The Gray Nation Endurance team is out on the course today for the Medtronic Twin Cities Marathon, Half Marathon, & 10-Mile, putting meaning behind their miles. Together, they've raised over $35,000 and counting! Learn more about GNE at BrainTumor.org/GNE #GrayNationEndurance

When you recommend a grant to NBTS from your donor-advised (DAF) fund between now and #DAFDay on Oct. 9, your #DAF gift will be MATCHED, up to $20,000, thanks to the Gordon Family Charitable Trust DAF grant, to drive real change. Learn more at BrainTumor.org/DAF #DAFforNBTS

Amber was training for a 5K in July 2024 when a sudden migraine led to a life-changing diagnosis: #PituitaryMacroadenoma After treatment, she crossed the finish line at the #DFWBrainTumorWalkRace wearing a “survivor” shirt: braintumor.org/news/sharing-my-prolactinoma-story-so-others-dont-feel-alone

Myth: #Braintumor clinical trials are too expensive. Fact: Patients don’t pay to participate. Sponsors often cover trial costs, while routine care is billed to insurance, with patients responsible for co-pays or deductibles. Learn more at our webinar: braintumor.org/brain-tumors...

Want to support #braintumor research in a smart, impactful way? A donor-advised fund (DAF) is one of the most effective tools for charitable giving, and it can be a game-changer in the fight against #braintumors. Learn more at BrainTumor.org/DAF #DAFDay #DAFforNBTS

👟 Our Virginia Brain Tumor Walk & Race just 30 days away! Join us at Bryan Park on Sunday, November 2, for a day of hope, community, and impact. Secure your spot today: https://braintumor.org/event/virginia-brain-tumor-walk-race/ #VABTWalkRace #braintumorcommunity

Please take action and urge members of Congress to pass a full, bipartisan FY26 budget that prioritizes brain tumor innovation and care and ends the current shutdown: https://braintumor.quorum.us/campaign/141926/

Thank you for joining us on Saturday at beautiful Sloan’s Lake for a powerful morning of remembrance and hope with the Colorado brain tumor community. Together with more than 1,000 participants across 96 teams, we’ve raised over $185,000 and counting! #ColoradoBTWalk

A #braintumor can impact anyone, at any age. Today, on #RareCancerDay and as #ChildhoodCancerAwarenessMonth ends, we reflect on the urgent need for better treatments and improved quality of life for people of all ages facing a rare #braincancer diagnosis.

Now 23, Rhea is a two-time #braintumor survivor, but far too many children don’t get the same chance. This #CCAM, join Rhea and NBTS to fund research, advocacy, and support for families of our youngest, most vulnerable patients: BrainTumor.org/CCAM2025 #GoldforCCAM

Join our Caregiver Support Conversation on Mon, Oct 6, at 7 PM ET to connect with fellow care partners who understand the challenges of supporting someone with a brain tumor. Share, listen & find community in a welcoming, safe space: braintumor.org/support-services/support-groups/caregiver-support

Six-year-old Devin was diagnosed with #DIPG after collapsing during a snowboard lesson. His family now honors his legacy by showing that hope is stronger than fear. Read Devin’s story: https://braintumor.org/news/hope-is-stronger-than-fear-a-dipg-story/ #GoldforCCAM #CCAM

Have you or a loved one participated in a clinical trial? If you're willing to be part of this effort, please fill out this brief form to share your video response: https://vocalvideo.com/c/national-brain-tumor-society-share-your-story-national-brain-tumor-society-hkiiuwgw

This #CCAM, help us shine a light on the urgent need for action. Share fast facts about #pediatricbraintumors and help amplify the cause. Learn more and get involved: BrainTumor.org/CCAM #ChildhoodCancerAwarenessMonth

Today we’re thrilled to be in Denver for the Colorado Brain Tumor Walk, where teams are uniting to raise funds & awareness for the brain tumor community. Thank you to our top sponsors, IQVIA Biotech, Imvax, Chimerix/Jazz Pharmaceuticals, and Focus Partners, for all you do.

