1/3 Today’s draft guidance by NICE to not recommend vorasidenib for use on the NHS is disappointing. It highlights broader challenges of bringing new treatments to people affected by brain tumours — challenges that are made more urgent by the lack of existing options.

Brain tumours are consistently falling through gaps in policy. As a proud member of the Wales Cancer Alliance, we've joined together to call on all parties in Wales to commit to implementing our recommendations to improve cancer care should they form the next Welsh Government. See below for more.

Future Leader, @alvarezprado.bsky.social's research has revealed a protein that can inhibit glioblastoma cell growth and help the immune system attack the tumour. Ángel and his team are now evaluating different drugs that inhibit this protein, which could lead to new therapies. bit.ly/3Vx9IvS

We’re proud to stand with #OneCancerVoice today, joining 60+ charities to call on the UK Government for a bold, fully funded National Cancer Plan. It must meet six essential tests to truly improve the lives of people affected by cancer.

Research funded by our Quality of Life award hopes to test whether SpoonieKids, based on the spoon theory, is effective and practical to help manage fatigue in children who are living with the effects of brain tumours. Find out more: bit.ly/4ov64jD

What is translational research? (thread)🧵 Only 10% of all research breakthroughs in the laboratory actually make it through to viable treatments. In most cases, this is due to a lack of translational research. 👇

On the London to Brighton bike ride, you're not just doing a 55-mile challenge. You're riding to pick up the pace of change for everyone affected by brain tumours every year. Join our 2025 team for just £10 and cross the finish line on Sunday 14 Sept. bit.ly/4kYeL2W

“Glynwen was looking down on every step of the way.” To remember her and raise funds, Trefor, Glynwen’s husband, and Brenda, her friend, walked 127 miles in May, along the pilgrimage trail from Twywn to Aberdaron in North Wales. Read more: bit.ly/4nKeOlB

New scanning technology, developed by ‪@uniofaberdeen.bsky.social‬, can detect subtle differences in tumour growth, without the need for injected dyes - a positive step for those diagnosed with GBM, an aggressive brain cancer.

You might not see yourself as a carer—just someone helping a loved one. But if you provide unpaid support to someone with a brain tumour, you are a carer—and you deserve support too.

Yesterday, @clivejonesmp.bsky.social submitted an Early Day Motion calling for earlier brain tumour diagnosis, following the launch of our Exploring GP Access to Brain Scans report. A big thank you to Clive and his office for supporting this important issue. Read the EDM: bit.ly/3FDqipC

An ultra-rapid method of genetically diagnosing brain tumours has been developed, cutting the classification time from 6-8 weeks, to as little as two hours. This could remove the uncertainty that those face waiting weeks for their diagnosis and prognosis. Read more: bit.ly/3YU9Qbb

Our new report reveals a third of respondents didn’t know they could directly request brain scans for suspected brain tumours. Even among those who did, many weren’t clear on how to use this guidance. 🧵

After his glioblastoma diagnosis, John took on Everest in the Alps, climbing Everest’s height on skis with his daughter Belle, raising £300K for research into childhood brain tumours. Watch Belle share their story. bit.ly/429wqi5

Today marks the start of Teen and Young Adult Cancer Awareness Month, a time to raise awareness about the specific challenges teenagers and young adults face when coping with a cancer diagnosis and treatment.🧵

During the Spring Statement today, the Government has proposed significant changes to the welfare system that's left many people in the brain tumour community feeling anxious.

Melissa’s husband Matt has two brain tumours. Their story began when an MRI showed lesions on Matt's brain, eventually leading to a glioblastoma diagnosis. The journey has been tough, but they’ve found strength in each other and in The Brain Tumour Charity. #BrainTumourSupport

For years, people diagnosed with a brain tumour have fallen through the cracks—too often pushed into the ‘too difficult’ pile. That’s why we’re encouraged to hear Ashley Dalton MP recognise the unique nature of brain tumours & ensure they’re included in the National Cancer Plan.

The #TwilightWalk London is TOMORROW! We can't wait to see everyone striding through the capital as we reflect, remember and raise awareness of brain tumours. Will you be joining us?

We fund research that changes lives—driving kinder treatments, better options & cures. For every £1 we spend, we invest 50p+ in research—because that’s how we’ll find cures, faster. This #BTAM, help us go further, faster. 💙 #AcceleratingCures

Researcher Dr @alvarezprado.bsky.social, one of our Future Leaders' grant holders, has recently become the group leader of his own research team at the Luxembourg Institute of Health! Find out more about Angel’s research and his new lab: bit.ly/3DZW6UN

“I think dealing with the unknown was the hardest part…” When Simrat was diagnosed with an astroblastoma, her hospital had never seen a case like hers before. With little information available, she searched for answers—but found almost nothing. Research changes that.

🎉 The Rare Cancers Bill has passed its second reading! In an emotional debate, MPs shared personal stories, making it clear: we must do better. Huge thanks to @drscottarthurmp.bsky.social for leading this. As it moves to Committee Stage, we’ll keep pushing for change.

“An unforgettable experience” Last month, our Young Ambassadors visited Parliament for a Q&A session with two MPs – Tom Rutland and Jess Asato – before then having a tour of the Parliament building.

The Rare Cancers Bill was published this week - a crucial step forward for people with rare cancers! Alongside 30 charities, we've been working to build cross-party support for this vital legislation ahead of Second Reading in Parliament on Friday. #RareCancersBill

Join us on 22 March for The Twilight Walk London! Choose a 5km or 10km route past iconic landmarks like Buckingham Palace & Big Ben. Sign up today and get your Twilight Walk t-shirt and medal! bit.ly/4hjN2Yp

Did you know... Brain tumours are the biggest killer of children and adults under 40 in the UK? This #BrainTumourAwarenessMonth I am helping @braintumourcharity.bsky.social raise awareness of this complex and often left behind disease.

