Reach new heights with Movement Mondays: Flexibility! 💚🧘 Join our next #MyotonicDystrophy #InMotion session to explore gentle, accessible exercises that support mobility and range of motion. 🗓️ Monday, July 20 ⏰ 4 PM PT / 7 PM ET 🔗events.zoom.us/ev/At0NYT4HA...

Get moving with an aerobics demo by Dr. Kelly for people living with #myotonicDystrophy! 🧘‍♀️💪 Join our next 2026 Movement Monday on July 20th for more exercises designed with DM in mind.💚🔗 events.zoom.us/ev/At0NYT4HA...

Have questions about exercise and #myotonicDystrophy?💚 Join our Ask the Expert webinar with Physical Therapist and DM researcher, Dr. Tina Duong, to get your movement questions answered. 💬🔗 Register at: events.zoom.us/ev/Ahsp1Eq1i...

Get moving with a flexibility demo by Dr. Koike for people living with #myotonicDystrophy! 🧘‍♀️💪 Join our next 2026 Movement Monday on July 13th for more exercises designed with DM in mind.💚🔗 events.zoom.us/ev/At0NYT4HA...

💚 #myotonicDystrophy In Motion athletic gear is back, but only through July! 🚲 Movement Matters. Support the DM community, raise awareness, and get moving with this limited release. 👉 teamstore.agile-sportswear.com/store/myoton...

Meet 2025 MDF Pilot Grant Recipient Kate Eichinger, PhD! 🥼✨ Dr. Eichinger is a physical therapist and researcher who has worked with the #myotonicDystrophy community for 20 years. Her study uses wearable sensors to study mobility in DM. Learn more: myotonic.org/2025-pilot-g...

Ready to get your heart pumping? 💚🏃 Join our next Movement Mondays session: Aerobic & Cardio. Move at your own pace and explore accessible exercises with the #MyotonicDystrophy community. 🗓️ Monday, July 13 ⏰ 4 PM PT / 7 PM ET 🔗events.zoom.us/ev/At0NYT4HA...

📣Regulators have aligned with AMO Pharma on a study design for investigation of AMO-02 as a treatment for congenital #myotonicDystrophy!💚 🧬 Stay tuned for announcements of the trial launch in the coming months. 🔗Read more at: myotonic.org/wp-content/u...

Start your week with Movement Mondays this #MyotonicDystrophy #InMotion Awareness Month! 💚✨ Join a session on Balance designed for people living with DM. 🔗https://events.zoom.us/ev/At0NYT4HA1hkR4qwOHucEII53TXi49ry5gOlB5h5ZUMBKwbwLS14~ApfFw8y8ne69Vj_qtD1BsIksEVb2zNFLXbiYTN9CVCH_brnfIOYjni0XaAc

👕 Get moving in style with our limited edition 2026 DM #InMotion T-shirt! 💚 This year’s special design is a fun way to raise #myotonicDystrophy awareness and show support for the DM community. Order by July 31. Grab yours at: www.bonfire.com/limited-edit...

Meet 2025 Pilot Grant Recipient, Arianna Tucci, MD, PhD! ✨ 🧬Dr. Tucci’s research is helping advance genomic medicine for repeat expansion disorders like #myotonicDystrophy, with a focus on improving diagnosis and patient care.💚🔗 Learn more at: myotonic.org/2025-pilot-g...

📢💚 Register for MDF for #MyotonicDystrophy #InMotion Awareness Month this July! 🏋️‍♀️ Attend weekly #MovementMondays 💪 and Virtual Happy Hours 🤝. 🔗 Sign up at: events.zoom.us/ev/At0NYT4HA...

Have questions about exercise and #myotonicDystrophy?💚 Join our Ask the Expert webinar with Physical Therapist and DM researcher, Dr. Tina Duong, to get your movement questions answered. 💬🔗 Register at: events.zoom.us/ev/Ahsp1Eq1i...

Meet 2026 MDF Fellow Hannah Golliher, BS! 🧬🧑‍🔬✨ Hannah is a University of Florida predoctoral student in Dr. Laura Ranum’s lab studying a #myotonicDystrophy type 2 (#DM2) mouse model to support biomarker discovery and therapy research. Learn more: www.myotonic.org/2026-fellow-...

Explore MDF's Exercise Guide for people living with #MyotonicDystrophy—packed with practical tips, gentle habits, and encouragement to help you move with confidence every day. 💚 Learn more: myotonic.org/wp-content/u...

Have questions about life insurance and #myotonicDystrophy?💚 Join our Ask the Expert webinar with CEO of LifeQuotes, Robert Bland, to learn about navigating insurance as a person living with DM. 💬🔗 events.zoom.us/ev/Ahsp1Eq1i...

