💡 The @eurordis.bsky.social Mental Health & Wellbeing Toolkit is a comprehensive resource for people with rare and undiagnosed conditions, their care givers, and families. 🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org #PKDInternational #RareDiseases

💛 Support the PKD community today – your generosity truly matters! 🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments. 💻 Be part of the change today: pkdinternational.org/donate #PKDInternational #DonateForPKD

#PKDInternational was pleased to participate in the annual members’ meeting of #SwissPKD, which took place yesterday in Zurich. 💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.

🌍 Global Collaboration for a PKD-Free Future We are proud to partner with Polycystic Kidney Disease (PKD) Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease. 🔗 pkdcharity.org.uk #PKD

🌍 Welcome to our global PKD family! We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨ #PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration

Diagnosing #ARPKD in children is challenging. Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications... @theracilproject.bsky.social #PKDInternational

🌍 At PKD International, we’re committed to amplifying key educational opportunities for our community. Don’t miss the @pkdfoundation.bsky.social webinar on the unique challenges of ADPKD for women, pregnancy & children. All info in the original post.👇💛

🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg! PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛 #PKDResearch #ADPKD #ARPKD

❤️ Today we celebrate 20 years of AIRP in Milan! PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛 #PKDInternational #PKD #ADPKD #ARPKD

On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place. We are proud to stand alongside AIRP in this shared mission 👉 renepolicistico.it/save-the-date

💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine. 🔗 Read the full article on @endpkd.bsky.social: www.endpkd.ca/hydration_an...

In this video, Professor Dominique Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.

Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU #PKDInternational

🌍 Today is #PKDAwarenessDay ! The global community comes together to raise awareness, share knowledge, and support one another. Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease. #PKDInternational

🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward. #PKDInternational #EndPKD #ADPKD #PKDResearch

💛 Together, we can transform the future of PKD care Polycystic Kidney Disease (PKD) affects millions of lives worldwide — but with your help, there is hope. 💻 Be part of the change today: pkdinternational.org/donate #PKDInternational #DonateForPKD

Eating well with PKD doesn’t have to be complicated. In this helpful blog post, Emily Campbell shares practical strategies to build healthy eating habits that last. Read the full article by the PKD Foundation of Canada to learn how small: www.endpkd.ca/a_simple_gui...

🗓️ September 20, 2025 PKD International is honoured to join the celebration of the 20th anniversary of our founding member AIRP, marking two decades of dedication to the fight against polycystic kidney disease. 👉 renepolicistico.it/save-the-date

🤝🇦🇺 Proud to Partner with PKD Australia 🌏 💛 Together, we’re raising awareness and empowering individuals affected by PKD in Australia and worldwide. #PKDInternational #ADPKD #ARPKD #PolycysticKidneyDisease #PKDResearch #PatientSupport #KidneyHealth #RareDiseases #StrongerTogether

Did you know there’s a Mental Health & Wellbeing Toolkit created specifically for people affected by rare diseases? This free resource, developed by EURORDIS, is designed for patients, caregivers, and professionals. 👉 mhtoolkit.eurordis.org #PKDInternational @eurordis.bsky.social

When living with polycystic kidney disease, knowing which fruits and vegetables to choose can make a big difference. In this blog from the PKD Foundation of Canada, dietitian Emily Campbell shares tips to safely balance your diet: www.endpkd.ca/vegetables_a...

Supporting #PKDInternational means investing in research, education, and advocacy for people living with Polycystic Kidney Disease worldwide. Every donation, big or small, brings us closer to better treatments and real hope for the future. 💻 pkdinternational.org/donate

🤝💛 Proud to collaborate with Niervereniging Nederland 🌟 #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands 👇

💛 Why Are Kidneys So Important? Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body. #PKDInternational

KDIGO ADPKD Guideline: A Milestone in Genetic Kidney Diseases Why is a global guideline for ADPKD so important? Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇

Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties. Every contribution moves us closer to improved care and a brighter future for the PKD community. pkdinternational.org/donate #PKDInternational #DonateForPKD

📣 Today’s the day! Join us today for this inspiring webinar hosted by the PKD Foundation of Canada and discover how patient voices are driving real change. 🔗 Register here and join us live: us02web.zoom.us/.../WN_ZLv5a.... #PKDInternational #PKDFoundationCanada

🌞 Stay Cool, Stay Safe: #SummerTips for Living with #PKD Hot weather can bring extra challenges for those living with Polycystic Kidney Disease (PKD). These simple precautions can help you enjoy the season while protecting your kidneys and overall health 👇

📺 Patient-scientist collaboration – key to investigator-initiated trials: SGLT2i and beyond. In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD #PKDInternational

💬✨ How Can Your Story Shape the Future of Kidney Care? Join us on July 22 for an inspiring webinar hosted by the PKD Foundation of Canada and discover how patients are stepping up as partners to drive meaningful change. 🔗 Register for free: us02web.zoom.us/webinar/regi...

