If you’d like to be added to our Bluesky starter pack, at bsky.app/starter-pack..., please let us know. #BTSM

Looking for more? Join Brain Tumor Support Conversations⁠—a virtual support group w @lisaoleary524.bsky.social, @adammarc.bsky.social, and @Shawncarey42.bsky.social on Sun, July 20th, 2025. Patients, care partners, any brain tumor type/stage of treatment can join! Register: buff.ly/kzWSZEx #BTSM

Tonight’s #BTSM chat topics were created by @sabine-nj.bsky.social‬ and @stuartselby.bsky.social. They were reviewed by @mcintose.bsky.social and @shawncarey42.bsky.social

We’re glad you could join us for our #BTSM #skychat. If you could not make it: it’s never too late to engage with our community by using the #BTSM hashtag and tagging us throughout the month.

Repeating Q4: #BTSM In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?

Q4: #BTSM In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?

Almost time for our final question. Let’s get ready for Q4 in about 2 minutes! #BTSM

Repeating Q3: #BTSM What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?

Q3: #BTSM What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?

If you are here tonight to just listen, please post “#BTSM” so we know you’re in the audience. 👋

Repeating Q2: #BTSM In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?

Q2: #BTSM In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?

Repeating Q1: #BTSM What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy?

Q1: #BTSM What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy efforts?

Watch this orange #BTSM bubble for today’s questions, labeled Q1, Q2, Q3 and Q4. Label your answers with A1, A2, A3 and A4 to make conversation easier to follow! Coming up soon: our first question, wait a moment for Q1.

Let’s start with introductions! 🔸What’s your name? 🔸Where are you based? 🔸Who are you? 🔸Why are you here? Please indicate what phase of your brain tumor journey you are currently in (eg. newly diagnosed, watch & wait, clinical trial, etc.) Post “#BTSM” if you’re only here to listen. Welcome all!

Note: We assume all opinions expressed here are your own personal opinions and not those of an employer (unless specified). Dissenting/opposing views are perfectly acceptable. Personal attacks, vulgar language and negative posts directed at an individual are not tolerated. #BTSM

Tonight’s #BTSM theme is: Brain Tumor Advocacy. Where passion meets progress.

Running this orange #BTSM chat bubble tonight are @stuartselby.bsky.social and @shawncarey42.bsky.social

ALL points of view are welcome here: patients, care partners, clinicians, researchers, advocates. #BTSM

Hello and welcome to our second Brain Tumor Social Media (#BTSM) live chat on Bluesky! 👋 We’re glad you’re here with us!

T-10 minutes until our #BTSM #skychat. We’re getting things set up. Join us and send a skeet when you can over the next hour.

T-1 hour until our #BTSM #braintumor Advocacy #skychat! We’re getting excited, are you?

Calling all advocates! Don’t forget today’s #braintumor Advocacy #BTSM #skychat is tonight at 4pm PT / 7pm ET. We hope to see you there!

Who will be joining us this Sunday for our second #BTSM #SkyChat ? #oncosky #oncsky #medsky #AYACSM #cansky 🔹 Sunday, 6/08, 🔹 4 pm PT; 7pm ET 🔹Topic: Brain Tumor Advocacy: Where passion meets progress.

We're getting closer to our June 8th #BTSM chat where we'll discuss #braintumor Advocacy. We hope you can join us on Sunday at our new time, one hour earlier, at 4 PM Pacific / 7 PM Eastern! #oncosky #oncsky #medsky #AYACSM #cansky

We're so excited for our June 8, 2025 #BTSM #skychat on #braintumor Advocacy that we've moved our start time ONE HOUR EARLIER to better accommodate schedules. We'll start at 4 PM Pacific / 7 PM Eastern instead of 5pm/8pm. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky

It's a big weekend with #ASCO25 taking place, but we're still getting ready for our June 8, 2025 #BTSM #skychat, and reflecting on 12 years of chats our theme will be #braintumor Advocacy. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky

Hey #braintumor community! Save the date for our next chat - taking place the weekend after #ASCO25, on June 8, 2025, at 5 pm PT, 6 pm MT, 7 pm CT, 8 pm ET. We would love to see some researcher/ scientists participate! #BTSM

#BTSM is celebrating 12 years of chats TODAY! 🥳🎉 The inaugural chat took place on May 19th, 2013. Thank you, Charlie Blotter and @thelizarmy.bsky.social for getting this movement started. We have helped + interacted with hundreds of individuals over the years. (Graphic by @stuartselby.bsky.social)

Half of the @btsmchat.bsky.social organizer team (@sabine-nj.bsky.social and @shawncarey42.bsky.social) participate at @braintumor.org’s 2025 #Head2Hill advocacy event in DC this week. Find any one of us if you’d like to learn more about #BTSM.

If you’d like to be added to our BlueSky starter pack, at bsky.app/starter-pack..., please let us know. #BTSM

Looking for more? Join Brain Tumor Support Conversations⁠—a virtual support group on Sun, April 20th, 2025. Patients, care partners, any brain tumor type/ stage of treatment can join! Register: braintumor.org/take-action/... #BTSM

Tonight’s #BTSM chat topics were created by @sabine-nj.bsky.social. They were reviewed by @stuartselby.bsky.social, @mcintose.bsky.social and x.com/Project2Prog...

Thanks for joining us for the 1st #BTSM #skychat! Your participation is much appreciated! If you haven’t been able to join us tonight, we’d appreciate your feedback to Q1-Q4 in the following days,or join us next Sunday, 4/6,at 5pm PT/ 8pm ET when we run the same chat for our #BTSM X-community.

Reposting Q4 for all: #btsm

Great advise! Please share here, using #BTSM! We should never stop learning from and with each other!

Q4: #BTSM What challenges around information seeking and sharing do you see in the future? What can groups like this #BTSM chat and others do to better support the brain tumor community this year?

Great resource that we shared many times on Twitter / X, and now here: #btsm

Almost time for our final question. Let’s get ready for Q4 in just 1 minute! #BTSM 🚨🚨 But first, an important ASK: 🚨🚨

Reposting Q3: #btsm

Reposting including #btsm

Q3 for all: #BTSM a) Can you share your best resource/book/website/etc. with the #braintumor community for any specific question, topic or issue you have encountered? b) What do you most like about this source?

If you are here tonight to just listen, please post “#BTSM” so we know you’re in the audience. 👋

A2.c) NIH has a helpful guide on how to evaluate trustworthiness: https://www.nih.gov/about-nih/what-we-do/science-health-public-trust/perspectives/how-evaluate-trustworthiness-science #BTSM

But I also like the website of the American Brain Tumor Association @theabta.bsky.social a lot, and usually refer new patients to their newly diagnosed brochure, webinars, etc. #BTSM

Q2 for clinicians and scientists:: #BTSM How do you stay current with all of the information and new studies in the field?

Q2 for patients and care partners:: #BTSM a) Where do you turn to for reputable information and resources when it comes to your brain tumor diagnosis and treatment? b) What makes a resource valuable to you? c) What steps do you take to verify that the resource is trustworthy?

Reposting / re-skeeting Q1 for clinicians: #btsm