It's #HSAwarenessWeek. 💜 Painful, recurring lumps or boils under the skin may be more than "just a skin problem." Our free, anonymous HS Symptom Check can help you better understand your symptoms and prepare for a conversation with your healthcare provider. 🔗 ghlf.org/hscheck/

HS pain isn't just uncomfortable — it's disabling. From mild sensitivity to severe, daily discomfort, pain is one of the most impactful symptoms of Hidradenitis Suppurativa. Don't dismiss what your body is telling you. See if you could be at risk 👉 ghlf.org/hscheck/?utm... #HSAwarenessWeek

But arthritis doesn't end tomorrow. To everyone living with arthritis: You do not need to earn rest. You are allowed to set boundaries, ask for help, protect your energy, and put your health first. See you tomorrow. We'll still be here. 💜 #ArthritisAwarenessMonth

If you live with arthritis, inflammation may be doing more than causing aches and pains. It can contribute to joint pain, swelling, stiffness, fatigue, and long-term joint damage. Learn what inflammation is, why it happens, and why managing it matters. Read more: creakyjoints.org/about-arthri...

Tired of waking up exhausted from arthritis pain? 😴 Getting quality sleep with arthritis can feel impossible sometimes — but small changes can make a big difference. Here are 18 tips that may help you according to experts and people living with arthritis: creakyjoints.org/living-with-...

“Your labs look normal.” For many people living with Graves’ disease, that doesn’t always mean the symptoms disappear. Learn tips for navigating life with Graves’ disease: creakyjoints.org/GravesDiseaseWellness

If all you did this weekend was survive, rest, or make it through the flare… that was ENOUGH. Show yourself grace tonight. 🫂🫶

Gout symptoms can come and go, making it easy to put care off. Genene shares why getting checked early and following up with your doctor matters. Hear more patient experiences: creakyjoints.org/thegoutshow/ #Gout #GoutAwarenessDay #Healthcare

Managing gout isn’t always as simple as “just take your medication.” Life gets busy. Appointments get pushed off. Questions come up after the visit ends. Check out the Gout Guide: creakyjoints.org/education/go... #Gout #GoutAwarenessDay #Healthcare

Gout can affect much more than your joints. Genene shares how gout flare-ups impacted work, family life, and everyday activities — and why gout is a serious disease. Learn more: creakyjoints.org/thegoutshow/ #GoutAwarenessDay #GoutAwareness #GoutEducation

Feeling like your gout is in control instead of you? You’re not alone. If you’re experiencing frequent flares, have high uric acid levels despite treatment, or have developed tophi, it may be a sign that your gout is not well controlled. Learn more: creakyjoints.org/thegoutshow/ #GoutAwarenessDay

Gout care starts with understanding your options. In this video, Genene shares why knowing about the ACR Gout Guidelines can help patients, families, and healthcare teams navigate diagnosis and treatment. Learn more: creakyjoints.org/education/go... #GoutAwarenessDay #Gout #Health

Tomorrow is #GoutAwarenessDay. One thing many people don’t realize about gout: even after a flare improves, uric acid crystals can continue building up in the body over time. Understanding gout can help patients take control of their care. Learn more: creakyjoints.org/education/go...

Something bigger than a single vaccine debate is happening across America’s public health system. This week on #TheHealthAdvocates, we break down growing FDA scrutiny, shifting vaccine recommendations and more. 🎧: www.youtube.com/watch?v=BGMK...

One of the hardest parts of living with arthritis or an invisible illness isn’t always the symptoms. Sometimes it’s the exhaustion of constantly having to explain them. Invisible ≠ imaginary. 💜 creakyjoints.org/living-with-... #ArthritisAwarenessMonth #InvisibleIllness

Crohn’s disease and ulcerative colitis are more than digestive conditions — they can affect every part of life. To everyone living with IBD: we see you, we believe you, and your story matters 💜 #WorldIBDDay #IBD #CrohnsDisease #UlcerativeColitis #InvisibleIllness

Arthritis can mean redefining what a “good day” looks like. Sometimes the win is making dinner. Finishing laundry. Showing up. Getting through the day. It can also mean canceled plans, disrupted sleep, invisible pain, grief, isolation, and constantly adapting. Arthritis is more than joint pain...

