Arlene Jackson
@arlenejackson.bsky.social
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Writer, researcher, PhD student
A real honour to have contributed to
@lsereviewofbooks.bsky.social
on the important and prescient issue of the social care crisis via this review.
#DisabilityHistoryMonth
#disability
#chronicillness
#socialcare
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about 1 month ago
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💕 Thank you
@fullhouselitmag.bsky.social
for supporting this piece.
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about 2 months ago
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My second
#Ekphrasis
piece inspired by AshleyCook’s art and my lived experience of
#chronicillness
#ME
is now live on the wonderful
#DisabledTales
. Involving the myth of the siren, Wolf Larsen and even a Beatles reference! 😌
www.disabledtales.co.uk/essays/the-l...
#pwme
#lyrics
#greekmyths
7 months ago
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So honoured to have contributed to
@the-polyphony.bsky.social
In Practice series. Thank you so much
@alyfixit.bsky.social
for your support of this piece 😌
#writing
#medicalhumanities
#pwme
#chronicillness
#art
#photography
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8 months ago
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Arlene Jackson
Esther
9 months ago
So sad to see this happening.
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@itslauracasey.bsky.social
🤩💕
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9 months ago
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Arlene Jackson
Tara Dublin, Rock Star Author📚❤️🔥🤘🏻
9 months ago
True facts are true
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Arlene Jackson
Cold War Steve
9 months ago
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Arlene Jackson
Yann (ME/LC)
9 months ago
A german charity is planning on building a social housing project for people with severe ME. Tailored vis à vis noise/light reduction, 24hr assistance etc. Location: Neunkirchen-Seelscheid They need 5 people interested. So please share. (Requirement to be on German Welfare)
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Wohnprojekt für schwer ME/CFS-Betroffene in Neunkirchen-Seelscheid: Interessenten gesucht! - Sozialhummel gGmbH
In Neunkirchen-Seelscheid ist ein Wohnprojekt speziell für schwer ME/CFS-Betroffene mit 24-Stunden-Assistenz in Planung. Ein Bauträger möchte in Zusammenarbeit mit Sozialhummel in 53819 Neunkirchen-Se...
https://sozialhummel.de/wohnprojekt-fuer-schwer-me-cfs-betroffene-in-neunkirchen-seelscheid-interessenten-gesucht/
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So happy that my little musing on the effort of meditation has been chosen as prose of the day by the wonderful Ink, Sweat and Tears
inksweatandtears.co.uk/arlene-jacks...
#flashfiction
#writing
#meditation
#inksweatandtears
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Arlene Jackson | Ink Sweat and Tears
https://inksweatandtears.co.uk/arlene-jackson/
9 months ago
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Arlene Jackson
Tom Kindlon
9 months ago
A huge amount of dissatisfaction and not much satisfaction regarding "NHS experience and specialist visits" from people with ME/CFS and to a slightly lesser extent people with long Covid in the UK From:
bmjopen.bmj.com/content/15/4...
#MEcfs
#LongCovid
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Arlene Jackson
Tom King
10 months ago
It turns out that saying 'this is not austerity' while simultaneously making and defending spending cuts... does not work.
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Arlene Jackson
Disability Rights UK
10 months ago
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Arlene Jackson
Frances Ryan
10 months ago
“Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it?” My col. for the people who are still in their own personal lockdown - and those in power who must finally help them.
www.theguardian.com/commentisfre...
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Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
https://www.theguardian.com/commentisfree/2025/mar/17/long-covid-pandemic-britain-power-lockdown-disease?CMP=Share_iOSApp_Other
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Thank you to
@sensecharity.bsky.social
for providing an accessible campaign template, enabling me to write to my MP
@gordonmckee.bsky.social
re
#disabiltycuts
more swiftly than I would otherwise be able. The fact we have to do this at all is shameful.
10 months ago
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Arlene Jackson
Sense
10 months ago
The government is planning to cut disability benefits. This could have a devastating impact on disabled people. We need as many MPs as possible to speak out against disability benefits cuts before they're announced as early as Monday. Ask your MP now:
action.sense.org.uk/page/167765/...
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Stop cuts to disability benefits | Sense
https://action.sense.org.uk/page/167765/action/1?ea.tracking.id=bsky-org
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Arlene Jackson
Glasgow Women's Library
10 months ago
There's still time to book your free ticket for tomorrow's Story Café. From awe-inspiring adventures to tales of love and longing, wonder and wanderlust, our Story Café is the perfect way to relax over lunchtime. Book here:
womenslibrary.org.uk/event/story-...
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Story Café | Glasgow Women's Library
Rediscover the joy of being read to, as we dip into stories and poems by some of the best women writers around.
https://womenslibrary.org.uk/event/story-cafe-69/#tribe-tickets__tickets-form
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Arlene Jackson
Long Covid Advocacy
10 months ago
🗞️ Article in
@theguardian.com
-includes section on
#LongCovid
“People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.” Full article:
tinyurl.com/2u6xe8jx
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Arlene Jackson
Frances Ryan
10 months ago
“Every time you see a headline on “the cost of the benefits bill”, what you are really reading is “the cost of disabled people”. My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work.
www.theguardian.com/commentisfre...
