The new heartbreaking reality...👇 “CDC Cannot Currently Be Trusted as a Scientific Voice” conscienhealth.org/2025/11/cdc-...

And American parents should be terrified also.

And the brain drain begins.

Trump and RFK Jr. are mulling their most disruptive vaccine policies yet — alarming manufacturers www.statnews.com/2025/11/18/t... via @statnews 🚨 Key: Suggested policy changes, about schedule & ingredients, "run contrary to evidence around their safety and efficacy." #ScienceMatters

Great article describing how young women cope with ALS in their own way. The Young Women Grappling With an ‘Old Man’s Disease’ www.nytimes.com/2025/11/11/h...

Nice rebrand for NEALS!

The United States has swiftly retreated from global health leadership. In @lemonde.fr, I share why this retreat will have serious repercussions worldwide.

However bad you think things are at the CDC they are worse. That's the takeaway from this well-reported story from Daniel Payne w/back-up from an all-star STAT team. Must-read. www.statnews.com/2025/08/28/c...

I was delighted to have another opportunity to speak with @RepMikeQuigley today about the reauthorization of the #ACTforALS. Stay tuned for more to come on this important piece of #ALS legislation.

What a great meeting!! I’m honored to be on the ALL #ALS Steering Committee and delighted to see the progress and innovations this natural history study is making. Learn more at all-als.org

In honor and memory of all those we have lost to #ALS this #2025MemorialDay.

Have you ever had a vaccine-preventable illness? I'm collecting stories for First Opinion on @statnews.com. Email me a paragraph about your experience at [email protected].

Each of us working in public health is motivated by a drive to make the world safer and healthier. Never lose that core purpose. Hold true to the personal stories that have inspired you.

Looks like the CDC National ALS Registry will become part of the Agency for a Healthy America (AHA).

#Breaking: Top FDA official Peter Marks was forced to resign as the director of the Center for Biologics Evaluation and Research.

Do scientists put themselves at risk by speaking out against the Trump administration? “Hell yes,” said Jonathan Jackson.

A pie graph worth keeping in mind as the NIH budget plummets jamanetwork.com/journals/jam... for 356 new FDA drugs approved

Happy St Patrick’s Day, everyone, whatever your nationality, so long as you stand up for truth and decency. Showering you with good luck and joy

#Breaking - WHO issues starkest warning yet on fallout from U.S. withdrawal of aid for global health

An important read in @nature.com from Dr. Arthur Caplan on the importance of #DEI in science. www.nature.com/articles/d41...

What a beautiful calling. Bless these death doulas who help the last stage of life go more smoothly.

RFK Jr. misleads, deceives or simply lies when he claims the measles vaccine "routinely" causes deaths. IT DOES NOT. @matthewherper.bsky.social lays out the facts. www.statnews.com/2025/03/14/r...

Take action today to call your Member of Congress to demand the reinstatement of the CDMRP.

Are we surprised? No. Horrifying? Yep. Dark Age 2.0. NIH to terminate or limit grants related to vaccine hesitancy and uptake wapo.st/3Dw7WG0

Research support for rare diseases, which cumulatively affect ~30 million Americans, is primarily derived from NIH. Such work is exemplified by Prof Anna Greka @broadinstitute.org in a new Ground Truths podcast. Open-access, w/ transcript, video, no ads erictopol.substack.com/p/anna-greka...

Not sure why I have to explain this, but transGENIC mice are used to research and cure human diseases. TransGENDER mice don’t exist. Hope that clarifies. You can’t make this stuff up.

And the destruction of scientific process as we know it continues. www.nature.com/articles/d41...

My fear is the decimation is just beginning. Gift article from The New York Times. You can read it for free without a subscription. www.nytimes.com/2025/02/18/u...

Imagine if university presidents instead of cowering, called up their faculty too speak in a round-the-clock marathon across the nation about how their research serves every American who has ever faced illness and disease.

Potential impacts of the tariffs include higher prices for drugs and medical supplies, and possible shortages. www.statnews.com/2025/02/02/t...

The Vaccine Information Statements from CDC are critical documents about recommended vaccines. Just a few days ago, they were available here on the CDC site, but no longer: www.cdc.gov/vaccines/hcp... They still seem to be available here on the CDC site: www.cdc.gov/vaccines/hcp...

NEW: US government websites are disappearing in real time, including sites for the US Agency for International Development, foreign assistance, neglected diseases, and children in adversity. We analyzed more than 1000 .gov websites to track what's been taken down—and what's next. wrd.cm/4aFMs5A

Flying to DC tomorrow for this important advocacy meeting, followed by meetings with congressional offices. #EndALS #MoreThanOurStories

Our public health agencies are being completely muzzled. This is a coup in real time. Flood your congressional offices with phone calls. They must act!

Join us Feb 5 at 7 pm ET through the Everything ALS Expert Talk Series to learn about a new ALS research program, ALL ALS, and how you can get involved. www.everythingals.org/events

Are you funded by #NIH, #NSF or #CDC? Please post any letters or communications you’ve received from these agencies or HHS about restrictions on grant funding, publications etc. I want to catalog all of them for the record. #medsky #episky

Happy Black History Month LEITH Lab family! This month we are so excited to honor the many Black voices who have done so much for us! #EndALS

Good list! 9 Food Myths to Ignore www.medscape.com/slideshow/9-... Example myths: - Seed oil is toxic - Green powder can replace real food Key: Follow a balanced, whole-food approach.❤️

Adding deliberate chaos to the funding of scientific research hurts each one of us.

Attention young investigators! @massgenbrigham.bsky.social Mass Gen Neuroscience offering 8 new research awards on neuroscience ecor.mgh.harvard.edu/GrantManager...

For the good of our citizens, medical research, and public health, RFK Jr. cannot be confirmed. Full stop. www.statnews.com/2025/01/28/k...

Auschwitz was at the end of a long process. It did not start from gas chambers. This hatred was gradually developed by humans. From ideas, words, stereotypes & prejudice through legal exclusion, dehumanization & escalating violence... to systematic and industrial murder. Auschwitz took time.

Join us Feb 5 at 7 pm ET through the Everything ALS Expert Talk Series to learn about a new ALS research program, ALL ALS, and how you can get involved. www.everythingals.org/events

"Excited to announce that I’ll be speaking alongside ALS program leaders at the EverythingALS Expert Talk Series on Feb 5, 2025 at 7 pm ET- "Revolutionizing ALS Research: AMP ALS, ALL ALS & You!". Looking forward to connecting with the community! Register today: www.everythingals.org/futureevents

Frightening how quickly federal research could grind to a halt.