👟☀️ Tomorrow, Sat 9/27, the #braintumor community will gather at Sloan’s Lake for the Colorado Brain Tumor Walk! We couldn’t do it without our amazing sponsors, volunteers & participants. Register to join us & drive breakthroughs ahead: BrainTumor.org/Colorado #ColoradoBTWalk #COBTWalk

Join us on Thurs., Oct. 2nd at 7 p.m. for Grief Support Conversations. The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process: braintumor.org/support-services/support-groups/grief-support

Two-year-old Kevin was diagnosed with an #ependymoma after experiencing sudden and severe symptoms. With strong community support and treatment, Kevin is now four years cancer-free. https://braintumor.org/news/pediatric-ependymoma-patients-attitude-inspires-community/ #GoldforCCAM #CCAM

Biomarker testing showed that Stephen's #braintumor was more aggressive than it looked under the microscope, changing his treatment plan. Learn about the importance of biomarker testing at our free #MyTumorID webinar on Fri 9/26. Register now: braintumor.org/brain-tumors...

Biomarker testing doesn’t just help doctors accurately diagnose a child’s #braintumor, it can also open the door to potential targeted therapies & determine clinical trial eligibility: braintumor.org/news/lets-talk-about-pediatric-brain-tumor-biomarkers #MyTumorID #ChildhoodCancerAwarenessMonth

We are heartbroken to share that Kai, whose love for music inspired us all, has passed away at 12 from #ependymoma. This Childhood Cancer Awareness Month, we honor his remarkable life. Read Kai’s story: https://braintumor.org/news/notes-of-courage-kais-childhood-cancer-story/ #GoldforCCAM #CCAM

NBTS is excited to announce two collaborative grants that have been awarded to pediatric researchers for liquid biopsy. Congratulations to Paul Northcott, PhD, at @stjuderesearch.bsky.social and Ching Lau, MD, PhD, Connecticut Children's, on their outstanding research proposals!

NBTS was proud to join a coalition of groups from the patient & medical research advocacy communities on Capitol Hill during Rally for Medical Research to urge Congress to maximize increases in NIH funding in FY26. Patients with #braintumors can’t wait—they need better treatments now. #RallyMedRes

Congratulations to the Jones'n for a Cure Golf Tournament, which hosted their 8th annual #FundraiseYourWay event today in memory of Rick Jones & the entire #braintumor community. This event has raised over $310,000 in support of NBTS. We appreciate your continued support!

Here are a just a few ways we’re driving transformative change for the #pediatricbraintumor community, all year round. This #CCAM, will you fuel our work to drive research forward? Make a gift today: BrainTumor.org/CCAM2025

Kaitlynn H. was diagnosed with #oligodendroglioma at 17. Though the tumor has grown back, a clinical trial gave her four years of stability. Now, she lives with uncertainty but chooses to live in the present. Read Kaitlynn’s story: https://braintumor.org/news/living-oligo/ #GoldforCCAM #CCAM

At 5 years old, Sierra was diagnosed with a #craniopharyngioma. Through daily hormone therapy & emotional challenges, she found healing in poetry & abstract art. Read Sierra's story: braintumor.org/news/my-brain-tumor-story-thriving-through-art #ChildhoodCancerAwarenessMonth #CCAM #GoldforCCAM

Too many parents receive the devastating news that their child has been diagnosed with #DIPG or #DMG — aggressive #braintumors that affect one’s ability to swallow, speak, or move. Learn more about the DIPG/DMG experience in our blog post: braintumor.org/news/lets-talk-about-dipg-and-dmg #CCAM

On Sun, Oct 19, the #braintumor community will gather for our 15th annual New England Brain Tumor Walk. Register now to join us in scenic Carson Beach, Boston — together, we’ll walk to end brain tumors: https://braintumor.org/event/new-england-brain-tumor-walk/ #NewEnglandBTWalk

This August, 9 hikers, led by Tom Duba for his son Matt, diagnosed with anaplastic #oligodendroglioma, took on 30+ miles & 4 passes in Aspen to raise $13,275 for NBTS via #GrayNationEndurance! Learn more about putting meaning behind your miles at: BrainTumor.org/GNE

🌲🌊 The 2026 Big Sur International Marathon & 11-Miler application is HERE! Join Gray Nation Endurance & NBTS in California to run this gorgeous #marathon or 11-miler & raise funds for #braintumor research: braintumor.org/events/gray-nation-endurance/big-sur-runner-application #GrayNationEndurance

Thanks to biomarker testing, Eloise’s family learned her #braintumor was benign — not aggressive #DMG. That knowledge gave her family hope and allowed them to make informed decisions about her care. Read their story: https://braintumor.org/news/eloises-story-living-one-day-at-a-time/ #MyTumorID

Join NBTS in urging the National Cancer Institute (NCI) to continue funding the Pediatric Brain Tumor Consortium. 👇 Link below! #ChildhoodCancerAwarenessMonth #CCAM #BrainTumorAdvocacy

Join me and the National Brain Tumor Society to ask the National Cancer Institute to continue dedicated support for pediatric brain tumor clinical trials. Add your name to the petition today: braintumor.quorum.us/campaign/140... #NBTS @braintumor.org braintumor.quorum.us/campaign/140...

