@advocate4me.bsky.social
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📥 157
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reposted by
#MEAction Network
26 days ago
Upcoming conference dates! Sept. 5: Stanford Community Symposium on the Molecular Basis of ME/CFS
ow.ly/lMRC50WQQ4Z
Sept. 9-10: RECOVER-TLC
ow.ly/pRxx50WQQ50
October 22-25: IACFS/ME Research & Clinical Conference
ow.ly/6RIL50WQQ4Y
#pwME
#MECFS
#LongCovid
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reposted by
Bateman Horne Center
about 1 month ago
One Guide. One Goal. Final push! Your gift will help transform the Clinical Care Guide into CME-accredited courses for providers worldwide. Give now:
givebutter.com/OneGuide_One...
#OneGuideOneGoal
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5
reposted by
Bateman Horne Center
about 1 month ago
August is Severe ME Month. Severe/very severe ME can leave people bedbound & in constant pain. This publication called for urgent recognition & care for the most affected:
buff.ly/Pc0Cjcp
💙 We stand with them.
#SevereME
#MECFS
#UnitedForME
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reposted by
Bateman Horne Center
3 months ago
We’re nearly 1/4 of the way to our $10K match honoring Dr. “Bud” Keye’s legacy of compassionate care! 💙 Give by July 15 to double your impact for ME/CFS & Long COVID. Text BHCGUIDE to 53555 to donate
#MECFS
#LongCOVID
#DoubleYourImpact
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reposted by
Bateman Horne Center
3 months ago
Chapter 2 of the Clinical Care Guide breaks down ME/CFS, Long COVID, and related conditions for clinicians—covering diagnostic criteria, PEM, comorbidities, & practical tools for care. 📘 Download:
bit.ly/4jScKFu
@openmedf.bsky.social
#MECFS
#LongCOVID
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reposted by
Bateman Horne Center
3 months ago
We're launching a $5 Campaign to get the Clinical Care Guide into the hands of providers worldwide. $5 = 1 guide. 1 provider. 1 life changed. 💙 Donate now:
loom.ly/q08sVxQ
📘 Learn more:
loom.ly/-Gjg9w8
#MECFS
#LongCOVID
@openmedf.bsky.social
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reposted by
Bateman Horne Center
5 months ago
ER visits can be tough with ME/CFS & Long COVID. This popular MERC’s guide helps providers manage OI, MCAS, sensory concerns & more. Download & share
bit.ly/3AEsKoW
💙 Share to improve emergency care!
@openmedf.bsky.social
#MERC
#MECFS
#LongCOVID
#UrgentCare
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reposted by
Bateman Horne Center
5 months ago
Exciting news: BHC &
@emergeaustralia.bsky.social
are collaborating to expand access to self-paced, patient-centered education for people with
#MECFS
,
#LongCOVID
&
#IACCs
. These tools help individuals better understand their experience with PEM, OI, and more. Available:
loom.ly/TUT-cLw%22
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reposted by
Bateman Horne Center
4 months ago
On
#ClinicalTrialsDay
, we celebrate BHC's research team. They’re advancing treatments and improving diagnostics for ME/CFS & Long COVID. 🔗 Learn more about what our research team is up to:
loom.ly/MJo615A
#CTD2025
#ResearchMatters
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www.theguardian.com/commentisfre...
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Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
https://www.theguardian.com/commentisfree/2025/mar/17/long-covid-pandemic-britain-power-lockdown-disease
7 months ago
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open.substack.com/pub/longcovi...
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How To Help Children with Long COVID
With Physician and Mother Dr Melanie Hoppers
https://open.substack.com/pub/longcovidmd/p/how-to-help-children-with-long-covid?utm_campaign=post
7 months ago
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1
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reposted by
Bateman Horne Center
8 months ago
ME/CFS is a complex condition that can occur after an infection (like the flu, mono, COVID-19, etc.). For some, there’s no clear trigger, but regardless, the illness is completely life altering. Learn more👉
loom.ly/9Dwp5IE
#MECFS
#LongCOVID
#InvisibleIllness
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reposted by
Billy Hanlon
8 months ago
ME Association: 'America: ‘Virus Hunter’ Ian Lipkin calls for Long Covid and ME/CFS to be studied together'
meassociation.org.uk/2025/02/amer...
