Do you know someone who could Walk for ME? Find out more: www.facebook.com/WalkforMEUK/ www.walkforme.co.uk Instagram @walk_for_me_ X @Walk_4_ME BlueSky @walk4me.bsky.social Huge thanks to Ian Peters via @despicablemebsky.bsky.social ky.bsky.social for the video!

Please watch. Karen Gordon is not the only person with very severe ME in the UK at the moment. But there are no specialist centres in the UK that can treat people so severely affected. Karen's family have set up a petition here: www.change.org/p/save-karen...

SKY News segment on #MECFS (20 mins), Includes interview with Heather Gordon, whose daughter Karen has effectively been trapped in hospital for a year with severe ME. Also features Chris Ponting and Anna Gregorowski from BACME. youtu.be/FX6Fk9-WSmo?...

Clip from SKY News segment on #MECFS 'We were told by many people that the current treatment they're receiving is harmful.' The lead researcher on the Decode ME Study, Professor Chris Ponting, outlines the responses he has received from ME patients on their care.

Five firms in plastic pollution alliance ‘made 1,000 times more plastic than they cleaned up’

A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️ theconversation.com/ignored-blam...

@georgemonbiot.bsky.social described this as one of the most disturbing he has ever covered. It’s about #ME and how the views of a weird sect affected science, medicine and the media with a devastating effect on patients. It continues to erase the reality of our lives. #medicine #media #pwME

What gets to me most is that the UK government enabled foreign states to loot our essential infrastructure, milking it for profit and leaving it in ruins. Those states must think we're insane. The Chinese government would never let us walk in and seize its assets. But we've let it do just that.

I can’t recommend the #ThereForME’s weekly substack posts highly enough.Informative, upbeat and honest. These 3 women have done more for #ME in 4months than I would have thought possible. A truly democratic setup too. Do sign on for free. #ME #LongCovid 👇

Please follow Mike! He is an incredible Human who has run over 9000 miles to raise money for @investinmeresearch.bsky.social over ten years raising over £50k to help #pwme #myalgicE 💙

With some help from @owasow.bsky.social, I've figured out how to use Sky Follower Bridge to find the people I follow on Twitter over on B l u e S k y. It's pretty easy. I've updated the tips I send folks when they get their code with info on how to do it, and I thought I'd share here too.

#DecodeME needs more UK participants with an ME/#CFS diagnosis, incl. those diagnosed following Covid infection, & reminds people who have been sent a spit kit to return them. Final date for submitting the questionnaire is 15th November at 5pm www.decodeme.org.uk/portal/ #MEcfs #MyalgicE #PwME

Feeds that may interest the ♿️ community include: #Disability Feed bsky.app/profile/did:... #ChronicIllness bsky.app/profile/did:... #MECFS bsky.app/profile/did:... LongCovid bsky.app/profile/did:... Covid Cautious bsky.app/profile/did:... Disability Justice bsky.app/profile/did:...