🥗 Meal planning with #PKD can be challenging. That’s why we are highlighting Love Your Kidneys II: A Week of PKD-Friendly Meals, a guide from the PKD Foundation of Canada designed to turn nutrition guidance into a practical, everyday plan 👉 www.endpkd.ca/love_your_ki...

PKD International warmly congratulates @muellerrom.bsky.social on this important new step. We are deeply grateful for his unwavering commitment to patient advocacy and for his continuous efforts to advance the interests of the PKD community.

🌍 PKD International joins @rarediseaseday.bsky.social to amplify the voices of people living with ARPKD around the world and to reaffirm a clear message: awareness is the first step toward change — in research, in care, and in quality of life. www.rarediseaseday.org #PKDInternational

In this webinar, organized by the PKD Foundation of Canada, CKD-associated pruritus (CKD-aP) and the available treatment options are explored in depth. ▶️ Watch the webinar on YouTube: www.youtube.com/watch?v=isnJ... #PKDInternational #CKD #PKDFoudationofCanada

Medical appointments can become challenging for people living with a chronic condition. In this article by PKD Australia , Nicki Scholes-Robertson shares practical advice on how to improve communication with healthcare teams: bit.ly/4rH5sIq

A healthy and balanced diet plays an important role in the day-to-day management of #PKD. The recipe we’re sharing today, created by Riñón Poliquístico de México A.C., is oatmeal pancakes. They’re made by blending oats, an egg, milk, baking powder, and a touch of vanilla.

🎥 Confidently Navigating #ADPKD: Women & Children – Special Considerations In this webinar, organized by the @pkdfoundation.bsky.social, key aspects related to women’s health, family planning, and the management of ADPKD in pediatric care are explored. ▶️ www.youtube.com/watch?v=Z7Yc...

🧠 Living with a chronic condition such as #PKD can have a significant impact on mental health. In this webinar, organized by the PKD Foundation of Canada, the focus is on managing depression and anxiety. ▶️ Watch the webinar on YouTube: www.youtube.com/watch?v=b7Ev... #PKDInternational

We are immensely pleased to share that PKD Charity UK has established the Tess Harris Fellowship Fund, created to support researchers and accelerate meaningful progress in the treatment of #PKD. 🔗 To support the fellowship, you can donate here: cafdonate.cafonline.org/29607#!/Dona...

Autosomal Dominant Polycystic Kidney Disease affects more than just the kidneys. In this webinar, organized by the @pkdfoundation.bsky.social, the systemic impact of the disease is explored, including its effects on the heart, liver, bones, and metabolic health 📹 www.youtube.com/watch?v=biwC...

January is UK Liver Awareness Month. In PKD polycystic liver disease ( #PLD ) is common and often silent. Regular check-ups + healthy daily choices matter. We join PKD Charity UK to shine a light on liver health. 💚 #LoveYourLiver👇 pkdcharity.org.uk/news-events/... #ADPKD #ARPKD

💛 We are pleased to share that the PKD International Board is expanding. Please join us in welcoming Mr Bill Wang from Hong Kong. We are honoured to have his voice and leadership, and look forward to working together to advance our mission worldwide. #PKDInternational

✨ As the year comes to a close, we would like to send our heartfelt wishes to the global PKD community. 💙 May 2026 bring meaningful progress and confidence in the future for everyone. 🎆 Wishing you all a peaceful and hopeful New Year. #PKDInternational #NewYear

🎄 Merry Christmas to all of you from PKD International. #PKDInternational

🌍 Fundación Mexicana para el Riñón Poliquístico de México A.C. is part of the PKD International network. 🔗 Discover more: rinonpoliquistico.org #PKDInternational #ADPKD #ARPKD

✨ This Christmas, choose to give hope. 🔗 Donate today and support the PKD community: www.pkdinternational.org/donate #PKDInternational #PolycysticKidneyDisease #ChristmasGiving #ADPKD #ARPKD

A heartfelt thank you to the ERA Board for recognising the essential role of the patient perspective and for including PKD International in the first edition of the ERA Science Meetings. #PKDInternational #ERASciencemeetings

📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol... #PKDInternational #KidneyResearchUK

From 27 to 28 November 2025 in Barcelona, the first edition of the ERA Science Meetings will take place. 👩‍⚕️ We are honored to announce that @flaviagalletti.bsky.social, President of #PKDInternational, will attend the event. 🔗 www.era-online.org/it/events/er... #ERAScienceMeetings

Eating Well with #PKD When Life Gets Busy: Simple Nutrition Tips 👩‍⚕️ In this new blog from the PKD Foundation of Canada, dietitian Emily Campbell, RD CDE MScFN, shares practical strategies to help you: www.endpkd.ca/eating_well_... #PKDInternational #PKDFoundationofCanada

