📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March. Take action 👉 zurl.co/DG4nc#MECFS Let’s fill the room. 💙 #FairGoForME #MECFSAllianceAustralia

We are a wealthy nation. Nobody should be turned away from accessing a safe place to sleep, or nutritious food, while 1 in 3 big corporations pay no tax.

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March. Take action 👉 zurl.co/UFRXm#MECFS Let’s fill the room. 💙 #FairGoForME #MECFSAllianceAustralia

📅 Tue 10 March 🕚 11:00am–1:00pm AEDT (may finish earlier) Clinicians, MPs, researchers & people with lived experience will discuss the urgent needs of Australians with ME/CFS. 🔗 Register for Zoom: zurl.co/fyADw 📩 In-person (Canberra): [email protected]

If you’re living with ME/CFS, long COVID, or want to volunteer as a ‘healthy control’ for medical research studies, becoming an AusME Registry participant is the simplest way to get involved in research! Sign up today and make a difference! zurl.co/4ebne

BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid. youtu.be/eu8Lj_R-OtQ?...

Big congratulations to @tessamunt.bsky.social! Tessa has been an incredible advocate for the community and we look forward to working with her in this new role 🙌

Board of Peace - Season 1

Meet our new Parliamentary Friends Group members. Co-chaired by Dr Mike Freelander and Senator Jordon Steele-John, our first meeting of 2026 is to be advised. zurl.co/EpRFU

Randa Abdel-Fattah— "Adelaide Festival has apologised unreservedly. Vindication. My response."

When Poppy Bradley, 25, was diagnosed with #MyalgicEncephalomyelitis #MECFS three years ago, she had to find new ways to stay connected. @theageaustralia.bsky.social ✍️Pen pals and snail mail clubs: Why Gen Z is reviving the art of letter writing. By Lauren Ironmonger

🌈 LGBTQIA+ Virtual Support Group – Feb 2026 A welcoming space for LGBTQIA+ people living with #MECFS or #longCOVID. Connect, share, and feel supported. Starts Thu 5 Feb, 2pm AEDT (fortnightly). Join here: zurl.co/DWJM8#MECFS#longCOVID🌈

New: On the alarming politicisation of the Bondi massacre, and the calls for Albanese to announce a royal commission

Thank you Annie from Understanding ME channel, for this insightful conversation with Dr Shiam who recently participated in Emerge Australia’s clinical education program. Donate now to support Emerge Australia to educate clinicians like Dr Shiam. zurl.co/myyTU

Today in @australia.theguardian.com

Israel has banned Medecins Sans Frontieres from operating in Gaza, rounding off a banner year for inhumanity.

Happy all the things, lovelies. Squeeze those you love (including the four legged ones) tight. It’s a hard time of year for lots of people, for lots of reasons and this year is even harder - but you’re not alone. Sending love. Take care of you and those around you. Happy Kucios 🩷

Petition: We will not be divided after Bondi. Add your name: jewishcouncil.good.do/unity/jewish...

Univ. of South Australia: 'Who is more likely to get long COVID? New study uncovers genetic drivers behind the disease' 'The breakthrough, made using large scale biological datasets, could pave the way for targeted treatments and personalised diagnostics.' www.unisa.edu.au/media-centre...

Parliamentary Friends of ME/CFS launched for the 48th Parliament! Watch this space as the ME/CFS Alliance Australia plans its first 2026 Parliament House meeting. 🔗 zurl.co/m4xW2 #ParliamentaryFriends #MECFS #mecfsadvocacy

The facts are stark: Europe must open the door to migrants, or face its own extinction | George Monbiot

A helpful guide to support you in understanding what your friend with #MECFS or #LongCOVID may be going through and how you can stay connected, even when things are tough. 📘 Explore the guide and learn how to be a supportive friend: 👉 zurl.co/QaI3P

🎧 An easy 30min listen: The #MyalgicEncephalomyelitis #MECFS medical scandal The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely. F bombs fly as he lambastes the PACE trial & RACGP HANDI guide. Starts 1:30 @milliganreports.bsky.social

🎄✨ This Christmas, give a gift that truly makes a difference. Introducing the #EmergeAustralia Collection. The range, with artworks by people living with #MECFS, has evolved with guidance from our community. 💙 Every purchase powers education, advocacy & support for #MECFS. Shop gifts zurl.co/3a4Fr

A horrendous report on ABC radio from a Brisbane doctor doing a second tour in Gaza with Medecins sans Frontières. She says the ceasefire is in name only, the genocide continues and the deprivation of basic food, shelter and resources means even the injured haven’t what the need to heal.

Treaty has just passed Victoria's Parliament! This is the first time in Australia's history that a Treaty (a legitimate agreement btwn First Peoples and VIC gov't) has been enshrined in law. Thank you to generations of First Nations ppl who have fought for this historic moment.

Dumping net zero by 2050 ignores Australia’s international commitment to slash climate pollution, sells out young Australians and leaves the regional communities the Nationals claim to represent more vulnerable to fossil-fuelled extreme fires, floods, and storms.