💛 By donating funds to #PKDInternational, you help accelerate research, raise global awareness, and amplify the voices of patients and caregivers everywhere. Your financial contribution supports education, advocacy, and patient support initiatives 👉 lnkd.in/dG7k48Zc

🤝💛 #PKDInternational is proud to collaborate with Bundesverband Niere e.V., Germany’s largest kidney patient advocacy network. Together, we amplify patient voices, promote knowledge exchange, and advocate for better care and access for everyone living with PKD 👇

At #PKDInternational, we are united by one mission: improving the lives of people affected by Polycystic Kidney Disease worldwide. Together, we can change the future for everyone living with PKD. 💛 pkdinternational.org/about-us #PolycysticKidneyDisease #PKD #ADPKD #ARPKD

🎥🧪 SGLT2 Inhibitors: Should They Be Used in ADPKD? In this new video, Prof. @muellerrom.bsky.social — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇 #PKDInternational

💛 This is such an important resource for anyone living with a rare kidney disease or supporting a loved one. Mental health matters just as much as physical health. Thank you @eurordis.bsky.social for making this Toolkit available to all. 🌿🧠 #RareDisease #MentalHealthMatters

‼️Breaking News‼️ @novartis.bsky.social completed acquisition of Regulus Therapeutics, advancing #farabursen an investigational therapy targeting microRNA‑17 to slow cyst growth in #ADPKD 🔗 www.novartis.com/news/media-r...

Not to be missed! Two powerful life experiences

🌞 Summer Tips Hot weather can pose additional challenges for people living with Polycystic Kidney Disease (PKD). Here are some essential tips to help you stay well and protect your kidneys during the warmer months 👇 #PKDTips #PKDInternational #LivingWithPKD #ADPKD #ARPKD

🇫🇷 Association PolyKystose France (APKF) has long been a trusted partner of PKD International in the fight against polycystic kidney and liver diseases. We share a common vision, a deep commitment, and a clear goal: to improve the lives of people affected by PKD #PKDInternational #ADPKD #ARPKD

#PKDKnowledge — A Shared Vision of #OpenScience “Why is open science important to patients? Because time matters.” 🗣️ Our President @flaviagalletti.bsky.social reminds us that patients don’t have time to waste. We often only see published studies — but that’s just the tip of the iceberg 👇

#PKDKnowledge — A Shared Vision of Open Science. “Why is open science important for polycystic kidney disease?” It’s a vital question and one that @muellerrom.bsky.social, Professor of Translational Nephrology and Deputy Director at the University Hospital of Cologne, helps us explore 👇

💛 A small gesture can change the future for those living with PKD. Polycystic kidney disease continues to affect millions of lives — but with your support, we can take meaningful steps toward hope. Support us today: pkdinternational.org/donate #PKDInternational #ADPKD #ARPKD

Last week, PKD International had the pleasure of participating in the ERA Congress in Vienna. Representing us were our President @flaviagalletti.bsky.social and Secretary Uwe Korst, who engaged with experts, researchers, and fellow patient advocates from across Europe. #PKDInternational #ERA25

PKD International is at the ERA Congress in Vienna! Our President @flaviagalletti.bsky.social and Secretary Uwe Korst had the pleasure of meeting Professor Albert Ong, a leading expert in Renal Medicine at the University of Sheffield, UK. #PKDInternational #ERACongress

Yesterday, PKD International participated in the #ADPKD Community Advisory Board organized by @vertexpharm.bsky.social Members from 🇪🇸 Spain, 🇩🇪 Germany, 🇮🇹 Italy, and 🇬🇧 the UK brought the voice of the ADPKD patient community from across Europe to the table. #PKDInternational

We’re all set for the 62nd #ERACongress in Vienna, happening from Wednesday the 4th to Saturday the 7th of June! @flaviagalletti.bsky.social and Uwe Korst will be attending the event. Be sure to stop by the PKD International booth — Hall X.1, Booth X1.230. #PKDInternational

✨ We’re excited to share that from Wednesday, June 4 to Saturday, June 7, @flaviagalletti.bsky.social and Uwe Korst will be in Vienna to attend the #ERA25 Congress! You’ll be able to find them at the PKD International booth (booth location in the graphic below 👇). #PKDInternational #ADPKD #ARPKD

💛 Behind every donation, there’s a story of hope. Polycystic Kidney Disease touches millions of lives — but your support can rewrite the future. 👉 Be part of the change: 🔗 pkdinternational.org/donate #PKDInternational #ADPKD #ARPKD #KidneyHealth #HopeForPKD #TogetherStronger

🇪🇺 Our president @flaviagalletti.bsky.social is attending the @eurordis.bsky.social Membership Meeting 2025 on behalf AIRP (Associazione Italiana Rene Policistico), giving strength and voice to the PKD community within #EURORDIS. 🌷 #PKD #AIRP #EMM2025 #RareDiseases #PatientAdvocacy

@muellerrom.bsky.social medical doctor and researcher at the University of Cologne, is attending the @erknet.bsky.social meeting. Müller highlights how collaboration and unified scientific and medical approaches are essential to helping people — especially those affected by rare diseases👇