High-pain days don’t just affect the body. They can impact sleep, stress, anxiety, and mental health, too. A few coping strategies and more here: creakyjoints.org/living-with-...

If you've noticed wounds that won't stop draining — you're not alone, and it's not your fault. Ruptured abscesses are a hallmark sign of Hidradenitis Suppurativa (HS), a chronic skin condition that's often misdiagnosed for years. Could this be HS? Take our free check 👉 ghlf.org/hscheck/?utm...

May highlights a range of chronic conditions— Arthritis, lupus, vasculitis, myositis, gout, osteoporosis. Different diagnoses, shared challenges: • Delayed diagnosis • Invisible symptoms • Unpredictable flares Awareness = earlier care + better outcomes. #ChronicIllness #Autoimmune

Something is shifting in vaccine policy—and patients are feeling it. From evolving recommendations to declining trust, the result is the same: confusion. In this episode of The Health Advocates, we break down what’s happening and what it means for patients. Watch: youtube.com/watch?v=jHXf...

Vaccine access shouldn’t depend on how well you can navigate the system. This #WorldImmunizationWeek, we’re connecting trusted vaccine info with real scheduling—directly through our hub. Learn → decide → book: ghlf.org/vaccines/

Deep, inflamed, fluid-filled — and incredibly painful. Abscesses from HS are far more than a bad breakout. If this sounds familiar, it may be time to get answers. Take the free HS check 👉 ghlf.org/hscheck/?utm... #HidradenitisSuppurativa #HSWarrior

Living with Polymyalgia Rheumatica can come with a lot of questions. Join our upcoming webinar on May 5th to learn more about PMR, what to expect, and ways to better manage day-to-day life. Register here: creakyjoints.org/pmr-webinar-...

One of the lesser-known — but most serious — signs of HS is the formation of tunnels under the skin that connect lesions together. If you've experienced this, early diagnosis matters. Take the free HS symptom check today 👉 ghlf.org/hscheck/?utm... #HidradenitisSuppurativa

Dim lights early. Use heat for pain. Write it out. Breathe slow. Can’t sleep? Reset. Wake up same time. Rest still counts. Even when sleep doesn’t come. #ChronicPain

Healthcare cuts aren’t theoretical—they’re already impacting coverage, access, and state budgets. New episode of The Health Advocates breaks down: • Medicaid funding cuts • HHS restructuring • What it means for patients right now 🎧 ghlf.org/the-health-a... #HealthPolicy #Medicaid #PatientAccess

Do you still have symptoms from Graves' disease — even with treatment? You're not alone, and your experience matters. We're looking for people living with difficult-to-treat Graves' disease to take a short poll. Get started: www.research.net/r/P2ZNC3G?SV

Think it's just an ingrown hair... again? If bumps keep coming back in the same spot, grow larger over time, and never fully heal — that's not typical. It could be a sign of HS. Find out if you could be at risk 👉 ghlf.org/hscheck/?utm... #HSAwareness #HidradenitisSuppurativa #SkinHealth

One of the hardest parts of living with a chronic illness? Saying no to plans—even when you really want to go. You’re not alone—and there are ways to navigate it without guilt. Here’s how to say no without guilt: creakyjoints.org/living-with-... #chronicillness #spoonie #invisibleillness

COVID Antivirals: Are High-Risk Patients Missing the Window? Dr. Robert Popovian and Angela Degrassi discuss new CDC findings, GHLF survey data, and why high-risk patients may still be missing timely COVID treatment. Listen now: ghlf.org/healthcarema...

