JessNeedstoRest
@hospmom.bsky.social
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Artist & CHD mom, traversing the universe with ME/CFS
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JessNeedstoRest
The Lincoln Project
3 months ago
Rob Reiner was an American Icon who, through his art and activism, held a mirror up to American culture. His talent, humor, activism, and patriotism will be missed. Our heart breaks at the senseless loss of our friend.
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Sekou Bermiss
3 months ago
Somehow
@sepinwall.bsky.social
published a beautiful eulogy for Rob Reiner overnight. I woke up saddened by the news of his passing, and this pieceācelebrating his life and workāwas exactly what I needed to read.
www.whatsalanwatching.com/rob-reiner-w...
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Rob Reiner was a master who didn't care if you noticed
A tribute to the late, great 'All in the Family' star and director of movie classics like 'This Is Spinal Tap' and 'The Princess Bride'
https://www.whatsalanwatching.com/rob-reiner-was-a-master-who-didnt-care-if-you-noticed/
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#MEAction Network
5 months ago
Sometimes we all need a reminder that we are kicking ass!
www.bonfire.com/store/meacti...
Maybe we do not feel very kickass when we are just trying to survive but we know that takes unimaginable strength. Thank you to
@hospmom.bsky.social
for this design!
#pwME
#MECFS
#Spoonie
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Solve M.E.
10 months ago
š Your Voice Can Save ME/CFS Research! š The CDC Chronic Fatigue Syndrome Programāthe only federal effort dedicated to ME/CFS research and public healthāis at risk of being cut. Losing it would be a devastating setback for millions of Americans living with ME/CFS.
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#MEAction Network
11 months ago
You are invited to join us for
#MIllionsMissing
#DisabilitySOS
on May 12th - two weeks from today! Join us in DC and online! All you need to know can be found here:
www.meactions.org/millionsmiss...
#MEAction
will be sounding a Disability SOS at the nationās capitol and across social media.
#PwME
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Caring Across Generations
12 months ago
Want to join an event in-person instead? Join us in D.C. THIS THURSDAY! Thatās right, weāre taking our fight to
#ProtectMedicaid
right to the steps of the Capitol!
go.caringacross.org/a/protect-me...
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#MEAction Network
12 months ago
Announcing
#MillionsMissing
2025 on May 12th!
#MEAction
is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here:
www.meaction.net/2025/04/02/m...
#pwME
#MECFS
#LongCovid
#disability
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#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2024, #MEAction is sending out an SOS.
https://www.meaction.net/2025/04/02/millionsmissing-2025-sending-out-an-sos/
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Jessica Kant
12 months ago
I don't have words for the fear these images conjure up, only that when I look at these images I know what I am looking at ā and it is the most direct route to hell that humanity is capable of taking.
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Jessica Kant
12 months ago
The death of due process is the most egregious assault on human rights protections in any democracy. Without it, democracy simply does not exist. Call your senators, call your reps. Call the governor, call your HOA for all I care, but please make noise for the people they're trying to disappear.
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It's ME(Jaime)
12 months ago
"When print outlets bury one of the largest nationwide protests in recent memory, theyāre not being neutral arbiters. Theyāre making a political choice about what deserves attention and what doesnāt." Print Media to Mass Protests: āPlease Turn to Page 18ā
newrepublic.com/article/1936...
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Print Media to Mass Protests: āPlease Turn to Page 18ā
Hereās how newspapers across America minimized one of the largest demonstrations since Trumpās return to power.
https://newrepublic.com/article/193683/print-media-downplay-mass-protests
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It's ME(Jaime)
12 months ago
Oh, wow. Humbled doesn't cover it.
#MECFS
www.youtube.com/shorts/aeN-a...
add a skeleton here at some point
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It's ME(Jaime)
12 months ago
And, there it is:
www.cbsnews.com/news/rfk-jr-...
add a skeleton here at some point
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Feral Women's Society of America
about 1 year ago
US Senator Dave McCormick of Pennsylvania, who doesn't live in Pennsylvania, is on a book tour, and this is his email address. Why don't we all reach out and say hello. š
[email protected]
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#MEAction Network
12 months ago
We invite you to join in by sharing women that you see power in in our community and/or what is powerful about our community together. Mentioned above
@hospmom.bsky.social
and
@exceedhergrasp1.bsky.social
#MECFS
#MyalgicEncephalomyelitis
#MECFS
#LongCovid
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#MEAction Network
12 months ago
@hospmom.bsky.social
shared her amazing sketch and about why she chose to focus on Jaime Seltzer, our Scientific Director.
youtube.com/shorts/aeN-a...
