“I present the issue as a need — not a #request. I don’t downplay it as some personal quirk. Putting it out there allows those around us to #accommodate us in a way that works..without making them guess or us feel minimized.”: buff.ly/8r71n7Y via @creakyjoints.bsky.social #ChronicIllness #spoonies

Weekend tip: YOU DON'T HAVE TO PROVE YOUR ILLNESS TO IGNORANT PEOPLE. 🫂😅 #spoonie

“Listening to Your Body” isn’t easy with multiple chronic illnesses — here are 6 ways to actually do it, without guilt or pushing through pain. 🔗 creakyjoints.org/living-with-... #ChronicIllness #PatientPerspective

How you can support someone with a Chronic Illness (and some real advice on how *not* to) Start by avoiding ableism and toxic positivity. 👉 Read more 👇 creakyjoints.org/support/how-... #chronicillness

Napping and Arthritis: What Sleep Experts Wish You Knew ➡️ creakyjoints.org/living-with-...

Quick read: 13 things you can say instead of ‘I’m fine’ when someone asks how you are. ⬇️ creakyjoints.org/living-with-...

8 Tips for Coping with Depression and Chronic Illness 📌 creakyjoints.org/living-with-... #chronicillness #depression

7 Ways to Celebrate the Holidays from the Comfort of Your Own Home (or Bed) creakyjoints.org/living-with-... #HolidayComfort #AccessibleHolidays #ChronicIllnessCommunity #LivingWell

A major shift in U.S. vaccine policy just happened. In the newest episode of #TheHealthAdvocates, we explain ACIP’s vote to roll back the universal hepatitis B birth dose — and what this means for parents, clinicians, and public health. Tune in here: ghlf.org/the-health-a...

Why does one drink feel like five when you live with arthritis?🍷💥 A vulnerable read on how RA can make alcohol trigger inflammation, joint pain, fatigue, and next-day flare-ups. Full article: creakyjoints.org/living-with-... #arthritis #weekend

“Prevention isn’t political — it’s essential.” Texas Rep. Nicole Collier joins The Health Advocates to discuss rebuilding trust in health, expanding preventive care, and strengthening equity across communities. Listen here 👉 ghlf.org/the-health-a... #HealthEquity #PublicHealth #VaccinesWork

Before I agree to 2026, I’m gonna need to read the terms and conditions 🥹

#ChronicIllness Thanksgiving reminders. A thread:

Talking about vaccines at the Thanksgiving table? 🦃 Our latest episode shares clear, compassionate tips to help protect people with chronic illness or who are immunocompromised. For many, vaccines aren’t political — they’re personal. Listen: ghlf.org/the-health-a... #Thanksgiving #Vaccines

"You're always canceling plans" 🙄 My daily schedule:

Mahsa Pazokifard shares her powerful story of spending years searching for answers before finally being diagnosed with IgG4-Related Disease — and how self-advocacy became her lifeline. Listen to the full episode: ghlf.org/the-health-a... #RareDisease #IgG4RD #PatientAdvocacy

In this week’s episode of #TheHealthAdvocates, Steven breaks down how the government finally reopened, why ACA subsidies were at the center of the standoff, and what it all means for public health, chronic illness care, and your coverage in 2026. Tune in: ghlf.org/the-health-a...

We’re excited to introduce GetMyCOVIDVax, a new tool from GHLF designed to help patients and health care providers understand state-by-state access to COVID-19 vaccines at local pharmacies. Use the tool and explore our updated Vaccine Hub at ghlf.org/vaccines #Vaccines #COVID19 #PublicHealth #GHLF

RSV isn’t just a “kids’ virus.” In our season finale of Informed Immunity, we break down what’s new for 2025 and how to work RSV protection into your fall vaccine plan. Listen to the full episode via Link in Bio or go to: ghlf.org/informed-imm... #Vaccines #RSV

New episode of #TheHealthAdvocates: Dr. Tyler Evans discusses what pandemics reveal about poverty, politics, climate, and public trust — and why science alone isn’t enough. Tune in: ghlf.org/the-health-a... #PublicHealth #HealthEquity

The data is in: RSV vaccines are doing exactly what they’re meant to do. In our season finale of Informed Immunity, infectious disease experts explain why this matters so much for older adults and people living with chronic conditions. Tune in: ghlf.org/informed-imm... #Vaccines

Awareness matters — we’re proud to highlight the work of the TED Community Organization, a 501(c)(3) nonprofit that educates, supports, and connects everyone affected by Thyroid Eye Disease. Learn more and join the movement: tedcommunity.org #TEDAwarenessWeek #ThyroidEyeDisease

On a new episode, we break down “TrumpRx,” PBMs, rebates, and how drug prices are really set — plus 4 reforms needed to ensure patients actually pay less. Watch here: ghlf.org/healthcarema... #HealthAdvocacy #Trump

COVID and flu season are here, and staying protected shouldn’t be complicated. Take a moment today to make a plan for your annual COVID shot — your future self will thank you. 💙 Learn more: ghlf.org/vaccines/ #InformedImmunity #VaccinesWork #COVID19

For people living with chronic conditions or weakened immune systems, COVID is still a real risk. Boosters, masking in high-risk settings, and staying informed can make a meaningful difference in staying protected this season. 💛 Learn more: ghlf.org/vaccines/ #InformedImmunity #VaccinesWork

