Nothing about us without us.

Hi Friends, I’m sharing a new interview. Meet Leticia Urieta, (@leticiaasu.bsky.social) ✨Join us to cheer for our talented masked poet. ✨ Thank you for your love and support of my pandemic documentary story project! www.instagram.com/p/DXMioucEZPf/ www.facebook.com/share/p/18rC...

I am proud of this film. Grateful for the opportunity to push our limit. It's really challenging to make a movie in 5 days but every second we spent on it was driven by love. Raising awareness to help patients end gaslighting and societal abandonment is our mission for this film.

COVID can damage the brain stem & leads to "Ondine’s Curse" signs: failures in automatic breathing, dysautonomia, cognitive decline, even death. The brain doesn’t always bounce back. Protect your health. 😷 Jason Gale's report: www.asrn.org/journal-adva... ANN: www.instagram.com/p/DXIdZTOEei...

I partnered with @Ninastorey.bsky.social to make this film as an editor and producer because I want to show what is like to live with #longcovid, including gaslighting. Watch to support two long haulers: 👉 www.youtube.com/watch?v=aaVm...
👉 fb.watch/Gj_jvwH4Ga/

Staying Strangely Optimistic because of a wonderful community rooting for @ninastorey.bsky.social & @msjulieslam.bsky.social – 2 long haulers on a mission to show hard-to-explain invisible Long COVID disability to the audience of Easterseals. 👉 www.youtube.com/watch?v=aaVm... 👉 fb.watch/Gj_jvwH4Ga/

Strangely Optimistic on @punchuppod.bsky.social www.youtube.com/watch?v=gVSZ... Watch Movie: 👉 www.youtube.com/watch?v=aaVm... 👉 fb.watch/Gj_jvwH4Ga/ #LongCOVID is a disability! @nancyinmke.bsky.social @michael-hoerger.bsky.social @lcawarenessint.bsky.social @longcovidaragon.bsky.social

A chat w @punchuppod.bsky.social @leilacharlesleigh.bsky.social @patthesocialist.bsky.social makes @msjulieslam.bsky.social @ninastorey.bsky.social + Gabrael Bey strangely optimistic about their Disability Chall! Long COVID Awareness is about Love and Community, same for normalizing prevention! 🎬🧵

This is the new official CDC map for California COVlD data. They are no longer just using confusing shades of blue; it is now readily informative where there are spikes. Anyone could easily share a graphic like this in their home state every week!

Thank you all for supporting our film made for the Disability Film Challenge.

TONIGHT! Trump agrees to Iran’s 10-point ceasefire plan Israel BREAKS immediately Dems taunt ‘TACO Trump’ @msjulieslam.bsky.social, @ninastorey.bsky.social, & Gabrael Bey join to talk @togetherwemask.bsky.social & film “Strangely Optimistic” on living w Long Covid www.youtube.com/live/gVSZ78O...

I teamed up with @ninastorey.bsky.social to make Strangely Optimistic for Easterseals Disability Challenge because we want people to see the reality of life as Long Haulers. Nina is using her beautiful voice to lift us up. This isn’t about winning; it’s about health justice. 👉 fb.watch/Gj_jvwH4Ga/

Pain is humbling. But this pain also motivates me to fight for others because I know what Long COVID patients are going through. I volunteer because I love you. I am a proud messenger of my community.

It’s a short film (under 6 minutes) that captures the experience of living with #LongCovid and its challenges with humor and heart. A good conversation starter for friends and family. ✌🏼😷😎

Help support Long COVlD awareness. Please watch, like, and share Strangely Optimistic for 2026 Easterseals Disability Film Challenge! 👉 www.youtube.com/watch?v=aaVm... 👉 www.facebook.com/share/v/1Chi... @michael-hoerger.bsky.social @mileswgriffis.bsky.social @wemaskcolorado.bsky.social

Meet Gabrael Bey, the CSUN film student & talented cinematographer for Strangely Optimistic! 🎥 Grateful for his work on this Disability Film Challenge dramedy. 🎬 Written/Dir/Starring @ninastorey.bsky.social ✂️ Edited by @msjulieslam.bsky.social Watch: www.youtube.com/watch?v=aaVm... #LongCOVID

🆔 Clarisa @peamilkstan.bsky.social is wearing a black POWECOM KN95, decorated with a mask chain, a student doctor white coat, with an olive color silk dress underneath it. Read interview by @msjulieslam.bsky.social 👉 www.instagram.com/p/DWjOunIEbQc/ 👇 www.facebook.com/masktogether...

