Lisa Kurtz Luciano CIA grant, awarded to Dr. Beth Helmink & $25K YIA awarded to Dr. Jeremy Sharib. Congrats also to ACPMP-funded travel award recipients at #ACT2026! #AppendixCancer

ACPMP is proud to yet again fund two 2026 @socsurgonc.bsky.social research grants focused solely on #appendixcancer & PMP. Congrats to Beth Helmink, MD, PhD recipient of the $100K Lisa Kurtz Luciano Appendix Cancer and PMP CIA grant, and Jeremy Sharib, MD, recipient of the $25K YIA grant!

Join us on Thursday, January 29th, at 7 PM for upcoming webinar: HIPEC vs. PIPAC: Exploring a New Clinical Trial for #AppendixCancer Patients Not Eligible for Cytoreductive Surgery, led by Dr. Wagner & Dr. Altpeter of Allegheny Health Network. Register Today: acpmp.org/hipecvspipac

We are proud to announce Michael Foote, MD of @mskcancercenter.bsky.social as the first-ever recipient of our $150K ACPMP Changemaker Research Grant for his research project, “Targeting the Surface Proteome of Appendiceal Cancer Peritoneal Metastasis.” This research is made possible by our donors!🎗️

Why are more young adults getting appendix cancer? Check out @mdanderson.bsky.social Cancerwise podcast featuring Drs. Beth Helmink and JP Shen as they offer a clear overview of #appendixcancer and current approaches to care. 📷 Watch the episode here: youtu.be/ot5dbXsKIvg

🌟 Day 5 of 12 Days of Impact: Expanding Awareness at Medical Conferences In 2025, ACPMP exhibited at leading medical conferences to raise awareness about #appendixcancer, correct misconceptions, and engage directly with clinicians and researchers.

🌟 Day 4 of 12 Days of Impact: Patient Stories We’re honored to be a trusted source of support and information for those affected by #appendixcancer. Your support makes this possible! 💛 acpmp.org

🌟 Day 3 of 12 Days of Impact: Research in 2025 In 2025, your support powered major investments in appendix cancer research. Your generosity makes this progress possible. Thank you for fueling #appendixcancer research. 💛

🌟 Day 2 of 12 Days of Impact: #AppendixCancer Awareness Month A huge thank you to our volunteers, supporters, and partners for your dedication this past August!

Join us for 12 Days of Impact! 🌟 Each day, we'll share stories and milestones made possible by your support. #Appendixcancer affects 2-9 people per million annually, but it is serious and on the rise. Let's raise awareness, inspire hope and advance research.

Remembering Stuart Scott today. His #appendixcancer journey touched so many and brought rare visibility to this disease. @espn.com honors his legacy Wed, Dec 10 at 9 PM ET with the 30x30 film Boo-Yah: A Portrait of #StuartScott. Preview: www.espn.com/video/clip?i...

Congratulations to the Top 3 Winners of the @givingtuesday.bsky.social 2025 Shades of Amber: Creative Contest for a Cure! Thank you to every artist who shared their amber-inspired work and to everyone who voted in support of #appendixcancer awareness. learn more: acpmp.org/event/shades...

"I want to help spread awareness, share knowledge & offer support. ACPMP has given me a platform not only to learn for myself, but to help others navigate this journey."- Melissa This #GivingTuesday, your support helps more patients find hope when they need it most. secure.acpmp.org/campaign/726...

A major milestone for the #appendixcancer community! The #NCCN has released dedicated Guidelines for Appendiceal Cancer, officially recognizing this #raredisease as distinct from colorectal cancer. Read more about this important step forward: oncodaily.com/insight/nccn... @oncodaily.bsky.social

Missed the live sessions from the 2025 #AppendixCancer Symposium? Recordings are now available! Catch fundamentals education, research updates, and expert sessions at your own pace. Watch the recordings: youtube.com/playlist?lis... @yaleschoolofmed.bsky.social @huntsmancancer.bsky.social

The voice of patients unites at #PSOGI2025! On Oct 30 in Barcelona, patient advocates from 🇪🇸🇬🇧🇫🇷🇺🇸 will present the 1st Patient Manifesto on Peritoneal Malignancies, highlighting shared needs, challenges & hopes. #PatientVoice #RareCancer #AppendixCancer @pmpsurvivor.bsky.social @mesouk.bsky.social

Learn why cancer immunotherapies sometimes fail—and how a new study out of @osucccjames.bsky.social could lead to improved treatments.

