Our theme for Day 24 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "Neurosurgery". -- Have you considered it? Why did it make (or didn't) sense for you? -- Listen to our founder's neurosurgery story: brainablaze.com/the-brain-ab...

Our theme for day 28 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "Status Epilepticus". -- Do you know why an ambulance should be called if a seizure lasts more than 5 minutes? Have you had an SE event? #EpilepsyAwareness More on Status: brainablaze.com/the-brain-ab...

1 in 26 people in the US will develop #epilepsy in their lifetime. You can help change their future. 🌟 Support innovative epilepsy research this November during #epilepsyawareness month: 👉 my.aesnet.org/aes-donate-n... #EndEpilepsy

Medicaid-funded services are their lifeline—and make their work possible. But the Trump cuts to the program could change it all. Meet Audrey and Jeremy, who went viral for talking about how the GOP's Medicaid cuts could devastate their everyday.

i am saddled with the thought of how different our world would be if we believed women.

I’ve never seen an American elected official fight so hard to starve people.

Not pro-life. www.newyorker.com/culture/the-...

Millions of Americans are already learning that their health insurance costs for 2026 are going way up. I want to hear from you so we can make this impossible for the GOP to ignore the consequences of their policies. If your premiums are going up, reply below and please share your story.

🔥PLEASE REPOST🔥 🚨If ACA tax credits are NOT extended, premium payments will increase by more than 100% for many of the 24M Americans who buy their own coverage & it's on top of rising food & housing costs among other inflationary pressures that are adding major STRESS.🚨 www.kff.org/from-drew-al...

This is why gutting support for mRNA will compromise such remarkable progress vs autoimmune diseases And cancer And genome editing for rare disease

"We will never know what diseases might have been cured or what advances in technology might have been invented had the lights not gone out in the labs." www.nytimes.com/2025/09/08/o...

Child cognition, behavior, and treatment complexity are key predictors of parental stress, beyond seizure-related factors alone. doi.org/10.1111/epi.... #epilepsy #epilepsia #ILAE #behavioralproblems #caregiverburden #cognitiveimpairment #drugresistant #parentingstress #pediatric

At #AGBTPH25, @hcmefford.bsky.social of @stjuderesearch.bsky.social shared how gene replacement and antisense therapies are advancing treatments for rare pediatric epilepsies and neurological diseases — bringing new hope to patients and families. #PrecisionHealth #Genomics #RareDisease #Epilepsy

Awake craniotomy appears feasible and safe in patients with medically drug-resistant focal epilepsy. doi.org/10.1111/epi.... #epilepsy #ILAE #epilepsia #awakesurgery #drugresistantfocalepilepsy #feasibility #safety

This study assessed neurologists' practices and barriers to epilepsy genetic testing/counseling compared to guidelines published in 2022. doi.org/10.1002/epi4... #epilepsy #ILAE #epilepsiaopen #adultneurologists #bestpractices #genomics #unexplainedepilepsy

Citing concerns about DEI, the Department of Education has halted funding for programs that support students with combined hearing and vision loss in eight states. “How low can you go?” one advocate asked. “How can you do this to children?” By @jodiscohen.bsky.social @jsmithrichards.bsky.social

"How low can you go?" "How can you do this to children?" Education Dept. Halts Funds to Programs for Deafblind Students Over DEI Concerns, by @jodiscohen.bsky.social @jsmithrichards.bsky.social

Few OB-GYNs get disability training—and their disabled patients are far likelier to die.

An idea:

Findings support earlier surgical referral and long-term risk stratification in drug-resistant epilepsy. doi.org/10.1111/epi.... #epilepsy #epilepsia #ILAE #mortality #SUDEP #surgery #survival

An under-the-scalp implant can improve monitoring of a person’s #epilepsy, giving doctors data they need to improve control over seizures, a new pilot study says. www.healthday.com/health-news/...

Some day explorers from another galaxy will happen upon Earth and sift through the bizarre wreckage. In whatever language they use, one will say to another: “Amazing. These creatures did something called ‘voting,’ and 77 million of them voted to destroy themselves and everyone else on the planet.”