Meet 2026 MDF Fellow Marwa Zafarullah, PhD! 🧬🥼✨ A postdoctoral fellow at Stanford University, Dr. Zafarullah is using multi-omics research to study CNS biomarkers and support therapeutic development in #myotonicDystrophy type 1 (#DM1). Learn more: myotonic.org/2026-fellow-...

📣MDF #myotonicDystophy grants aim to accelerate efforts toward effective treatments & a cure. 🧬🔬Open to for-profit and non-profit institutions around the world.🌐💚🔗Share to your network & apply now: www.myotonic.org/myotonic-dys...

📣 Move with MDF this July for #MyotonicDystrophy In Motion Awareness Month! 💚 ✨ Join us for weekly activities centered on movement, connection, and community: events.zoom.us/ev/At0NYT4HA...

#TotalAssist is launching on July 1, and we want to make sure you're ready! We're hosting a webinar to help #patients and #caregivers learn how to use our online portal—from creating your account to checking your grant balance and everything in between. Register today: https://bit.ly/3RCbTzy

Have questions about #MyotonicDystrophy? 💚 Join MDF’s Ask the Expert series for answers on exercise, life insurance, workplace challenges, and more. Register now at: events.zoom.us/ev/Ahsp1Eq1i...

Meet 2026 MDF Fellow Ashwini Prasad, PhD! 🧬🥼✨ A genetics and genomics student at Baylor College of Medicine, Dr. Prasad studies RNA-binding protein dysregulation in #myotonicDystrophy type 1 (#DM1) to help advance RNA-based therapies. Learn more: myotonic.org/2026-fellow-...

MDF was proud to join the global DM community at IDMC-15. Congratulations to 2026 Steinert Award honorees John W. Day, MD, PhD, and Eric Wang, PhD, recognized for advancing #myotonicDystrophy research and care. 💚 Learn more: myotonic.org/highlights-f...

Seattle, here we come! 🌊💚 The 2027 MDF International Conference is coming to Seattle, WA, April 28-May 2, 2027. Join the #myotonicDystrophy community for connection, learning, care, support, and hope. Registration opens Sept. 15, 2026. Learn more at myotonic.org/events/2027-...

Meet 2026 MDF Grant Recipient Katarzyna Taylor, PhD! 🧬🧑‍🔬✨ Dr. Taylor has spent 10+ years studying #myotonicDystrophy disease mechanisms, including DM2 biomarkers. Her research focuses on identifying new therapeutic targets for DM1. Learn more: myotonic.org/2026-grant-r...

Grateful to gather with many of the world’s #myotonicDystrophy patient advocacy leaders at IDMC-15 in Saguenay, Canada this week!

📣 Move with MDF this July for #MyotonicDystrophy In Motion Awareness Month! 💚 ✨ Register by June 1 for your chance to win an In Motion water bottle! Join us for weekly activities centered on movement, connection, and community: events.zoom.us/ev/At0NYT4HA...

✨MDF continued the 2026 MDF Regional Conference series in Winston-Salem! ✨Attendees from 14 different states joined us to unite our local communities. 💚 🔗 Learn more about the 2026 Regional Conferences at: myotonic.org/events/confe...

Meet 2026 MDF Grant Recipient Samuel Carrell, MD, PhD! 🧬🧑‍🔬✨ A junior faculty member at Virginia Commonwealth University, Dr. Carrell studies #myotonicDystrophy and genetic factors that may explain differences in DM1 symptoms and severity. Learn more: myotonic.org/2026-grant-r...

Meet 2026 MDF Fellow Amy Mascorro, BSc! 🧬🧑‍🔬✨ A PhD student at the University at Albany, Amy studies repeat expansion disorders, including #myotonicDystrophy. Her work in nucleic acid tool development supports RNA/DNA-based therapeutic research: myotonic.org/2026-fellow-...

MDF & MDC invite you to attend our 2026 MDF Regional Conference in 📍Montréal on 🗓️May 30th! Join local #myotonicDystrophy community 🤝 and connect with local researchers and clinicians 🧬. Registration is only $20 for adults & children attend for free!✨💚 🔗Learn more at: myotonic.org/events/2026-...

✨MDF continues the 2026 MDF Regional Conference series in Palo Alto! ✨Over 150 community members from 12 different states joined us to unite our local communities. 💚 Thank you to our lead Conference sponsor, Avidity Biosciences, for helping make this event possible!

📣MDF announces the launch of #myotonicDystophy grants aimed at accelerating efforts toward effective treatments & a cure. 🧬🔬Open to for-profit and non-profit institutions around the world.🌐💚🔗Share to your network & apply now: www.myotonic.org/myotonic-dys...

