👀20 mins on #MECFS in recent 🇦🇺 Senate Estimates 🎥 tinyurl.com/2y4ww784 Thanks Senator Steele-John 🙏 Discussion covered telehealth barriers, housebound & bedbound patients, specialist access, long GP consults and disability support pathways @markbutlermp.bsky.social @senatoranneruston.bsky.social

With just 11 days allowed for submissions and three for hearings, the disability community testified to deep concerns and a lack of clarity over the sweeping reforms that Labor aims to push through parliament by July 2. trib.al/7hCDrWY

Australia Institute research shows voters across the political spectrum overwhelmingly support a 25% tax on gas exports. Yet the Australian Parliament has failed to act. ✍️ Join the call for a national plebiscite to introduce a 25% gas export tax! https://gas-plebiscite.australiainstitute.org.au/

States tell Albanese government that NDIS changes could mean people with disabilities are shifted into hospitals

Dissent can be fun thepoint.com.au/news/260609-...

📺 Missed our community forum on the proposed NDIS changes? Hear from Senator Jordon Steele-John, Belinda Kochanowska and Naomi Anderson on what's at stake, what happens next, and why community action matters. 🎥 Watch: www.youtube.com/watch?v=yZLG... #ProtectOurNDIS #NDIS

𝑸 Do 🇦🇺 Aussie GPs receive training to manage #MECFS while the new guidelines are under development❓ 🅰️ Not according to the govt in Senate Estimates. 🩺 Health dept official to investigate GP capability. Many thanks Senator Steele-John youtube.com/live/MPjhTy1... #MECFS #MyalgicEncephalomyelitis

one more ceo sleepout will turn this around. one more cost of living tax cut. just one more foodbank drive, I swear www.theguardian.com/australia-ne...

Check out this GetUp! Campaign to reform the press council! getup.to/reZy9uDCdWnT3

Our #MECFS Awareness Symposium is starting now. The Symposium, “The Hidden Harm of “Trying Harder”, is being recorded and will be available on our website in the coming days.

#PEM is real & not the same as fatigue. It is biological, not due to deconditioning or lack of motivation. Telling people to push through can cause harm. Join us 2pm AEST, Tuesday 12 May, for a conversation on recognition, validation & preventing harm. zurl.co/umjjR

On Int #MECFSAwarenessDay, we launch: The Hidden Harm of “Trying Harder” focused on PEM. PEM is real and not the same as fatigue. It can deeply impact every part of a person’s life. It is widely misunderstood, dismissed, or reduced to simply being “tired. Access our PEM resources: zurl.co/3eeVl

Grateful to @emergeaustralia.bsky.social for recognising Pete as a finalist for the #MECFS Awards for Journalism Excellence for: 🎧The Conditional Release Program podcast with @jacktheinsider.bsky.social & @joelhill.bsky.social The Pain of ME/CFS tinyurl.com/u5ycactu ✍️SBS Insight. Link in replies

🌟 Celebrating David Tuller, senior fellow in public health and journalism at UC Berkeley, finalist in the #mecfs Awards for Journalism Excellence for his piece Open Mind Chronic Denial. 🔗 zurl.co/6S3JW#mecfs 📢 Thank you David for highlighting ME/CFS through your work!

Join us this #MECFSAwarenessDay for a patient-focused online symposium. Hear from speakers as they share insights on #PEM, triggers, baseline setting & building a practical toolkit. 🗓️ Tue 12/5 ⏰ 2pm AEST 📍 Register - zurl.co/S7Byi

Thank you to everyone who joined us at Parliament House and online for Fluctuating Energy, Fixed Systems. Speakers shared powerful experiences and insights on how rigid systems fail people with #mecfs & #longcovid. Watch the recording: zurl.co/qThaI#mecfs#longcovid#mecfsadvocacy

Thank you to those who helped invite MPs to the Parliamentary Friends of ME/CFS meeting. 34 parliamentarians/staff from their office attended the meeting. 14 sent apologies. We’re now following up with every office to keep ME/CFS firmly on the agenda. 🔗 zurl.co/qEaTP

New online module for GPs 🩺 ME/CFS in General Practice: From invisible to visible – a case-based module covering identification, diagnosis, stigma-aware communication and safe care. RACGP CPD points available. #GPeducation #GPtraining #MECFS

Today, we brought ME/CFS to APH. With the theme Fluctuating Energy, Fixed Systems, the PFG of ME/CFS meeting highlighted a stark truth: people with #MECFS & #longCOVID must use systems built for stability, consistency & recovery, while living with fluctuating and unpredictable capacity.

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March. Take action 👉 zurl.co/DG4nc#MECFS Let’s fill the room. 💙 #FairGoForME #MECFSAllianceAustralia

We are a wealthy nation. Nobody should be turned away from accessing a safe place to sleep, or nutritious food, while 1 in 3 big corporations pay no tax.

