Congratulations @sdesgraupes.bsky.social #AcuteNecrotizingEncephalopathy

We love this little guy and his family. Like many ANE parents, they are such great advocates. ##vaccinessavelives #AcuteNecrotizingEncephalopathy #influenza #AcquiredBrainInjury

This organization does important work around a complication of vaccine-preventable disease, and has helped us share some stories about influenza. You should follow them!

Neurological complications from #influenza - ANE is one that Doctors dread. It typically occurs in previously healthy children. ##vaccinessavelives #ANEawareness Check our website for symptoms to be aware of. www.aneinternational.org

#ANEawareness #AcuteNecrotizingEncephalopathy

#AcuteNecrotizingEncephalopathy #RanBP2 #Genetics

5/ A really bad form of this is acute necrotizing encephalopathy, leading to literal brain damage 🧠 37 kids got this - from flu And the worst bit is only 16% of the kids with flu-related encephalopathy who could get a flu shot had actually gotten one GET 👏 YOUR 👏 FLU 👏 SHOT

Pediatric Influenza-Associated Encephalopathy and Acute Necrotizing Encephalopathy — United States, 2024–25 Influenza Season | MMWR www.cdc.gov/mmwr/volumes...

#influenza #AcuteNecrotizingEncephalopathy www.nbcnews.com/health/healt...

Acute necrotizing encephalopathy is a rare but incredibly serious complication of infections like flu & covid. It often causes severe disability or death. Please get your kids their covid & flu vaccines; the families reported on in this story have to live w/ regret. www.nytimes.com/2025/09/12/h...

Influenza and acute necrotizing encephalopathy – the genetic dimension ANE. A rare complication with hidden genetic clues. Imagine a healthy child who goes to bed with a fever and wakes up unable to recognize their parents, slipping rapidly into coma. This is the terrifying course of acute…

1️⃣ ANE while rare, is extremely serious, it can be deadly within a short period of time. 2️⃣ Most children with ANE were previously healthy. 3️⃣ Most of those with ANE & nearly all of those who died had not received the flu vaccine that season." #influenza #vaccineswork #acutenecrotizingencephalopathy

👶Jasper was a happy, thriving 11 month old. Then, an unknown virus triggered ANE. 📖 In this new story, Jasper's mother shares their experience & captures the devastating speed & impact of #AcuteNecrotizingEncephalopathy. Read Here➡️ aneinternational.org/jasper/ #PedsICU #medicalemergency #virus

“I felt like I was robbed, we were robbed, of the opportunity to protect our children.” Zach lost his daughter to influenza before the vaccine was recommended for all kids. If you’re a parent here’s what he has to say. youtu.be/5zBrARHsayE?... #NIAM2025

Influenza, not Tamiflu, may raise risk of neuropsychiatric events in kids Treatment with oseltamivir was associated with an approximately 50% reduction in the incidence of serious neuropsychiatric events. www.cidrap.umn.edu/i...

🎥 In this expert talk, Dr. Ming Lim, Head of Children’s Neuroscience at Evelina London Children’s Hospital and King’s College London, breaks down the science behind ANE—and explains why early recognition and genetic testing matter. #medsky #genetics #ANEawareness m.youtube.com/watch?v=edV0...

#ANEawareness #AcuteNecrotizingEncephalopathy

📌 We’ve laid out the facts. Now, we share another experience with #AcuteNecrotizingEncephalopathy (ANE)—because no two journeys are the same. 📖 One name. Many paths. Here's one more. Read here ➡️ aneinternational.org/meredith/ #ANEawareness #i̇nfluenza #covid #RSV #virus #acquiredbraininjury #HHSV

#AcuteNecrotizingEncephalopathy (ANE) may be the shared diagnosis—but every story unfolds uniquely. 🫶❤️📖 By sharing these diverse paths, we deepen awareness. One story at a time. #ANEawareness #i̇nfluenza #VaccinePreventableDisease #virus #acquiredbraininury aneinternational.org/stories/aust...

Two major points on influenza-associated acute necrotizing encephalopathy - High mortality (27%) - Most affected children were unvaccinated & did not have major comorbid conditions #PedSky #IDSky

📋 We've shared the facts. Now, it’s time to meet the voices of lived reality. #AcuteNecrotizingEncephalopathy isn’t just numbers—it’s real people, real families, and stories that deserve to be heard. #ANEawareness #i̇nfluenza #RSV #covid #VPD Video ➡️ aneinternational.org/grayson/

#AcuteNecrotizingEncephalopathy The impact of #influenza assoc ANE - www.aneinternational.org "No one saw this coming. All of his symptoms were masked by “regular” flu symptoms. All we were told by every Dr from then on was to pray & hope for a miracle”. aneinternational.org/jesse-3/ #braininjury

🤒#ANEawareness Day - Learn more about ANE at www.aneinternational.org #AcuteNecrotizingEncephalopathy. A disease that affects healthy kids from common viruses such as #influenza. Help us spread awareness today. www.nbcnews.com/news/amp/rcn...

