#parkinsons #support

At Par Con today in Birmingham, hosted by @parkinsons.org.uk and representing the young onset Parkinson’s charity - SpotlightYOPD! Had lots of interactions with YoPDers already ! #parkinsons

Today is #WorldMentalHealthDay and we want to talk about the importance of having open conversations about mental health in #neurology, for both the people we care for & the teams who care for them. Watch the full video on our website: neurologyacademy.org/articles/wor... @kernowpdnurse.bsky.social

Ever fancied becoming a Parkinson’s nurse?? It’s an incredibly rewarding job. @parkinsons.org.uk are not only fundraising for more nurses but will support interested nurses in gaining the skills to undertake the role. Look here for more details - prksn.uk/3HUgwke

Congratulations to the @moversand.bsky.social for getting their Gov petition to over 100,000 signatures. Now let’s see the issues about why Parkinson’s care is so patchy across UK discussed at the highest level. #parkinsons

Please do consider signing this Government petition that calls for better care for people with Parkinson’s. We need 100,000 signatures for it to be debated in Parliament. #parkinsons #neurology www.facebook.com/share/p/15fx...

Day 4 (last day of @rcn.org.uk Congress): lively debates on financial hardships for nursing and care planning. It’s been a great #nursing Congress and had great company from Shona, Mark and Jonathan from the Forum. Think we convinced some nurses that #Neurology was the specialty to be in!!!

Day 3 of the @rcn.org.uk Congress in Liverpool. It’s been an interesting and humbling day listening to nurses who work in Conflict areas, quality improvements, lack of learning disability nurses to name but a few! Mark from the @rcnneuro.bsky.social had a 2nd opportunity to talk on stage too!

Day 2 of the @rcn.org.uk Congress. Met up with fantastic, hard working staff from @parkinsons.org.uk who were giving out vital information on Parkinson’s to other nursing delegates. #parkinsons #rcn2025 @rcnneuro.bsky.social

Proud to be representing the @rcnneuro.bsky.social at the Liverpool RCN Congress, alongside fellow committee members Shona and Mark. Looking forward to be inspired by our fellow nursing professions and meeting up with @parkinsons.org.uk staff at their stand in the Expo area. #RCN2025 #neurology

A breakthrough in #MultipleSystemAtrophy (MSA) research: Dr. Victor Dieriks and his team in NZ have identified that the cause of this neurodegenerative disorder is toxic α-synuclein protein aggregates that invade neuron nuclei. buff.ly/YKLxq6O

open.substack.com/pub/rorycell... We thought our @moversand.bsky.social colleague Gillian was bonkers when she suggested we organise a mass singalong of We Will Survive in Westminster – how wrong we were! #parkinsons

Last week I was very pleased to attend 2 Parkinson’s events that had the theme of bringing people together. One was the launch of a new @parkinsons.org.uk support group at Tavistock. The other was The Movers and Shakers podcasters awareness event in London, with over 500 attending. #parkinsons

@kernowpdnurse.bsky.social from our Neuroscience Nursing Forum, and in her capacity as PDNS, was very pleased to be part of this @parkinsons.org.uk project about engaging people with Parkinson’s in research. www.parkinsons.org.uk/professional...

Postgraduate Research Scholarship in Dementia and Aged Care at the University of Sydney with Professor Yun-Hee Jeon. For international students, both tuition and stipend will be covered. #FindAPhD @dementiaresearcher.bsky.social www.sydney.edu.au/scholarships...

Important new report from @denpruexeter.bsky.social highlights hidden inequalities facing those living alone with dementia. Time to rethink dementia care. #Dementia #HealthEquity www.dementiaresearcher.nihr.ac.uk/living-alone...

GPs are an integral and essential part of any person’s journey with Parkinson’s. SpotlightYOPD have created a poster to help GP’s support their younger patients pre and post diagnosis. Please do share with GP colleagues/ surgeries. #parkinsons #parkinsonsawarenessmonth

Young adults with stroke or acquired brain injury. The @rcnneuro.bsky.social are hosting member engagement Teams meeting on this on 17th Apr 12:30-1:30 sharing work of @edinburghuni.bsky.social and @rcnfoundation.bsky.social find out more here health.ed.ac.uk/research/cur... email me for invite

What a wonderful day meeting @SpotlightYOPD new friends and old ones. Lovely to see Carl, Nikki and Dawn. The wonderful Ellie and Gaynor and of course Gary and Simon from @ParkinsonsUK - looking forward to the future

Had fab visit from @carolinerassell.bsky.social from @parkinsons.org.uk in Plymouth this week. Sometimes it’s helpful to precise a situation out loud to a visitor to see where the strengths and challenges are. We rarely get the time to reflect. Lots of planning conversations afterwards! #parkinsons

I’m always a bit nervous just before a podcast…. Always worried that the dog will bark (she did), or I’ll say something ridiculous (probably did). Anyway, it was fabulous to talk about our charity SpotlightYOPD, and how collaborative working is key. #collobarativeequation. #parkinsons