COVID isn’t gone — and protection from past vaccines or infections fades over time. This season’s updated booster is designed to help reduce viral load, lower your risk of severe illness, and protect the people you love. Learn more: ghlf.org/vaccines/ #InformedImmunity #VaccinesWork #COVID19

We’re conducting a confidential survey to learn from people who use subcutaneous injections as part of their HIV treatment. Your experience can help researchers and healthcare providers better understand what matters most to patients. Take the survey here: ghlf.org/injectables-... #HIV

OPPORTUNITY: Are you currently taking a subcutaneous injection to treat cancer? We’re conducting a survey study to better understand what the experience of using injectable medication is like. Your input may help improve support for others. Take the survey here: ghlf.org/injectables-... #cancer

LISTEN TO YOUR EYES. This week is Thyroid Eye Disease (TED) Awareness Week — November 10–16. 💙 Visit to learn more: www.thyroideyes.com #ThyroidEyeDisease #TEDAwarenessWeek @amgen.bsky.social

After 34 years living with lupus, Julie Norris found her strength through advocacy and hope. Her new treatment changed her life — and she’s using her voice to help others find theirs. “Knowledge is power” Latest #PatientPrepRheum episode out now, tune in: creakyjoints.org.au/patientprepr... #lupus

What ‘I’m Fine’ Really Means: An Open Letter from a Thyroid Eye Disease (TED) Patient: www.ophthalmologytimes.com/view/what-im... #ThyroidEyeDisease #TEDAwarenessWeek #HealthcareAdvocacy #PatientVoices

Happy Veterans Day! We are grateful for your service and the sacrifices you've made. Thank you! #VeteransDay

Do you or someone you know have eczema (atopic dermatitis)? Your experiences matter! Take our short survey to help researchers understand what life is really like for people living with this condition. Get started: ghlf.org/inflammatory... #EczemaAwareness #ChronicIllnessCommunity #PatientVoices

How inflammatory Arthritis can really affect marriage and relationships, according to 8 couples coping with it: creakyjoints.org/support/how-... #chronicillness #arthritis

Open enrollment for 2026 is underway — and for people living with chronic or rare diseases, choosing the right coverage matters more than ever. Steven Newmark explains what’s new this year and how to make informed decisions about your plan. 🎧 Tune in: ghlf.org/the-health-a...

COVID isn’t over — but your protection doesn’t have to be, either. Everyone 6 months and older can get the new 2025–2026 COVID vaccine, available in mRNA and protein-based forms. Stay protected and help prevent long COVID this season. Learn more: ghlf.org/vaccines/ #InformedImmunity #VaccinesWork

🌟 Call for Participants: Gout Patient Advisory Board 🌟 Do you live with gout? Help shape resources, education, and support programs that reflect the real experiences of people managing gout. Visit www.research.net/r/goutadvisory to learn more and apply. #GoutAwareness #PatientVoice #PatientAdvocacy

No needles, no problem! The flu nasal spray is a safe and effective option for healthy, non-pregnant people ages 2–49 — and now it can even be self-administered at home! Ask your doctor if it’s right for you and stay protected this flu season. Learn more: ghlf.org/issues/vacci... #FluSeason

“COVID is not in the past. It never will be, because it’s endemic now,” says Dr. Tyler Evans. Staying up to date on vaccines helps reduce the impact if and when we get infected again. Listen now: ghlf.org/informed-imm... #COVID19 #Vaccines #PublicHealth #StayProtected

What’s truly spooky? 👻 Having to convince people your pain is real. #invisibleillness

The words “your labs came back normal” hit different when your symptoms are anything but.

A new special episode of #TheHealthAdvocates features Kathi, who shares her GCA journey from diagnosis to advocacy — discussing how staying informed, engaged, and connected has empowered her to take control of her care and help others. 🎧 Listen now: ghlf.org/the-health-a... #Rheumatology

GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss. Awareness saves sight. #GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints

Invisible ≠ Imaginary. “You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social 👉 Read the full story: creakyjoints.org/living-with-... #InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness

What Is Giant Cell Arteritis? These Are the Signs You Could Have It... Read: creakyjoints.org/education/gi... #GCAAwareness

The hardest part of living with an invisible illness isn’t always the pain — it’s feeling unseen. This #InvisibleDisabilitiesWeek, we’re standing with everyone living with conditions that don’t always show. What helps you feel seen, believed, or supported? 💙 #InvisibleNoMore

Stories like this are why we fight for awareness. October 23 is #GCAAwarenessDay #GCAAwareness #RareDisease

💙 On #WorldArthritisDay we honor the 350 million people worldwide living with arthritis and RMDs. Thank you for your resilience, advocacy, and hope in action every day. Together, we push for awareness, equity, and better care. What keeps you going?

On #WorldMentalHealthDay we honor everyone facing the mental toll of chronic illness — the fatigue, isolation, and uncertainty. You are seen, valued, and not alone. 💚 #YouAreNotAlone #ChronicIllness

“Relish the #chores you actually like - Believe it or not, some #HouseholdChores may actually help your #arthritis feel better. “I do dishes a lot as the hot water feels wonderful on my hands,” says Debra": buff.ly/SkHaFrX from @creakyjoints.bsky.social #ChronicIllness #ChronicPain