More #measles in #Virginia, another young child in #NoVA: www.vdh.virginia.gov/news/public-...

Spent the afternoon listening to #ACL/#RAISE #familycaregiver council. Remain disappointed, but not surprised, that the caregiver community continues to receive crumbs and is expected to be ecstatic. Recap here: caradigmshift.substack.com/p/raising-qu...

21st century progress for Virginians & their caregivers - You can now submit complaints online www.vdh.virginia.gov/licensure-an... (Previously this was fax/email only) #vacaregivertips Hopefully complaints will be investigated and made transparent

For those recognizing the respiratory illness risk (#flu, #covid, #ili) for themselves and those in their household, this is a thoughtful discourse on masking #tipsforcaregivers open.substack.com/pub/theunbia...

Practical guidance for navigating complex medical coverage and bills in the year to come from @kffhealthnews.org kffhealthnews.org/news/article... #surprisebills #medicalbills #caregivers

Derek Sprague shows caregiving is par for the course (pun intended). All of us will be in a #caregiver role, with nearly 1/3 of all working adults caring while working. Interesting timing, as org recently announced revamped #PGA Care program - did his personal experience change internal supports?

Wrote today about the irony of the "health care system" and all it's pain points that #caregivers face every day caradigmshift.substack.com/p/move-over-...

This sounds like the start of a @lastweektonight.com skit that would be hilarious if it wasn't true 💔

@gavinyamey.bsky.social and @jonshaffer.bsky.social write reminding physicians of the commitment to doing no harm..."Trump and RFK Jr are dismantling the core institutions of public health—doctors should be resisting their damaging health policies, not supporting them."

@mcgowankat.bsky.social writes of the double stigma of being a #caregiver supporting a person living with severe #mentalillness. There are not meal trains or get well soon cards, rather suffering and silence

Once again, I implore media outlets to stop saying these are CDC decisions. These are changes being made unilaterally by RFK Jr. against the expert advice of CDC scientists. I note that RFK Jr. no longer recommends flu vaccine for kids in the midst of a horrible influenza year.

If you only read 1 series about #healthcare in America right now, read this 5-parter by @gingerthompson.bsky.social. It's incredibly thorough & haunting & sadly aligns with the stories I heard from neighbors who were stuck seeking care from this system during my 6 years in SW Georgia. #ruralreality

Started a new approach this #GivingTuesday by donating blood to @americanredcross.bsky.social, making donations to local thrift shops, and volunteering. A reminder that the day doesn't have to be about money to make a difference.

If you (or your parents, grandparents, neighbors, friends, partners) find any of this #Medicare Open Enrollment stuff confusing, or just want to ask some questions to non-biased, certified, no-cost counselors, check out your local State Health Insurance Program www.shiphelp.org

So excited to see this work featured by @dukemedschool.bsky.social (even though it pains me as a #tarheel). Centering #familycaregivers instead of keeping them as the "+1" to the patient is necessary for thinking about future programs, policies, and practice.

Sharing in hopes that some #caregiving #aging #epidemiology #publichealth researchers apply. Good luck ☘️ www.researchireland.ie/funding/glob... #researchfunding #sciencefunding

Whoever had us playing Oregon Trail, whoever instituted that for public schools, was probably a time traveler. They saw RFK and all this shit, knew it couldn’t be stopped, and said, “well, they’re gonna need this.”

Some novel ways to use #designthinking for your #caregiving challenges by Ayse Birsel: www.linkedin.com/pulse/design...

Yesterday, on the 60th anniversary of #Medicare + #Medicaid, CMS sent out an email creating false hope for many #caregivers with subject line "Did you know Medicare covers caregiver training?" Cue an image of a jumbo check & balloons showing up at your door open.substack.com/pub/caradigm...

This @medicaleconomics.bsky.social interview with Clifton Truman Daniel (grandson of President Truman) #Medicare & #Medicaid origin story is a valuable read as we mark the 60th anniversary of President Johnson signing the legislation www.medicaleconomics.com/view/medicar...

This great primer on OAA from @ncoaging.bsky.social made me think about all the ways this key legislation is like the bevels on a diamond ring caradigmshift.substack.com/p/a-diamond-...

How the Older Americans Act 60th anniversary makes me think about diamond rings caradigmshift.substack.com/p/a-diamond-... #OAA #olderadults #olderamericansact #caregivers

New research from @bidmcreseach.bsky.social validates the experience of millions of #familycaregivers: the amount of time #olderadults hold in emergency department is increasing (and this was before the #OBBBA was signed into law). jamanetwork.com/journals/jam...

You should never judge one's risk threshold for COVID based on what you think you know about them. Physical health is just one factor, there's also -social supports -financial -caregiving responsibilities -mental health & invisible illnesses Be curious & have compassion

That's after they already solved food insecurity and care for aging family members

2nd #measles case in #cville

Could the very small, teeny, tiny (in relative terms) amount of $ that goes to #olderadult and #caregiver programs avoid being cut? The answer is a definite maybe. @kff.org analysis "...difficult to assess whether funding for any of the former ACL’s functions will be scaled back or terminated."