At #PKDInternational, we are proud to partner with Njurförbundet, the Swedish Kidney Association — a national organization that supports people affected by kidney diseases, including polycystic kidney disease (#PKD). 🔗 Learn more: njurforbundet.se #ADPKD #ARPKD

📆 From 21 to 23 November 2025, the city of Málaga will host a new edition of the National Congress of Renal Patients, organized by the Federación Nacional de Asociaciones Alcer. 👉 Learn more: alcer.org/2025/11/04/c... #ALCER #RenalCongress2025 #PKDInternational

✨ Useful PKD resource alert 💛 We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_... #ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada

#PKDInternational Board Update — November 2025 At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇

On 16 November 2025, AIRG Belgique will host its Annual National Day — an important moment for the Belgian genetic kidney-disease community. 💬 The programme will include a personal testimony from an #ADPKD patient sharing their journey through a living-donor kidney transplant. #PKDInternational

💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers. 🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events #PKDInternational

🤝 #PKDInternational & @pkdfoundation.bsky.social: united for research and patients Founded in 1982, PKD Foundation is the only organization in the United States entirely dedicated to discovering treatments and a cure for polycystic kidney disease (PKD). 🔗 pkdcure.org/who-we-are

At #PKDInternational, we are working every day to unite patients, families, scientists, and healthcare professionals in the fight to end #PKD. But this mission is only possible with your help. 🙏 Your donation brings hope, strength and progress: pkdinternational.org/donate

🇨🇦 Empowering the PKD Community — The Canadian PKD Summit Awaits! On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD. 👉 Register here: myemail.constantcontact.com/Register-Now...

Managing a rare disease is not only about the clinical aspects — the psychological and emotional impact is just as significant. To address these challenges, @eurordis.bsky.social has developed the Mental Health & Wellbeing Toolkit: mhtoolkit.eurordis.org#tools-resour... #PKDInternational #EURORDIS

In a new blog post published by PKD Foundation of Canada, Emily Campbell, shares practical and easy-to-apply strategies to help people with PKD make informed choices when eating out, without giving up the pleasure of good food 👉 www.endpkd.ca/smart_strate... #PKD #PKDInternational

#PKDInternational is a non-profit association based in Geneva, Switzerland, that brings together patients, patient groups, scientists, and healthcare professionals from across the globe to improve the lives of those affected by #PKD. 👉 pkdinternational.org

🔬 Multi-Omics: A Personalized Future for #PKD Patients Multi-omics research is already transforming #ADPKD and #ARPKD studies. 💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇 @theracilproject.bsky.social @erknet.bsky.social

🔬 From Lab to Life: How Multi-Omics is Revolutionizing Kidney Research Multi-omics is transforming research into ARPKD and ADPKD, unlocking insights that bring us closer to personalized therapies. What Makes Multi-Omics Different 👇 #PKDInternational #PKDResearch

🤝 Stronger Together: #PKDInternational & PKD Familiäre Zystennieren 🌍 Together, we are working to advance research, provide resources that improve patient care and outcomes worldwide, and strengthen our collective voice. 🔗 pkdcure.de

💡 The @eurordis.bsky.social Mental Health & Wellbeing Toolkit is a comprehensive resource for people with rare and undiagnosed conditions, their care givers, and families. 🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org #PKDInternational #RareDiseases

💛 Support the PKD community today – your generosity truly matters! 🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments. 💻 Be part of the change today: pkdinternational.org/donate #PKDInternational #DonateForPKD

#PKDInternational was pleased to participate in the annual members’ meeting of #SwissPKD, which took place yesterday in Zurich. 💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.

🌍 Global Collaboration for a PKD-Free Future We are proud to partner with Polycystic Kidney Disease (PKD) Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease. 🔗 pkdcharity.org.uk #PKD

🌍 Welcome to our global PKD family! We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨ #PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration

Diagnosing #ARPKD in children is challenging. Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications... @theracilproject.bsky.social #PKDInternational

🌍 At PKD International, we’re committed to amplifying key educational opportunities for our community. Don’t miss the @pkdfoundation.bsky.social webinar on the unique challenges of ADPKD for women, pregnancy & children. All info in the original post.👇💛

🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg! PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛 #PKDResearch #ADPKD #ARPKD

❤️ Today we celebrate 20 years of AIRP in Milan! PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛 #PKDInternational #PKD #ADPKD #ARPKD

On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place. We are proud to stand alongside AIRP in this shared mission 👉 renepolicistico.it/save-the-date

💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine. 🔗 Read the full article on @endpkd.bsky.social: www.endpkd.ca/hydration_an...

In this video, Professor Dominique Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.

Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU #PKDInternational

🌍 Today is #PKDAwarenessDay ! The global community comes together to raise awareness, share knowledge, and support one another. Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease. #PKDInternational

🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward. #PKDInternational #EndPKD #ADPKD #PKDResearch