Supported by the Greater Manchester Research Engagement Network, Voice Up, @letsgetvocal.bsky.social and @mahdlo.bsky.social teamed up with @nihrbioresource.bsky.social to co-produce materials for the UK’s first study inviting children aged 0–15 to take part in health research 👇 bit.ly/45XWXiW

Thank you @researchwales.bsky.social for highlighting Familiar Study's work with brilliant participants and charities @CymruVArthritis, @VersusArthritis, and @YogaforAS. Thesis in progress, can't wait to share it with you, and most importantly, the target population. bit.ly/3JXFsYu

🧵 Energy bills are going up again in April. The average household will pay £111 more a year — but many will pay far more. Here's what’s happening, and what help is available. ⬇️

H&CRW Faculty team members and their poster with some results from the Faculty survey #ResearchWalesFaculty

Looking forward to a day hearing about all the great work being carried out with Health and Care Research Wales #ResearchWalesFaculty

Today I'm at the Health and Care Research Wales faculty showcase event #ResearchWalesFaculty I will be standing awkwardly next to my poster about young people in care's perceptions of social support and the association with mental health and wellbeing. Come say hi 👋🏻

Brilliant way to think about our research #ResearchWalesFaculty

Looking forward to the Health and Care Research Wales Faculty showcase today #ResearchWalesFaculty @thomaspurchas.bsky.social

Great to meet other #ResearchWalesFaculty members, and catch up with colleagues old and new. Just an hour in and already a great day!

🔜 Deadline 31st January! ⚠️ If you work with current or #bereaved young/young adult #carers in UK please take part in this short @mariecurieuk.bsky.social funded survey, looking at cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su...

🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @hospiceuk.bsky.social

🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @rainbowtrust.org.uk

🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @sueryder.bsky.social

🔜 Deadline 31st January! ⚠️ Work w/ current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life & in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @maggiescentres.bsky.social

🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life & in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @winstonswish.bsky.social

🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @childbereavementuk.org

🔜 Deadline 31st January! ⚠️ If you work with current or #bereaved young/young adult #carers in UK please take part in this short @mariecurieuk.bsky.social funded survey, looking at cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su...

Give us clarity, predictability and details wherever possible. The world is a confusing and chaotic place, especially for #autistic people. When you communicate with intention and our needs in mind, you are helping us shed one of the many layers of anxiety that weigh us down EVERY day. #autism

UK statistics state disabled women are nearly twice as likely to be sexually assaulted as non disabled women. Gisele Pelicot has blazed a trail for women in France. Let’s honour her courage & call out assault culture for us too. #disability #giselepelicot amp.theguardian.com/world/2021/n...

Always good to be reminded of the need for clarity in speech and writing, removing ambiguity, which is important for both accuracy, and the mental health of others.

#BIPOC voices are often missing from autistic spaces, so here is a BIPOC starter pack! 😊 go.bsky.app/TtXfpAt #racialequality #antiracism The image of autism as “only white boys” leads to underdiagnosis, discrimination & isolation for many Our autistic community is much more diverse than that! ❤️

Hey research teams/orgs that engage #PatientPartners! Please build in a very large chunk of time at your 1st team or other type of mtg for intros. This is really key to starting to build your relationship and trust. #PatientEngagement #ConsumerInvolvement #PPI /1

In the world of #research in #healthcare - #PatientPartners need to support each other. #PatientEngagement is hard enough - so let’s band together and support each others endeavours #kindness goes a long way

Thank you @familiarstudy.bsky.social 😊 it's been a learning curve for us both, it feels very strange to be coming to the end of the project after so long. You've got this 🫶🏻🦜

Great blog on co-analysis in dementia research by Lorna Smith. Well worth a read or listen www.dementiaresearcher.nihr.ac.uk/blog-co-anal...

Fantastic tips on co-analysis with lived experience experts in dementia research - thanks for sharing! #inclusiveresearch #coproduction #dementia

We are looking for two people to join our team and help us co-produce mathematical infectious disease models for Mpox. You can read more about this opportunity and find out how to apply in this blog: www.coproductioncollective.co.uk/news/commetp... #coproduction #involvement #ppi

A right to paid employment leave for kinships carers, akin to adoption leave, would give families the time to settle the children in without having to leave work. Help us to lobby Government - use our campaign tool here: frg.org.uk/policy-and-c... #SameLoveSameLeave #ActForKinshipCare

Did you see Chrissi last week? A grandmother kinship carer in County Durham who spoke to #5News about stepping in to raise her 4 grandchildren & being forced to give up the job she loved. Our new research shows 6 in 10 kinship carers like Chrissi have to give up work or reduce their hours.

