🚨 New episode of The Health Advocates ACIP’s vaccine votes and Trump’s Tylenol claims made for another turbulent week in public health. Steven Newmark explains what happened, what the science shows, and why advocacy matters. 🎧 Listen: ghlf.org/the-health-a... #TheHealthAdvocates #PublicHealth

Living with PsA? Your voice matters. Take our 15–20 min survey & help improve care for others like you. Enter a raffle to win 1 of 5 $300 e-gift cards. Click here for more info: www.research.net/r/TNYM279 #PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

Working from home isn’t as comfy as it sounds when you have arthritis. From flares to fatigue, here’s how to make remote work actually work for you 💻🪑 🔗 creakyjoints.org/living-with-... #PainAwarenessMonth #ChronicPain #Arthritis

You are NOT FAKING IT if people can’t see your pain. You are NOT FAKING IT if test results say “normal.” You are NOT FAKING IT if you look “fine” to everyone else. You are NOT FAKING IT if others don’t understand. You are NOT FAKING IT if you need to do less. You are NOT FAKING IT.

Widespread pain goes beyond joints. For people with psoriatic arthritis, moderate or high disease activity is linked to worse widespread pain — highlighting the need for better pain and disease management. Read more: creakyjoints.org/about-arthri... #PainAwarenessMonth #PsA #ChronicPain

💉 This fall’s Covid-19 vaccine rollout is more confusing than ever. In a new The Health Advocates, Steven breaks down who qualifies, what “off-label” means, and how coverage is likely to work. 🎧 Listen: ghlf.org/the-health-a... #TheHealthAdvocates #Vaccines #PublicHealth

Florida’s proposal to eliminate school vaccine requirements risks bringing back diseases like measles & whooping cough. Protecting kids protects everyone — especially the immunocompromised. 📄 Read our full letter to the Florida Department of Health here: ghlf.org/wp-content/u... #VaccinesWork

#HispanicHeritageMonth begins today! 🎉 We proudly celebrate the culture, history & contributions of the Hispanic/Latino community — and reaffirm our commitment to health equity. Explore bilingual resources designed to uplift & empower our community: ghlf.org/national-his...

Living with Polymyalgia Rheumatica (PMR)? Don’t miss our webinar on September 18 at 6:30 PM ET Hear from experts Dr. Leonard Calabrese & Dr. Jeffrey Curtis, moderated by Shilpa Venkatachalam, PhD, MPH. 👉 Register here: www.research.net/r/RKW2FHZ

You are NOT A BURDEN if your body needs more rest. You are NOT A BURDEN if you cancel plans from a flare. You are NOT A BURDEN if you need accommodations. You are NOT A BURDEN if daily tasks take you twice the energy. You are NOT A BURDEN if you say “I can’t” and need support. You are NOT A BURDEN.

We’re asking our community what living with PsA is really like. Do you have a story to share?     Take our 15–20 min survey and you may be eligible to enter a raffle to win a $300 e-gift card (5 winners)  Take the survey here: www.research.net/r/9YGSGJ2   #PsA #PsoriaticArthritis

Join CreakyJoints for the first-ever Giant Cell Arteritis (GCA) Awareness Day on October 23, 2025. We’re looking for people in the U.S. living with GCA to record a short video. ✔️ You will be compensated for your time. Click below to sign up. www.research.net/r/GCASHARE

Morning Routine with Arthritis: 20 hacks that make life easier. Starting the day with arthritis is hard. Simple hacks—like planning ahead, warming up joints, and pacing yourself—can help mornings feel more manageable. Explore these tips: creakyjoints.org/living-with-... #Tips #Arthritis #Selfcare

Struggling with Arthritis Brain Fog? 12 Tips That Can Help Brain fog is more than forgetfulness—it can disrupt focus, memory, and energy. These strategies can help you think more clearly and feel more in control. Read more: creakyjoints.org/living-with-... #Arthritis #BrainFog

🚨 The CDC is in turmoil. Susan Monarez has been fired after <1 month, sparking resignations and raising concerns about politicization. Steven breaks down what it means for vaccines, emergency preparedness & public trust. Ture in 🎧: ghlf.org/the-health-a... #TheHealthAdvocates #CDC #PublicHealth

