2025 was a big year for us! • Presented our Glioblastoma Disparities Survey at SNO & ASCO • Close to launching our innovative DANO-GBM (Digital Assessment Neuro-Oncology for GBM) project with Harvard Please consider a gift so we can reach our goal of $15,000 in 2025. Thank you! (link in comments)

Sad to read that Sophie Kinsella has died. We're dedicated to collecting data on glioblastoma — the deadliest type of brain tumour. Our hope is that one day, the information we collect will help turn this terminal disease into a treatable one.

Give. #glioblastoma #GBM #GivingTuesday

Please consider a gift to help OurBrainBank for Glioblastoma on December 2nd for Giving Tuesday. secure.givelively.org/donate/ourbr...

Visit our poster, attend a session, meet our Ex. Dir. Kelli Duprey, and learn about shocking disparities in GBM care in the USA. Proud to be selected for the 2025 Health Disparities & Quality Improvement Award #GBM #glioblastoma #GBMDisparities #SNO2025

GBM Disparities Survey: Access Barriers

More than 13,000 Americans will be diagnosed with #glioblastoma in 2025, yet treatments and survival rates have remained largely unchanged for decades. 📣 This #GBMDay, reshare these stats to raise public awareness and inspire action. Learn more: braintumor.org/events/gliob...

Today, July 16, 2025, is Glioblastoma Awareness Day. You can help: - Share your GBM story - Post about GBM Day (ourbrainbank.org/gbm-day-2025) - Donate to OurBrainBank so we can launch our new study! #GBM #glioblastoma #GBMDay #GBMAwarenessDay OurBrainBank.org/give

"Tanner, a chemist at the Univ. of Mississippi working to develop a novel approach for treating glioblastoma, was notified in April that the grant was terminated. “I would like to cure brain cancer,” Dr. Tanner said. “I think that's not particularly controversial.” www.nytimes.com/interactive/...

The things we do on a Thursday night. Being a panelist for @Ourbrainbankforgbm.bsky.social (OBB), sharing my thoughts on patient power, hope, science, and politics . This event honored the late GBM superstar Jessica Morris, founder of OBB and author of “All in my head.” (a.co/d/8QnYrZg) #btsm

In the NYC area? Limited tickets for our June 5th event are still available. #glioblastoma #JessicaMorris #AllinMyHead #GBM

At ASCO? Stop by our booth and meet Ex. Dir. Kelli Duprey and learn about our survey about GBM care disparities in the USA. #ASCO #ASCO2025 #ASCO25 #GBM #glioblastoma #GBMDisparities #GBMRights #BTSM

On this #NationalCancerSurvivorDay I’m doing the things I love to do: spreading awareness, networking, and connecting with others affected by (brain) cancer. If you/your loved one is facing a #Glioblastoma diagnosis, check out: @ourbrainbankforgbm.bsky.social #btsm

At ASCO? Stop by our booth and meet Ex. Dir. Kelli Duprey and learn about our survey about GBM care disparities in the USA. #ASCO #ASCO2025 #ASCO25 #GBM #glioblastoma #GBMDisparities #GBMRights

At ASCO? Stop by our booth (#13000) or view our poster “Disparities in Glioblastoma Care: Insights from a Nationwide Survey” (May 31, Hall A, #451, 1:30-4:30pm). #ASCO2025 #ASCO #GBM #Glioblastoma #BTSM #BTAM

Join us in Brooklyn on June 5 #glioblastoma #GBM #AllInMyHead #BTAM #STSM secure.givelively.org/event/ourbra...

If you're at #Head2Hill, say hello to Kelli Duprey, Ex. Dir. of OurBrainBank for Glioblastoma and learn about our survey showing disparities in GBM care across the USA. #gbm #glioblastoma #GBMRights #braintumorawarenessmonth #ourbrainbankforglioblastoma #BTSM #NBTS

Half of the @btsmchat.bsky.social organizer team (@sabine-nj.bsky.social and @shawncarey42.bsky.social) participate at @braintumor.org’s 2025 #Head2Hill advocacy event in DC this week. Find any one of us if you’d like to learn more about #BTSM.

Doctors at one of England’s leading cancer hospitals have launched a clinical trial of headgear that emits electric fields. The pulses disrupt cell division in glioblastoma — one of the deadliest forms of brain cancer www.thetimes.com/article/23d3...

After being diagnosed with an inoperable glioblastoma, The Saturday Paper’s editorial cartoonist, Jon Kudelka, took time to consider what really matters – and it is not politics.

Saddened to hear about another accomplished person lost to glioblastoma. Assuming a congress person would have access to excellent healthcare, did she receive everything we advocate for via our GBM Bill of Rights? (Link to #GBMRights in the comments.) www.npr.org/sections/sho...

At the GBM Drug Development Summit? Stop by our poster, meet Executive Director Kelli Duprey, and learn about how people in the USA are being treated — most were not offered a chance to participate in a clinical trial. #GBMSummit #GBMDisparities #GBM #glioblastoma

The Al Musella Foundation Copayment Assistance Program helps people with brain cancer. Learn more at brainumorcopays.org and follow the directions to apply.

Anyone who's had a loved one with glioblastoma knows the heartbreaking toll it can take on care partners.

Not GBM specific, but helpful in general.

If, like Laura I was diagnosed with #glioblastoma I’d seriously consider #AssistedDying Yet I’d have tried to talk her out of making the same choice Given a 12mth prognosis she lived well for 4yrs, travelled, studied & touched many lives Her death was hell, but she lived an entire life #bothsides

On Giving Tuesday, we appreciate everyone who donates — every dollar helps us spread awareness and DEMAND MORE! for people living with glioblastoma today and tomorrow. (Donation link in comments.)

At #SNO2024? Please check out our posters (QOL-11 & DISP-08) and our booth (521) and learn about our survey showing huge disparities in GBM care. #GBM #glioblastoma www.ourbrainbank.org/sno2024

I hope this treatment works as well as it seems. I lost my beloved grandma to glioblastoma, and I don't wish it on anyone.

New here! We're an innovative patient-led movement designed to move glioblastoma from terminal to treatable, powered by patients. The first non-profit created by, with, and for people living with this aggressive brain cancer. We believe in the power of patients and data.