What is it like to experience exacerbations? How should clinicians talk to people about exacerbations? Read our article to find out... @wolfsonpallcare.bsky.social

🛒Latest #research shows Norfolk Community Foundation's social supermarkets improves health and communities. 💷For every £1 invested, they generate £6.54 in social value by improving health, reducing stress, and strengthening community ties❗️ 📖Read the findings➡️ arc-eoe.nihr.ac.uk/news-blogs/n...

Interested in supporting young carers? See our new review paper... reviews the support needs of Young Carers and identifies adaptions needed to questions on the Carer Support Needs Assessment Tool to ensure covers young carers' support needs... doi.org/10.1177/0269...

Reframing resilience in community healthcare. Our latest piece in BJCN magonlinelibrary.com/doi/abs/10.1...

‼️ Community nurse in CPFT? Please consider this amazing opportunity to be more research active and support evidence based practice

Join us for our cross-ARC webinar on Timely Access to end of life meds. Three insightful research projects shared and I’m chairing discussions

If you are interested in improving healthcare in prisons, work in a prison setting, or are involved in prison healthcare research then this East of England 25th Sept FREE event at UEA may be of interest: rcgp.my.site.com/s/lt-event?i... @arceastofengland.bsky.social

Exciting part-time Research Associate on the Marie Curie funded SNAP in Prisons study at University of East Anglia. Further details available at vacancies.uea.ac.uk/vacancies/16...

Still time to join our webinar on Tuesday 8 July, 11-12 to hear leading experts discuss the health and caregiving experiences of parents of children with a life-limiting condition. #PeoLC #palliativecare Book your place: events.teams.microsoft.com/event/bbbd0f...

Community nurses based in the UK? Please help us evidence how much of your work involves end of life care. Take part in our 10-min max survey study here: cambridge.eu.qualtrics.com/jfe/form/SV_... @theqicn.bsky.social @crystaloldman.bsky.social @johnunsworth10.bsky.social @rosyroo.bsky.social

Are you registered nurse, NSW/HCA/NA/SNA who has had to accept a lower paid role/band in the last 5 years we are keen to know why. Lack of flexible working? No opportunity? Poor working conditions? Any role, any setting, any employer, anywhere in the UK www.surveymonkey.com/r/AFCRN

Community nurses - how much of your work involves end of life care? Does any of this work have to go deferred? Please help with our short anonymous survey & share widely with colleagues 🙂 Take part here: cambridge.eu.qualtrics.com/jfe/form/SV_... @crystaloldman.bsky.social @theqicn.bsky.social

Are you a clinician interested in #person-centred care for people with chronic progressive conditions? Our next "SNAP in Practice" webinar/drop-in is on 7th May 1pm-2pm - contact me to be added to the mailing list thesnap.org.uk

Calling all UK registered #nurses & HCAs NSW NAs TNAs have you had to seek or take a lower paid role (AFC or hourly rate) to get the kind of work you need? Not just any NHS but any role, any setting, any employer, any UK country for any reason www.surveymonkey.com/r/AFCRN

New paper: Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data bmcpalliatcare.biomedcentral.com/articles/10.... Congratulations Maja!

🚨Our new BJGP paper - community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue & workforce diversification @bjgp.bsky.social Pls Share. Our paper: bjgp.org/content/earl... @theqicn.bsky.social @crystaloldman.bsky.social

Are you a clinician interested in #person-centred care for people with chronic progressive conditions? Our next "SNAP in Practice" webinar/drop-in is on 7th May 1pm-2pm - contact me to be added to the mailing list thesnap.org.uk

UK clinicians - do you support unpaid/family carers of patients with breathlessness in advanced disease? This resource could help: supporting-breathlessness.org.uk. Plus we have a new batch of "mock prescription pads" in to help you signpost carers to it - just message me with your postal address!

Are you a clinician interested in #person-centred care for people with chronic progressive conditions? Our next "SNAP in Practice" webinar/drop-in is on 7th May 1pm-2pm - contact me to be added to the mailing list thesnap.org.uk

Carer resource ... 'supporting someone with breathlessness' Please click on the link

Great to see this paper published on the translation of the SNAP Tool (thesnap.org.uk) into Swedish - congratulations to Prof Carina Lundh Hagelin & team at Marie Cederschiöld University in Stockholm!

UK clinicians - do you support unpaid/family carers of patients with breathlessness in advanced disease? This resource could help: supporting-breathlessness.org.uk. Plus we have a new batch of "mock prescription pads" in to help you signpost carers to it - just message me with your postal address!

It's Young Carers Action Day 2025. The theme, ‘Give Me A Break’, highlights the need for young carers to have time to rest and recharge, while also calling on schools and employers to provide better support, helping them achieve their full potential. @carerstrust.bsky.social

The 2025 national #ARCseminar series on: The healing power of creative arts 💃🏾🎷🎵 7 May: Improving #MentalHealth & wellbeing with creative arts 🎭🎤🖌️ 11 June: Exploring lived experience with creative arts 🎵🕺🎭 9 July: Creative arts for #dementia eventbrite.com/cc/nihr-arcs...