The voice of patients unites at #PSOGI2025 🇪🇸 On Oct 30 in Barcelona, the first International Patient Manifesto on Peritoneal Malignancies will be presented - a global, patient-led initiative co-developed by 7 orgs from 5 countries, including ACPMP. @pmpsurvivor.bsky.social @mesouk.bsky.social

New to the Appendix Cancer Symposium? Here’s what to expect: ➡️ Expert presentations on diagnosis, treatment & research ➡️ Mock Tumor Board discussion of real patient cases ➡️ Live Q&As throughout the day ➡️ Regional breakout sessions focused on practical needs events.zoom.us/ev/AlbNeGm7q...

In this insightful Q&A, Dr. Kiran Turaga discusses the increasing incidence of #appendixcancer cases & the progress being made in research & treatment. Dr. Turaga will also be joining us as a moderator for our Appendix Cancer Symposium on Oct 17! Read more: www.yalemedicine.org/news/from-sy...

What’s next for PIPAC in the U.S.? 🌎 Dr. Mustafa Raoof of City of Hope, Duarte Cancer Center, will share the latest updates and future directions at the 2025 #AppendixCancer Multi-Regional Symposium. Save Your Spot: events.zoom.us/ev/AlbNeGm7q... #PIPAC #CityofHope

The AROD Strong Kickball Tournament, Walk, and BBQ raised more than $7,300 to honor Anthony "AROD"’s memory and support appendix cancer research, education, and awareness. Thank you to everyone who joined, played, and supported this amazing day. 💛 #AppendixCancer #ARODStrong

💛 #AppendixCancer Awareness Month 2025 = Global Impact. ✨ 143 landmarks lit in 4 countries ✨ 58 new recurring donors ✨ 332 news outlets + 101 radio stations ✨ 8M reached in our first global ad campaign Thank you for standing with us. Watch the full recap! #AmberforAppendixCancer

This clinical trial of a vaccine as a potential new treatment for PMP is supported in part by an ACPMP Catalyst Research Grant awarded to Dr. Flatmark. We are grateful to our donors for making this support possible, and to Dr. Flatmark and her team for their years of dedication! #pseudovax

🎗️ History Made in Wisconsin 🎗️ @govevers.wisconsin.gov has issued an official proclamation declaring August as #AppendixCancer Awareness Month in Wisconsin - Our first-ever statewide proclamation! This was made possible by Deborah Stalsberg, ACPMP volunteer, patient, and proud Wisconsin resident 💛

Please join us in celebrating ACPMP Medical Advisory Board member Dr. John Paul Shen, a physician-scientist at @mdanderson.bsky.social, for being recognized by @conquercancer.bsky.social, for his work to improve outcomes for patients w/ #appendixcancer! Read more: www.conquer.org/cancer-resea...

ACPMP is proud to fund two $50K Catalyst Research Grants through the @nordrare.bsky.social #RareDisease Research Program. These grants will support scientific and/or clinical research related to #AppendixCancer/PMP Apps due: October 12, 2025 Apply now: rarediseases.org/advancing......

#Appendixcancer patients & caregivers: we want to hear from YOU 💛 Dr. Kimberly Kopecky's new CRS/HIPEC study aims to improve care & support, and your feedback can help shape it. 10 mins to complete: uab.co1.qualtrics.com/jfe/form/SV_... *Funded by ACPMP: $25K @socsurgonc.bsky.social YI Award*

Registration is now open for the 2025 Appendix Cancer Symposium – our biggest educational event of the year! 📅 Friday, Oct 17 | 10 AM–4:30 PM ET | Online & Free events.zoom.us/ev/AlbNeGm7q... Moderated by Atrium Health Levine Cancer, @huntsmancancer.bsky.social & @yaleschoolofmed.bsky.social

ACPMP is yet again funding the $100K Lisa Kurtz Luciano Clinical Investigator Award + $25K @socsurgonc.bsky.social Young Investigator Award—both focused solely on #appendixcancer & PMP. Applications now open: surgonc.org/resources/re... #RareCancer #RareDiseaseResearch

Join us TONIGHT at 7 PM EST! Get your questions about CRS/HIPEC answered. events.zoom.us/ev/AkYvSm_lq...

