Last months audiobooks 🎧📚 Sunrise on the Reaping 5⭐ I hope it's not the last in the series.

Amazing opportunity for someone with lived experience of mental illness 👇👇👇

🧠 NEW RESEARCH SUMMARY 🧠 The Benefits & Limitations of Self-Tracking Long Covid 🔗 shh-uk.org/?p=34441 #LongCovidResearch #SelfTracking #PatientLedResearch #SHHUK #HealthJustice #PostViral

Think there's no power in your feedback? Don't believe it can make a difference to health and social care services? We want to show you that isn't the case. Check out some recent examples of how you made a difference - www.healthwatch.co.uk/our-impact

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET! Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers. 🗓️ Register: us02web.zoom.us/webinar/regi... #LongCOVID

Our Chief Executive Louise Ansari responds to news that #Healthwatch is to be closed down. "This is clearly a sad day for our staff, volunteers, and everyone associated with Healthwatch who have proudly supported people and communities to speak up about their experiences of health and social care."

🛑 Help us contact every MP in the UK 🛑 📄 Visit 👉 shh-uk.org/get-in-to... 📬 Use our simple tool to contact your MP and make your voice heard. #safeair4all #longcovid #workplacesafety #infectioncontrol #PublicHealth #Healthcareleadership

#SafeAir4All In collaboration with @gmhazardscentre.bsky.social we've produced a fact sheet for MPs. #SafeAir4All campaign Can you contact your MP about the need for safe air in healthcare settings? Find out more here: shh-uk.org/get-in-touch...

This is gorgeous 😍 The children were so respectful to Mum duck & her ducklings 🦆

A month of trusted detectives & another great story by Michael Morpurgo. #booksky 📚🎧

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Covid-19 is airborne. Poor indoor air quality in healthcare settings increases infection risks for staff, patients & visitors. We’re calling for urgent action. Read our second position statement: 🔗 shh-uk.org/shh-uk-posit... #SafeAir4All #ProtectHCWs #LongCovid

Image of library book display labeled: “It's A Warning Not An Instruction Manual.” Books on display: • On Tyranny • Twenty Lessons From The 21st Century • 1984 • A Handmaids Tale • Diary of Anne Frank • Parable of The Sower • Fahrenheit 451 • Animal Farm • Brave New World ~TAiLS of a Bookworm

We're looking to speak with people in the UK who have experienced psychosis and worry about relapse. Could you help? Reposts/shares hugely appreciated! 🙏 #PsychSciSky #AcademicSky #psychsky #Psychosis #MentalHealth #MentalHealthResearch #schizophrenia

Today, on World ME Day, we stand with all those affected by ME to deliver a simple message to the UK government. @joplatt.bsky.social @eddavey.libdems.org.uk @tessamunt.bsky.social Read the joint statement: meassociation.org.uk/nsts #WorldMEDay #MEAwarenessWeek2025

🏃‍♀️ Every step you take helps protect healthcare workers with Long Covid. Join #TeamSHHUK in the #RunForCharities and fundraise for a cause that matters 👉 shh-uk.org/run-for-c...#TeamSHHUK#RunForCharities#LongCovid #NHS #CharityRun

Have you seen our Patient Partnership Week events for this year? Take a look and book on to our free webinars, happening 30th June to 4th July. #PPW2025 buff.ly/EKU2vAg

Instead of slashing welfare and disability benefits — forcing more disabled people and children into poverty — the government could introduce a 2% tax on assets over £10 million. It would raise £24 billion — five times the savings from these cuts. This is austerity 2.0

On Thursday we launched the Lost Mothers Project findings @birthcompanions.bsky.social @britishlibrary.bsky.social Powerful performances from @cleanbrk.bsky.social, art by Beci Ward. Experiences shared reveal a depth of unimaginable pain - ‘…my whole body craved him’ Time 4 change is now.

Don't miss your chance to make healthcare settings safer for patients & staff. Sign the petition 👇 #PatientSafety #PublicHealth #SafeAir4All

It’s my birthday. I’m 44. I feel deeply happy. That feels extraordinary - after 22 years with ME, and now 17 days in hospital with post-Covid microvascular failure. What I’m going through feels otherworldly. But it’s common. Not rare. We must take ME and Long Covid seriously!

You can’t put a price on good mental health. But we’re all paying for the lack of investment. Ahead of the #SpendingReview, we're calling on the Government to #InvestInMentalHealth. We've set out six key areas where investment could make a real difference: tinyurl.com/ypjusv3z

Just a gentle reminder for those on antidepressants in this heat 🔥 Not everyone knows this, so please share to spread the word ❤️

❗ "We are deeply alarmed by reports that NHS trusts across England are being forced to cut staff, close services, and ration care to meet severe savings targets," @rachel-p.bsky.social on the latest @nhsproviders.bsky.social survey. Read the full statement: buff.ly/nXXEUFi

Now on YouTube. We would love it if you could watch, like and share their short advocacy video youtu.be/6JRF4CVEVsI #FridayVibes #YoungVoices #LCandME

Great piece by @futuregovforum.bsky.social associate @charlotteaugst.bsky.social on the challenge of reforming our health system - and how rising to it will mean knowing when to act centrally and when to localise futuregovforum.substack.com/p/public-ser...