As a member of Cancer 52, we support the findings of their new report published today to help guide and drive improvements in early diagnosis policy in England for people with rare and less common cancers. Read more: bit.ly/earlcandiag

I stand with those impacted by brain tumours and more research is urgently necessary. Thank to @braintumourcharity.bsky.social for having me along today.

We launched Better Safe Than Tumour in 2022 to raise awareness of brain tumour symptoms. Since then, awareness has risen by 26%, with over 50% of people now able to name a symptom. Order your community door drop pack today and help spread the message! bit.ly/4bvqqmz

Did you know… We’re the only UK charity changing lives for people affected by a brain tumour diagnosis on all three fronts: funding cutting-edge research, campaigning for change and giving crucial support and information. Find out more: bit.ly/3QFHf4z

Rare Cancers Bill - @braintumourcharity.bsky.social is supporting my bill as they feel it will "transform the rare cancers landscape". If you don't live in Edinburgh South West, details are below regarding what you've to do to ensure your MP is backing: www.thebraintumourcharity.org/news/blog-po...

📢 On 14 March, the Rare Cancers Bill will have its second reading in Parliament. This Bill could drive vital improvements for those affected by rare cancers like brain tumours. Find out how you can help by getting your MP to attend: bit.ly/4ih0Dkl

Yesterday our policy team visited Westminster as a result of our 'Write to MP' action, meeting with @chrisbloore.bsky.social and Euan Stainbank, to share our policy asks for a National Brain Tumour Strategy. We’re excited to work with them and for their support for the brain tumour community.

Great to join charity colleagues in Westminster yesterday for a roundtable discussing efforts to acheive a faster, better diagnosis. Thank you to @clivejonesmp.bsky.social for sponsoring and chairing this crucial event ahead of the government's upcoming 10-year health and cancer plans.

*A huge thank you to the incredible team who ran a 10k at Tatton Park for their friend Rachel, who is living with a brain tumour. 💖 With 30 runners & nearly 800 donors, they’ve raised over £28,000 for The Charity! 🌟 Thank you for our determination

Rob and his friend Bates ran 300 miles along Cornwall’s rugged southwest coastal path in memory of their friend Guy, who died from a brain tumour at 43, just eight months after diagnosis. Their incredible challenge raised £5,144 to help those affected by this disease live longer & better. 💙

1/4 This week is Cancer Prevention Action Week and is all about empowering the public to make changes to their daily habits, and that of their families, to reduce their risk of preventable cancers.

Today, we’re joining 50+ cancer charities with #OneCancerVoice, calling on the UK Government to fully fund the National Cancer Plan. It’s a crucial chance to improve care for cancer patients and those affected by brain tumours—but proper funding is essential to make a real difference. bit.ly/3Qi9mXo

Today is #InternationalDayOfWomenAndGirlsInScience! We're celebrating our female researchers who pave the way for better brain tumour treatments. We're proud to fund such talented #WomeninScience who are accelerating a cure for brain tumours.

We were delighted to hear that @drscottarthurmp.bsky.social daughter Ruth, is training to run a marathon in aid of the Charity. We wish Ruth the best of luck and will be sure to cheer her along all the way!

It was great to be in the chamber today to hear about the launch of the National Cancer Plan from @gwynnemp.bsky.social. Of course, I had to mention the work of @braintumourcharity.bsky.social @braintumourrsch.bsky.social, & @pancreaticcanuk.bsky.social... & my daughter! youtu.be/PF5v7JGz2bc?...

We have awarded £150,000 as part of our Expanding Theories grant to Dr Elizabeth Cooper and her team at the CRUK Cambridge Institute. They are trying to find better ways to treat ependymoma – the third most common childhood brain tumour. Find out more 👉 bit.ly/416nI2n

This World Cancer Day, we welcome @gwynnemp.bsky.social announcement in parliament that there will be a consultation for the government’s upcoming cancer plan. We were pleased to see his recognition of brain tumours in particular being an area where more must be done to improve outcomes.

1/3 On #WorldCancerDay, we’re reminded of the importance of seeing the person behind the diagnosis and ensuring they get the support they need to live longer and better lives.

We know the devastating impact receiving a brain tumour diagnosis can have, whether that be your own or a loved ones. Our support covers a wide range of inclusive and accessible services for everyone affected by a brain tumour, whether it’s low or high grade, adult or child. bit.ly/4gqh4JG

This #ChildrensMentalHealthWeek, Our children and families service supports those with children under the age of 18, affected by a brain tumour diagnosis. With lots of resources and helpful advice, we can support you and your children through their or a loved one's diagnosis: bit.ly/3CMvvKe

Had a great meeting with Stephanie Kleynhans from The Brain Tumour Charity. We discussed the need for more research, better diagnostics, and raising awareness. Brain tumours aren’t preventable like other cancers, yet they’re often overlooked. That shouldn’t be the case, and change is needed.

Volunteered in the last year? We want to hear from you! Share your experiences in our annual volunteer barometer to help us improve. If you volunteered in 2024, you’ll receive a notification in the Volunteero app. Share your thoughts by Feb 14 to help improve your experience. bit.ly/4aHH3eg

1/3 📢 “I had to mark this with something in his memory, and it had to be a good challenge.” Paul Mackinnon walked the South West Coast Path to honour his dad Alan, who passed away from a brain tumour 25 years ago. Alan’s 15-month fight left lasting memories. #BrainTumourAwareness