Thank you to everyone who joined, what an incredible day at APH! Together with parliamentarians, clinicians, researchers & people with lived experience, we took another big step toward real action for people living with #MECFS & #longCOVID. Recordings 🔗 zurl.co/lFiTY

Stay updated with Emerge Australia's Research Digest on #mecfs and #longcovid • Summarized • Easy-to-read • Convenient • Accessible Subscribe for monthly delivery! Browse past issues or listen on our website: zurl.co/CCdtY

Join online for our #MECFS & #LongCOVID Action Forum New speakers include * E/Prof Andy Gleadow & E/Prof Ros Gleadow - 🏁 Eliza * Pete McCluskey - 🏁 Jenny * Peter Schubert - 🏁 Lily * Sen Jordon Steele-John - Sen for WA 🗓️ 1pm – 3pm AEDT, 30 Oct 🌐 Zoom zurl.co/jgCuH

Join us online for our #MECFS & #LongCOVID Action Forum New speakers include * Dr Mike Freelander MP * Prof Michael Kidd AO * Penelope McMillan * Zoe Simmons * Anne Wilson More announced soon 🗓️ 1pm – 3pm AEDT, 30 Oct 🌐 Zoom zurl.co/jgCuH

With the US govt making catastrophic cuts to its health and medical research programs, American experts are saying that Australia has to step up. When we debate the CDC legislation in the House tomorrow, I'll be proposing amendments to increase its size and scope.

Did you know that Emerge Australia has a range of position statements on critical matters that relate to various issues surrounding #MECFS and #longCOVID in Australia? You can find our more here: zurl.co/ms4si#MECFS#longCOVID#myalgicencephalomyelitis #chronicfatiguesyndrome

I speak to Australian ME/CFS researchers who rely on either the austerity ridden UK or US based grants. Since Labor came to power, the NHMRC has allocated a grand total of ZERO in research grants for ME/CFS, a condition that impacts hundreds of thousands of Australians.

Congratulations to the Government for securing a deal to grow Australia's critical minerals industry and put us in the running to become clean tech heavyweight, but it's a shame to see the PM return empty-handed on another critical sector of our economy.

Join us in our mission to educate and empower! With $400, we can educate a GP on #MECFS and #longCOVID. Can you introduce us to someone in philanthropy who could support? If so, please email [email protected] More info: zurl.co/Kujtx

We congratulate Assoc Prof Bernard Shiu, co-Chair of our MSAC, for his appointment as Chair to the RACGP Specific Interest Group - Energy-Limiting and Post-Infection Conditions. This marks real progress in supporting GPs in diagnosis, management & treatment of #MECFS & #longCOVID

Can a new blood test really detect ME/CFS? An expert unpacks new research #MyalgicEncephalomyelitis #MECFS #LongCOVID theconversation.com/can-a-new-bl...

@davetuller1.bsky.social nails it again. "Her response illustrates what has been a problem in this field for 30+ years—the conflation of chronic fatigue syndrome, as a distinct clinical entity, with the symptom of unexplained or 'idiopathic' chronic fatigue." 1/2 virology.ws/2025/09/25/t...

Australia has an amazing opportunity to use its Medical Research Future Fund to immediately supercharge healthcare innovation - to develop new medicines, new therapies, new cures. The economic and social potential for our country is huge. The government could release billions of dollars today.

I just completed this after feeling overwhelmed the first time I tried. It’s less complicated than I thought, & Lenny confirmed you can leave questions unanswered if you don’t have an opinion. I hope especially longtime #pwME who have seen many severity scales come & go will offer your insights!

Listen and weep for our fellow human beings. This courageous Australian doctor chooses to risk her own life to work in Gaza. What she describes makes harrowing listening. #Auspol #Gaza www.abc.net.au/listen/progr...

“Panadol Rapid has been proven to give autism twice as fast as regular Panadol,” warned Robert Kennedy Jr. theshovel.com.au/2025/09/23/w...

Dr Richard Denniss says the “obvious” ones to pay for damage from increased floods as per the latest climate report should be the Fossil Fuel co’s, as houses will become uninsurable “The insurance industry will not help ppl in 20yrs time with their flooded houses”💯 #Estimates

Coeliac was known for a very long time, but not understood, until world war 2. The disruptions to diet in that era were like a natural experiment that shone a bright light on the disease. #Mecfs has been known but not understood for ages. But covid and #longcovid have shone a light on it. 1/2

When speaking doesn't come easily the consequences can be life altering: https://www.abc.net.au/news/2025-09-14/australias-speech-pathology-therapy-language-delay/105658306

Please read this! A doctor says sorry to Long COVID and ME/CFS patients—he truly didn’t understand until he got Long COVID himself. "I gaslit myself, pushed myself, gave myself the wrong advice" Source: www.reddit.com/r/covidlongh...

If you have #ME/CFS, no matter how much you want to do activities most people take for granted, exertion can make you far more ill — for days, weeks, months, or longer. Someday, hopefully soon, we’ll be able to explain and treat the biological abnormalities behind post-exertional malaise (PEM) and

Are there many #pwME still active on here? I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙 Would love to know who's around! 😊

Labor’s plan to fix FOI is to make it harder to apply for information.