Are you a healthcare worker living with Long Covid? What do you need from @shh-uk.bsky.social? Let us know 🗣 Join us online tomorrow morning (Friday) from 10am. Register using 🔗 below. #NHS #HealthcareHeroes  #LongCovidSupport #CoProduction

NICE is looking for people with lived experience of OCD & BDD to join a new committee #PPI #patientinvolvement #mentalhealth #mentalillness #recovery 👇 👇 👇

Time is running out. Please sign this petition for new air quality and PPE standards in healthcare: petition.parliament.uk/petitions/70...

Ministers admit failing to assess impact of thousands of NHS job cuts in England www.theguardian.com/society/2025...

🎙️ You’re not “too close to it.” You are the evidence. When advocacy gets personal, it gets powerful. That’s not bias. That’s credibility. #LivedExperience #AdvocacyMatters #ThirdSector

Coproduction of healthcare services: what is it all about?

📣 Reminder: Listening Session Tomorrow! 🕕 6 PM | Online 📍 Link: events.teams.microsoft.com/event/890de9... #LongCovid #HealthcareWorkers #LongCovidSupport #SHHUK #ListeningSession #ChronicIllness #CovidRecovery #InvisibleIllness #LongCovidWarrior #SupportHealthcareHeroes #YourVoiceMatters

Just one week to go until Mental Health Awareness Week and this year we’re highlighting that mental health is connected to everything. That means any way you choose to spread the word this Mental Health Awareness Week will make a difference. #MentalHealthAwarenessWeek #MHAW

"Any genuine reform must be measured through metrics that centre patient power, something consistently desired by patients we speak to through our helpline and engagement with patients." Read our latest blog from @rachel-p.bsky.social: buff.ly/tPSOrhE

Are you a healthcare worker living with #LongCovid? Join a @shh-uk.bsky.social online session next week & #HaveYourSay If you can't stay for the whole session, that's ok #YourVoiceMatters #NHS #HealthcareHeroes #LongCovidSupport #CoProduction 👇 👇 👇

20 Day Book Challenge 15/20: This Much Is True. Miriam Margolyes. #booksky 📚💙 #20bookschallenge #20bookchallenge Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order. No explanations, no reviews, just covers.

NICE is looking for people with #livedexperience to join committes: - Polycystic ovary syndrome #PCOS - Indicator advisory committee - Metabolic Dysfunction-Associated Steatotic Liver Disease #PPI #patientinvolvement ⬇️ ⬇️ ⬇️

🌍 Carers mean the world to us. Our charity was formed by a group of people who supported loved ones experiencing schizophrenia. For Carers Week 2025, we want to shine a spotlight on the amazing stories of carers from across England. If you've got a story to tell, get in touch 👉 bit.ly/3XH3lFI

Great month of audiobooks #booksky 📚🎧 I'd definitely recommend The Salt Path & Wandering Souls. Michael Morpurgo never disappoints, and Will Dean's Tuva Moodyson series may be far fetched but it's addictive. For those wanting a very light read, Miss Merkel made me chuckle.

20 Day Book Challenge 14/20: The Red Tent. Anita Diamant. #booksky 📚💙 #20bookschallenge #20bookchallenge Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order. No explanations, no reviews, just covers.

🚨 “I didn’t know I was dying.” A new report reveals how NHS failings are putting Deaf patients at risk and is a stark reminder that accessible health information isn’t optional, it’s a right. 📰 Read more: buff.ly/84VI4LH

20 Day Book Challenge 13/20: The Choice. Edith Eger #booksky 📚💙 #20bookschallenge #20bookchallenge Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order. No explanations, no reviews, just covers.

Join a SHH-UK Listening Session to help shape our future support. 🗓 Wed 7 May, 6–8pm 🔗Link in Comments! 🗓 Fri 9 May, 10am–12pm 🔗 Link in Comments! 📩 Can’t attend? Email [email protected] #LongCovid #HealthcareWorkers #SHHUK #ListeningSession #LongCovidSupport

🩺 We wouldn’t give patients dirty water—so why give them dirty air? NHS staff and patients deserve clean, safe environments. ✍️ Sign the petition calling for legal standards on indoor air: 📍 petition.parliament.... #NHSVoices #SafeAir4All #SupportingHealthcareHeroes

🌟 Volunteer roles available... 🔹 Trustees Needed 🔗 reachvolunteering.org.uk/opp/trustees... 🔹 Online Support Group Moderator 🔗 reachvolunteering.org.uk/opp/online-s... #Volunteering #MutualAid #CharityWork #SupportGroups #Trustees #RemoteWork #GiveBack #BlueskySocial

20 Day Book Challenge 12/20: What Makes Women Sick. Lesley Doyal. #booksky 📚💙 #20bookschallenge #20bookchallenge Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order. No explanations, no reviews, just covers.

20 Day Book Challenge 11/20: The One Memory of Flora Banks. Rosie Jones. #booksky 📚💙 #20bookschallenge #20bookchallenge Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order. No explanations, no reviews, just covers.

20 Day Book Challenge 10/20: My Sister's Keeper. Jodi Picoult Garden. #booksky 📚💙 #20bookschallenge #20bookchallenge Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order. No explanations, no reviews, just covers.

Key takeaways: 🛑 Underserved groups often feel excluded from research 💬 Co-production & translation build trust & relevance 📢 Inclusive research = better science We’re reflecting on this in the Epidemiology Group as we work to ensure no one feels left out #PPIE #Diversity #EDI #HealthResearch