Act!!!

Some things are more important than the Stanley Cup. Some. Not many.

As Huntington’s Disease Awareness Month winds down, Burlap and I made it to #sybilspicnic… late as usual but right on time! We’re here in the States in Lowell, Massachusetts. If you’ve got a Sybil, join us , wherever you are. No awareness campaign has had the reach and longevity as #sybilontour

Join us!!! Do something impulsive!!! It’s for a great cause!!! A splendid time is guaranteed for all!

Ellis Paul just posted this gem. Topical tunes needs up to put wind in their sails! please share!!! www.facebook.com/ellispaulmus...

Thanks to Larry Luxner and Rare Disease Advisor for this profile. Lots of stuff I don’t mention often. Thanks, again, Larry!!! www.rarediseaseadvisor.com/features/jim...

#HDGratitudeDay Factor-H.org

#HDGratitudeDay Factor-H.org

Barranquitas, Venezuela has the world’s highest prevalence of HD. Tonight they had a candlelight vigil honoring family lost to HD, leading to HD Gratitude Day this Sunday recognizing the partnership of families and scientists in the quest for a cure. Join us! #HDGratitudeDay

GREAT MOMENTS IN HD RESEARCH 1996: First transgender HD mouse model.

Save the date!!! Join us as we mark, recognize an appreciate the partnership between scientists and families living with Huntington’s. It’s brought us this far and is the foundation on which cures, treatments, all is built! A social media event. #hdgtstitudeday More info? Let me know!

Holidays are stressful. Those living with cognitive challenges may become overwhelmed, to avoid or escape overstimulation they make make an “Irish Exit!” Here’s a door hanger with a brief explanation and 4 limericks to better understand. Want free copies? Contact me!

My first post here!