I didn’t choose the chronically ill life. The chronically ill life kidnapped me.

I’ve got 99 problems, and at least 90 of them are symptoms my doctor “isn’t worried about"

“Why does that person need a mobility scooter, I’ve seen people who are worse and they soldier on” “Why did they use a wheelchair at the airport & then walk onto the plane?” “Why do they have a disability placard they look fine!” The answer to all is it’s none of your business.

I'm Not Ignoring You, I'm Too Sick To Talk: A Memoir

Wellll wellll wellll…. if it isn't the symptom I thought I got rid of 6 months ago

Me: *breathes* My body: Ow. Don't do that!

I say HaHa a lot for someone HaHaHaving a never-ending flare

I'm sorry, your honor, but I'm on Prednisone, so any crimes I committed don't count.

What do you mean I need to write all 999 of my prescription meds in a space meant for 3?

I wish my joints would stop having opinions about the changing weather

Reminders that unfortunately still need to be made: Do not pat wheelchair user strangers on the head. Do not touch disabled strangers. Period.

I CAN'T KEEP DOING THIS! (I can and I will, I just needed to be dramatic for a second.)

I think I speak for all of us collectively when I say: AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!!!

If a disabled person is asking you for support… listen. Don’t talk over them and make them explain why they need the support. Don’t tell them they’re wrong and help exists when it doesn’t. Don’t demand to know “why” they don’t have more help. The help doesn’t exist. That’s why we’re asking you

does anyone have any chill pills left over i just ran out

It should be illegal to get a full night's sleep and still wake up fatigued. Like, body, I turned you off and back on again. Why are you still broken?

"You can't possibly have that many diagnoses. " ME: Thanks. I'll let my diagnoses know.

DOCTOR: My patient needs this medication INSURANCE COMPANY: LMAO, okay. Denied.

ME, LEAVING THE DOCTOR'S OFFICE: I'm telling my therapist on all of you! *slams door*

It's so stressful going out in public and having to pretend that I'm a normal person and not just a bunch of illnesses in a trenchcoat.

A haunted house, but it's people with Live Laugh Love t-shirts on asking if you've tried yoga

PSA- Not every wheelchair user has the same disability.

DOCTOR: What usually triggers your flares? ME: Waking up.

I saw on IG this wonderful #inclusivedisability image by @chronicloveclub.bsky.social and I wanted to say thank you! In my own work, we struggle to see imagery of real inclusive disabilities. It’s so important to give representation to all lived-experience, especially when we cannot directly see it!

I hate when my chronic illness branches out into different disorders. Please stay in your lane.

Having to constantly plan around inaccessibility creates a mental load that needs to be talked about more.

Remember when A Series of Unfortunate Events was just a book, not your medical history?

“you’re so funny!” haha thanks, it’s the trauma :)

#chronicillness reminder

Shoutout to anyone who has been told how strong they are when they are just trying to survive in the situation they’ve been given 🩵 #chronicillness #chronicpain

People vehemently believe that there are safety nets in place if you become disabled. That no matter what, you have all of your needs met. If you believe this, you’re in for a rude awakening if you ever become disabled.

Disabled people rely on social media for connection & companionship. We might be housebound or bedbound & often have no one in real life who “gets it” The unrelenting negativity of the news cycle takes a toll on us If we unplug, we lose our support network. If we come online, we lose our spoons 🧵

✨ DISABILITY IS NOT A MORAL FAILING!!! ✨ Being #disabled does not make you lesser. It does not negate your personhood, nor does it take away your inherent worth or value. 💖 You ARE enough and have ALWAYS been so. 💖 #chronicillness #mentalhealth #disability #disabilitypride

February is Rare Disease Awareness Month 🦓 #raredisease #chronicillness

Valentine’s thread (chronic illness version) 💕

Living with disabilities is a masterclass in how to handle gaslighting You get it from everyone. Doctors, family, friends, bosses, colleagues A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this” We are the experts in our bodies. Respect us. Listen to us.

If you’ve been healthy your whole life and your concept of healthcare is from TV shows … you’re in for a rude awakening. You don’t get McDreamy or House in real life. Often you get sent packing with no answers, no treatments & no hope. Rinse. Repeat. This is chronic illness.

Almost all of us with chronic illness have experienced the “it’s not going to kill you so what do you want us to do?” Brush off. They seem to think confirming something won’t kill us is all they have to do. What we really want? A diagnosis. Treatment. Improvement to quality of life. Validation

who else has been in this spot? iykyk! #chronicillness

“umm…”

Hello everyone! We hope our CLC family can find us here 🤗 #chronicloveclub #chronicillness #disability #spoonie #chronicillnessawareness #autoimmunedisease #raredisease