🎧 New podcast out now! Prof Laurent Servais (joining us from a busy airport) chats with Dr Grace McMacken about the future of newborn screening for neuromuscular disorders. 👉 Listen here: buff.ly/zLMcu3B #SMA #Neuromuscular #NewbornScreening

We're excited to announce the release of Understanding #MyotonicDystrophy – Inheritance of Myotonic Dystrophy Type 2 (DM2)! 📢🎥 This animation provides a clear introduction to the genetic inheritance of DM2. 🧬 Share & spread awareness with this valuable resource! 💚✨ www.myotonic.org/understandin...

📢 Registration is now open for the Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights, and cGMP Gene Therapy Manufacturing capabilities in Canada, hosted by SCN and NRC! 🗓️ October 1, 2025 🕐 1:00–4:00 p.m. ET 🔗 stemcellnetwork.ca/training/wor...

Join the Myogenesis Discussion Group on “Role of the TAK1 signalling pathway in FAP in tissue remodeling” with Dr. Marine Theret (UBC) Mon, Sept 29, 2–3 PM EST Learn how TAK1-NF-kB signalling affects muscle repair in DMD More info mbd.ccrm.ca/research/dis... Register: [email protected]

Applications Now Open: 2026 NMD4C/MDC Postdoctoral Fellowship Early-career scientists can receive $40,000 for postdoctoral research in neuromuscular disease. Apply/share with trainees in your network! Deadline: Oct 14, 2025 Learn More: zc.vg/VHKPO?m=0 #NeuromuscularResearch #PostdoctoralFellowship

Spinal bulbar muscular atrophy is an X-linked recessive neuromuscular condition. The aim of this guideline is to improve and standardize care and to increase awareness of the condition. ➡️ www.cmaj.ca/lookup/doi/10.1503/cmaj.250180

🌍 60+ Global Alliance Organizations Recognize the 5th annual International #MyotonicDystrophy Awareness Day! 💚 We proudly celebrate the remarkable strength & resilience of the DM community around the world. 🌟 Read the full press release at www.myotonic.org/global-allia...

📬 The NMD4C September 2025 #Newsletter is here! Highlights include the Postdoctoral Fellowship Competition, 2026 Clinical Fellows, our inaugural Clinical Summer School, upcoming events, new research, grants & more. 👉 zc.vg/8McWF?m=0 #NMD4C #Newsletter #RareDisease #MedicalEducation

@nmd4c.ca and Muscular Dystrophy Canada are proud to announce the 2026 Neuromuscular Clinical Fellowship Award recipients! – Dr. Angela Russell | @ucalgary.bsky.social – Dr. Katherine Archibold | @ottawahospital.on.ca / @uottawa.ca Discover more: neuromuscularnetwork.ca/fellows #Fellowships

Opportunities for early-career researchers: – FAIR Data Training (Sept 24–26, 2025) – $190K Early Career Scholar Grants and Doctoral/Postdoctoral Fellowships (deadline Sept 5, 2025). Learn More: neuromuscularnetwork.ca/opportunities

Stay connected with the neuromuscular community through webinars, conferences, and member-led sessions See upcoming events and join us!: neuromuscularnetwork.ca/events/upcoming-events #NMD4C #NeuromuscularMedicine #WMS2025 #ClinicalRounds #MedicalEducation #Openforum #Webinars #CanadianHealthcare

🎉 Congrats to the 2025 Collaborative Research Training Award recipients! These trainees are advancing neuromuscular research through national lab exchanges. 🔗 Learn more: neuromuscularnetwork.ca/pillar-1-pre... #NMD4C #ResearchTraining #NeuromuscularResearch

📬 The NMD4C July 2025 Newsletter is here! Catch up on new training resources, #research awards, #grants, upcoming #events, team updates, funding opportunities & more from #Canada’s #neuromuscular community. 👉 Read now: zc.vg/C2a3Y?m=0 #NMD4C #RareDisease #ResearchFunding #ClinicalResearch

🚨 Early bird for the 8th TREAT-NMD Conference ends tomorrow July 31! Join the global neuromuscular community on Feb 10–12, 2026 in Lisbon to explore clinical trials, care standards and more. 📍 Altis Grand Hotel 🔗 Register Here: www.treat-nmd.org/event/8th-tr... #TREATNMD2026 #NeuromuscularResearch

🚨 Now Hiring: Neurology Residency Program Director – @ottawahospital.on.ca & @uottawa.ca A full-time leadership role, ideal for a neurologist passionate about medical education and residency training. 🗓️ Deadline: August 8, 2025 🔗 Apply here: www.thinkottawamedicine.ca/job/neurolog...