Thank you for joining us on Sunday at picturesque Jones Beach for a powerful morning of remembrance and hope with the New York brain tumor community at the New York Brain Tumor Walk. Together with more than 1,400 walkers, we’ve raised over $238,000 and counting! #NYBTWalk

When Ben received #biomarkertesting results after his #braintumor diagnosis, his world shifted –– and a new treatment option became available to him. Register today to join our free #MyTumorID biomarker testing webinar on Fri 9/26: braintumor.org/brain-tumors...

NBTS is disappointed that the NCI won’t be renewing its funding for the Pediatric Brain Tumor Consortium in 2026. Read more about this decision & why we disagree with it: https://braintumor.org/news/protecting-vital-funding-clinical-trial-opportunities-for-children-with-brain-tumors-%ef%bf%bc/

Join us on Sunday, September 21st, at 7 p.m. ET for our monthly Brain Tumor Support Conversation. Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space. Register today: https://braintumor.org/support-services/support-groups/brain-tumor-support-conversations/

☀️ Today’s the New York Brain Tumor Walk! Huge thanks to our top-tier Signature Event sponsors: IQVIA Biotech & Focus Partners. We’re also excited to welcome Novocure & Medtronic. Thank you for your support! #NYBTWalk

At age 9, Cole was diagnosed with a #braintumor — as a teen and cancer-free, he inspired others by speaking at the Colorado Brain Tumor Walk. Join us at this year’s powerful event on Sept 27: https://braintumor.org/event/colorado-brain-tumor-walk-race/ #ColoradoBTWalk

👟☀️ Tomorrow, Sunday, September 14, we’re gathering at Jones Beach for the New York Brain Tumor Walk! We couldn’t do it without our amazing sponsors, volunteers, and participants! Join us for a morning of hope, awareness, and community: braintumor.org/event/new-york-brain-tumor-walk/ #NYBTWalk

Thank you to Rep. @deluzio.house.gov staff for virtually meeting with me and @braintumor.org volunteers to share our stories and to urge our policymakers to address the critical issues affecting the brain tumor community. #AdvocateFromYourState #BRAINAct #BrainTumorAwareness

Do you want to help with @braintumor.org #AdvocateFromYourState event? You can urge Congress to co-sponsor the #BRAINAct by adding your voice to take action for the #braintumor community today: braintumor.quorum.us/campaign/138...

At just 26, Julia was told she might have an aggressive #braincancer with a 10-year prognosis, but biomarker testing revealed a low-grade tumor. Learn about the importance of biomarker testing at our free #MyTumorID webinar on Fri 9/26. Register today: braintumor.org/brain-tumors...

At 14, Ava was diagnosed with epilepsy. Then, just two weeks later, she was diagnosed with a rare #braintumor, a #ganglioglioma. Now, after two brain surgeries, she’s 19 and heading off to college. Read her story: https://braintumor.org/news/avas-story/

On Saturday, October 11, join NBTS and your local brain tumor community for the 2025 Race for Hope Greater Philadelphia! Let’s honor loved ones and mark milestones while raising awareness and funds to drive research forward: braintumor.org/event/race-for-hope-greater-phl #Race4HopePHL #R4HPHL

Today, 24 years after 9/11, we remember the many lives lost and honor first responders like Harry Stafilias, an NYPD detective, who rushed to help. More than two decades after that horrific day, Harry passed away from #glioblastoma, leaving behind his wife and two kids.

Thank you to the more than 175 advocates who joined us for Advocate From Your State yesterday to speak with their members of Congress. There’s still time to fuel change for the #braintumor community — sign our action alert today: https://braintumor.quorum.us/campaign/138987/ #AdvocateFromYourState

When Jessica O.’s son Chase was diagnosed with juvenile pilocytic astrocytoma (JPA), she quickly stepped into caregiver mode. But she soon realized she needed care, too: braintumor.org/news/guest-blog-training-for-a-marathon-brought-me-back-after-my-sons-brain-tumor-diagnosis/

Today, September 9, is #AdvocateFromYourState Day! Patients with brain tumors + their families need Congress to act: Co-sponsor the BRAIN Act, Fund brain tumor research, and support kids with cancer. Email your lawmakers today: https://braintumor.quorum.us/campaign/138987/