I’m on high dose steroids again. Blood sugar up, feeling emotionally all over the place already. But what has just occurred to me is that if I do end up with really high doses at any point and start hallucinating dead people it might be my mum. That’s a scary thought

What was your childhood cinema? Odeon in Ayr, now upgraded into the Astoria

Well, wheezy and crackly so antibiotics and steroids and hopefully head off admission. I’ve cracked how to get to see a GP not ANP- don’t phone too early- now to work out how to be seen by a GP in time for the lab collection- sputum not gonna be worth much by Monday 🙄

#AlphabetChallenge #WeekAForAbstract

Yay, the residents aren’t going on strike next week 🎉 Hope the offer was a good one and there is no need to strike this year

@jimfairliesnp.bsky.social I don’t see your name here. As a constituent I would like to ask you to sign up to this pledge, and indeed go further to support refugees in Scotland

Calling from a red phone box in the middle of the countryside when we had a puncture on a bike and needed rescued at about 10yo

Am I the only person in the UK who doesn’t watch Traitors?

I call on my party and my government to remove themselves entirely from X and communicate with the public where they actually participate online and can be protected from such illegality.

4 days before the residents go on strike is not the time for these lungs of mine to misbehave! Hoping I just feel rough because I had my shingles jag yesterday but not convinced

#AlphabetChallenge #AforAbstract

My wish for the year

Love this

#AlphabetChallenge #WeekAForAbstract

Introduce yourself with what almost killed you I am a soor ploom sweetie, just the right size to block a small child’s airway while she is on the swings… Oh, now she’s fallen off onto her back and I’m flying through the air 😂

Introduce yourself with what almost killed you I’m RSV

I work in a hospital, see patients anywhere for specialist palliative care. I have severe latex allergy Latex policy- all use risk assessed etc There are balloons on a regular basis across the hospital Today’s suggestion “could you tell the managers of all the places you work about your allergy”

Today would have been my lovely mum’s birthday. The first without her. Dad is struggling.

Caught up with a friend today, and was reminded that one of the things which impacts so much on colleagues with disabilities is the attitudes of those they work with. Constant criticism worsens anxiety and makes a return to work duties so much more difficult

So that’s the season of peace on earth and goodwill to all men over for another year then

No cheating, repost with the most recent photo of your pet. [next door neighbours’ cat]

I’m off to bed. The only party in this house tonight is party-paws, the neighbours’ cat, who stayed over last night and looks to be doing the same tonight because she doesn’t do parties either. Except 5.30 am let’s have a game parties. Have a guid new year when it comes folks

Picked up my prescription at 5.30pm on Hogmanay. Of course it isn’t right 😂 It’s all very well changing the label on the drugs to say weekly rather than fortnightly, but I’m going to need twice as much- collecting it every 2 weeks is a recipe for missed doses 🙄

I’ve gone up in the world- not just a chest of drawers for my drugs, but their very own fridge next to it 🙄 At least this way most of the meds are in one place

#AlphabetChallenge #WeekVforVegetables #Themes

Last of the Christmas catering done - back to cooking for 2. This year we managed to avoid taking politics with the brother in law so weren’t told that permissive views on sexuality were what is wrong with the world like last year 😳 and my sister didn’t fall out with anyone so that’s a win

Some things are so familiar that it doesn’t occur to you that they are of an era. This is our family trifle bowl, turned upside down so you can see it in all its 70s glory!

Some of the burden of chronic progressive disease is how you support your loved ones through your deterioration. Commented earlier that I want to try and take the Guides to camp in spring because I don’t know how many more times I’ll be able to…wife now all wobbly about rate of deterioration

Maudlin tonight. 2025 has been crap. 2026 has lots I want to do in it, but I’m looking ahead wondering how much I’ll be well enough to do. Can I manage a Guide unit centenary ceilidh, Guide camp, holiday for 10th wedding anniversary, trip to London with the Guides? Also 2 other trips my wife wants

#AlphabetChallenge #WeekZforZero Colleague had a birthday with a zero so this was thrown together between bits of Christmas baking at the start of the week

It’s really sad when your goddaughter, at 11yo, knows that it is safer to ask you if she can change the hoodie you bought her than to mention to her dad it is a duplicate when she opens his later on Christmas Day. He has been so difficult to them, I’m so glad he has left

Tomorrow I get a day off work where I don’t have to entertain family. Just me and my wife at home. Aiming to surface somewhere before 2pm at this rate. It’s been a very people-y few days

You know you have eaten too much when it’s after midnight and you’re chest is crackly and sore but you can’t do proper chest clearance because if you retch you will vomit. Happy Christmas 🫁🫁

#joinin Po visited earlier for some cream, but left before the turkey was out the oven because of all the rabble in the kitchen. It was venison at home so her favourite- and there will be plenty left over here It was good to have the distraction in sad moments

It seems that what reduces dad to tears on Christmas Day is us buying him pants, because mum told us to make sure he had decent pants. Sadly he feels he has more pants than he will ever wear (I think some should go in the bin) so was also disappointed by the present 🙄

Sending love and blessings at Christmas to all, whether it is a joyful one or tinged with sadness- for someone lost, a family broken, money too tight to enjoy gifts and food together, no home to live in, someone unwell or any other reason

Merry Christmas everyone.

#AlphabetChallenge #WeekZforZero

I’m wondering how much longer it takes Mail to get to the GP practice than it takes to get to me. Got letter from clinic a couple of days ago so assumed that I could request the increased dose of meds. Request refused by practice, presumably because they haven’t got the letter yet. Gonna run out

I’m going to have to buy an extra fridge- my biologic has been increased and there just isn’t room in the fridge for it and my dornase any more. You know when you are on too many drugs when you need a drug fridge and a medicine chest of drawers in your bedroom 🙄

So much this

This👇🏻

Tempted to make myself a badge that says “I’m not infective, I always cough like this” #bronchiectasis

Can Christmas just be over now please? Slept much of the morning. Made mincemeat and spiced biscuit dough then flopped on the sofa again. This week has so much in it, and more work than usual. Chest generally crap- was asked by colleague if I was infected yesterday- nope just naff winter lungs 🫁🙄

I love my wife. After tough weeks at work neither of us felt like cooking so she brought me this for dinner

People living with long term health conditions have to adjust & accommodate constantly. Services should aim to have meaningful relationships with people, be available & responsive through tough times, understand the ongoing frustration & grief. Overwhelmed services can't offer anything like this.

This is so true. Yet it is seen by many health professionals as a weakness -in fact the death of a patient is seen as a failure by too many still. People die. All of us. It is sad, sometimes we have got to know those people and it is really sad. We can help them die comfortably, but it’s still sad

Feeling emotional & upset when a patient dies is just being human. Including for experienced healthcare professionals. It's not a sign of somehow 'losing it', it's a sign of caring. It's not something to mask, it's something that needs a supportive context, space to reflect & to honour the humanity.

Don’t know what it was about today, but suddenly the grief for mum hit hard - she loved Christmas time- this is her showing off her new wellies and snood thing last year. I wish I was working which would be more normal than doing Christmas without her