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Jessica shares about Jaime Seltzer for Women's History Month!
YouTube video by The ME Action Network
https://youtube.com/shorts/aeN-a5o43fA?feature=share
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I got a head nod and an approving half smile from a goth teenager last night. Feels like I could take over the world.
#nosmallfeat
#goth4ever
#lovegenz
#thelittlethings
about 1 year ago
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The ultimate goal is to remove special needs children and poor people from educational spaces. We need to occupy spaces.
#education
#disabilityrights
www.npr.org/2025/03/21/n...
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Trump says Education Department will no longer oversee student loans, 'special needs'
The president said federal student loans would move to the Small Business Administration, and hinted that the Department of Health and Human Services would take over special education oversight.
https://www.npr.org/2025/03/21/nx-s1-5336330/trump-education-department-student-loans-special-education-fsa
about 1 year ago
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It's ME(Jaime)
about 1 year ago
Starting now, folks!
add a skeleton here at some point
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Alt National Park Service
about 1 year ago
Trump signed an executive order that he said would ābegin eliminating the federal Department of Education once and for all,ā although the agency cannot be closed without the approval of Congress.
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Dawg PNW
about 1 year ago
We should stop filing our taxesā¦
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Leeleeb50
about 1 year ago
Don't forget that tomorrow is the economic blackout!
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Being Liberal Ā®š½š³ļøāš
about 1 year ago
No shopping, no gas, no fast food. Will you join todayās economic blackout?
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Companies Who Abandoned Their DEI Programs
Which Companies Are Retreating on Inclusion?
https://www.newsletter.samuel-warde.com/p/companies-who-abandoned-their-dei
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OlĆŗfįŗ¹Ģmi O. TĆ”Ćwò
about 1 year ago
if you don't believe this run a search for "the sin of empathy"
add a skeleton here at some point
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#MEAction Network
about 1 year ago
While myalgic encephalomyelitis (ME/CFS) is not a rare disease by the numbers, some of us have a co-morbidity that is a rare disease & we want to support our fellow disease/ disability community. A disease is rare when it affects fewer than 1 in 2000 people.
#RareDiseaseDay
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Sarah Kendzior
about 1 year ago
"We're better than we seem and hurting more than we show."
sarahkendzior.substack.com/p/your-quest...
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Your Questions Answered: We're Already in the Aftermath
On Trump and Russia, defeating the mafia state, and more.
https://sarahkendzior.substack.com/p/your-questions-answered-were-already
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It's ME(Jaime)
about 1 year ago
Umberto Eco put together a now-famous list of 14 attributes of fascistic states. I'm going to discuss each of them in hopes this helps ppl understand that fascism is not just a buzzword. We're going to go through these by theme, so strap in. š§µ
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Brian Tyler Cohen
about 1 year ago
āVOTING FOR THE MAYOR WHO PROMISED TO BLOW UP THE CITY DOESNāT MEAN I APPROVE OF THE MAYOR BLOWING UP THE CITYā A masterclass from
@mikedrucker.bsky.social
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Voting for the Mayor Who Promised to Blow Up the City Doesnāt Mean I Approve of the Mayor Blowing Up the City
Itās so easy to label people these days. From the way folks have been talking, youād think everyone falls into two buckets: those who voted against...
https://www.mcsweeneys.net/articles/voting-for-the-mayor-who-promised-to-blow-up-the-city-doesnt-mean-i-approve-of-the-mayor-blowing-up-the-city
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AAPD - The American Association of People with Disabilities
about 1 year ago
Alert šØ Congress is considering proposals that would reduce Medicaid funding! Medicaid is a critical lifeline for disabled Americans. Our friends
@nhelp.bsky.social
are hosting a day of action: Call Congress via the Protect Medicaid hotline at 866-426-2631 and tell them to protect Medicaid. No cuts!
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Acyn
about 1 year ago
Jeffries: The constitution requires the president has the responsibility to take care that the laws are faithfully executed. Spending agreements passed through the appropriations process are law. When those laws are violated, the constitution has been violated.
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Dr. Lucky Tran
about 1 year ago
RFK Jr's nomination to HHS head has advanced to a full Senate vote (date TBA). It's crunch time. Please call your Senators and tell them to vote NO. Call your Senators regardless of what position you anticipate they will take. Use this tool:
www.usa.gov/elected-officials
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Find and contact elected officials | USAGov
Use USAGovās Contact Your Elected Officials tool to get contact information for your members of Congress, the president, and state and local officials.
https://www.usa.gov/elected-officials
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Anna Merlan
about 1 year ago
Elsewhere, a worker at an intelligence agency says that unidentified outside staffers arrived to sweep the office of anything they felt was related to DEI. That included a plaque, confiscated from a supervisorās desk, which read, āBe kind to everyone.ā
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Joyce White Vance
about 1 year ago
If youāve taken the oath to serve, today would be a good day to honor it.
