🌍 Fundación Mexicana para el Riñón Poliquístico de México A.C. is part of the PKD International network. 🔗 Discover more: rinonpoliquistico.org #PKDInternational #ADPKD #ARPKD

✨ This Christmas, choose to give hope. 🔗 Donate today and support the PKD community: www.pkdinternational.org/donate #PKDInternational #PolycysticKidneyDisease #ChristmasGiving #ADPKD #ARPKD

A heartfelt thank you to the ERA Board for recognising the essential role of the patient perspective and for including PKD International in the first edition of the ERA Science Meetings. #PKDInternational #ERASciencemeetings

📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol... #PKDInternational #KidneyResearchUK

From 27 to 28 November 2025 in Barcelona, the first edition of the ERA Science Meetings will take place. 👩‍⚕️ We are honored to announce that @flaviagalletti.bsky.social, President of #PKDInternational, will attend the event. 🔗 www.era-online.org/it/events/er... #ERAScienceMeetings

Eating Well with #PKD When Life Gets Busy: Simple Nutrition Tips 👩‍⚕️ In this new blog from the PKD Foundation of Canada, dietitian Emily Campbell, RD CDE MScFN, shares practical strategies to help you: www.endpkd.ca/eating_well_... #PKDInternational #PKDFoundationofCanada

At #PKDInternational, we are proud to partner with Njurförbundet, the Swedish Kidney Association — a national organization that supports people affected by kidney diseases, including polycystic kidney disease (#PKD). 🔗 Learn more: njurforbundet.se #ADPKD #ARPKD

📆 From 21 to 23 November 2025, the city of Málaga will host a new edition of the National Congress of Renal Patients, organized by the Federación Nacional de Asociaciones Alcer. 👉 Learn more: alcer.org/2025/11/04/c... #ALCER #RenalCongress2025 #PKDInternational

✨ Useful PKD resource alert 💛 We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_... #ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada

#PKDInternational Board Update — November 2025 At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇

On 16 November 2025, AIRG Belgique will host its Annual National Day — an important moment for the Belgian genetic kidney-disease community. 💬 The programme will include a personal testimony from an #ADPKD patient sharing their journey through a living-donor kidney transplant. #PKDInternational

💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers. 🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events #PKDInternational

🤝 #PKDInternational & @pkdfoundation.bsky.social: united for research and patients Founded in 1982, PKD Foundation is the only organization in the United States entirely dedicated to discovering treatments and a cure for polycystic kidney disease (PKD). 🔗 pkdcure.org/who-we-are

At #PKDInternational, we are working every day to unite patients, families, scientists, and healthcare professionals in the fight to end #PKD. But this mission is only possible with your help. 🙏 Your donation brings hope, strength and progress: pkdinternational.org/donate

🇨🇦 Empowering the PKD Community — The Canadian PKD Summit Awaits! On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD. 👉 Register here: myemail.constantcontact.com/Register-Now...

Managing a rare disease is not only about the clinical aspects — the psychological and emotional impact is just as significant. To address these challenges, @eurordis.bsky.social has developed the Mental Health & Wellbeing Toolkit: mhtoolkit.eurordis.org#tools-resour... #PKDInternational #EURORDIS

In a new blog post published by PKD Foundation of Canada, Emily Campbell, shares practical and easy-to-apply strategies to help people with PKD make informed choices when eating out, without giving up the pleasure of good food 👉 www.endpkd.ca/smart_strate... #PKD #PKDInternational

#PKDInternational is a non-profit association based in Geneva, Switzerland, that brings together patients, patient groups, scientists, and healthcare professionals from across the globe to improve the lives of those affected by #PKD. 👉 pkdinternational.org

🔬 Multi-Omics: A Personalized Future for #PKD Patients Multi-omics research is already transforming #ADPKD and #ARPKD studies. 💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇 @theracilproject.bsky.social @erknet.bsky.social

🔬 From Lab to Life: How Multi-Omics is Revolutionizing Kidney Research Multi-omics is transforming research into ARPKD and ADPKD, unlocking insights that bring us closer to personalized therapies. What Makes Multi-Omics Different 👇 #PKDInternational #PKDResearch

🤝 Stronger Together: #PKDInternational & PKD Familiäre Zystennieren 🌍 Together, we are working to advance research, provide resources that improve patient care and outcomes worldwide, and strengthen our collective voice. 🔗 pkdcure.de

💡 The @eurordis.bsky.social Mental Health & Wellbeing Toolkit is a comprehensive resource for people with rare and undiagnosed conditions, their care givers, and families. 🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org #PKDInternational #RareDiseases

💛 Support the PKD community today – your generosity truly matters! 🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments. 💻 Be part of the change today: pkdinternational.org/donate #PKDInternational #DonateForPKD

#PKDInternational was pleased to participate in the annual members’ meeting of #SwissPKD, which took place yesterday in Zurich. 💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.

