🌍 While 300 million people worldwide live with a rare disease, funding is limited. 💜 Equity for rare diseases means investing more where it’s needed most. Learn more about equity: https://go.rarediseaseday.org/equity #RareDiseaseDay #EquityForRare

🌟 Meet siblings Ayca and Burak, who both live with SMA and have achieved breakthroughs at different levels. For them, equity means breaking down barriers through greater understanding of rare diseases. 👉 Learn more this #RareDiseaseDay: https://www.rarediseaseday.org/toolkits/

🎙️ The countdown to #RareDiseaseDay continues — and #RareOnAir Stories is back! 💜 In this episode, we meet Hong-Ahh, whose son Léon lives with #LAMA2 congenital muscular dystrophy — a story of parental love and hope against the odds. 🎧 Listen now: https://www.eurordis.org/rare-on-air/

⏰ The countdown continues…ONE MONTH until #RareDiseaseDay! How are you going to #LightUpForRare of #ShareYourColours? We want to know! 🌍 Explore toolkits & events to get involved: https://go.rarediseaseday.org/RDD#RareDiseaseDay#LightUpForRare#ShareYourColours?#RareDiseaseCommunity

🧬 People living with a rare disease often wait years for answers. 💜 Equity means every person deserves the same chance to benefit from a treatment for their condition. 👉 Learn more: https://go.rarediseaseday.org/equity #RareDiseaseDay#TreatmentAccess

🌟 Meet Micah, one of our 2026 heroes and an advocate for more community than you can imagine for those living with a rare disease. 👉 Find YOUR community this #RareDiseaseDay: https://go.rarediseaseday.org/friends

Not attending in person? 🔔 Not to worry, the panel discussion will be livestreamed on YouTube: https://go.rarediseaseday.org/livestream #RaisingYouthVoices2026 #RareDiseaseDay

👶 For children with genetic rare diseases, the rare disease journey often starts early. 💜 Equity for rare diseases means giving every child, everywhere, an equal start in life. 👉 Learn more:https://go.rarediseaseday.org/equity #RareDiseaseDay #EquityForRare

💡 How does #LightUpForRare work in practice? Our new #casestudy explores how organisations in Northern Ireland, Ukraine & Ghana brought the initiative to life, demonstrating how a global initiative can be used to drive by local action. 🔗 Read now: https://go.rarediseaseday.org/casestudy

🎙️ As #RareDiseaseDay 2026 nears, #RareOnAir Stories continues! 💜 In this episode, we meet Jessa, an 18-year-old living with #EDS, #MCTD & juvenile arthritis, proving resilience and hope can redefine what’s possible. 🎧 Listen now: https://www.eurordis.org/rare-on-air/

💜 For people living with a rare disease, equity means recognising unique needs & breaking down barriers — so everyone can fully participate in life, education & work. ⚖️ Equity ≠ equality. It’s fairness in action. https://go.rarediseaseday.org/equity #EquityForRare #RareDiseaseCommunity

🎙️ As #RareDiseaseDay 2026 nears, #EURORDISRareOnAir Stories continues! 💜 In this bonus episode, we meet Ken, a full-time caregiver for his mother with #HuntingtonsDisease. 🎧 Listen now:https://www.eurordis.org/rare-on-air/

💜 For many living with rare diseases, diagnosis takes years, or never comes. Nellie, Monique and many others shared their unique diagnostic journeys, you can too! 👉 Read more stories here: https://go.rarediseaseday.org/heroes #EquityInDiagnostics #RareDiseaseCommunity

💜 Equity in diagnostics means everyone, no matter their age, gender, race, or circumstances, deserves the same chance at a timely diagnosis. Awareness is the first step to closing the gaps so learn more here: https://go.rarediseaseday.org/equity #RareDiseaseDay #EquityInDiagnostics

Mental health and rare disease are deeply connected, but Rachel’s story is a powerful reminder that hope and purpose can grow from even the hardest experiences. 💜 Read it here: https://go.rarediseaseday.org/Rachel #RareDiseaseDay

💜Living with a rare disease can impact every corner of a person’s life. This month we’re raising awareness of mental health in the rare disease community, recognising the importance of open conversations. Learn more here:https://go.eurordis.org/mentalhealth #RareDiseaseDay #MentalHealth

💜Meet our young heroes! They’re sharing their stories to inspire others and shape the future of the rare disease community. 👉 You can read more heroes' stories here: https://go.rarediseaseday.org/heroes #RareDiseaseDay #YoungVoices #ShareYourColours