ANE: The Brain Emergency Every Doctor Should Recognize. #AcuteNecrotizingEncephalopathy #ANEAwareness #ANE1 #SickKidsToronto #PediatricNeurology #Influenza #BrainHealth #EmergencyPediatrics #RareDiseaseAwareness #ViralEncephalopathy @arhelnathalie.bsky.social m.youtube.com/watch?v=ywrf...

⚡️ANE can strike without warning in anyone, at any age. Read more: aneinternational.org/thestrongfam... #influenza #braininjury #acutenecrotizingencephalopathy

🦠Influenza, RSV, chicken pox, measles, roseola and covid19 are all common viruses. All are associated with ANE. 👨‍👩‍👧‍👦Together, we raise awareness. 👨‍👩‍👧‍👦Together, we save lives. 📚What is ANE? You can also learn more on our website - aneinternational.org/acute-necrot... #ANEawareness #abi #influenza

Acute Necrotizing Encephalopathy is a rare type of brain disease that occurs following a viral infection such as #influenza. It typically affects previously healthy children. Learn more - www.aneinternational.org

Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. We want to understand your experience to create positive change. Share your voice! 🎥 Watch short video shorturl.at/3zmru 👉Take part in the SURVEY tinyurl.com/bdhwd2az

🇪🇺 The EU Rare Disease Conference 2025 in Warsaw closed with a powerful message: Europe must act together to change the future for rare disease patients. Here are some of the key highlights 👉 loom.ly/1OWMODE Promising outcomes ahead for the rare disease community! 🚀✨ #RareDisease #ERDERA #EUpolicy

Our latest collaborative study with the Pasteur Institute and University of Toronto on the role of RANBP2 in #influenza -associated hyperinflammation #AcuteNecrotizingEncephalopathy @aneinternational.bsky.social @ribonucleicacids.bsky.social @irim-life.bsky.social www.biorxiv.org/content/10.1...

#Acutenecrotizingencephalopathy #ANEandUs

#RareDiseaseDay is a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, & access to diagnosis and therapies for people living with a rare disease. #AcuteNecrotizingEncephalopathy

1/ In Jan 2025, CDC received reports of children w severe influenza-associated encephalopathy (IAE), including cases of acute necrotizing encephalopathy (ANE), a rare but life-threatening complication. Several cases were fatal. The CDC investigated trends in IAE deaths.🧵 www.cdc.gov/mmwr/volumes...

It's Rare Disease Day tomorrow. Rare Disease Day is the opportunity to advocate for rare diseases as a human rights priority at local, national and international level as we work towards a more inclusive society. #rarediseaseday #Acutenecrotizingencephalopathy #ANEawareness www.aneinternational.org

1/ Timely discussion at #SCCM2025 about pediatric influenza necrotizing encephalopathy. We are seeing more this season and is proving to be rapid & deadly. Take home points: -elevated IL-6 and plasma and CSF - flu + altered mental status = CT scan. We will overscan, but pts survive if caught early

Another critical reason to consider vaccination for children >6 months: Flu has been linked to cases of ANE, or acute necrotizing encephalopathy. This serious neurological condition can result in brain swelling, seizures, and coma. 3/4

#AcuteNecrotizingEncephalopathy #ANEawareness

The reality of #influenza associated #AcuteNecrotizingEncephalopathy . The only protection from this heartbreaking disease is vaccination. We know. #ANEandUs #ANEawareness www.aneinternational.org

#AcuteNecrotizingEncephalopathy occurs following a viral infection such as #influenza & can sometimes be fatal. In children with severe ANE, seizures may occur & there may be a rapid progression to a comatose state within 24–72 hours from the onset of symptoms. aneinternational.org

Thank you to Jesse's family for sharing their story 💔. You can support an international ANE families-doctors meeting happening this April, here: fondsguilhem.fr/projet/souti...

#AcuteNecrotizingEncephalopathy. The worst complication of #influenza you can ever imagine. Jesse's family share their story. aneinternational.org/jesse-3/

#AcuteNecrotizingEncephalopathy #influenza Neurologic Complications of Flu in Kids May Be Up This Year www.medpagetoday.com/special-repo...

Acute Necrotizing Encephalopathy

Today's alert also included the following: ** Pediatric influenza with neurological complications** **DPH has recently received several reports of cases of neurological complications of influenza infection in pediatric patients including encephalitis and acute necrotizing encephalitis.** […]

How has your family been affected by #Influenza? Our community members suffered severe neurological complications resulting in brain injury or death. #whywevax #acutenecrotizingencephalopathy

We are seeing more cases of ANE. What should you watch out for if your child has #influenza or another respiratory virus. #acutenecrotizingencephalopathy