Outstanding reply, Mary!! Very professional and well-stated. I hope it does some good. You did a GREAT job with this!! 😀

The British Thyroid Foundation recently wrote in response to my article in Nature Reviews Endocrinology (published in May) defending their position against thyroid patients using private testing for blood and genetic tests 🤷 My reply to the BTF is here: rdcu.be/eHYv3

This is everything that's wrong with treating hypothyroidism in 2025 🤦https://pubmed.ncbi.nlm.nih.gov/40785434/ 'Most respondents [treating physicians] attributed persistent symptoms in LT4-treated patients to psychosocial factors, comorbidities, or unrealistic expectations'.

I am constantly frustrated by the claim that patients are not compliant with their Levothyroxine to explain continuing, unresolved symptoms. Yet how often do Drs only focus on the TSH, rather than THs and fail to test patients at the optimal time for accurate blood test status?

Please share my post if you would like to see better hypothyroid care for patients. We need prompt, accurate diagnosis and appropriate treatment, including access to liothyronine, T3 for those who need it. Or send your own story to Patient Safety Learning

🆕Removing barriers to vital thyroid hormone (L-T3) could improve outcomes🆕 A new blog by Mary Saunders, a patient with hypothyroidism, featured on the hub today. pslhub.org/learn/commis... @mary-saunders.bsky.social @thyroiduk.bsky.social

We have two types of collection boxes, not only do they help to raise vital funds, they also create awareness of Thyroid UK’s important work. See them both here thyroiduk.org/support-us/m....

If those in power do not tell the truth, how can we trust them with that power? From Tom Serpell.

Best advice I got. The male doc I’d seen for 2 yrs kept telling me I had allergies & an unhealthy gut biome. Switched to a female doc & diagnosed with hypothyroidism, perimenopause, & and a fibroid cyst that caused heavy periods within the first two visits. She saved my sanity and life.

Wanna know something weird? I have Graves Disease AND Hashimoto's Thyroiditis at the SAME TIME. One gives you hyperthyroidism (Graves) and one gives you hypothyroidism (Hashimoto's). Right now the Graves antibodies are leaving me alone pretty much so I get to have hypothyroidism.

Very interesting article that suggests lower T3 is associated with increased risk of mortality and dementia: academic.oup.com/jcem/advance...

Help to support and raise awareness of Thyroid UK by purchasing a wristband, ribbon or pin badge. We have many awareness products available in our online shop thyroiduk.org/product-cate....

New on the hub today: Liothyronine treatment for hypothyroidism — a patient’s view. @mary-saunders.bsky.social shares her experience as a patient living with hypothyroidism for 16 years (via @natrevendo.nature.com‬). www.pslhub.org/learn/commis...

@thyroiduk.bsky.social @thethyroidtrust.bsky.social Please share to raise awareness 🙏

My article's been accepted by @ptsafetylearn It seems to be resonating with many hypothyroid pts sadly. Please share to raise awareness of the need for improved diagnosis and treatment of this chronic poorly treated illness. You can read in full here rdcu.be/el9CM

Our book is now available in printed form. Use the code SPRAUT to get a discount of 20% at Springer Nature. link.springer.com/book/9789819...

It is the usual, nay - universal, claim. Instance that timing makes no difference - neither circadian, nor relative to taking medicines incl. thyroid hormones, food, etc.

Very much appreciate. Thyroid management has so many points of failure. One seemingly utterly trivial issue is when a blood draw is done. Time of day alone can make the difference between being diagnosed and being dismissed. And it just gets worse.

The Society for Endocrinology's Clinical Committee has commissioned a new guideline to support clinicians in the investigation and management of patients with androgen excess. 📄 Explore the new guideline and enhance your clinical practice with expert-backed recommendations 👉 bit.ly/4dKF0aR

Yes, this is a very important story that needs more attention. It represents how many #thyroid patients don't get diagnosis, care & treatment they need. Like me, my late family members & many others who've signed my petition for better thyroid care. I'm in US, Mary's in UK. Help needed everywhere!

@nikkijfoxbbc.bsky.socialyou might be interested in my story published in the highly respected Nature Reviews Endocrinology rdcu.be/el9CM Unfortunately my story is far from unusual. There are so many problems with diagnosis and treatment of hypothyroidism. Guidance is confusing and restrictive, etc

Watch Professor Antonio Bianco's expert talk with The Thyroid Trust here: youtu.be/QI4oasGJjzA?... You can check out a variety of free support and informational resources on our Site and YouTube!🦋 #internationalthyroidawarenessweek #IATW

A new week, a new chance to help #thyroid patients! Pls sign & share my petition 4 better & earlier testing of low & high thyroid (includes autoimmune), better treatments, research & better Dr education on it all www.change.org/ThyoidBetter... In my bro's memory. I struggle 2 Thx #Hashimotos #Graves

For doctors, the ability to accept some clinical risk is important in their professional role. Experienced clinicians are more aware of the appropriate level of risk to accept. Less experienced clinicians will often follow guidelines rigidly or practise in a very risk averse way.