Sometimes you might hear about diseases or outbreaks and think "I don't have to worry about that, its not near me" Below details of #measles case in #cville (from VA DoH). Your local reminder that diseases don't stop spreading when #publichealth stops getting funded

Massively cutting Medicaid and SNAP isn’t the only way to find savings. We could just forgo tax cuts for Americans making over $500K instead. My @morningjoe-msnbc.bsky.social Chart

After reading too much news, turned to @doriskgoodwin.bsky.social Team of Rivals for hope "To Lincoln's mind, the fundamental test of a democracy was its capacity to 'elevate the condition of men, to lift artificial weights from all shoulders, to clear the paths of laudable pursuit for all'."

Beautiful sentiment within an #obituary about a couple's relationship enduring thru #Alzheimers "It was through their example – always and during this challenging time, in particular – that their children learned the power of love, humility, humor, and hard work rooted in faith." #caregiver

In 2025, new role models must be more than builders. We need system-designers. Not one home at a time, but thousands. Not just raising walls, but reimagining the blueprint. Rosalynn taught us to care by doing. The next model must scale that care, without losing the soul in the structure.

Here's accessible link to this invaluable resource for #caregivers from @nytimes. Read this while sitting on that uncomfortable bedside chair: Nurses Share Insider Tips for Your Next Hospital Visit www.nytimes.com/2025/05/16/w...

More administrative barriers also opens the door for more fraudsters to provide "assistance" to people trying to make decisions and get coverage

As Howard Gleckman thoughtfully points out, there are more questions than answers for #familycaregivers regarding #medicaid changes regarding work requirement: www.forbes.com/sites/howard...

Of "small slice of nonworking adults who can be considered able-bodied....they are exceptionally poor women on the older end of the working-age spectrum, who have no income of their own & live in poor families. Most have less than a HS education & left the workforce to take care of family members"

The 80-year recipe stoking America’s Prosperity: 1) Free-market capital investments in brilliant ideas… 2) enabled by Engineering Innovations… 3) based on Science Research in Universities… 4) funded by Grants from the US Government. It’s time more people understood this.

As Congressional Republicans push for Medicaid work requirements, here’s how it’s going in Georgia: Deloitte Consulting is taking in tens of millions in tax dollars to manage the country’s only Medicaid work requirement program — and sell it to the public. Only 3% of those eligible have enrolled.

It's also a #familycaregiver penalty-if you are full-time (or in reality more than full-time) caring for someone, you may not be able to seek other employment. BTW enabling family caregivers to have access to SNAP benefits is cost-saving approach because it reduces medical institutionalization costs

There are so many acronyms in Federal #health budget talk. I decided to go deep on #LIHEAP, a program that directly impacts nearly 7 million households (inc. many #olderadults) who have to decide between "heat and eat" every freezing winter & scorching summer open.substack.com/pub/caradigm...

It's really incredible to see brands recognizing that holidays may not be happy for everyone, and that the inundation of marketing emails may be triggering/challenging/upsetting. So far, I've seen #Etsy and #DraperJames with messages about opting out of #mothersday content. #empathy #toxicpositivity

Today's lesson: Don't go berry 🍓 picking on a weekday morning unless you want to hear antivaxxer moms boast about all they learned from Instagram reels about measles 😤

Here's a thoughtful analysis on how the proposed Federal budget impacts #publichealth and the populations served (or formerly served) Budgets are reflections of a government's values😞 open.substack.com/pub/healthsc...

Listening to @brian-goldstone.bsky.social talk abt working #homelessness with @aspeninstitute.bsky.social: -actual # of homeless in this country is 6x what the estimates show -extended stay hotels become profitable homeless shelters Health w/o housing is near impossible; housing is #publichealth

Reading summaries of #100days and realize you could substitute #familycaregivers into many of these lists, a population experiencing many compounding negative impacts nationalpartnership.org/35-ways-trum... generations.asaging.org/exec-ordersf...

New numbers out today: 7M Americans living with Alzheimer's, 12M individuals in a caregiver role Why #medicaid cuts matter: www.linkedin.com/pulse/when-s... "People living with dementia...will be left to navigate even harsher realities with even fewer hands reaching out to guide them."

To answer the age old question of what is #publichealth: "You can think about public health as protecting, promoting, and preventing" - Dr. Anne Schuchat at today's hearing

While measles may be catching the attention of #armchairepidemiologists, pay attention to pertussis. I naively hoped my dissertation knowledge wouldn't be needed in my lifetime, but time to dust off that #whoopingcough info

Eve Anthony of Athens Council on #Aging the place #olderadults get services explains basic economics of investing in services: www.linkedin.com/pulse/call-a...

Useful instructions for #caregivers who are dealing with claim denials as part of trying to get healthcare for your person. I dream of a future where caregivers spend more time holding someone's hand than holding on the phone for the insurance company #healthcare #insurance #claims