Jeez, the momentary panic I had after hearing the sirens again for two days in a row until I realized it’s 11 am on Wednesday.

My husband should teach a masterclass on caring for disabled family. He patiently waits for me to put my words together and doesn’t interrupt. He notices when my hands are shaking from the pain before I do. And he just always gives his quiet unassuming support whenever I need it

Proud of myself! Asked for a wheelchair to sit through my mammogram instead of trying to stand through it. First mammogram and had the results before I got home.. no abnormalities found!

Had to accompany my mother to the ER on Monday. She’s fine but I am worn down. I keep falling asleep and my pain is through the roof. I have 3 appointments between in the next 2 days for her, my son, and me but right now I don’t know how I am going to be able to do them

New Age types: I love you but for all that is good, stop suggesting turmeric to me after I tell you I’m on meds for my autoimmune disease

We trying to go as long as we can without running the AC but I broke down tonight. It’s 80F (26.6C) in the house even at 2 am and it’s I can’t take it anymore.

Kid “Why did you teabag that character?” Me: “I didn’t teabag him! I crouched near him. Besides I lack the teabag to actually do anything like that. Oh that’s a good debate, if you have no balls can you really teabag?” Kid: “Omg Mom, no. That’s not a debate”

Can you all go one dang day with hating the administration without being ableist? I’m so close to deleting my account.

Standing up to the bullies! Would love KC and StL to follow our our neighbors

In a million years, I would never had guess the reason the school is urging family discussions on …. Not sticking paper clips into the electrical outlets We’re doomed.

My 14 old son has been across state for a music festival. He got home and curled up in my arms. Kid is taller than me but still lets me snuggle with him. Even told me he missed me too and got me some honey for an early Mother’s Day gift.

Over $300k raised for that poor baby. As it should be. Our babies, all our babies, deserve love and compassion

My teen son and his buddies use “alpha male” as an insult. This is also the same kid who came home after his class on the stock market ranting about the evils of capitalism and wealth hoarding. The kids are okay but that is due, in part, to teaching and raising them to be part of a community.

Even if one can tell them it‘s for a stockpile, there’s controlled scripts that will absolutely flag you. “Stockpile RX’s” is really up there with “build your own farm” in terms of useless for most Americans. I would have to pay cash to the tune $17k for an extra month. Seventeen thousand.

She’s right! I wasn’t ovulating when I decided that I would have 1. Oh that’s right, it’s when I was pregnant so LOTS of baby making hormones. Conversely, I chose to come off the bc to have said pregnancy. That’s what reasonable people do when they can decide on pregnancies

Just read a comic featuring a disabled character falling in love with an abled bodied photographer. It’s well loved. 1st volume is the photographer encouraging the disabled character to get expand his world and pursue his dreams of traveling and their relationship.

Monty Python’s and the Holy Gail

Springtime in the Midwest!

I don't want to kink-shame, I just want to kink-ask-why…

Fellas, is it gay to give your husband bedtime smooches? I’m adding this to my tbr list after I feel closer to baseline

I hate prednisone so much! It’s 3:22 in the morning and I can’t sleep. I’m glad it’s just a short round so it shouldn’t be too bad with side effects (hopefully!)

With antibiotics, you are supposed to hold your immune suppressants. But without them, I feel sick and have many the same symptoms. I’m just in a flux state of it’s infection or my own immune system making me feel so awful

Really suggest, if you aren’t already familiar, reading up the start of food regulations in the US. It was as important then as it is now. Even the wealthy were supportive

I’ve seen posts that just copy and paste their caption, emojis, and all in alt text that do nothing to actually describe the image. If you are going use it, put in effort. Takes a minute for the bare minimum.

My scale for how much respect doctors will be how pissed they are about the measles outbreak and how they respond.

Donated! Thank you to the ACLU and their tireless efforts

Kid started his own play through of the remastered Oblivion. “I wonder if being fire resistant means I can jump in the lava?” *quick saves and promptly dies* “Bro, resistance doesn’t mean you are fire proof!” 😂

I love it when other parents subscribe to the “your kids are my kids” community raising mindset. Took the neighbor kid out to ice cream with us since he’s over. His mom’s only comment was concern because she knows mine is lactose intolerant. (The place we go has dairy free options)

I wish this bush by my front steps bloomed all the time. They’re so bright pink they almost glow themselves.

