Thunder and heavy rain has woken me up, even with my Loop earplugs in. Fingers crossed Poneke doesn't get flooded again 🤞🤞

This!! 👇👇👇

Most of us spoonies are under multiple medical specialists. I'm under: -OT -physio -neurology -orthopaedics -gastroenterology We're physically 'alive', but not 'living'. A lot of us want to be more productive but can't. The CoC sees us as obstacles to their uber-capitalist goals. I hate them.

This is Maple. She closes her eyes while enjoying ice cream in order to really savor the moment. Also believes it prevents brain freeze. Just can't prove it yet. 12/10 (TT: maplethechocolatesausage)

Artist: @Chibirdart.bsky.social

Tomorrow I'm having my endoscopy, wish me luck 🤞 🤞 I do actually want them to find something, so they can treat it and stop my teeth being eaten by stomach acid every morning. 😬

Hey Bsky, I've lost access to my original IG account so I've set up a new one. If you get a request or follow from thekindbodymethodnz, it is me. I'm gutted to have lost access to 10 years of content, I've sent the h@cking info to IG, but I'm not optimistic I'll get the account back. Thanks! 😊

Looks like my IG account has been h@cked and I've been locked out. Have sent the relevant info to IG to try and get it back. I really don't want to have to start over with a new one but I might have to. Sigh 😔 😔 😔

I've just started the mammoth task of sorting stuff in preparation for the rental I am in being sold somewhere in the next couple of months. Stack 1: to be put in storage. Stack 2: to be photographed, listed & sold. Stack 3: to be given away Huge task for me and my ataxia. Must pace myself 😬🙃

Why do some people assume we all have a local support network? My condition and need for help has burnt people out and I fully understand why. This is why some of us isolate, we end up feeling like a burden and a nuisance. #chronicillness #disability #disabled

I had a very bad migraine postdrome this afternoon-evening. Heavy fatigue, nausea and loss of appetite. So I just slept. I normally just get the fatigue so the others were new. Only starting to feel better now.

An 18 hour migraine is not what I ordered. Refund requested.

Who else is going to the NZ Art Show in Poneke this weekend?

Trans women are women. Sign the petition to block the bill 🏳️‍⚧️🏳️‍⚧️🏳️‍⚧️

Waiting at the gate to board my flight back home. I'll definitely be back when I'm financially solvent again.

Water Lilies - 1907 https://botfrens.com/collections/41/contents/10982

Single renters of Aotearoa, what percentage of your income do you spend on rent?

@QueerlyAutistic

@shivaanichugh

Yes of course I've broken a tooth while I'm on holiday....oh and I also dropped my relatively new phone in water...

CW: abuse/coercion Every time I go on holiday, I do some emotional insight work. This time I chose coercion/manipulation/guilt tripping. As a shy child it was easy to manipulate or guilt trip me into doing things because I wanted to people please. Family were the main culprits.

25°C and 80% humidity at 10pm. Fans will be going all night. I find I can sleep quite well in humid conditions as long as cool air is circulating.

Btw, while it's interesting to see people break down how you can make cheap meals, you have to be able to afford the ingredients to do it. No one can individually buy like 2c worth of carrots or bread or whatever. You need $5 for the whole loaf, $9 for a carton of eggs, etc.

A very hot, humid day in Rarotonga today. I spent most of it at Black Rock, walking the beach and paddling in the water.

I have to pack up a high % of my belongings when I return from my holiday bc my landlord-flatmate has to sell the house for $ reasons. Able bodied people may be able to do it quickly, but my energy levels vary massively day to day so it will take longer. I'm pedantic abt how it's done too.

My favourite #kakapo nest from this year was Whetu's on Anchor: she was 2m off the ground, 2m down a hollow rata trunk, with an entrance so small we had to use a phone camera to see inside. It was the only nest we didn't get into. #kakapo2026 #conservation #parrots

RESPECT Tamatha Paul! "CALL TO ACTION: Wellington, I need you to fill the gallery this Thursday as the Government announces their wretched, cruel move-on orders. We won't let them get away with it. This Thursday, 3pm-4pm at Parliament. RSVPs are essential. 🙏🏽" RSVP: docs.google.com/forms/d/e/1F...

RespectEd Aotearoa, one of the few specialist sexual violence prevention organisations in the country, is to close after government's sector funding was withdrawn. “We are not closing because the need has gone away. We are closing because the funding did.” - Jan Logie, RespectEd Aotearoa

Meet my Rarotonga accomodation companion, Jimmy the Shih Tzu. He lies on the doormat, covets my couch and snoozes on the outdoor lounger. He also has that quintessential dog smell. #rarotonga #dogsofrarotonga #dogs #holiday

The Transport Minister has confirmed that the Total Mobility subsidy is being cut - disabled ppl use the subsidy to do ordinary things like meet-ups with friends, shopping for groceries, and attending health appointments. #savetotalmobility open.substack.com/pub/drbex/p/...

So, I've been keeping something from you 😊 Earlier this year I was offered A LOT of Air New Zealand credits by a dear friend who couldn't use them by expiry. So, tomorrow I fly to Rarotonga for 9 days courtesy of my friend. My first holiday since August 2018, 6 months before Dad died. Excited 😍

I need to remember this...

Sign the petition: Keep Conservation Land in Public Ownership action.greens.org.nz/protect_cons...

Truth. And masking is exhausting. Nervous system overload. #disability #chronicillness #fatigue

The reality for anyone with a chronic illness or disability. If I do too much in one day, I'm out for two. The neuro-physiotherapist & OT emphasise energy self-management. I have to listen to my body carefully. Don't judge me for taking care of myself. #disability #chronicillness #fatigue

I'm in the middle of an ataxia related flare. Increased hand tremors, clumsiness, dizzy spells, heavy fatigue and intermittent internal tremors. It's not something I can control, I have to rest more until it settles. Energy management is key. #disability #ataxia #chronicillness #movementdisorder

For anyone who may have missed it, and given it's his 100th birthday, don't miss David Attenborough's lovely narration of a short piece on New Zealand's #Kakapo, first broadcast in 2018. #nzwildlife youtu.be/pWeJt-CsK-c

Hobson’s Pledge is throwing their weight behind the FSU’s attempt to win #InternetNZ board seats. pastebin.com/tX1rKcJ5 If you’re an existing InternetNZ member ensure: your membership is up to date and if not please register prior to May 10th here: members.internetnz.nz #kikorangi #nzpol

Question for those of you taking Menopausal Hormone Therapy, are you doing any form of weight bearing exercise? And if so, please describe it below. Please repost. #personaltrainer #menopausecoach #hrt #menopause

Yesterday, I visited Neko Ngeru cat cafe in Lower Hutt...again. Here's a few snaps I took. #nekongeru #cats #catcafe #lowerhutt

happy 9th anniversary to the day we watched Zendaya fall madly in love with Tom Holland in real-time

As of the March 2023 quarter (reported in May 2023), Auckland's unemployment rate was 3.4%. One term under Luxon; Auckland 6.6% Wellington unemployment rate was even lower, averaging approximately 2.8% / 3.0 % for the 2023 calendar year. One term under Luxon; Wellington 6.3% #nzpol #NZ