Facing appendiceal cancer brings tough decisions & emotions for patients and caregivers. Join us for an open convo with Drs. Greenbaum & Kopecky on what to expect before surgery & the important role caregivers play. This free webinar includes a live Q&A - Register: events.zoom.us/ev/AkYvSm_lq...

Our Scientific Advisory Board Chair, @drholowatyj.bsky.social, recently spoke with @nc5official.bsky.social about the new research showing that Gen X-ers & older Millennials are 3-4 times more likely to be diagnosed with #appendixcancer compared to previous generations. Watch:

A study led by our Scientific Advisory Board Chair, @drholowatyj.bsky.social, found that #appendixcancer rates have quadrupled among Millennials. ACPMP is proud to have contributed funding to this research alongside NIH. www.acpjournals.org/doi/10.7326/... @nytimes.com @oncodaily.bsky.social

Join us in congratulating the Chair of ACPMP's Scientific Advisory Board, @drholowatyj.bsky.social, on her well-deserved '40 Under 40 in Cancer' award! Dr. Holowatyj's research is focused on early-onset cancers, including #appendixcancer #raredisease @natrevcancer.nature.com @oncoalert.bsky.social

So many cancer patients share the same emotional struggles, yet often feel alone in them. 💛 #PatientPower shares real insights in this survey from those impacted by cancer and loss. #NoOneFightsAlone #cancersurvivor

💛May is National Cancer Research Month! At ACPMP, we don’t just celebrate research—we invest in it. Applications are now open for our $150K Changemaker Grant to fund bold, high-impact #appendixcancer & PMP research. 📅 Apply by Sept 1, 2025 👉 acpmp.org/research/150... #cancerresearch #rarecancer

ACPMP exhibited at the 2025 @theaacr.bsky.social Annual Meeting in Chicago, April 25-30! We connected with nearly 150 new healthcare professionals, gave out educational materials & shared about our new $150K Grant. ACPMP’s presence continues to amplify the conversation around this #raredisease.

Applications now open for new $150K 2-Year Global Changemaker Grant for #appendixcancer /PMP research! Focus areas align with ACPMP Think Tank priorities ( @drholowatyj.bsky.social et al. @natrevcancer.nature.com, 2025). Apply by 9/1/25! Learn more: acpmp.org/research/150... @oncoalert.bsky.social

Dr. Muhammad Talha Waheed of @cityofhope.bsky.social spoke with #CancerNetwork about new research presented at #SSO2025. His findings suggest staged colectomy may offer survival benefits over upfront colectomy in #appendixcancer. Full article & transcript: www.cancernetwork.com/view/staged-...

🚨 Expert Recommendation 🚨 @drholowatyj.bsky.social @acpmpresearch.bsky.social et al. explore the unique challenges of studying #appendicealcancer & propose a framework to advance research on this #raredisease. Now FREE to access! 👇

We're "hunting a rare cancer" 🍃🗺️‼️ How? Get the FREE article here: nature.com/articles/s41... Inspired by the first research map for #appendicealcancer to chart us to groundbreaking discoveries for our pts, 🔎 at creative cover art on @natrevcancer.bsky.social April issue! @acpmpresearch.bsky.social

🎗 Our Clinical Trials Database Just Got Bigger! We’ve updated the status of trials listed previously and added close to 150 new trials to our #ClinicalTrials Database, offering patients more opportunities to explore clinical trials for #appendixcancer. Explore: acpmp.org/research/cli...

In this Expert Recommendation, @drholowatyj.bsky.social &Co cover the current state of the field in #AppendicealCancer and propose a conceptual research framework to advance knowledge of this rare cancer to deliver better outcomes for patients. #RareDiseaseDay @acpmpresearch.bsky.social#AppendicealCancer#RareDiseaseDay 📖 ⬇️