Calling all myositis warriors 💙 Get a free Myositis Wellness Guide with resources to help you manage flares, support your energy, and navigate daily life. 🔗 creakyjoints.org/education/my... #myositis #raredisease #chronicillness

Managing Graves’ disease isn’t always straightforward. Get a free Graves’ Disease Wellness Guide with: • Day-to-day symptom tips • Nutrition support • Mental health resources • Practical strategies for daily life 🔗 creakyjoints.org/education/gr... #gravesdisease

We want to hear from you. If you’ve experienced: • Frequent painful attacks • Tophi (lumps under the skin) • Joint damage Your story can help improve care for others. ⏱️ Takes 2 minutes: www.surveymonkey.com/r/goutjourney #Gout #ChronicIllness #PatientVoice #Healthcare

Graves’ disease is more than an overactive thyroid—it can impact your vision, energy, sleep, and more. Learn the symptoms, causes, and treatment options so you can better understand what’s happening and what to do next. 🔗 Read more: creakyjoints.org/education/what-is-graves-disease/ #GravesDisease

“But you don’t look sick.” Sometimes the hardest part of chronic illness is not being believed. What you see isn’t the full story. What you don’t see is what they’re fighting every day. A little more understanding goes a long way. #ChronicIllness #InvisibleIllness

Evenings can be one of the hardest times when you’re living with a chronic illness. Pain, stiffness, and fatigue often build throughout the day — making it harder to relax, move, or sleep. Here are practical ways to make your evening routine easier 👇 creakyjoints.org/living-with-...

In our latest episode of #TheHealthAdvocates, we speak with Biosplice CEO Erich Horsley and CMO Dr. Yusuf Yazici about: • What an NDA is • What happens during FDA review • What osteoarthritis patients should realistically expect 🎧 Listen: omny.fm/shows/the-he... #Osteoarthritis

No disease is too rare to care. February 28 is Rare Disease Day. Over 300 million people worldwide live with one of 7,000+ rare diseases. Many face delayed diagnosis, limited treatment options, and barriers to care. #RareDiseaseDay #PatientAdvocacy #RareDisease #HealthEquity

Rest is not laziness. It’s part of managing your health. Taking intentional breaks, pacing your energy, and listening to early signals from your body are strategies — not weaknesses. This weekend, give yourself permission to slow down before your body has to slow you down.

“I was told, ‘It’s just arthritis. You’ll be fine.’” Rheumatoid arthritis is an autoimmune disease — not “just” joint pain. Beyond inflammation and flares, RA affects mood, mental health, fatigue, and daily function. Here are the 11 moods of RA — and how to cope: creakyjoints.org/living-with-...

Today is World Day of the Sick. For millions living with chronic illness, “sick” isn’t a day — it’s daily life. We see you. We advocate for you. We stand with you.

Sleep and Rheumatoid Arthritis Create a Vicious Cycle. Here’s How I Broke It and Finally Got Some Rest: 🔗 creakyjoints.org/living-with-...

Congress passed a major funding bill with big implications for patients—from telehealth to drug costs. But not all questions are settled. On #TheHealthAdvocates we have the break down Listen now: ghlf.org/the-health-advocates/#episode190 #HealthPolicy #PatientsFirst

Flu vaccines protect more than individual health. As economist Dr. Wayne Winegarden breaks down, higher adult vaccination rates are directly linked to fewer hospitalizations, lower mortality, and billions saved in avoidable economic losses. Tune in: ghlf.org/healthcarema... #vaccines #vaccineswork

How much does the flu really cost the U.S.? According to new research, it’s tens of billions of dollars, and vaccination rates play a major role in how high that number climbs. Higher vaccination rates don’t just save money; they save lives. 
ghlf.org/healthcarema...

February 2 is Rheumatoid Arthritis Awareness Day. RA is an autoimmune disease—not just joint pain. It can affect the heart, lungs, eyes, and more, often invisibly. Early diagnosis, proper care, and believing patients matter. #RheumatoidArthritis #RAAwarenessDay #AutoimmuneDisease #PatientAdvocacy

Living carefully is not the same as living small. It’s survival with intention. 🫂

Despite flares, exhaustion, being unseen and a broken healthcare system. Still showing up. #chronicillnessawareness #spoonies

“Daily chores turn into all-day chores—when you have #ChronicPain… I feel really embarrassed that basic things are so painful for me and my family doesn’t get it. Sorting clothes/getting a sheet on a bed feel like a medieval torture device.” creakyjoints.org/support/thin...