We are so honored to share this powerful TedX talk with you from #MEAction GA’s Maggie Boxey! Maggie is a person with ME, Navy veteran, and published author. She shared her story in her recent TedX talk, "I Am One of the Millions Missing.” www.meaction.net/2025/04/21/m... #pwME #MECFS #TedX

On Earth Day and every day, we ground ourselves in the knowledge that our struggles are deeply connected. The fight for Long COVID justice is intertwined with our struggles for #disabilityjustice, #climatejustice, #racialjustice, and so much more.

We’re excited to share more details about the panelists for Breathing for Justice @breathing4justice.bsky.social, a special event focused on #LongCOVID & #DisabilityJustice, this Wednesday 4/23. Learn more & register at www.tiny.cc/b4j-info (All registrants will receive the recording & resources!)

Storytelling training for #MIllionsMissing! Expert storyteller, Kirsten Ferrell, will lead our community in a storytelling training that will enable us to share our stories in a way that leads to change on April 27th at 12pm PT/3pm ET. Register here: www.eventbrite.com/e/millionsmi... #pwME

Calling all Long Covid, ME/CFS and Post-Treatment Lyme patients in the Boston area! This PolyBio-supported study is now seeking participants. Participants must be able to attend an in-person visit at Brigham & Women’s hospital in Boston to participate. Email [email protected] if interested

Tuning into Los Angeles County Public Health's 'Public Health Virtual Town Hall on Long COVID' tonight

The Trump administration recently canceled $11 billion in CDC grants to state and local health agencies. The Sick Times has identified specific #LongCOVID programs impacted, including state-level research, outreach, partnerships with community organizations, and more. bit.ly/4jjeAzi

PolyBio: 'Chan Soon-Shiong Family Foundation donation expands PolyBio Long COVID program' 'Funds will support exploration of SARS-CoV-2’s potential to drive cancer, as well as continued work delineating persistence of the virus in LC tissue, including therapies..' polybio.org/chan-soon-sh...

“My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her.” via @thesicktimes.bsky.social thesicktimes.org/2024/12/10/m...

Powerful story about how a daughter didn’t understand her mother’s ME and all of the gaslighting until she found herself with Long Covid, decades later. #pwME #pwLC

Today @thesicktimes.bsky.social: Jacquie Luciano describes how her experience with Long COVID led her to better understand her mother’s experience with ME decades earlier. This is the first piece in our Color of Long COVID essay series! thesicktimes.org/2024/12/10/m...

Working Americans (many of them disabled) pay into Social Security for their entire career out of recognition that these protections are what we owe one another, especially our disabled and aging neighbors. Making SSA harder to access is theft from those who've paid into SSA to protect their future.

Disabled Americans deserve a functioning Social Security system, and are already suffering from these changes. Should DOGE be allowed to carry out Elon Musk's plan to reduce SSA capacity by more than 50%, it will harm and kill countless disabled people.

Breaking: We just filed a lawsuit in federal court against the Social Security Administration (SSA), SSA Acting Commissioner Dudek, the "Department of Government Efficiency" (DOGE), DOGE Administrator Gleason, and de-facto head of DOGE, Elon Musk 🧵: www.aapd.com/aapd-sues-ss...

Announcing #MillionsMissing 2025 on May 12th! #MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m... #pwME #MECFS #LongCovid #disability

Join us for Breathing for Justice (@breathing4justice.bsky.social), a special event exploring how the intersections of #LongCOVID and disability justice affect individuals & communities, with a focus on inclusive health research & public history. www.tiny.cc/Breathing4Justice 🧵