“It’s extremely isolating being the only masker at my school of future doctors, but not getting sick or further disabled outweighs the risk that comes with conforming to others.” Clarisa @peamilkstan.bsky.social is studying to be a doctor + teaching 😷-required ballet www.instagram.com/p/DWjOunIEbQc/

Cardiovascular disease in Long Covid can kill. Incredible to have to say this six years into the pandemic. Drawing attention only to some disease manifestations (e.g. "neuroimmune disorders") is detrimental to the patient community as a whole. Everyone deserves care.

Dr. Kiss posted on about “Syncope” as a symptom she’s seeing among newly infected COVID patients. She warns that syncope is common with Long COVlD patients diagnosed with POTS. [ www.instagram.com/p/DWUrWF-kvjV/ ]

Jessica Sager (PARADE) wrote about “Symptoms Shifting” in the Omicron era, with "Bizarre New COVID Symptoms” emerging. Dr. Scott Stienecker is seeing patients that are “bone tired' but have insomnia and cannot get to sleep” and patients are considered "walking wounded" requiring comfort care.

Can U add to the list of Omicron symptoms? 🔺Sore throat 🔺Nasal congestion 🔺Runny nose 🔺Cough (dry) 🔺Fatigue 🔺Headache 🔺Fever/chills (less universal) 🔺Body aches 🔺Nausea, vomiting, diarrhea 🔺Insomnia (reported by Dr. Scott Stienecker) 🔺Syncope (reported by Dr. Kiss) www.facebook.com/masktogether...

Over 500 individuals, along with 21 organizations have endorsed the proclamation. ✍️ Petition: actionnetwork.org/petitions/pe... 🩵🤍🫂❤️‍🩹😷 If we get more signatures, we will reach out to @mayor.nyc.gov Mayor Mamdani again. Mayor Mamdani would have stood up for the marginalized community if he's aware.

In an interview, #MaskTogetherAmerica coordinator Karina Halevy, the masked ballerina, expressed her disappointment of @mayor.nyc.gov for rejecting our petition for NYC to recognize the Int'l Long COVID Awareness Day. 👉 www.facebook.com/masktogether... 👉 www.instagram.com/p/DWNNmSrEZlL/?img_index=1

Your regular reminder: It’s not vaccines vs masks It’s vaccines AND masks AND clean air AND tests AND more

“Thank you so much for this precious partnership in fighting the erasure of #LongCOVID! Millions of patients are counting on their representatives! It takes collaboration, community, communication and collective action to address this health crisis.”— @msjulieslam.bsky.social 👩🏻‍💻🩵🤍❤️‍🩹🫂😷

My new research is out "Overview and Pathophysiology of Long Covid" I provide an updated overview of key concepts, terminology and epidemiology of LC. I also offer an analysis of key mechanisms of pathology and multi-organ involvement in #LongCovid www.mdpi.com/2673-8112/6/...

Delphine Crespo, President of Association of Long Covid Aragon @longcovidaragon.bsky.social shares her understanding of Long COVID (LC), as a patient and LC Community rep in Spain. Watch #MaskTogetherAmerica LC Defense Series III. Support Long Haulers 🩵🤍🖤❤️‍🩹😷 masktogetheramerica.org/blog/long-co...

⚠️Study in World Journal of Clinical Cases suggested that people with autoimmune inflammatory rheumatic diseases (AIIRDs) often have impaired immune responses, which, when combined with immunosuppressive treatments, hinders the elimination of SARS-CoV-2. doi.org/10.5662/wjm....

⚠️Patients with autoimmune rheumatic diseases face a 56% prevalence rate of #LongCOVID. If you have an AIIRD, your immune system may struggle to clear the virus, leading to chronic inflammation. academic.oup.com/rheumap/arti...

SARS-CoV-2 hides + replicates in organs. Prioritize high-quality masking. Demand 'Clean Air' standards in schools/workplaces. Avoiding the initial infection is the only 100% effective way to ensure one does not develop #LongCOVID. #MaskTogetherAmerica doi.org/10.3390/v171...

We urge @mayorsoffice.nyc.gov @mayor.nyc.gov to light NY City Hall teal to show solidarity with the million of New Yorkers with #LongCOVID. Sign our petition that’s endorsed by 22 orgs and individuals impacted by this devastating medical condition around the world. actionnetwork.org/petitions/pe...