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Pork Belly Don
about 1 year ago
Please share this to every Democratic rep you follow
youtube.com/shorts/zBYoY...
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What The F***?!
YouTube video by PoliticsGirl
https://youtube.com/shorts/zBYoYr7NAZA?si=nmQPDNxCjU5CurWI
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KittyKatGirlš»ššš
about 1 year ago
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Rachel Maddow
about 1 year ago
Today from Timothy Snyder, author of On Tyranny:
snyder.substack.com/p/the-logic-...
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WIRED
about 1 year ago
NEW: Elon Muskās attack on USAID has cut HIV/AIDS workers off from medicine and money. The Trump Administration claims it is allowing ālifesavingā foreign aid to continue, but in reality, DOGE is preventing vital work on HIV and AIDS from saving lives. Read our scoop here:
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Elon Musk's DOGE Is Still Blocking HIV/AIDS Relief Exempted From Foreign Aid Cuts
The Trump Administration claims it is allowing "lifesaving" foreign aid to continue, but in reality, DOGE is preventing vital work on HIV and AIDS from saving lives.
https://wrd.cm/4hKYAox
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WIRED
about 1 year ago
If youāve been wondering what Elon Musk and his lackeys are up to since taking control of the US government, look no further. Our latest story names six 19- to 24-year-olds working with his DOGE organization, which now has access to sensitive federal systems.
wrd.cm/4jzpiSN
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The Young, Inexperienced Engineers Aiding Elon Musk's Government Takeover
Engineers between 19 and 24, most linked to Muskās companies, are playing a key role as he seizes control of federal infrastructure.
https://wrd.cm/4jzpiSN
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Lofi With My Mouse
about 1 year ago
Hi all! Iāll be back down at OPM today (Feb 3) from 5pm-Probably Midnight, peaceably protesting the douchecanoe frat boys currently stealing federal employeesā personal data and accessing 6 trillion dollars in OUR Social Security/Medicare funds. Feel free to join me and spread the word!
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KellyKšŗ
about 1 year ago
Please share! Rep. McGovern: "Maybe before coming after USAID, Republican should look at the billions and billions of dollars of tax breaks and subsidies they give to oligarchs like Elon Musk. You want to save some money? Let's start there." Right!?
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I was told there would be checks and balances
about 1 year ago
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Way too many of my friends died in 2024. I envy them.
about 1 year ago
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It's ME(Jaime)
about 1 year ago
Congressionally Directed Medical Research Programs (CDMRP) a funder of biomedical research particularly as it applies to military readiness, appears to be entirely gone.
cdmrp.health.mil
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Sarah Kendzior
about 1 year ago
"Trump is the deep state he pretends to fight."
sarahkendzior.substack.com/p/fearing-th...
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Fearing the Reapers
Trump, Biden, and careers of evil
https://sarahkendzior.substack.com/p/fearing-the-reapers
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Katie Mack
about 1 year ago
The price of eggs in the US is spiking, mostly due to
#H5N1
bird flu. Solving the problem requires urgent, important communications from the CDC & FDA* and rapid development of research by the NIH** * Currently paused by Executive Order ** Grant reviews now all canceled
www.kcur.org/news/2025-01...
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Egg prices are soaring again. Hereās why and what to expect
Bird flu has killed millions of hens in recent weeks, shrinking the supply of eggs and hiking up prices at grocery stores.
https://www.kcur.org/news/2025-01-21/eggs-expensive-bird-flu
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Imani Barbarin
about 1 year ago
people keep tagging me in fuck around and find out content like I havenāt been talking about how pandemics lead to fascism since 2020. The āfind outā portion isnāt just for everyone who doesnāt consider themself a liberalāitās for them too. Havenāt masked in 4 years? FAAFO.
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It's ME(Jaime)
about 1 year ago
How to help people affected by the California fires! Our usual advocacy tag:
#DoSomething
add a skeleton here at some point
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Sarah Kendzior
about 1 year ago
New article! I wrote about the California fires, American pop culture, and climate catastrophe grief:
sarahkendzior.substack.com/p/fantasy-on...
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Fantasy on Fire
Middle American grief for California dreams.
https://sarahkendzior.substack.com/p/fantasy-on-fire
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