Functional Neurological Disorder does not mean: * you’re faking * you’re responsible for becoming ill * you could stop it if you wanted * it’s “just anxiety” * that you don’t really have a disability * that there’s no hope

Latest attempt to try and define predictive brain mechanism in #FND in the simplest terms - A disconnect in the brain where - Beliefs/expectations + prior experiences Outweigh Incoming sensory input from present reality Does that seem accurate? Any thoughts appreciated 🙏

New NHS England Neurology Service specification. ✅FND is one of seven core subspecialties ✅FND services MUST be provided in each specialised neurology centre. This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/ t.co/XvGo0NIryA

Our conclusions. @fndhope.bsky.social, FND action and @fndsociety.bsky.social

FND treatment is multidisciplinary, but there are barriers to care. Here are some thoughts on those. 5/

Physio for functional movement disorder has important differences to physio for other conditions in neurological practice Thanks to Glenn Nielsen for this material . Workbooks and Therapist manuals from the Physio4FMD trial are free to download via www.physio4fmd.org/publications 4/

Dont just diagnose - formulate. An example of a formulation based on Oliver Sacks autobiographical book 'A Leg to Stand on'. 3/ jnnp-bmj-com.eux.idm.oclc.org/content/83/9...

Some ideas for communication and explanation of functional movement disorder 2/

Time to get the facts straight. 🙌 Thanks @jonstoneneuro.bsky.social, Caoimhe McLaughlin and Anna Ross, and the ETUDE team for bringing this to life.

Why do people develop #FND? It’s complex and there isn't just one factor. 🔑 Underlying genetics, chronic illness, trauma ⚡ Triggering stress, illness, injury 🔄 Maintaining anxiety, stigma, lack of support FND = biopsychosocial illness. Real symptoms. Real support is needed. #FNDawareness #fnd

✨ It’s UK FND Awareness Day! ✨ I’ve made a video exploring psychological therapies, apps, books, and other tools that can help people with Functional Neurological Disorder. I hope they are helpful! #FND #FNDAwarenessDay #HopeForFND #MentalHealth #EMDR #ACT

I’m a neuropsychologist who works with people living with FND. I was told recently that no one in the UK with #FND falls through the cracks anymore. But the stories I hear tell a different truth. This #FNDAwarenessDay, I’m not just raising awareness. I’m amplifying voices.

#FND #FNDAwarenessdayUK @fndsociety.bsky.social @fndportal.bsky.social @timnicholson.bsky.social @jonstoneneuro.bsky.social @gnielsenphysio.bsky.social

Functional neurological disorder (FND) is the second most common neurological condition. This #FND Awareness Day, @nielsdetert.bsky.social explains what FND is and how treatment can vary. 👉 www.bps.org.uk/news/psychology-has-vital-role-play-treating-functional-neurological-disorder-says-bps

www.nhsinform.scot/illnesses-an... It’s FND awareness day. It’s the most common reason for a neurology referral second to headache. Why has no one heard of it? Two years ago I could drive, walk easily, talk easily, think and communicate efficiently, see and hear clearly and sleep soundly.

It’s FND awareness day, please take a minute to learn about this challenging condition. 🙏 cks.nice.org.uk/topics/funct...

Hi all! I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective. Check it out! #fnd #fndawareness #disabilityawareness #chronicillness

Please support FND Dimensions by sharing/attending this event celebrating the resilience of people with Functional Neurological Disorder: Stage and Screen - A Musical Concert, Friday 28th March 2025 - University Hall, NTU City Campus, Nottingham #FND 🧠🎵💪

🧠 Help Us Understand Pain Perception in FND! 🧠 Looking for volunteers with & without #FND for a study in London @kingsioppn.bsky.social. Single lab visit testing pain perception with electrical stimulation. Interested? Please message me: [email protected] ✉️ Thanks for sharing!

It's a little thing but getting added to group chats for my tennis clubs' league team especially after being told a few years back that I'd never compete again due to my FND is wild Got diagnosed, "retired" from tournaments, came back two years later in better health, now I'm playing for my club

1/Recently I’ve been wondering if #FND is a disease of modern living, the brain hasn’t evolved much in the last 40,000 years, and in terms of human history, civilisation is a recent invention, approximately 6000 years old.