Overall, 55.4% of patients with LGS achieved ≥50% seizure reduction with neuromodulation therapies. doi.org/10.1111/epi.... #epilepsy #Epilepsia #ILAE #adverseeffects #DEE #drugresistant #neurostimulation #qualityoflife #treatment

everything is terrible so here's the Muppets channeling the Beastie Boys

Today’s the anniversary of the Americans with Disabilities Act—but the fight for access, dignity, and justice didn’t start in 1990, and it sure as hell didn’t end there. Anyone can become disabled at any time. So saving Medicaid is survival. For all of us. #SaveMedicaidSaveFamilies

Disability is not a moral failing It’s not something a person chooses, nor can they “try harder” out of it Most of us will experience disability at some point in our lives You can be born disabled, it can happen suddenly due to accident or illness or be the result of aging It’s a part of life

This is horrifying.

Summary Table of the massive defunding of biomedical research in the United States www.nytimes.com/interactive/...

"Catastrophic." Trump Withholds Nearly $7 Billion for Schools, With Little Explanation

"Instead of cuts, penalties, and requirements, we should be investing in and expanding Medicaid so that it can be there for every American who needs it." Mia Ives-Rublee and Nicole Jorwic explain why Medicaid is an essential lifeline—and how the GOP would ruin it with proposed work requirements:

A medication used for type 2 diabetes may reduce excess brain fluid in hydrocephalus, suggesting a potential less invasive treatment option compared to current surgical approaches. doi.org/g9rjd8

Senate Republicans claim they're going after waste in Medicaid, but all they’re doing is adding bureaucratic red tape to kick millions of eligible recipients off their health care — to pay for billionaire tax cuts.
 Make no mistake: if they succeed in gutting Medicaid, people will die.

Republicans think the American people will “get over” having their health care stripped away by Trump’s Big Ugly Bill. Losing your health care isn’t something you “get over.”

Can you imagine living in a “Democracy” where armed masked men are kidnapping people off the streets every single day?

After the judge deemed the NIH grant terminations illegal, he noted that the government’s practices were discriminatory: “This represents racial discrimination, and discrimination against America’s LGBTQ community. … I would be blind not to call it out.”

"The bill directs what is likely the largest single sale of national public lands in modern history..." www.wilderness.org/articles/med...

🚨HUGE SCIENCE WIN ALERT🚨 NIH Grants to be restored en masse!!! Thank you Judge Young for standing up for science! #StandUpforScience #SummerFightforScience

The Trevor Project is triple matching donations right now. They work to prevent suicide in LGBTQ youth and are a miraculous organization that Trump just cutoff from the national suicide hotline. www.thetrevorproject.org

"Republicans say the One Big Beautiful Bill wouldn’t touch Medicare. That is not true. One of the more important health care cuts in the legislation would affect some of the most vulnerable seniors and people with disabilities who are on Medicare." www.thebulwark.com/p/yes-they-a...

5+ MILLION people joined over 2,100 rallies across the nation today, in an act of peaceful resistance and community solidarity. Thanks to everyone who exercised your First Amendment rights and showed our collective power. Get home safe — and make a plan to organize with your local ACLU affiliate.💪

Few are telling this trainwreck's tale with as much rigor and passion as @anniewaldman.bsky.social‬ @ #ProPublica. "[Trump] ...has terminated more than 1,450 [#NIH] grants withholding more than $750 million in funds." Read the full piece zurl.co/fCpUU#ProPublica#NIH join us to fight back. #StandUpForScience

Thomas also says an interpretation of the ADA that broadly bars disability discrimination could exceed Congress' power under the 14th Amendment and even violate the anti-commandeering doctrine. This is just an awful concurrence and it's really alarming that Kavanaugh signed on in full.

There is no mass-deportation campaign going on right now. Deportation is a process. This is kidnapping and human trafficking.

Healthcare for seniors is *not* waste, fraud, or abuse. Food for hungry kids is *not* waste, fraud, or abuse. A $45 military parade for a draft dodging felon *is* waste, fraud, and abuse. Paying the National Guard to attack US citizens *is* waste, fraud, and abuse.

The CDC’s chronic disease hub just got swallowed by a new agency, sinking decades of work in bureaucratic bloat — all while chronic illnesses keep climbing. buff.ly/kBy6NYE

Cost estimate of the House-passed "Big Beautiful Bill" is out It'd be the largest cut to Medicaid+CHIP and SNAP in history while still increasing deficits by $2.4 trillion due to $3.8 trillion in tax cuts This'd be the largest transfer of wealth from the poor to the rich in a single law in history

Wait, they're gonna force employers to provide healthcare?!!! And what about retired people in their 70's and 80's? With Alzheimers? In nursing homes, like my mom was when she had Medicaid? Who are their employers? This is a blatant lie, and we're gonna hear it again and again.