🚨 Last chance! If you believe in supporting children to remain safely in their families, strengthening the relationships with those who love them & have a track record in delivering big funding successes, you might be our new Director of Fundraising! Closing 2/12 frg.org.uk/about-us/wor...

New Opportunity: to better support family #YoungCarers & #YoungAdultCarers, of someone near #EndOfLife &/or #bereaved in the last 3 years. We are hope to reach #professionals supporting these carers, to answer a survey about what support exists,&what's needed. Is this you? Link: shorturl.at/dhQO5

Did you care for a family member who died when you were aged 25 or under? #NewResearchProject #NothingAboutYouWithoutYou #YoungCarers #YoungAdultCarers #Bereaved #PalliativeCare #HaveYourSay #GetInTouch #PleaseShare @nhkelly2.bsky.social

We provide support, information and help to those in Wales who need to access women’s health services, empowering patients to advocate for themselves and others in seeking optimum care, raising awareness, and campaigning for better.

Our vision is a Wales where everybody's right to good health and wellbeing is respected and fulfilled, with everyone able to access the healthcare they need, when they need it, and without barriers. We hope to connect with lots of you who share this vision!

We were delighted to win the 'Most influential small organisation' award at last night's #WelshCharityAwards! Huge thanks to all who nominated us, and to everyone who has volunteered, worked with, and supported us over the last ten years. Congratulations to all the winners and finalists!

Ffantastig! Llongyfarchiadau! Fantastic! Congratulations! 🥳💖🫱🏾‍🫲🏻👌🏻💪🏻👩🏻♀️👭🏻🚺💖🥳

Shwmae, Bluesky! We're Fair Treatment for the Women of Wales (FTWW), the only patient and service user-led charity in Wales dedicated to achieving health equality for women, girls, & people assigned female at birth. We're a Disabled People's Organisation + we chair the #WomensHealthWales Coalition.

To celebrate braille’s 200th anniversary, RNIB will be celebrating Braille 200 from September 2024 until August 2025. In March 2025 @sutranscription.bsky.social will be involved in an event as part of @rnib.bsky.social Braille 200 Tour. Details to follow 😀 #Braille200 www.rnib.org.uk/about-us/bra...

Yup.

Hey 👋🏻 I know money is tight in the #Charity Sector at the moment, so in the spirit of sharing, I’m offering some #Free time every Friday to talk #SocialImpact #Measurement. Not catches, just book on and let’s chat. You can just book in here: trst.uk/FridayFreebie Please share this post!

We're also recruiting #YoungCarers & #YoungAdultCarers looking after a family member receiving #PaliativeCare or bereaved in last 3yrs to give their experiences, to ensure future support is developed to meet their needs. Is this you? Please get in touch. #FamilialCarers #EndOfLife #Bereaved

Children's social care hasn't often had the attention it deserves Very refreshing to see a busy cross-party debate in Parliament on the issue this afternoon. And strong ambition for helping families early, supporting children to stay safely in their family & delivering better for children in care

Local democracy is an odd mixture of elected councillors being the face of professional staff who do most of the real work. It’s been interesting to see how dedicated the staff (the officers) are. Then, with a change of administration, to see them respond so positively to new priorities.

“balance”

Still the largest Auto Freedom outdoor piece. Location: London Bicycle Cafe. londonbicyclecafe.com

Sadly, this is so very true. I know this first hand from the death of my daughter Robyn, who was killed bicycling on June 24th, 2019.

🎓New Fully Funded #PhD Opportunity: Understanding and evaluating restorative approaches in response to patient safety incidents. To find out more and to apply: phd.leeds.ac.uk/project/1949...

Did you care for a family member who died when you were aged 25 or under? #NewResearchProject #NothingAboutYouWithoutYou #YoungCarers #YoungAdultCarers #Bereaved #PalliativeCare #HaveYourSay #GetInTouch #PleaseShare @nhkelly2.bsky.social