The NMD4C and MDC are pleased to invite you to our next CPD-accredited webinar Bulbar impact of SMA: approach to assessment and treatment! 📅 Tuesday July 8, 2025 🕝 6pm ET 🔗Register at: bit.ly/SMABulbarImp... #LetsTalkNMD #webinar #education #NMD #raredisorder #SMA

📢 Announcing the inaugural NMD4C Collaborative Research Training Awards! These awards will provide funding of $2000 for research trainees to visit another neuromuscular lab within Canada to work on a collaborative research project 🔗 Learn more: neuromuscularnetwork.ca/TrainingAwards

The NMD4C and MDC are pleased to invite you to our upcoming CPD-accredited webinar! ✨ Talk Title: Cardiac Neuromuscular Disease: Essentials for Neuromuscular Clinicians. 🗓️ Date: Tuesday June 3, 2025 ⏰Time: 6pm ET Register at: bit.ly/CardiacNMDs #cardiac #NMD #cardiachealth #raredisorder

Together, NMD4C and MDC are excited to open our 2026 clinical fellowship funding competition in neuromuscular medicine and EMG! 📬 competition opens: May 1, 2025 ⏰ Deadline: June 12th, 2025 Check out the 2026 competition guidelines and start your application today at: neuromuscularnetwork.ca/xov2

Join the Myogenesis Discussion Group today for a seminar from Matthew Rok on Humanized Mouse Models for Duchenne muscular dystrophy research! 🧬 🗓️April 28, 2025 ⏰2-3pm ET 👉Register at: neuromuscularnetwork.ca/AprilMdG #MuscleResearch #DMD #CRISPR #RareDisease #BiomedicalResearch #MuscularDystrophy

The NMD4C and MDC are pleased to invite you to our upcoming CPD-accredited Neuromuscular Mystery Case Rounds webinar! #LetsTalkNMD ✨ Talk Title: A Numbing Affair: Untangling a Neuropathic Conundrum 🗓️ Date: Tuesday May 6, 2025 ⏰Time: 7pm ET Register at: bit.ly/NMRoundsMay2...

📩 The NMD4C's April 2025 newsletter is now available! In this edition: 🌟 New NMD4C collaborative research training awards 👩‍💻New home online for NMD4C community of practice 🏅 King's medals awarded to NM clinicans and researchers Read more: zc.vg/RBp94?m=0 #newsletter #raredisease #neuromuscular

Patients and family members affected by FSHD are invited to join FSHD Canada Foundation and @fshdsociety.bsky.social to meet the leaders of FSHD research and hear the latest in FSHD updates at the FSHD 360 Conference Ontario. More information: www.fshdsociety.org/event/ontari...

Join us and MDC tomorrow for our CPD-accredited webinar Neuropathy Borderlands: Approach to Management of Muscle Cramps, Small Fiber and Autonomic Neuropathy 📅Tue Apr 1, 2025 🕝5:00pm ET 🔗Register at: bit.ly/Neuropathy2025

Making the case for clear language. Anna Samson @disabilitywithanna.bsky.social and I co-presented at a virtual symposium on the importance of clear/plain language. Our key points are beautifully summarised in this graphic recording by visual alchemist Candace Ramjohn.

Save the date! @rarekidscan.bsky.social is inviting you to join our virtual roundup session on March 24, 2025 from 8-11am MST. During this information session, you will gain an overview of RareKids-CAN, build connections within the community, and more! Register today: tinyurl.com/yhy455b2

Join us and MDC at our next CPD-accredited webinar Neuropathy Borderlands: Approach to Management of Muscle Cramps, Small Fiber and Autonomic Neuropathy 📅Tue Apr 1, 2025 🕝5:00pm ET 🔗Register at: bit.ly/Neuropathy2025 #Neuropathy #musclecramp #LetsTalkNMD #webinar

🚨Young Investigators - Join us for a Webinar on the #myotonicDystrophy Funding Landscape on March 13th!🚨 This Pre-Conference Webinar is designed to help identify funding pathways and avoid common pitfalls. 🧬🔗 Register to attend at: us06web.zoom.us/webinar/regi...

We are excited to announce the recipients of the 2025 NMD4C Early Career Awards!🏆🎉 This year, we presented four awards as a part of this program - congratulations to the 2025 award winners! Learn more about the achievements of each of these standout researchers: neuromuscularnetwork.ca/ECawards

📩 The NMD4C's March 2025 newsletter is now available! 🏆4 outstanding researchers receive Early Career Awards 🔍CIHR Funds Project to Study SBMA in Indigenous Peoples of the Prairie Provinces 🔵We join Bluesky! View the newsletter here: zc.vg/RGZV6?m=0 #NMD4C#newsletter #raredisease #neuromuscular

🚀 Exciting news! Our team has been awarded a $1.3M CIHR grant to study Spinal-Bulbar Muscular Atrophy (SBMA) in Indigenous communities of the Prairie Provinces. Honored to collaborate with an incredible team of researchers & community leaders! @nmd4c.ca neuromuscularnetwork.ca/news/cihr-fu...

There is still time to register for our CPD-accredited webinar Myasthenia Gravis: Today and Tomorrow, taking place this Tuesday! 🗓️ (Tomorrow) March 4, 2025 ⏰ 5pm ET 🔗 Register Here: bit.ly/MyastheniaGr... #LetsTalkNMD #webinar #Myastheniagravis

Today is #RareDiseaseDay! 🦓🧬 We work to improve care, research and treatment of NMDs for Canadians, and are proud to support & raise awareness for ALL rare diseases. This year’s theme highlights the power of resilience and connection - find an event near you: www.rarediseaseday.org/category/eve...

Join NMD4C and MDC at our next CPD-accredited webinar "Myasthenia Gravis: today and tomorrow" chaired by Dr Vera Bril 📅 Tue Mar 4, 2025 🕝 5:00pm ET 🔗 Register at: bit.ly/MyastheniaGr... #LetsTalkNMD #MyastheniaGravis #webinar