My frustration with USPS mounts. The only reliable source of my son’s ADHD is mail order. It requires a 18+ signature. Last time they forged my son’s name (not realizing he’s a minor and can’t sign) and left in our mailbox. This time delivered to my neighbor.

After his show last night, my husband got a little drunk. This man 😭 “You’re my anchor. You are the only person who has ever let me be myself and encouraged me. Thank you for always putting up with myself and being there for me. You do more than you could ever realize”

Protest quilt. Raw edge applique on kona, free motion quilted with embroidered letters. Made finished in under 24 hours. All my WIPs are like 😑 #quilting #april19th #handsoff #dumptrump #antifascist #gadsdenflag #protest

Quilty mathematician help please! pattern doesn’t state and I’m fighting brain fog. If I want to make sure these are square, their UNFINISHED size should be 4.5”, right? 3.5” + 2” - 1” (for the 2 seams after sewing the pieces in rows 1st) Pattern is Cabin Nights by Prairie Quilt Co

disabled people deserve to live fulfilling lives no matter their productivity to society

The moon moth is finished! I loved adding the tiny flowers. If you wanna stitch this for yourself, the PDF download is available in my shop! Get the Moon Moth Cross Stitch Pattern here: www.etsy.com/listing/1711... #crossstitch #stitchsky #crossstitching #craftsky #crafting #embroidery #handmade

The unexpected sound of a #porcupine asking for food is … polite. Despite their spiky defense, porcupines are gentle herbivores and they’re surprisingly vocal. It’s common they chatter or hum when they’re hungry, especially in human care

I love it when artists and craftspeople make cool shit and then alt text their pictures of the cool shit. Super bummed that the woodworking feed is pretty devoid of alt text. Pottery and stained glass are iffy. Quiltsky is pretty good though!

USPS keeps sending my Dragonfruit quilt shipments on a tour. It hits the KCK distribution center then heads out St. Louis, gets lost for a bit, and then back to KCK. It’s happening again for the 3rd time in a row, at least. Part of me wonders if this isn’t deliberate inefficiency.

Hubs romancing Lae’zel in his new BG3 play through Me: “So you like bossy women, eh?” Hubs: “What makes you say that” Me: *points to self* “Exhibit A?” Hubs: “You’re not really bossy. *laughs* More mouthy than anything”

Ew, are we in the discourse of “married woman with changed names are property” already? Why people change their names is not your business. Off the wall blanket statements hurt your credibility and the very real issues of the SAVE act.

Hubs: “Do you think it’s too late to throw the roast in the crockpot?” Me: *exaggerated wink* “You could throw your crock in my pot” He walked off while rolling his eyes at me lol

“Why is this one thing bothering me SO much?” …opens up box to find a mess of unresolved childhood trauma “Actually you know what, never mind I don’t want to know! Ha ha, good thing I didn’t open that box!”

Dreaded words when you’re chronically ill is “Your labs are normal” but this set was testing for lupus so normal is good. I don’t need anymore autoimmune fuckery

The receptionist checking me in for my appointment took so look up my appointment, I thought I got the time wrong. Nope she was looking for a 20 year old DOB. Ngl I blushed at compliment. I thought I looked like a hot mess today.

Cold snaps always wreck me. I wanted to work on my quilt today but it’s going to be a pain killer day. I hate taking them during the day but the pain is a lot today.

#Quiltsky we need to do better!!! Alt text gives you the space to explain your project. Use it to explain your art to someone who otherwise wouldn’t be able to experience it. Or to someone who needs more info. Alt text on Bluesky is also searchable! Take the time to ALWAYS add alt text.

Being chronically ill is not lazy. Resting when your body needs it is not lazy. Saying “no” is not lazy. Taking care of yourself is not lazy. Ableism teaches us to guilt ourselves for respecting our body & its limits. Change the narrative. Taking care of yourself is powerful.

3 days later, I finally got all 128 of these 2” buggers all trimmed. The quilt pattern is lots of steps so I am focusing on one step at a time before jumping projects. Otherwise it’ll set in my UFO void for ever. Also #quiltsky we need to do better with ALT imagining. Seeing too many without it

I am an #evermasker. I am 3 immune suppressant medications (plus one that effects WBC) Of course, I mask. Infections are worse for me and potentially dangerous. I’m not eccentric. I am doing one of the few things I can to protect myself.