I am delighted to be speaking RCNi's upcoming event in April. Join us for expert guidance on safe, ethical restraint & practical strategies. Book your place now. invt.io/1txbj2ysdke

Please do give this #RCN #Neuroscience #nurse account a follow! Lots of info on Nursing competencies / Neuro conditions / education will be shared over the yr to inspire (lure) the next generation of nurses over to Neurology! We’ll also be at the RCN Congress. Join us!!! @rcn.org.uk

Don't miss out on this! Small group online but 100% participatory, experiential learning. Highly valued by all with ongoing support through the facilitators network www.fons.org/programmes-d... @rn-abi.bsky.social @shnp.bsky.social @greenfieldd.bsky.social @janettekeenan.bsky.social

The @rcnldnursing.bsky.social BlueSky account has gone live today. Steering committee are orientating themselves to it so please give the account a follow

Absolutely excellent day at The 2nd National Neurology Transformation Day at Birmingham today hosted brilliantly by @neurologyacademy.bsky.social . Learnt loads and great networking. Got a poster up too on the Parkinson’s SuperClinic we are planning. #parkinsons #neurology

'Open to all' programme of Resilience-based Clinical Supervision starts Feb 2025 👇 Very highly evaluated: a great fit for PNAs, AHPs & anyone with an interest in restorative supervision https://buff.ly/40xn0Mi @kernowpdnurse.bsky.social @marycjenkins.bsky.social @joroche.bsky.social Please share

Hi ! Have any of my #Neurology \ #parkinsons connections ever ran/ or attended a ‘superclinic’? I’ve heard of some fine Diabetic ones that see many patients in a day with the aim of cutting waiting lists…and just wondered if it can (should) be replicated in Neurology (Parkinson’s in this case). X

The @rcn.org.uk , backed by @rcem.bsky.social and others has written to @rthonwesstreeting.bsky.social on corridor care urging him to force the NHS to be more transparent over the numbers being treated on corridors:

First Zoom meeting of Parkinson’s nurses from all over the world: USA, Australia, Poland, Germany, Singapore, and the UK. T’was a brilliant way to share ideas and learn from each other. I think the start of something brilliant!!! #Parkinsons #neuroscience #nursesrock @rcn.org.uk

An early Christmas gift from my artist Sister!!! Who doesnt want a pasty print on a slate!! www.instagram.com/cornishartis... #cornishpasty #cominghometrees

NEW: A study has demonstrated how clinicians could use data to predict the risk of falls in people with Parkinson’s Disease (PD). Falls are a common for people living with Parkinson’s. Around 60% of all people living with PD experienced at least one fall. More info ⬇️ www.ox.ac.uk/news/2024-12...

Chuffed to bits to be representing Parkinson’s nurses at the Royal College of Nursing (London HQ) Neuroscience Nurse Strategy Day! Lots planned for the advancement of Parkinson’s education and inspiring the next generation of Neuroscience nurses. @parkinsons.org.uk @rcnlibraries.bsky.social

#OTD in 1952, the Great Smog, a thick cloud of air pollution, covered London. Since the industrial revolution, air pollution has had a devasting effect on the health of urban people. The Great Smog caused 12,000 deaths and brought London almost to a standstill; it prompted the Clean Air Act of 1956.

Here are some nice mushrooms

We're excited to join @theRCN on Bluesky!🥳🦋 We have great content lined up for you. Everything from the latest evidence to nursing history, and from exhibitions to study tips. We've got it all covered. Follow the RCN Library and Museum for updates, events, and collection highlights.

#WPC4YOPD Virtual Webinar Series kicks off today! This series is for People living with or interested in learning about Young Onset Parkinson's Disease. Learn more and view the program: www.worldpdcoalition.org/page/YOPDvir... Register: portal.qwikcast.tv/Parkinson/YOPD #Parkinsons #yopd

Watching debate on the #assisteddying bill on TV. I’ve lost #Parkinson’s patients to Dignitas and suicide. I research suicide in Parkinsons and teach Suicide prevention. I know now that when a PWP brings up assisted dying, it’s my personal 🚩 for further assessment and compassionate conversation.

“Now with your right index finger, touch my finger and then touch your nose” #Neurology @zachlondon.bsky.social

A highly simplified map of brain functions #MedEd #MedX #Brain #NeuroScience #Neurology Source: thehighestofthemountains.com

It’s important to raise awareness of Parkinson’s at this time as ppl face party invites and also some people with Parkinson’s living alone. To have you on the video would be amazing . Please watch this video for more info. Thank u youtu.be/84waVIAE00g?...

🌟 JOIN THE ROYAL COLLEGE OF NURSING 🌟 rcn.org.uk/membership As the world’s largest nursing trade union and professional body, we’re here by your side at every step of your nursing journey ❤️ UNITY IS STRENGTH ✊

go.bsky.app/TMgT95n A small list of neuroscience nurses to follow. If you want me to add accounts let me know