This week we’re highlighting the caregivers, families, siblings, and friends who make a difference to the lives of people living with a rare condition every day. 💬 Tag someone you want to thank! #RareDiseaseDay #Caregivers #RareDiseaseCommunity

📣 The Raising Youth Voices is a panel + networking session discussion designed to ensure that young people are included in the discussions shaping the future of rare disease policy. 👉 Register to attend in Barcelona here: https://go.rarediseaseday.org/voices #RaisingYouthVoices2026

🎙️ As #RareDiseaseDay 2026 approaches, #EURORDISRareOnAir Stories continues! 💜 In this episode, we meet Christine, who was diagnosed with #GPA at 24 and turned her 14-year journey through illness and recovery into advocacy and hope. 🎧 Listen now: https://www.eurordis.org/rare-on-air/

🧬 Each rare disease has its own set of challenges, symptoms, and experiences. For many, there are few or no treatment options. 💜Equity means ensuring everyone has the same chance to participate in and benefit from research. Learn More: https://go.rarediseaseday.org/equity #RareDiseaseDay

In-person registrations are now open for #RaisingYouthVoiceS2026 in Barcelona! 🎉 Join our Regional Representatives and other young leaders! 👉Register now: go.rarediseaseday.org/voices 🌍 Will also be livestreamed on YouTube. @nordrare.bsky.social @rarediseasesint.bsky.social

🌍✨ Join the global chain of lights this #RareDiseaseDay! Whether you’re a family lighting up your home or an organisation joining from the office, every light adds to our global chain of lights.🌆🏠 Access our toolkits here: https://go.rarediseaseday.org/LIGHTUP#RareDiseaseDay#LightUpForRare #ShareYourColours

Meet our 6 Regional Reps for Raising Youth Voices 2026! These young leaders are joining us in Barcelona to help shape the future of the rare disease community! Follow their organisations and stay tuned for event registrations. #RaisingYouthVoices2026 Pablo Ramirez Uribe

🎙️ The countdown to #RareDiseaseDay continues, and #EURORDISRareOnAir Stories is back! 💜 In this episode, we meet Annarita who lives with #CharcotMarieTooth disease type 2Z, and discover how dance helped her rediscover strength and joy. 🎧 Listen now: https://www.eurordis.org/rare-on-air/

🌍💡 The global chain of lights keeps growing! Join #LightUpForRare by lighting up your building or landmark — use our Illuminations Toolkit to get started: https://go.rarediseaseday.org/LIGHTUP#LightUpForRare 💬 Already joined? Comment & tell us where you saw lights last year! #RareDiseaseDay #ShareYourColours

💜It’s inspiring to see what collaboration can achieve! Events like this strengthen the rare disease community and remind us how powerful we are together. 📍Share YOUR event & find others near you: https://go.rarediseaseday.org/event #RareDiseaseDay2026 #RareDiseaseCommunity

✨Nicole’s story shows that you can change the narrative and take control, no matter the challenges you face. Born with Primary Lymphedema–WILD Syndrome, she’s raising awareness and empowering others through fashion! 📣Share your story: https://go.rarediseaseday.org/share #RareDiseaseDay

🎙️ 100 days to #RareDiseaseDay! 💜 #EURORDISRareOnAir Stories return with Ahmed, who reflects on his global career and how living with #PCD has deepened his strength and purpose. 🎧 Listen to his inspiring story: https://www.eurordis.org/rare-on-air/

The 100-day countdown to #RareDiseaseDay begins! Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease. Full video 🎥 youtu.be/7J1oTfoIOGw Let’s bring about equity in more ways than even we can imagine! #ShareYourColours

⚖️Equality treats everyone the same. Equity means recognising different needs and providing the right support so everyone can reach fair outcomes 🌍. On #RareDiseaseDay, we call for equity for 300M people worldwide 💜. 🔗 Explore the toolkit and join the movement: https://go.rarediseaseday.org/equity

Every year on the last day of February (either the 28, or 29 in leap years - the rarest day 💫) the 300M people living with a rare disease come together to call for equity for our community. How can you get involved? Learn more: https://go.rarediseaseday.org/rdd

A disease is considered rare when it impacts fewer 1 in 2,000 people. But, did you know that over 300 million people worldwide are living with a rare disease? That’s 3.5%-5.9% of the world’s population. 💚Learn more at rarediseaseday.org