High-pain days call for creative coping. 💜 From quirky rituals to unexpected hacks, the little things can make a big difference. What helps you push through? Drop it below ⬇️ #PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints

What if the pain scale isn't telling the whole story? When you live with multiple types of chronic pain, “rate it from 1 to 10” just doesn’t cut it. This article breaks down why—and what we can do better. 🔗 creakyjoints.org/living-with-... #ChronicPain #PainAwarenessMonth #PatientVoices

Nearly 1 in 4 U.S. adults live with chronic pain, with arthritis being one of the leading causes. Pain impacts daily life, work, and mental health — yet it remains largely invisible. Explore resources: creakyjoints.org #PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints

Wishing you a safe, restorative holiday filled with the healing moments your body needs. Prioritize rest, pace yourself, and say “no” when your body needs it. #LaborDayWeekend #ChronicIllness

Labor Day weekend plans: Doing no labor. Prioritize rest, pace yourself, and say “no” when your body needs it. #LaborDayWeekend #RestIsProductive

“Trying my hardest not to act how I feel” – every chronic illness warrior

Misdiagnosis is one of the biggest challenges people with chronic illness face — and it often delays real treatment and care. Drop it below ⬇️ — your story could help someone else keep pushing for answers.” #ChronicIllness #Misdiagnosis #PatientAdvocacy

📰 The “Make Our Children Healthy Again” plan—what’s really in it? Steven breaks down the leaked draft: awareness campaigns, industry-friendly guidelines, and a revival of old debates on vaccines, fluoride & WiFi. 🎧 Listen: ghlf.org/the-health-a... #TheHealthAdvocates #PublicHealth #PreventiveCare

Explaining your invisible illness shouldn’t feel like an extra job — but for many patients, it’s exhausting. Here’s why validation matters: creakyjoints.org/living-with-... #InvisibleIllness #ChronicIllnessCommunity

Ever been told ‘but you don’t look sick’? It’s more than awkward—it’s invalidating. Here’s a deeply honest piece from our community on why words like that hurt: creakyjoints.org/living-with-...

"We are so much more than the time card punched, the dishes done, the to-do list checked off. We are friends, parents, children, siblings, lovers, partners...we are individuals, living in these bodies that need our care and grace." Read full piece: creakyjoints.org/about-arthri... #ChronicIllness

This week: – Break tasks into smaller steps – Schedule rest as non-negotiable – Be flexible – Say “no” The world will always tell you to push harder — but your health comes first, always. #ChronicIllnessCommunity #ChronicPain #PacingYourself

Reimagining Pain Management: From the opioid crisis to invisible illness stigma, Dr. Pirani shares why empathy, listening & team-based care are key to healing. Tune in? 🔗 ghlf.org/the-health-a... #ChronicPain #PainManagement #InvisibleIllness #TheHealthAdvocates

Dating with a chronic illness means protecting your heart and your spoons. 💙 Read @chroniceileen.bsky.social tips here: creakyjoints.org/about-arthri... #ChronicIllness #RheumatoidArthritis #DatingWithChronicIllness

12 spoons, endless sparkle… until they’re gone by 10 a.m. But we Shake It Off, step out Bejeweled, Fearless, and ready to Begin Again. In our Life of a Spoonie era, every moment counts. 💖 #TS12 #LifeOfASpoonie #SpoonieLife

📰 Preventive care under fire, a NYC outbreak, and the value of screening. Steven Newmark breaks down what’s at stake for the U.S. Preventive Services Task Force, plus updates on Legionnaires’ disease in Harlem and mRNA research cuts. 🎧 Listen: ghlf.org/the-health-a... #TheHealthAdvocates

🥧 “Think of movement like a pie — and you’re in charge of the slices.” Janet Millner explains how a mix of cardio, strength, balance & targeted exercises can help manage axSpA—and why tailoring movement to your needs matters. 🎧 Listen: creakyjoints.org.au/patientprepr... #axSpA #MovementMatters

We know the struggle it takes just to get through the ‘simple’ things. 💙 To everyone pushing through pain and fatigue — we see you. Wishing you a gentle, restful weekend. #ChronicIllness #InvisibleIllness