Take action towards fighting discrimination in health care TODAY! Each email, phone call, and letter helps! Change starts with everyone one of us. Join #MaskTogetherAmerica to support LONG COVID visibility and advocacy." docs.google.com/document/d/1...

@zohrankmamdani.bsky.social dropped the ball, refusing to acknowledge #LongCovidAwarenessDay along with LA, Austin, & other major cities. Ignoring us won't slow the growth of this mass disabling event; it just reminds us again how Disabled lives don't matter to @mayor.nyc.gov. #DisabledLivesMatter

For #LongCOVIDAwarenessDay, share the impact COVID on all ages, contributing to ~400 million Long COVlD (LC) cases & growing. Fight for LC representation, inclusive treatment and research, and government support by using our Health Justice Toolkit! To start: #MaskTogetherAmerica

Long COVID is not invisible but here is a message from HHS.
www.hhs.gov/longcovid/in...

People with Long COVID struggle with their disabilities and lost health, but with no FDA-approved treatments and scant support. In New York, patients face debilitating health declines, financial ruin, and systemic stigma.

With over 400 million people impacted worldwide, the crisis remains dire. 1 in 7 NYC adults—over 940,000 neighbors—have suffered from the Long COVID crisis. Long COVID is now the most common chronic illness among children nationwide.

Crushing that @mayor.nyc.gov rejected our request for a mayoral commendation for Long COVID Awareness Day and light up the City Hall on Mar 15, as 465+ global landmarks will shine in teal to recognize this day of solidarity to offer hope to people with Long COVID.

We wrote to @mayor.nyc.gov on Feb 24, and created a petition on Feb 25. The petition has now been endorsed by 21 other public health advocacy orgs around the world and hundreds of individuals, many of whom are impacted by this devastating medical condition. actionnetwork.org/petitions/pe...

Waiting on the pod bros to tell us this doesn’t matter.

💔Crushing news: I called 311. Then we received an official response from @mayor.nyc.gov rejecting our request to recognize International Long COVID Awareness Day. @nyc311.bsky.social operator was cold and rude. They said they don't live in NYC when I asked. I hope Mayor Mamdani cares, guess not.

Our founder Julie Lam @msjulieslam.bsky.social a New Yorker called 311 today —the operator gave her a hard time when she asked to pass along our plea for @mayor.nyc.gov They coldly put strict word count limit on the request for NYC to support the day of solidarity for Long COVID patients in NYC.

Six years ago WHO declared COVID-19 a pandemic. Despite tens of millions of deaths, the world has not sufficiently addressed the ongoing impacts of COVID-19, and we are more vulnerable to future pandemics due to anti-science officials leading government agencies around the world.

We wrote to Mayor Mamdani @mayor.nyc.gov but no one has responded to our multiple letters. We wrote to Governor Kathy Hochul @governor.ny.gov and I talked to her staff a week ago but have not heard back. So I turned to other NYC elected officials.🧵

I will be speaking virtually about #LongCovid for @togetherwemask.bsky.social LC Defense Series 5:45pm EST. 4 March 2026 Registration link and programme here masktogetheramerica.org/blog/long-co...

🚨LCDefense III 4:35pm Delphine Crespo @longcovidaragon.bsky.social 5:10pm Dr. Ciara Steele @cleanairie.bsky.social 5:45pm Elisa Perego PhD @elisaperego78.bsky.social 6:20pm Pamela Morrison @lcaireland.bsky.social 6:55pm Angela L. @lcawarenessint.bsky.social 7:35pm Devin Russell Long COVID Foundation

Sorry, the times for Pamela Morrison @lcaireland.bsky.social and Elisa Perego PhD @elisaperego78.bsky.social are wrong. @msjulieslam.bsky.social made a mistake. ⚡️5:45pm Elisa Perego PhD ⚡️6:20pm Pamela Morrison See the updated schedule: masktogetheramerica.org/blog/long-co... Register to join.

Long COVID Defense Series III is hosted by Dr. Robi Tamargo, @AngeliqueCorthals.bsky.social Sarah C. ⚡️4:30pm ET @Michael-Hoerger.bsky.social gives opening remarks ⚡️8:15pm ET Paul Hennessy (Organizer of the 2024 LC Demonstration in DC) gives closing remarks.  masktogetheramerica.org/blog/long-co...