Have you read the @hdbuzzfeed.bsky.social June 2025 update? HDBuzz share.google/zKHcUhxdYg35...

Appreciate the anti war theme this eve @johncreedon.bsky.social If anti-fascism appeals please share this webinar, a tribute to #WoodyGuthrie www.eventbrite.co.uk/e/when-bob-d...

Red Light, Green Light: How Huntington’s Disease Influences Genetic Traffic Lights https://en.hdbuzz.net/435

This #HelloHowAreYou Day, we encourage you to reach out to a friend or family member who may be #grieving. Whether it's a recent or old loss, sending a simple message like this one can mean a lot. 💛 @mentalhealthirl.bsky.social

@independent.ie supporting Huntingtons Disease Awareness month. ‘There’s been so much progress in terms of scientific research – we’ve been bringing it out of the shadows’ Charles Sabine OBE shorturl.at/HAsFa

Deputy Marie Sherlock @labourpartyireland.bsky.social called for a review of the Assisted Decision Making Act in the Oireachtas today. She spoke of Huntington’s disease when raising concerns for people who may be unintentionally excluded from services if they are unable to give informed consent.

It's Good News Thursday! UniQure has been granted Breakthrough Therapy designation for AMT-130. Development and review will be expedited. Woohoo! It's given to drugs that could treat a serious condition and have prelim clinical support for solid improvement on clinically significant endpoints.

Looking forward to the @tcddublin.bsky.social Huntington's Disease Research Day on May 9th. #HuntingtonsDisease @evawoods.bsky.social @cpeelo.bsky.social Registration Link forms.gle/hAjaRjo1Npmj...

🗞️ In the Irish Times this morning... Our Policy Advocacy Manager Fleachta Phelan is calling for urgent action on the Cost of Disability and disability poverty. IT letter: bit.ly/3R9xlZz Article: bit.ly/4j16AlF Deep dive: bit.ly/4bLmkaa

#HuntingtonsDisease #ClinicalTrials are something to cheer about!

Barranquitas, Venezuela has the world’s highest prevalence of HD. Tonight they had a candlelight vigil honoring family lost to HD, leading to HD Gratitude Day this Sunday recognizing the partnership of families and scientists in the quest for a cure. Join us! #HDGratitudeDay

Jimmy demonstrates the #HDGratitudeDay sign so you can practice for March 23rd! @jimmyplowell.bsky.social

Listen in to this #HuntingtonsDisease feature with Ivan Yates on Pat Kenny Show @newstalkfm.bsky.social today for #BrainAwarenessWeek open.spotify.com/episode/52V7...

Prof. Orla Hardiman reflects on 20 years of Brain Awareness and her work with the #NeurologicalAllianceofIreland to advocate for the 860,000 people in Ireland living with Brain Conditions #brainawarenessweek2025

Researchers used CRISPR to turn off more than 50 genes involved in DNA repair. This helped them work out which genes influence how the genetic C-A-G repeat that causes Huntington’s disease (HD) changes over time, helping to uncover potential targets that could halt the disease. en.hdbuzz.net/409

Deputy Erin McGreehan hosts the Neurological Alliance of Ireland Oireachtas members briefing to call for action on neurorehabilitation @oireachtasnews.bsky.social #MyNeuroRehabTeam #BrainAwarenessWeek2025

HDAI attended the Oireachtas All Party Group for Rare Diseases today hosted by Deputy Padraig O'Sullivan and attended by Minster for Health Jennifer Carroll MacNeill and many TDs and Senators interested in #RareDiseases #RareDiseaseDay2025

Good to see a strong focus both on patients and clinical trials at the #IPHAconference2025. #HealthResearchMatters

Good morning! Day 1 of #CHDI2025 is kicking of NOW! Get ready to follow along for some exciting Huntington’s disease research over the next 3 days.

HDBuzz will be at CHDI's Huntington's Disease Therapeutics Conference from Feb 24-27. We'll be covering the research updates on Bluesky *live*, as they happen! Follow us on Bluesky so you don't miss out!

The November issue of EHDN News is online! Highlights include coverage of EHDN & Enroll-HD 2024 and an interview with the amazing Anne Rosser. #HuntingtonsDisease #HDCommunity #RareDisease #ClinicalResearch PM or email [email protected] with your comments and views!

Excited to share my joint first-author paper (with @rachiscahill.bsky.social) published today in Nature Medicine (@natmedicine.bsky.social, @nature.com). Our findings are timely as the #HD therapeutic landscape expands toward preventive clinical trials. 🔓 Open access: www.nature.com/articles/s41...