💥Rompiendo Mitos Sobre el #Sjogren Les comparto el contenido en Español del Sjogren's Elevator Pitch Handout creado por los Smart Patients y diseñado por @sarahschafermd.bsky.social y Bexy Lobo.

#Sjogrens Elevator Pitch! I am so thankful to @sarahschafermd.bsky.social and Bexy Lobo for designing and editing this content developed by the Smart Patients Sjogren’s group 🧵1/7 #sjogrensawarenessmonth Get the handout here www.sjogrensadvocate.com/_files/ugd/8...

You can’t be empowered about your health decisions if you rely on misinformation, pseudoscientific propaganda, and conspiracies.

I've been listening to Mind The Science by @jonathanstea.bsky.social 👏🏽👏🏽 I feel validated as a Dietitian often debunking diet myths for Arthritis / Autoimmune Diseases. Sometimes, I need a break for my own mental health. "Where there are gaps, there are opportunities for exploitation."

Merry Christmas to everyone, especially to the ER staff at @lakeridgehealth.bsky.social for making my boy's Christmas Eve special. He was showered with toys and smiles. He is feeling much better 😊

Thx somehow I missed she had an email list! Also yeah… I spent years trying functional medicine and everything else and let me second that if you have a severe, progressing autoimmune disease it will not be enough!

This guy is promising a "cure" and finding a root cause for your #sjogrens. Putting the blame on the patients 😡 Thanks @sarahschafermd.bsky.social for sending out a blast email alerting patients. www.beyondsjogrens.com/my-story?ref...

What's GUT have to do with joint inflammation? November is #IBD Awareness Month. Joint inflammation, particularly spondyloarthritis, is a common extra-intestinal manifestation of IBD. More lessons from #ACR24 youtu.be/17zRjlryRgc?...

On episode 148 of The Arthritis Life Podcast, Cheryl and Eileen dive into their “It’s Not Just Pain” panel from the American College of Rheumatology’s annual Convergence Conference - check it out here! @arthritisdietitian.bsky.social #ACR24 arthritis.theenthusiasticlife.com/2024/12/05/i...

Today is International Day of Persons with Disability. Do you get accessibility support in your workplace? I attended this fantastic webinar today where many personal and systemic barriers to effective accessibility supports were discussed. #invisibledisability www.linkedin.com/posts/cristi...

According this person, I don't know what I'm doing with my health because I got a booster of the COVID-19 vaccine. This would be my 5th with no side effects 🙏 What are your thoughts on the #COVID19 vaccine? #immunocompromised

#sjogrensdisease: what's next for patients and research? My lessons from #ACR24 @neurosjogrens.bsky.social @sjogrensaustralia.bsky.social @creakyjoints.bsky.social www.arthritisdietitian.com/post/sj%C3%B...

It's Not Just Joint Pain panel #ACR24 highlights: Can't believe it's been a week since participating in this incredible discussion. Fatigue was among the symptoms given the most attention. Read the Rheumatologist article here: www.the-rheumatologist.org/article/its-...

When a Child Can't Cry, Don't Turn a Blind Eye. Children also get #Sjogrens My journey as a child growing up with SjD www.takeapaincheck.com/post/when-a-...

Syndrome no more. Sjogren's Disease 🙌 I felt deeply honored to be at #ACR24 when #Sjogrens was officially recognized as a Disease. After years of telling my doctors that my GI symptoms are related to SjD, this feels like a huge WIN. #sjogrensdisease www.healio.com/news/rheumat...

It felt quite liberating to speak about unrecognized symptoms of rheumatic diseases #ACR24 #fatigue www.the-rheumatologist.org/article/its-...

I almost believed Dr. Baer when he showed us this slide at #ACR24 He wanted to illustrate that #sjogrens patients want treatments that can alleviate the symptom burden of the disease. Early results of some clinical trials showed biological changes, not symptoms.

1st time attending #ACR24 and my 1st time speaking. Hope you can join the "It's not just joint pain panel" tomorrow at 9AM EST

Where are my #Sjogrens and #MECFS and #ChronicPain and #AuDHD folks from Twitter? I've been here for a while, but I know some of y'all are fleeing because of the changes to blocking. Reskeet so we can find our communities again?