✨Pat Cornell, aka Vroom Old Man, has almost ridden 200,000 miles in one year for #myotonicDystrophy awareness. 🏍️💚 Near Fort Myers, Florida? Join the celebration this Saturday at Bert’s Black Pearl Indian Motorcycle as Pat rolls into town on April 26: www.facebook.com/events/12341...

Congratulations to Amy Mascorro on being awarded the 2026 Myotonic Dystrophy Foundation Fellowship! Learn more about Amy's fellowship featured in MDF's website! myotonic.org/2026-fellow-... @myotonicstrong.bsky.social

Don’t miss presentations from leading #myotonicDystrophy expert Dr. Araya Puwanant at the 2026 MDF Regional Conference in Winston-Salem 💚 Join us May 2 for a day of connection, learning, and community. Register now at: www.myotonic.org/2026-mdf-reg...

Ask your U.S. Senators to sign Senator Amy Klobuchar’s letter supporting $10 million for DM research. Increased federal funding can help move research & clinical trials forward at a critical time for the #myotonicDystrophy community. Take action and share: www.votervoice.net/Myotonic/Cam...

Don’t miss presentations from leading #myotonicDystrophy expert Dr. John W. Day at the 2026 MDF Regional Conference in Palo Alto 💚 Register now at: myotonic.org/events/2026-... Thank you to our Conference sponsors, Avidity Biosciences and Dyne Therapeutics, for helping make this event possible!

✨MDF kicked off the 2026 MDF Regional Conference series in Kansas City! ✨Attendees from 12 different states joined us to unite our local communities. 💚 Thank you to our Conference sponsors, Avidity Biosciences and Dyne Therapeutics, for helping make this event possible!

We hope to see you at one of our 2026 Regional Conferences! 💚 ✨ Thank you to our Conference sponsors for helping make these events possible: Avidity Biosciences, Dyne Therapeutics, PepGen, Arthex Biotech, Sarepta, Vertex, 3xGenetics, Juvena Therapeutics, Sanofi, & Astellas.

The new Myotonic Dystrophy Foundation (MDF) website is now live! 💚 Built with input from the #myotonicDystrophy community, it’s designed to make information easier to find, more accessible, and simpler to use. Start exploring the new site at myotonic.org

Join us Friday, April 3 for Meet the #myotonicDystrophy Drug Developers with Sarepta Therapeutics. Learn how their investigational DM1 therapy (SRP-1003) reaches muscle tissue. 💚🔬 Register: events.zoom.us/ev/AuhDDPjs6...

Don’t miss presentations from leading #myotonicDystrophy expert Dr. Jeffrey M. Statland at the 2026 MDF Regional Conference in Kansas City 💚 Join us April 11 for a day of connection, learning, and community. Register now: give.myotonic.org/event/kansas...

Meet 2026 MDF High Priority Grant Recipient, Curtis Nutter, PhD 🔬✨ An Assistant Professor of Biochemistry at the University of Missouri School of Medicine, Dr. Nutter is uncovering how RNA misprocessing drives neurological dysfunction. 🧬💚 Learn more at: www.myotonic.org/meet-our-202...

MDF & Wake Forest University invite you to attend the 2026 MDF Regional Conference in 📍Winston-Salem on 🗓️May 2nd! Join local #myotonicDystrophy communities 🤝 and connect with local researchers and clinicians 🧬. 🔗Learn more at: www.myotonic.org/2026-mdf-reg...

MDF & Stanford invite you to attend the 2026 MDF Regional Conference in 📍Palo Alto on 🗓️April 25th! Join local #myotonicDystrophy communities 🤝 and connect with local researchers and clinicians 🧬. 🔗Learn more at: www.myotonic.org/2026-mdf-reg...

Sarepta Therapeutics shares early clinical results showing its investigational myotonicDystrophy type 1 (DM1) therapy (SRP-1003) successfully reaches muscle tissue. 💚🔬These findings highlight a promising approach to effective drug delivery to muscle. investorrelations.sarepta.com/news-release...

💚 Save the Date: 2026 MDF Gala! Join us October 10 in San Francisco as we celebrate the #myotonicDystrophy community and support our mission of Community, Care, and a Cure. 🎟️ Registration opens soon! Learn more: www.myotonic.org/2026-mdf-gala

MDF & University of Iowa invite you to attend the 2026 MDF Regional Conference in 📍Kansas City on 🗓️April 11th! 💚 Join local #myotonicDystrophy communities 🤝 and connect with local researchers and clinicians 🧬. 🔗Learn more at: www.myotonic.org/2026-mdf-reg...

We're bringing the 2026 #MDFconference to a city near YOU! 🙌 These one-day conferences connect local #myotonicDystrophy communities, researchers and clinicians. 💚 Explore hotel 🏨 & mobility 🦽 discounts, financial aid, & register to attend a Regional Conference: www.myotonic.org/join-us-2026...