I won 2 Labubus in a verified auction today and I am so excited. My health has been rapidly declining but at least I’ll get to cuddle my Labubu monster babies before I join the afterlife. Maybe I’ll bring them with me to help haunt all the doctors that ignored my suffering and led to all of this.

Started a SubStack to write about Disabled rights, news, and more. At the moment I’m working on a post about the lack of care in the Health Care system when disabled. Feel free to follow!

A thing they don’t tell you about chronic conditions: They are Pokémon and you WILL catch them all.

The Dubai Chocolate Bar I have sitting in my fridge at home is calling my naaame even though eating is painful again 😭 So tired of being sick all the damn time. I need a safe place to live where my health is taken seriously & ppl actually mask. This is not fair to me.😤 These CDIFF flares suck ass.💔

Anyone else on here have a @theneptuneapp.bsky.social account? I finally just now joined the Beta (thanks ADHD lol) and need to find some chronic illness baddies to follow! Drop your @ if you post: -chronic illness stuff -witchy stuff -emo stuff -foodie/cooking stuff -Indigenous culture -Gay Pride

This is so important. The length of my life is irrelevant if I have no quality of life. Why is this so hard for HC professionals to comprehend? Death is absolutely not the worst thing that can happen to you. People are afraid to die but do nothing to prevent Covid from disabling them. 🤦🏻‍♀️

When mask bans become law, it always results in unfair selective enforcement, which harms the people in society who are most vulnerable or marginalized.

Mask bans accelerate authoritarianism. Everyone has a right to protect their health, and masks are one of the most effective tools against disease spread and air pollution. Banning people from using tools that protect their health is a violation of human rights.

Do I actually need new glasses or is it just more brain damage? The world may never know because everyone refuses to PET/CT scan my brain and do an FMRI. Won’t test me for MS despite my aunt dying from it and me showing multiple signs and symptoms of MS. This system thrives off of our suffering.

How in the fuck is a hospital out of morphine?!?!? Hello?????? What the fuck????????

At least I have a view of the mountains

This is sick, the fact that MAGA supporters are happy about stuff like this infuriates me

My nurse is insanely cute and he’s been super kind and helpful. He brought me a bunch of apple juice bc i asked for some to take my meds with and i got 4 apple juices lol And he said he liked my tattoos. And we talked about anime and the game I was playing on my switch Ofc I look like this rn lol

Never have I ever had an IV in the placement idk how I feel about this lmaooo

If a doctor knew what medicine you needed to keep you alive and withheld it, they could be rightfully prosecuted under the law. This is the same thing, but much slower and with so much more suffering.

Posted on my SubStack with links on how to easily contact your local House Representatives. The fight isn’t over yet. We still have time to make them hear our voices. We cannot give up yet. Thousands of lives are at stake here. The future of America is at stake. We cannot let this happen.

What a way to start off Disability Pride Month. I’m never gonna heal this concussion with the amount of stress I’m under. Foxtrot Delta Tango.

This drum circle is a sacred honor in memory of slain MN State Legislator Melissa Hortman, at the candlelight vigil

Wild how the Fed chair saying that *entire regions of the United States* won’t be able to get a mortgage in the next decade barely registered as a news event

Finally getting on and trying to figure out how to use this app♿️ I use dark humor to cope and have 0 filter, wanna be friends?😭😂 On a real note with the humidity & heat coming up in certain regions plz remember to stay hydrated with electrolytes & try to stay cool!🖤 #DisabledSky

I am so tired of never feeling safe. I am so tired of living with & being dependent on a Narcissist. I am so tired of being treated like a burden. I am so tired of my health not being taken seriously because doctors have given up & my dad just doesn’t care+resents me. My soul is so, so tired. 💔

This heat+humidity is gonna make me pass out again and I’m high key worried I’m gonna wind up cracking my head open next time. I’m lucky my tooth didn’t break down to the root or go through me lip. I’m pretty sure I do in fact have a concussion but I still need brain scans I feel fucking horrible🫩

Microdosing medical trauma by going to a doctor's appointment

Does IV Protonix make anyone else super nauseous and dizzy+tired? Like I feel like I’m about to fall asleep and throw up at the same time.😩

Solidarity means joining forces with people you find annoying so you can more effectively fight people who want you dead

I am not gonna be a perfect disabled person. I'm gonna say things other disabled people don't say. I'm not gonna fit some pre-determined version of disability. Welcome, I guess.

Just because things are bad Does not mean we should let them get worse Just because things may get worse Does not mean we can not make things better But things will only get better If we don't resign ourselves to worse And fight for another tomorrow

Is the app glitching for anyone else?

If you’re still masking - thank you. If you’re cleaning the air - thank you. If you’re staying home when sick - thank you. If you realize vulnerable people are just as worthy of safety and survival as everyone else - thank you If you’ve refused to toss us aside for “back to normal” - thank you.

Good to know.

“If it were really THAT bad you would be getting help.” No. There’s NO help available for the lions share of chronic illness & disabilities Don’t punish us because you need you need to remain in denial about the frail nature of our bodies. About our crumbling healthcare systems. About disability.

I am so sad, angry, scared, and tired.

just in case you need a reminder my palsy is political. people with Cerebral Palsy get left out of the discourse around disability, around organizing, around mobilizing. The lives of people with CP are political, important and need to be heard.

One of the things that can be so hard as a disabled person who needs caregiving on a regular basis (i.e. those with complex or severe disabilities) is the feeling of having to get someone to help you with the most basic tasks.

I still can't believe this was from my backyard on October 10th. Twitter crushed the video quality when I posted it there, let's see how Bluesky does it.

I’m taking a “if you build it - they will come” approach to this starter pack. I’m looking for healthcare workers who have a specific focus in women’s health, reproductive health and/or disability & chronic illness (or all 3!) Open to all disciplines! The pack is small now but will add as I go:

💯

A close friend said to me, “don’t let Trump outlive you” and that about did it for me lol😂👏🏼👏🏼

your body my choice

Still thinking about how people forget that Disabled people saved the ACA last time around. And all the things that have changed since.

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Infection “Aftershock” - Covid’s impact on the heart & vascular system We’ve been saying for years that this is a vascular virus that causes long term damage - this study showed damage persisted for 3 years post infection. If that happened with ONE infection - what do you think cumulative ones do?

There’s too many folks who see relationships as transactional. If they help you - you’re indebted in some way. I can’t tell you how many “friends” have told me I “owe” society because I’m not economically active. We ALL have value. Don’t leave us behind.

I can’t be the only one with that crippling impending doom feeling in the pit of my stomach. And not just bc of the election results. Shit seems too calm. Trump isn’t bragging and has been pretty silent, and Kamala has been quiet too. Something is coming. But what?

severely disabled people are often ignored when we talk about disability because they can’t conform to the “inspiration porn” narrative... and we should really talk about that.

It’s been almost 5 years since Covid started & people are STILL asking “are you going to mask forever?” Folks - we are in a worse place now with respect to the pandemic than we were before. Yes I’m going to mask forever - or until something significant changes. When there’s a threat - you adapt.