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March. Take action 👉 zurl.co/UFRXm#MECFS Let’s fill the room. 💙 #FairGoForME #MECFSAllianceAustralia

📅 Tue 10 March 🕚 11:00am–1:00pm AEDT (may finish earlier) Clinicians, MPs, researchers & people with lived experience will discuss the urgent needs of Australians with ME/CFS. 🔗 Register for Zoom: zurl.co/fyADw 📩 In-person (Canberra): [email protected]

If you’re living with ME/CFS, long COVID, or want to volunteer as a ‘healthy control’ for medical research studies, becoming an AusME Registry participant is the simplest way to get involved in research! Sign up today and make a difference! zurl.co/4ebne

BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid. youtu.be/eu8Lj_R-OtQ?...

Big congratulations to @tessamunt.bsky.social! Tessa has been an incredible advocate for the community and we look forward to working with her in this new role 🙌

Board of Peace - Season 1

Meet our new Parliamentary Friends Group members. Co-chaired by Dr Mike Freelander and Senator Jordon Steele-John, our first meeting of 2026 is to be advised. zurl.co/EpRFU

Randa Abdel-Fattah— "Adelaide Festival has apologised unreservedly. Vindication. My response."

When Poppy Bradley, 25, was diagnosed with #MyalgicEncephalomyelitis #MECFS three years ago, she had to find new ways to stay connected. @theageaustralia.bsky.social ✍️Pen pals and snail mail clubs: Why Gen Z is reviving the art of letter writing. By Lauren Ironmonger

🌈 LGBTQIA+ Virtual Support Group – Feb 2026 A welcoming space for LGBTQIA+ people living with #MECFS or #longCOVID. Connect, share, and feel supported. Starts Thu 5 Feb, 2pm AEDT (fortnightly). Join here: zurl.co/DWJM8#MECFS#longCOVID🌈

New: On the alarming politicisation of the Bondi massacre, and the calls for Albanese to announce a royal commission

Thank you Annie from Understanding ME channel, for this insightful conversation with Dr Shiam who recently participated in Emerge Australia’s clinical education program. Donate now to support Emerge Australia to educate clinicians like Dr Shiam. zurl.co/myyTU

Today in @australia.theguardian.com

Israel has banned Medecins Sans Frontieres from operating in Gaza, rounding off a banner year for inhumanity.

Happy all the things, lovelies. Squeeze those you love (including the four legged ones) tight. It’s a hard time of year for lots of people, for lots of reasons and this year is even harder - but you’re not alone. Sending love. Take care of you and those around you. Happy Kucios 🩷

Petition: We will not be divided after Bondi. Add your name: jewishcouncil.good.do/unity/jewish...

Univ. of South Australia: 'Who is more likely to get long COVID? New study uncovers genetic drivers behind the disease' 'The breakthrough, made using large scale biological datasets, could pave the way for targeted treatments and personalised diagnostics.' www.unisa.edu.au/media-centre...

Parliamentary Friends of ME/CFS launched for the 48th Parliament! Watch this space as the ME/CFS Alliance Australia plans its first 2026 Parliament House meeting. 🔗 zurl.co/m4xW2 #ParliamentaryFriends #MECFS #mecfsadvocacy

The facts are stark: Europe must open the door to migrants, or face its own extinction | George Monbiot

A helpful guide to support you in understanding what your friend with #MECFS or #LongCOVID may be going through and how you can stay connected, even when things are tough. 📘 Explore the guide and learn how to be a supportive friend: 👉 zurl.co/QaI3P

🎧 An easy 30min listen: The #MyalgicEncephalomyelitis #MECFS medical scandal The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely. F bombs fly as he lambastes the PACE trial & RACGP HANDI guide. Starts 1:30 @milliganreports.bsky.social

🎄✨ This Christmas, give a gift that truly makes a difference. Introducing the #EmergeAustralia Collection. The range, with artworks by people living with #MECFS, has evolved with guidance from our community. 💙 Every purchase powers education, advocacy & support for #MECFS. Shop gifts zurl.co/3a4Fr

A horrendous report on ABC radio from a Brisbane doctor doing a second tour in Gaza with Medecins sans Frontières. She says the ceasefire is in name only, the genocide continues and the deprivation of basic food, shelter and resources means even the injured haven’t what the need to heal.

Treaty has just passed Victoria's Parliament! This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law. Thank you to generations of First Nations ppl who have fought for this historic moment.

Dumping net zero by 2050 ignores Australia’s international commitment to slash climate pollution, sells out young Australians and leaves the regional communities the Nationals claim to represent more vulnerable to fossil-fuelled extreme fires, floods, and storms.

Thank you to everyone who joined, what an incredible day at APH! Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID. Recordings 🔗 zurl.co/lFiTY

Stay updated with Emerge Australia's Research Digest on #mecfs and #longcovid • Summarized • Easy-to-read • Convenient • Accessible Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY

Join online for our #MECFS & #LongCOVID Action Forum New speakers include * E/Prof Andy Gleadow & E/Prof Ros Gleadow - 🏁 Eliza * Pete McCluskey - 🏁 Jenny * Peter Schubert - 🏁 Lily * Sen Jordon Steele-John - Sen for WA 🗓️ 1pm – 3pm AEDT, 30 Oct 🌐 Zoom zurl.co/jgCuH