FND mentioned by PM today in parliament during PMQ. #fnd

Today - I discovered the freedom of walking backwards!!! Yes, I looked like a full and pretended I was training my dog but it got me home for lunch. I’d still be stuck in the wood with velcro feet otherwise. Maybe this could become a new sport🤷‍♀️ #FND

Functional Neurological Disorder can be very complex! 🧠 #FunctionalNeurologicalDisorder #FND

inews.co.uk/news/how-rev.... Fabulous article on functional cognitive disorder

I'm being reminded via personal experience about what a big deal **attention** is for controlling FND. Which is hard, because when your leg stops working or is shooting icy pains, it's very attention-grabbing!

Ukraine is not alone. Germany together with our European allies stands united alongside #Ukraine - and against the Russian aggression. Ukraine can build on unwavering support from Germany, Europe and beyond. Their defence of democracy & their quest for peace & security is ours.

💙 if you stand with UKRAINE? 🇺🇦

Really important work confirming the very significant healthcare costs of FND Investment in clinical services & research urgently needed to reduce these costs & improve outcomes for this common yet neglected disorder. Education of healthcare professionals & the public also urgently needed👍

New journal comic about all the unsolicited medical advice and strange questions I’ve gotten since my #fnd diagnosis

Anyone got any feedback on NESA therapy for FND? As far as I can see there’s no robust trial data for its use.

If your day has been difficult, or if you’re feeling anxious, here’s some Cornish medicine to ease your heart. It might not change things much but hopefully a moment of calm will help in a small way. May your evening be peaceful, my friends. 😊 #Cornwall #sunset #sky #ocean #calm #peace #photography

The cost of ignoring FND patients is immeasurable—lives lost in silence, potential research halted, and trust in healthcare eroded. It's time for the medical community to step up, listen, and create real pathways to care. #FNDawareness #HealthEquity"

Any info/advice out there on how to manage specifically FND sensory skin crawling. I’m assuming this is not a histamine related response and therefore not an indication for an antihistamine? The impact of this on QoL is huge. 1/2

NHS Scotland Agenda for Change - “the further hour reduction in the standard working week required to deliver the 36 hour commitment for Agenda for Change staff in Scotland should be effective from 1 April 2026”. www.publications.scot.nhs.uk/publication/...

‼️ "We need to talk about Tramadol" ICYMI - TI #BestEvidence webinar recording featuring @drotte.medsky.social Practical information for clinicians considering the use of tramadol for pain: bit.ly/3onIs05 More here: ti.ubc.ca/letter131 #medsky #pharmsky #deprescribing #tramadol

Study in nursing homes across the Netherlands 🇳🇱: Only half of psychotropic drug use cases met guideline recommendations for appropriateness: https://buff.ly/4aXZ3S9 More work needs to done to reduce this discrepancy worldwide. 🌎 Our #deprescribing tools are found here: https://buff.ly/48I6Ph9

🚨#BestEvidence webinar recording! Dr. Wade Thompson: Minimizing harms of tight glycemic control in older people with type 2 diabetes: youtu.be/JbOadM8M8W4 #T2DM #diabetes #prescribing #deprescribing

We are still here and we can still fight. Let’s find ways to do it.

petition.parliament.uk/petitions/70... Please share and sign if you live in the UK .

Huge FND step for me these last few days. Told GP colleagues I have FND, didn’t get the expected eye role either. Step 2 Print out FND action health care prof info and drop in some copies 🥊 🥊

Looking forward to this! What a powerful way to promote awareness of #FND and to connect through music 🎺

Sharing an updated talk: The New Diagnostic & Treatment Paradigm in Functional Neurological Disorder. Part of a series of lectures on #FND at the 45th Annual Braintree Neurorehabilitation Conference. @fndsociety.bsky.social @fndportal.bsky.social @tomplender.bsky.social youtu.be/Blv3o5iFxJ0?...

I’ve read a fair amount re #FND and remain somewhat perplexed. Daily motor, sensory and cognitive decline whilst on waiting lists. Dystonic limbs but not fixed, visual impairment but not blind, dissociative events but not seizures all deteriorating rapidly.Hope of reversibility slipping away. 🤷‍♀️🥲