Excellent meeting with participation of several #TheRaCil members - Albertien van Eerde, Anita Burgun & Flavia Galletti @flaviagalletti.bsky.social . We support the critical need for data integration accross frontiers to accelerate precision medicine in genetic kidney diseases #renalciliopathies.

Flashback to our great Annual Meeting in Strasbourg 🥨 and the amazing welcome by Prof. Hélène Dollfus & team at the CRBS @inserm.fr @unistra.fr 🙏 to advisors Prof. Ronald Perrone & patient advocates @flaviagalletti.bsky.social, Kerry Leeson & Sandra Lawton 🙏 theracil.eu/events/secon...

💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers. 🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events #PKDInternational

🥳TheRaCil Publications Alert🚨Visit theracil.eu/news-and-pub... - cilia biology & perspectives for AI in nephrology👉KIF13B controls ciliary protein content, Rezi et al @lottepedersen.bsky.social 👉AI for diagnosis and care in rare kidney disease review, Chen et al @knebel.bsky.social #cilia #kidney

💥 Check the Cilia special issue #JCSciliaSI from @jcellsci.bsky.social co-edited by @lottepedersen.bsky.social and with several exciting papers by other @theracilproject.bsky.social members - congrats Bernhard Schermer @cilib.bsky.social Ronald Roepman Soren Christensen John Sayer and co-authors 💥

👉Do not miss talks by our coordinator Sophie Saunier and by John Sayer at #KidneyWk 2025 in Houston, TX, the meeting of the @asnkidney.bsky.social - 📅Thursday Nov 6th, 2pm, Room310A - 💊Leading Edge of Therapeutic Development in Cystic Kidney Disease session #NPH #ciliopathies @hkd-l.bsky.social

🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg! PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛 #PKDResearch #ADPKD #ARPKD

🥳TheRaCil Publication Alert 🚨 theracil.eu/publications... - Dahmer-Heath et al highlight need to develop nephronophthisis-specific tools for collecting patient-reported outcomes. Including patients' and families' perspectives in our research is a critical goal we pursue in TheRaCil.

📣 Applications are now open! #EURORDIS Open Academy applications open today for the Medicines R&D and Scientific Innovation Schools. 🎓 80 fully funded spots via #ERDERA 🧪 Hands-on sessions 🤝 Network with advocates & researchers 🔗 https://loom.ly/oK6lwVI#EURORDIS#ERDERA#RareDiseases

🥳TheRaCil Publication Alert🚨 Visit theracil.eu/news-and-pub... for the latest findings on #ARPKD by our teams: predictive risk score at the age of 2 months, urinary peptide signatures and perspectives on polycystic kidney diseases in children. #cilia #kidney #kids

Recent article from TheRaCil published in Kidney International Reports by Alice Tata, Guillaume Rocha, Sophie Saunier, Alexandre Benmerah and their colleagues from @institutimagine.bsky.social and collaborators. #cilia #ciliopathies #kidney