I bring together my experience of the menopause with ME in this piece for @the-polyphony.bsky.social. Many thanks to @alyfixit.bsky.social for supporting this work. #pwME #menopause #cyanotype #writing thepolyphony.org/2026/05/29/c...

A real honour to have contributed to @lsereviewofbooks.bsky.social on the important and prescient issue of the social care crisis via this review. #DisabilityHistoryMonth #disability #chronicillness #socialcare

💕 Thank you @fullhouselitmag.bsky.social for supporting this piece.

My second #Ekphrasis piece inspired by AshleyCook’s art and my lived experience of #chronicillness #ME is now live on the wonderful #DisabledTales. Involving the myth of the siren, Wolf Larsen and even a Beatles reference! 😌 www.disabledtales.co.uk/essays/the-l... #pwme #lyrics #greekmyths

So honoured to have contributed to @the-polyphony.bsky.social In Practice series. Thank you so much @alyfixit.bsky.social for your support of this piece 😌 #writing #medicalhumanities #pwme #chronicillness #art #photography

So sad to see this happening.

@itslauracasey.bsky.social 🤩💕

True facts are true

A german charity is planning on building a social housing project for people with severe ME. Tailored vis à vis noise/light reduction, 24hr assistance etc. Location: Neunkirchen-Seelscheid They need 5 people interested. So please share. (Requirement to be on German Welfare)

So happy that my little musing on the effort of meditation has been chosen as prose of the day by the wonderful Ink, Sweat and Tears inksweatandtears.co.uk/arlene-jacks... #flashfiction #writing #meditation #inksweatandtears

A huge amount of dissatisfaction and not much satisfaction regarding "NHS experience and specialist visits" from people with ME/CFS and to a slightly lesser extent people with long Covid in the UK From: bmjopen.bmj.com/content/15/4... #MEcfs #LongCovid

It turns out that saying 'this is not austerity' while simultaneously making and defending spending cuts... does not work.

“Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it?” My col. for the people who are still in their own personal lockdown - and those in power who must finally help them. www.theguardian.com/commentisfre...

Thank you to @sensecharity.bsky.social for providing an accessible campaign template, enabling me to write to my MP @gordonmckee.bsky.social re #disabiltycuts more swiftly than I would otherwise be able. The fact we have to do this at all is shameful.

The government is planning to cut disability benefits. This could have a devastating impact on disabled people. We need as many MPs as possible to speak out against disability benefits cuts before they're announced as early as Monday. Ask your MP now: action.sense.org.uk/page/167765/...

There's still time to book your free ticket for tomorrow's Story Café. From awe-inspiring adventures to tales of love and longing, wonder and wanderlust, our Story Café is the perfect way to relax over lunchtime. Book here: womenslibrary.org.uk/event/story-...

🗞️ Article in @theguardian.com -includes section on #LongCovid “People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.” Full article: tinyurl.com/2u6xe8jx

“Every time you see a headline on “the cost of the benefits bill”, what you are really reading is “the cost of disabled people”.  My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work. www.theguardian.com/commentisfre...

Hopeful! Potentially not only to harvest new antibiotics (as in article) but to further understand immune related conditions (my optimism!) #research #health #chronicillness www.bbc.co.uk/news/article...

The first page of an article reporting the outcomes of the Glasgow Disability Alliance campaign I was involved in says it all on a day when this current incarnation of the Labour Party abandon their founding ethos YET AGAIN #disabled #activism #austerity #disabilitycampaign

RSVP for our closing event with photographer Rayna Carruthers on Saturday 22 March Hear Rayna speak about her photography, the process and some of the ways she considers ethics within her practice. All welcome. RSVP here: womenslibrary.org.uk/event/while-...

😂

Reading Intermezzo by S Rooney and dismayed by the overt ableism, esp re sexuality. Decided to repost my piece for The Polyphony as a riposte - a close reading of Samatha Renke’s memoir to discuss disabled sexuality through a lens of self-worth #disability #writing #medicalhumanities #booksky

PAYWALL FREE: A collection of protests from around the country on NOT MY PRESIDENT day: #resist #protest brandy-schillace.medium.com/not-my-presi...

America, 2025

Happy Burn’s Night all. Here’s to the continued appreciation of an enduring, eloquent, meaningful, working class voice, who recognised inequalities of power and hoped for a better world. #burnsnight #rabbieburns #poetry #radicalism

Creativity is like a houseplant, not an endless well. You need to seek out sunlight, water, and nutrients in art, shows, music, experiences, and more to tend to it. And just like plants it has its dormant and active periods and you may not seem improvement for some time.

Living with #chronicillness can make building a snowman tough, but drawing one on a bin lid not only brought me just as much joy - it gave the bin men a smile too ⛄️😅💕 #snow #disability #adaptation #photography

Austerity kills people, destroys lives and life chances, health and communities - the prospect of a so-called Labour Government making further cuts to an already decimated public sector is utterly sickening.

Looking out of my window at midnight towards the fireworks across the city and wishing all a happy, peaceful New Year typically it’s taken me almost 24 hrs to post, but the sentiment remains ☺️ #newyear #2025 #glasgow #photography 📸 @arlene.jackson.bsky.social

Happy Winter Solstice and Horray for the return of the light ⭐️ So pleased to have been able to have enjoyed the gift of nature earlier today. #wintersolstice #naturephotography 📸 @arlenejackson.bsky.social

chng.it/9pH8LZn9zp #ME #patientadvocacy #stigma

With the case of Lucy Letby in the news again, it feels apt to post my critical piece on the dangers of the cultural beatification of nurses, wherein I discuss the case. @bbcnews-uk-rss.bsky.social #lucyletby #nursing #medicalhumanities #writing medicalhealthhumanities.com/2024/02/19/b...