Sign up for our next TTT event! Thyroid Journaling and Reflection with A.R.Arthur Info: rb.gy/xomb7e

Relational stability is a major motif of the intertwined feedback loops of #thyroid #homeostasis. The integrated systemic roles and interdependent homeostatically regulated equilibrium of TSH, FT4 and #deiodinase​s maintains appropriate FT3 concentrations. doi.org/10.1007/978-... 🧪 🩺 #MedSky

We will regret this pioneering endocrinologist who has made several great discoveries about steroids, in particular DHEA and the inventor of RU 486. A real model at the age of 15, he was fighting against the Nazis. www.lemonde.fr/en/obituarie...

For World Thyroid Week 2025, check out some of the things our Director Louise has been working on! More info: visufund.com/thyroid-inte... #internationalthyroidawarenessweek #IATW

Women’s health issues remain underreported, underrepresented, and under-prioritised—despite making up half the global population. 🎥 In a new video, experts and Lancet Editors advocate for equitable healthcare to transform women’s health: tinyurl.com/22fkf865

Thank you for reposting The Thyroid Trust. I hope many will share to raise awareness and achieve better thyroid care for hypothyroid patients.

@thethyroidtrust.bsky.social @britishthyroid.bsky.social @thyroidbritish.bsky.social @thyroiduk.bsky.social @thyroid-2303.bsky.social

My struggle to get the treatment I need for my chronic condition of hypothyroidism is featured in the Independent today (after the piece on Endometriosis). Please share as widely as possible to help thyroid patients campaign for better care www.independent.co.uk/news/health/...

Wow, great piece. Sorry you've been through all that. Well...it's possible that an NP with prescribing privileges might be more helpful since they tend to think more holistically and might be better at listening to patients...

Yes but I'm not sure waiting until that debate is resolved will help ease the provider shortage for thyroid or other endocrine conditions... Btw, I wrote this last year: www.medscape.com/viewarticle/...

Did you read my story and look at the curriculum? They receive thyroid disease training. That’s the whole point.

It's meant to ease the struggle. I think the idea is that a trained healthcare provider who isn't an MD is better than no trained healthcare provider at all.

Tomorrow is the day of our webinar for International Thyroid Awareness Week! There is still time to register to join, just sign up here: tinyurl.com/TUKIntThyroid

Undertreated hypothyroidism and subclinical hypothyroidism has been linked with miscarriage. Check with your GP as soon as you know you are pregnant so that your doctor can check your levels of TSH. www.thyroid.org/patient-thyr...

🥳 Score! According to the most recent #ScholarGPS rankings, we are the most productive #thyroid hormone researchers in the past 5 years! Also Top 10 for total ranking (out of 8429). I just wish random rankings in narrow fields of expertise would immediately result in more 💰💰 @uniluebeck.bsky.social

Our eBook on #hypothyroidism has been published. The new cybernetic theory presented here summarises our scientific work of more than 20 years and lays the foundation for improved diagnosis and therapy of #thyroid disorders. The book is available in EPUB and PDF formats. doi.org/10.1007/978-...

Did you know glandular fever is caused by the Epstein-Barr virus (EBV)? Research suggests a possible link between EBV and autoimmune thyroid conditions, Hashimoto’s and Graves’ disease. pmc.ncbi.nlm.nih.gov/articles/PMC...

Did you know that Hashimoto’s runs in families? Make sure your siblings and adult children (especially women) are aware. www.ncbi.nlm.nih.gov/pmc/articles...

Did you know thyroid disease can run in families? It’s important to be aware of the signs and symptoms - especially in your close relatives: thyroiduk.org/signs-and-sy... thyroiduk.org/signs-and-sy...

Anyone with an interest in thyroid disorders, particularly physicians, this film is a great watch to help understanding your patients. Please watch and share: youtu.be/8rFxQEEnVR0?...

Not sure where your thyroid gland is or what it does? Learn more in this easy-to-understand guide from Thyroid UK: thyroiduk.org/the-basics/h...

🧠💡 World Thyroid Day | 25th May This year, we spotlight: Thyroid Disease & Artificial Intelligence 🤖 Let’s raise awareness for smarter thyroid care. Join India’s biggest academic event in endocrinology Register now: rxregistrations.com/esicon2025 #WorldThyroidDay #ESICON2025 #ThyroidHealth

Today is #WorldThyroidDay – a reminder of how vital the tiny thyroid gland is to our health. From metabolism to mood, it plays a powerful role. Early detection of thyroid disorders can save lives. Stay informed, get tested, and spread awareness. #ThyroidHealth #EndocrineAwareness