Super proud to be supporting Jess Blake from @nchctrust.bsky.social at @arceastofengland.bsky.social Early Career Researcher Symposium presenting her work on misaligned expectations on recovery in brain injury rehab

In just a few days almost 2000 people have used this form to ask their MP to address a serious patient safety issue. It takes less than a minute-can you help #protectnurse?

Did you know anyone in the UK can call themselves a #Nurse? Even if they have no qualifications, have been struck off or convicted of a crime? Support @DawnButlerBrent campaign to @protectnurse Write to your MP here. Pls share! action.rcn.org.uk/page/166204/...

🚨 Join the @ARC_EoE team! Become a Senior Research Assistant in our Support for Ageing and Living with Long-Term Conditions Theme! 📍 Location: University of Hertfordshire 📅 Apply by: Friday 14 March 2025 Click the link to learn more and apply today!👉 my.corehr.com/pls/uhrecrui...

A difficult study to conduct during lockdowns, reminding us of the distressing experiences of dying in care homes t.co/WxygCA4KyK

We would love to hear from you! The Commission on Palliative and End-of-Life Care has opened submissions for written evidence. You can find the link here: palliativecarecommission.uk/submit-writt... The deadline for submissions is Friday 28th March 2025.

Very pleased to have been a small part of this… #carers

Really pleased that the final report from the Carers supporting loved ones at end of life has been published part of suite of reports @nihr.bsky.social carers/researchers working in partnership to improve services a great project a part of #sethslegcy www.journalslibrary.nihr.ac.uk/hsdr/publish...

We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.

As UK Parliament considers how the Bill on #AssistedDying should be implemented, if it becomes law, ARC palliative and end of life care webinar highlights the complexities and makes key recommendations: 👉 arc-sl.nihr.ac.uk/news-insight... #AssistedDyingBill @arceastofengland.bsky.social

Dr Sarah Mitchell (National Clinical Director for PEoLC, NHS England) at @mariecurieuk.bsky.social PEoLC Research Summit today at @wellcomecollection.bsky.social calling for research that produces solutions… not just identifies problems

📣 More than 80% of healthcare costs in the final year of life are spent on hospitals, according to a new report. Read more 👇 www.dailymail.co.uk/wires/pa/art...

ICYMI Right now in the UK anyone can call themselves a nurse even if they have no qualifications, have been struck off or have a conviction I'm asking my MP to support this bill

I'm so excited - It's almost time for the annual @mariecurieeolc.bsky.social Research into Practice Conference - it's online, it's free and attendees can dip in and out to view sessions of particular interest. All posters now live! (click on compass sign) mariecurie.ivent-pro.com/events/resea...

I've updated the second of my #palliativecare starter packs with lots of people worth a follow in the #hpm #hapc #hapc25 field! The first linked to in my profile. go.bsky.app/E8o273Y

📢Interested in Care Home research? Join us for our Annual Cross-ARC Care Home Network Event. We’ll be discussing innovative ways to involve care homes in research 📅Don’t miss out and register now➡️ www.eventbrite.com/e/cross-arc-... #ARCEoE #CareHomeResearch #CHNEvent2025

Please join us for this webinar covering our research on sssisted dying arc-sl.nihr.ac.uk/events-train...

Upcoming webinar from the NIHR ARC Palliative and End of Life Care National Leadership: What can we learn from international research on assisted dying? Find out more and register: arc-sl.nihr.ac.uk/events-train...

pubmed.ncbi.nlm.nih.gov/39805678/ First paper on the important topic of how pharmacogenomics might affect symptom management in palliative care - looking forward to exploring this further in studies in the coming year

New on our blog: Dr Adejoke Oluyase and Professor Irene Higginson discuss the findings from an international trial aimed at testing the effectiveness of mirtazapine, a drug repurposed for severe breathlessness in patients with advanced respiratory diseases. tinyurl.com/nt54rva9

I've just been updating my #palliativecare starter pack(s). This is the link to the second of two packs: go.bsky.app/E8o273Y You can find pack links in people's profile. Hope this is helpful. #hpm #hapc

Here is the link to the first. Together there are nearly 250 #palliativecare people to follow if you are interested. @ctsinclair.bsky.social also has starter pack(s) too! #hpm #hapc go.bsky.app/582Y1Av

Dear followers, If you can help... LIKE and REPOST. Many thanks! #PalliativeCare #HAPM #HPM #HAPC #Hospice

Really humbled to have been awarded one of these @nihr.bsky.social REsearch Professor awards. Huge opportunity & responsibility to improve care for children with life limiting conditions and their families @kingsnmpc.bsky.social @kingscollegelondon.bsky.social www.nihr.ac.uk/news/7-resea...