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America: 'Virus Hunter' Ian Lipkin calls for Long Covid and ME/CFS to be studied together - The ME Association
“ME/CFS and long Covid share profound similarities, including post-exertional malaise, […]
https://meassociation.org.uk/2025/02/america-virus-hunter-ian-lipkin-calls-for-long-covid-and-me-cfs-to-be-studied-together/?utm_source=rss&utm_medium=rss&utm_campaign=america-virus-hunter-ian-lipkin-calls-for-long-covid-and-me-cfs-to-be-studied-together
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www.ahajournals.org/doi/10.1161/...
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Cerebral Blood Flow in Orthostatic Intolerance | Journal of the American Heart Association
https://www.ahajournals.org/doi/10.1161/JAHA.124.036752
8 months ago
0
2
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reposted by
Bateman Horne Center
8 months ago
🌟 Struggling with unexplained symptoms after a recent infection or never fully recovered from COVID-19? ✅ Watch the 3rd video in our BASICS series with Clayton Powers, DPT, titled "The BASICS: Diagnosing ME/CFS", and gain insight into this often-misunderstood disease. 🔗 Watch here:
bit.ly/4jb1ww8
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The Basics: Diagnosing ME/CFS
Clayton Powers, DPT, discusses the basics of diagnosing myalgic encephalomyelitis (ME/CFS). - ME/CFS description - Symptoms that meet the diagnostic criteria This video is the third in our series called The Basics. Other videos cover post-exertional malaise (PEM) and orthostatic intolerance. Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen. Bateman Horne Center’s involvement in this program is made possible with the additional support of Open Medicine Foundation and the Whittemore Peterson Institute and donors like you.
https://bit.ly/4jb1ww8
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reposted by
Bateman Horne Center
9 months ago
Post-COVID
#MECFS
rates are 15x higher than pre-pandemic levels. New research highlights the urgent need for awareness and care. Explore the findings:
loom.ly/wLycS1s
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Quiet evening in Az to start off the new year
9 months ago
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2
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reposted by
Tom Kindlon
9 months ago
Bateman Horne Center has a list of Healthcare Professional Continuing Medical Education (CME) courses on their website you can share with your doctor if they want to learn more about ME/CFS. Two of the courses are expiring soon (end of January).
batemanhornecenter.org/providers/me...
#MEcfs
#pwME
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CME
BHC provides resources from continuing medical education (CME) offerings and other professional literature specific to ME/CFS, FM, and long COVID.
https://batemanhornecenter.org/providers/medical-education/cme/
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reposted by
AltYellostoneNatPar
9 months ago
The censorship algorithm on Twitter reduced our audience by roughly 95%, and seriously, who does that to a wildlife biology & advocacy group ? So we moved 😇 over here to BlueSky If you could, please help us regain our following Follow Retweet and Repeat ;-) Together we can change the world.
566
22507
9608
reposted by
Tom Kindlon
9 months ago
Bateman Horne Center: Healthcare Professional Continuing Medical Education (CME)
batemanhornecenter.org/wp-content/u...
I haven't vetted these but am hoping they are good or at least good enough
#MyalgicEncephalomyelitis
#ChronicFatigueSyndrome
#LongCovid
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3
reposted by
Neurologist Mom
10 months ago
📌 Excellent resource alert for
#ME/CFS
and severe
#LongCOVID
patients from Bateman Horne Center, supervised by Lucinda Bateman
@advocate4me.bsky.social
! Download The ME/CFS Crash Survival Guide for free from the link below. It’s a 49-page manual.
batemanhornecenter.org/education/me...
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