💪 Exercise is most effective when axSpA is well controlled. Physio Janet Millner shares how partnering with your rheumatologist can help you stay active and feel stronger — even if you’re already on a biologic. 🎧 Listen: creakyjoints.org.au/patientprepr... #axSpA #Rheumatology

Learn if you are at risk for osteoporosis with the bone health quiz! Your results may highlight key risks — understand your risk so you can take action and talk to your doctor! Take the quiz: www.bonehealthandosteoporosis.org/bone-health-... #Osteoporosis #BoneHealth

🎙️ “If you talk about it, it makes things easier.” In Ep 2 of Patient PrepRheum, Shayne shares what it’s like to live with axSpA and multiple chronic conditions, and how speaking up helps reduce stigma. 🎧 Listen: creakyjoints.org.au/patientprepr... #axSpA #PatientPrepRheum #ChronicIllness

A gentle reminder: Even if today wasn’t your best, you still made it through. Give yourself the grace you’d give anyone else. Healing takes time. #CreakyJoints

🎙️ How can 340B truly transform communities? In this episode of #TheHealthAdvocates, Clayton Ruley joins Steven Newmark to talk: ✅ Compassion in healthcare ✅ Patient-centered policy ✅ 340B & Medicaid challenges 🎧 Listen now: ghlf.org/the-health-a... #HealthcarePolicy #340B

What’s the link between axSpA and fibromyalgia? Dr. Raman explores how chronic inflammation, stress, and anxiety can contribute to comorbid fibromyalgia in people living with axial spondyloarthritis (axSpA). Listen now: creakyjoints.org.au/patientprepr...

Wishing our community low-pain days, better sleep, and the chance to truly rest and recharge. 💡 Remember: pacing yourself isn’t weakness—it’s strategy. Build in recovery time around plans, stay cool, hydrated, and listen to your body’s early warning signs. #CreakyJoints

If your inclusion work ends when Disability Awareness Month does, it’s not inclusion—it’s performative. Awareness isn’t seasonal—it’s a responsibility, every day. #DisabilityAwareness

🎙️ Patient PrepRheum S3 is here! Ep 1 dives into axial spondyloarthritis (axSpA): diagnosis & treatment. Hear from patients Cherie & Shayne on their diagnosis journeys, plus expert insights from rheumatologist Dr. Michael Yoon. 🎧 Tune in: creakyjoints.org.au/patientprepr...

🌙 When night comes, chronic illness can make sleep feel impossible. If pain keeps you up tonight, you’re not alone. 💙 ✨ Heat packs ✨ Calming sounds ✨ Gentle stretches ✨ Remember: Rest is still rest—even if you don’t sleep. #ChronicIllnessCommunity #SpoonieLife

This is the impact of advocacy. To our community members who share, comment, or simply spend time with us on our social media: thank you. Your voice is the force behind this impact—and we’re honored to hold the space for you. This is a reminder: real advocacy means real connection.

“His understanding of #health, #kindness toward those with #disabilities, and willingness to lend a hand are qualities that many #children don’t develop unless they’ve experienced #chronicillness firsthand.": buff.ly/RLmoJbW from @creakyjoints.bsky.social / @chroniceileen.bsky.social

“Some people might criticize u for taking #medication or accuse u of complaining about your #illness ..impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues.”: buff.ly/UceEfGV via @creakyjoints.bsky.social / @chroniceileen.bsky.social #RA

What’s reconciliation? What’s rescission? Why do they matter for your health? 🎧 In the latest #TheHealthAdvocates, Steven Newmark breaks down how Congress uses budget tools to shape healthcare access. ➡️ Listen here: ghlf.org/the-health-a... #HealthPolicy #PatientVoices #HealthcareAccess

💬 Living with a chronic condition? 🧪 We’re looking for patients to share their voice—some opportunities are paid. ➡️ Apply now: www.research.net/r/V7GLJ9T #PatientVoices #ChronicIllness #ClinicalResearch

my chronic illness said: “lol no.”

Take a breath. Log off. You’re allowed. #SpoonieLife #RestIsProductive