🫁 As the holiday season approaches, remember to stop & take a deep breath. Looking for community support, join one of our upcoming Feeling Fit sessions or Wellness Hours. Full details on our Calendar: www.FSHDSociety.org/events #NationalStressAwarenessDay #FSHD #StressManagement

Meet Don Nemke. At 80, he’s still dreaming big – not for himself, but for future generations living with FSHD. His dream of a meaningful treatment is within reach, but we need your help to make it happen. Dream with us! Donate today: www.fshdsociety.org/2025-gift

Have you heard about the MDA's new Durable Medical Equipment (DME) Grant Program? Access essential equipment that supports greater independence, safety, & everyday mobility. To apply, visit the MDA: https://ow.ly/5cNX50XjgiR #FSHD #MDA #MuscularDystrophy #Neuromuscular #DME

The Drum & Roll to Cure FSHD in Western Pennsylvania was an inspiring, memorable event that brought together more than 50 attendees & raised over $85,000! It was a day filled with energy, connection & community spirit. Thanks to everyone who joined us, donated, and made this event such a success.

Join Tim & guest Elissa for a deep conversation covering: -How FSHD can affect post-partum healing -Caring for your body and mind & -Learning to own your FSHD. https://youtu.be/2oyG_5v61Bk #FSHD #FSHDStraightTalk #Podcast #RareDisease #RareDiseasePodcast #FSHMuscularDystrophy

Novartis acquires Avidity Biosciences! Novartis now has two FSHD therapies in development. "We look forward to continued progress under Novartis’s stewardship." Read the announcement: https://www.fshdsociety.org/2025/10/27/novartis-acquires-avidity/ #Avidity #Novartis #FSHDResearch #FSHD

Thank you everyone for another successful Walk & Roll weekend in Texas! Over 30 participants enjoyed the sunset & raised $13,000+ to support our work to #CureFSHD. Read more updates & see additional photos on our blog: https://www.fshdsociety.org/2025/09/11/2025-walkroll-coverage/#CureFSHD #FSHD #WalkRoll

"The Board is deeply saddened to announce that Dan Perez, co-founder & former President/CEO, died on October 2. Everything being accomplished today stands on the foundation he built." Read the full In Memoriam piece: https://www.fshdsociety.org/2025/10/08/in-memoriam-daniel-paul-perez/

We’ve refreshed our brand to better reflect who we are, the impact we make together, and the future we’re building with the #FSHD community. We invite you to explore our redesigned website & learn more about what this new chapter means for you: www.fshdsociety.org/2025/05/01/b...