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There is a shameful tradition of demonising disabled people. Why is Labour reigniting it? | Frances Ryan
Ministers run away from a wealth tax and then concoct a punitive benefits system. They have made that choice and it’s immoral, says Guardian columnist Frances Ryan
https://www.theguardian.com/commentisfree/2025/mar/10/disabled-people-labour-benefits-system?CMP=Share_iOSApp_Other
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Hopeful! Potentially not only to harvest new antibiotics (as in article) but to further understand immune related conditions (my optimism!)
#research
#health
#chronicillness
www.bbc.co.uk/news/article...
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Scientists discover new part of the immune system
New part of the immune system - hidden inside our bodies - could be used to make new antibiotics.
https://www.bbc.co.uk/news/articles/cpv4jww3r4eo
10 months ago
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The first page of an article reporting the outcomes of the Glasgow Disability Alliance campaign I was involved in says it all on a day when this current incarnation of the Labour Party abandon their founding ethos YET AGAIN
#disabled
#activism
#austerity
#disabilitycampaign
10 months ago
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Arlene Jackson
Glasgow Women's Library
10 months ago
RSVP for our closing event with photographer Rayna Carruthers on Saturday 22 March Hear Rayna speak about her photography, the process and some of the ways she considers ethics within her practice. All welcome. RSVP here:
womenslibrary.org.uk/event/while-...
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While We Wait: Closing Event with Rayna Carruthers | Glasgow Women's Library
An opportunity to see this beautiful exhibition a week before it closes and to hear Rayna Carruthers speak about her photography, the process and some of the ways she considers ethics within her…
https://womenslibrary.org.uk/event/while-we-wait-closing-event-with-rayna-carruthers/
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10 months ago
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😂
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11 months ago
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Reading Intermezzo by S Rooney and dismayed by the overt ableism, esp re sexuality. Decided to repost my piece for The Polyphony as a riposte - a close reading of Samatha Renke’s memoir to discuss disabled sexuality through a lens of self-worth
#disability
#writing
#medicalhumanities
#booksky
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Reclaiming the Disabled Sexual Self
Arlene Jackson reflects on sexuality, empowerment and discrimination in Samantha Renke’s 2022 memoir ‘You are the Best Thing Since Sliced Bread’. Amongst the many themes in Samantha Renke’s memoir,…
https://thepolyphony.org/2023/03/29/disabled-sexual-self/
11 months ago
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Arlene Jackson
Brandy Schillace
11 months ago
PAYWALL FREE: A collection of protests from around the country on NOT MY PRESIDENT day:
#resist
#protest
brandy-schillace.medium.com/not-my-presi...
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Not My President Day Protests
Coverage collected from socials for the 50501 “no kings” day
https://brandy-schillace.medium.com/not-my-president-day-protests-9ce5d62fa4f6
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Arlene Jackson
Simon Marks
11 months ago
America, 2025
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Happy Burn’s Night all. Here’s to the continued appreciation of an enduring, eloquent, meaningful, working class voice, who recognised inequalities of power and hoped for a better world.
#burnsnight
#rabbieburns
#poetry
#radicalism
12 months ago
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Arlene Jackson
Lauren Walsh 🔜 MAGFest, ECCC
12 months ago
Creativity is like a houseplant, not an endless well. You need to seek out sunlight, water, and nutrients in art, shows, music, experiences, and more to tend to it. And just like plants it has its dormant and active periods and you may not seem improvement for some time.
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Living with
#chronicillness
can make building a snowman tough, but drawing one on a bin lid not only brought me just as much joy - it gave the bin men a smile too ⛄️😅💕
#snow
#disability
#adaptation
#photography
12 months ago
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Arlene Jackson
Lucy Burke
12 months ago
Austerity kills people, destroys lives and life chances, health and communities - the prospect of a so-called Labour Government making further cuts to an already decimated public sector is utterly sickening.
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Looking out of my window at midnight towards the fireworks across the city and wishing all a happy, peaceful New Year typically it’s taken me almost 24 hrs to post, but the sentiment remains ☺️
#newyear
#2025
#glasgow
#photography
📸 @arlene.jackson.bsky.social
about 1 year ago
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Happy Winter Solstice and Horray for the return of the light ⭐️ So pleased to have been able to have enjoyed the gift of nature earlier today.
#wintersolstice
#naturephotography
📸
@arlenejackson.bsky.social
about 1 year ago
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chng.it/9pH8LZn9zp
#ME
#patientadvocacy
#stigma
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Sign the Petition
ME Association Chair Neil Riley must step down
https://chng.it/9pH8LZn9zp
about 1 year ago
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With the case of Lucy Letby in the news again, it feels apt to post my critical piece on the dangers of the cultural beatification of nurses, wherein I discuss the case.
@bbcnews-uk-rss.bsky.social
#lucyletby
#nursing
#medicalhumanities
#writing
medicalhealthhumanities.com/2024/02/19/b...
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Beware the Cultural Beatification of Nurses - S Y N A P S I S
A few months in to our first year of nurse training at separate hospitals, my friend and I met for lunch. “I’d always assumed that nurses were lovely people,” my friend lamented as we swapped stories ...
https://medicalhealthhumanities.com/2024/02/19/beware-the-cultural-beatification-of-nurses/?amp=1
about 1 year ago
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