🌍 Global Collaboration for a PKD-Free Future We are proud to partner with Polycystic Kidney Disease (PKD) Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease. 🔗 pkdcharity.org.uk #PKD

🌍 Welcome to our global PKD family! We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨ #PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration

Diagnosing #ARPKD in children is challenging. Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications... @theracilproject.bsky.social #PKDInternational

🌍 At PKD International, we’re committed to amplifying key educational opportunities for our community. Don’t miss the @pkdfoundation.bsky.social webinar on the unique challenges of ADPKD for women, pregnancy & children. All info in the original post.👇💛

🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg! PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛 #PKDResearch #ADPKD #ARPKD

❤️ Today we celebrate 20 years of AIRP in Milan! PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛 #PKDInternational #PKD #ADPKD #ARPKD

On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place. We are proud to stand alongside AIRP in this shared mission 👉 renepolicistico.it/save-the-date

💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine. 🔗 Read the full article on @endpkd.bsky.social: www.endpkd.ca/hydration_an...

In this video, Professor Dominique Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.

Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU #PKDInternational

🌍 Today is #PKDAwarenessDay ! The global community comes together to raise awareness, share knowledge, and support one another. Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease. #PKDInternational

🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward. #PKDInternational #EndPKD #ADPKD #PKDResearch

💛 Together, we can transform the future of PKD care Polycystic Kidney Disease (PKD) affects millions of lives worldwide — but with your help, there is hope. 💻 Be part of the change today: pkdinternational.org/donate #PKDInternational #DonateForPKD

Eating well with PKD doesn’t have to be complicated. In this helpful blog post, Emily Campbell shares practical strategies to build healthy eating habits that last. Read the full article by the PKD Foundation of Canada to learn how small: www.endpkd.ca/a_simple_gui...

🗓️ September 20, 2025 PKD International is honoured to join the celebration of the 20th anniversary of our founding member AIRP, marking two decades of dedication to the fight against polycystic kidney disease. 👉 renepolicistico.it/save-the-date

🤝🇦🇺 Proud to Partner with PKD Australia 🌏 💛 Together, we’re raising awareness and empowering individuals affected by PKD in Australia and worldwide. #PKDInternational #ADPKD #ARPKD #PolycysticKidneyDisease #PKDResearch #PatientSupport #KidneyHealth #RareDiseases #StrongerTogether

Did you know there’s a Mental Health & Wellbeing Toolkit created specifically for people affected by rare diseases? This free resource, developed by EURORDIS, is designed for patients, caregivers, and professionals. 👉 mhtoolkit.eurordis.org #PKDInternational @eurordis.bsky.social

When living with polycystic kidney disease, knowing which fruits and vegetables to choose can make a big difference. In this blog from the PKD Foundation of Canada, dietitian Emily Campbell shares tips to safely balance your diet: www.endpkd.ca/vegetables_a...

Supporting #PKDInternational means investing in research, education, and advocacy for people living with Polycystic Kidney Disease worldwide. Every donation, big or small, brings us closer to better treatments and real hope for the future. 💻 pkdinternational.org/donate

🤝💛 Proud to collaborate with Niervereniging Nederland 🌟 #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands 👇

💛 Why Are Kidneys So Important? Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body. #PKDInternational

KDIGO ADPKD Guideline: A Milestone in Genetic Kidney Diseases Why is a global guideline for ADPKD so important? Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇

Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties. Every contribution moves us closer to improved care and a brighter future for the PKD community. pkdinternational.org/donate #PKDInternational #DonateForPKD

📣 Today’s the day! Join us today for this inspiring webinar hosted by the PKD Foundation of Canada and discover how patient voices are driving real change. 🔗 Register here and join us live: us02web.zoom.us/.../WN_ZLv5a.... #PKDInternational #PKDFoundationCanada

🌞 Stay Cool, Stay Safe: #SummerTips for Living with #PKD Hot weather can bring extra challenges for those living with Polycystic Kidney Disease (PKD). These simple precautions can help you enjoy the season while protecting your kidneys and overall health 👇

📺 Patient-scientist collaboration – key to investigator-initiated trials: SGLT2i and beyond. In this video interview, Prof. @muellerrom.bsky.social highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD #PKDInternational