This Hispanic Heritage Month, we celebrate Dr. Yomaira C. Figueroa-Vásquez, whose scholarship and organizing uplift Afro-Latinx voices and create space for Black feminist digital humanities. #ALS #Research #HispanicHeritageMonth

Brad Lomax, a member of the Black Panther Party and leader in the disability rights movement, played a key role in the historic 504 Sit-ins. His work brought together Black liberation and disability justice, showing that true freedom must include access for all. #BradLomax #504SitIn

July is Disability Pride Month! 1 in 4 adults in the US has a disability that is over 70 million people! This month we want to spotlight just a couple of people who have been instrumental in the ongoing efforts for disability justice!

Today is World ALS Day! We want to continue to shine light on the communities who are so often overlooked in the ALS sphere! #EndALS #WorldALSday

Today is Juneteenth! A day where we celebrate Black liberation and recommit to the ongoing fights for justice among all oppressed peoples! #juneteenth #ENDALS

Happy Pride Month from the LEITH Lab to you! This month we are excited to highlight the experiences of and stories of our LGBTQ+ community members! #PrideMonth #EndALS

ALS support groups can be a great way to connect with people who have similar experiences to you or learn new strategies of care! However finding the right support group for you isn’t always easy! We hope this post can help out! All organizations are linked below! linktr.ee/theleithlab

On May 16th our PI, Dr. Chelsey R. Carter, will be speaking with the Les Turner ALS Foundation about what it means to build an equitable path toward making ALS a livable condition for everyone. Registration is linked below! us02web.zoom.us/webinar/regi...

It’s ALS Awareness Month! Every Friday we will be sharing ALS topics with you all. We’re starting off by breaking down some key ALS terms to help make the connection between people living with ALS and their care teams a little clearer. #ENDALS #MayALSawareness

I brought the nice weather with me to New Haven to talk about my book ☀️☀️ I really enjoyed being in community with other anthros about my work. Ashley of the @leithlab.bsky.social was a great host and thanks to her diligent organizing, I had a wonderful visit!

Happy Birthday to the Amazing Dr. Leith Mullings!

Roberta Flack left us this February, but her legacy still echoes around the world. She lived with ALS, a truth often overlooked, and we’re proud to honor both her artistry and her journey. #ALS #RobertaFlack

It's from @uminnpress.bsky.social and features @audretaughtme.bsky.social, David McDermott Hughes, Stephanie Delise Jones, @ratnagiri77.bsky.social, Katy Overstreet, Michelle Parsons, Adair Rounthwaite, Damien M. Sojoyner and @eyatesd.bsky.social. Recommend it to your friends and family!

A friend drove two hours today for her breast cancer chemotherapy only to learn it was canceled due to NIH cuts. Clinical trial ended midstream. No treatment, no restart, no plan, no information. Her bro-in-law's chemo was also canceled.

“I am a Black Feminist. I mean I recognize that my power as well as my primary oppressions come as a result of my blackness as well as my womaness, and therefore my struggles on both of these fronts are inseparable.” – Audre Lorde ✊🏾🌸🌸

✨Women’s History Month✨ This month we want to spotlight Lisa Carlton! A mother, rare disease advocate, and rare disease biotech consultant!

✨✨BHM SPOTLIGHT✨✨ The amazing anthropologist Aimee Meredith Cox! #endALS

✨Friday Spotlight✨ This Friday we want to spotlight the amazing Audre Lorde whose words and teachings continue to resonate. #EndALS #AudreLorde

We are excited to share the Black Genome project! for more information, go to www.blackgenomeproject.org! #EndALS #Genomics

Black voices, especially Black women’s, have been systematically undervalued and actively erased, a reality rooted in a long history of oppression and marginalization. #EndALS www.forbes.com/sites/janice...

Happy Black History Month LEITH Lab family! This month we are so excited to honor the many Black voices who have done so much for us! #EndALS

Thrilled to host a Fireside Chat with Maceo Carter! Join us on February 11th for a workshop where we’ll hear from Maceo about his journey navigating ALS. Sign up now! #ENDALS

2025 W. Montague Cobb Institute Health Disparities Symposium Lester Henry Auditorium, Howard University, Washington DC 7:00am – 1:00pm PM ET, Saturday, Jan 25 Register: www.pathlms.com/cobb-institu...

This Martin Luther King Jr. Day, let's take a second to remember Dr. King's contributions and our role in continuing his work! The quote below is from Dr. King's 1967 book "Where Do We Go from Here: Chaos or Community?" Where Dr. King calls for a radical restructuring of systems of power. #ENDALS

We are excited to announce that Dr. Chelsey R. Carter and Brett Maricque’s Genetic Frontiers (@geneticfrontiers.bsky.social) episode is out now!! To listen to this new episode go to: geneticfrontiers.org/episode8-che...

Black people w/ ALS face unique challenges navigating a medical system entrenched in anti-Blackness. In Dr. Carter’s (@audretaughtme.bsky.social) comic, we see how these challenges can manifest in the healthcare system. To read Dr. Carter's corresponding paper go to: www.theleithlab.com/gaslighting

The LEITH Lab is so excited to enter into another year with the amazing people who keep this Lab running! #EndALS #LEITHLab!

Important update for veterans with #ALS: The "Senator Elizabeth Dole 21st Century Veterans Healthcare & Benefits Improvement Act" was signed into law, expanding access to in-home care. #EndALS #ALS #Veterans Learn more about this step forward: federalnewsnetwork.com/veterans-aff...

To dive into her brilliance: 📖 “Mules and Men” explores the rich oral traditions of Black Southern communities. 📖 “Their Eyes Were Watching God” combines anthropology with storytelling to illuminate Black womanhood. #EndALS #ZoraNealeHurston #HappyBirthdayZora #Anthropology

Happy Birthday Zora Neale Hurston! Hurston was a literary icon and a groundbreaking anthropologist who documented Black communities' oral histories and traditions in the US and beyond. Her work underscores the power of centering people —a mission we carry forward at LEITH Lab. #EndALS

We’re thrilled to share that our Community Advisory Board member, Lakeia Nard, founder of Melanin Children Matter, is hosting the Black and White Gala! Our PI, Dr. Carter, will be attending as a guest speaker. #EndALS #pediatricALS

January is International Quality of Life Month—a time to reflect on improving well-being. For pALS, challenges like mobility and communication impact daily life, making advocacy for accessible care and support vital. #EndALS #QualityOfLifeMonth

Check out our glossary to better understand the language of ALS care and research. Knowledge is power. #EndALS #ALSglossery

Researchers are exploring how robots can assist people living with ALS in daily activities integrating cutting-edge tech with patient-centered design, this work could redefine caregiving. #EndALS #TechForGood Watch the video to see how robots may become caregivers www.cbsnews.com/pittsburgh/n...

Our mission at The LEITH Lab is a clear one: to continue a legacy of pushing for equitable healthcare for historically marginalized communities! #EndALS #AntiRacism #TheLEITHLab