As it's the end of #MEAwarenessMonth we've added up the donations of my daughters fundraiser for ME Research UK. So far she has raised £1097.80 in memory of her sister wonderful.org/fundraisers/...

Sometimes it is difficult To know which way to turn, But listen in those moments, There’s often lots to learn ~ Life will give you challenges, Oceans you must cross But the best time to find yourself Is when you’re feeling lost. Links to buy are in our bio, or visit: www.foxunderthemoonart.com 🦊🌙

On #MECFSAwarenessDay I'm calling for government to #FundThePlan. A plan for #MECFS with no funding is no plan. It's time for government action. #MillionsMissing @ashleydaltonmp.bsky.social

After due consideration, having weighed up the relevant evidence, assessed the balance of arguments and gamed the likely implications, I have reached the conclusion that Keir Starmer can fuck off from a great height.

🌠On #MEAwarenessDay we fight for visibility, research, and justice. 🛌Millions are missing. We deserve to be seen, believed, and treated. 🧪We need urgent biomedical research to make progress. #MillionsMissing

This came up in my fb memories today. Isla wrote about her pushy GET driven OT and @tymestrust published it. How I regret being referred to that OT. tymestrust.org/tymespublicati…#MEAWARENESSMONTHTH#severeMEM#rememberingislala

It's 8 months today since my daughter Isla died. She was 18 & had Severe ME, POTS & MCAS. She'd been ill since she was 6 yrs old. We're still waiting for Pathology results, still waiting for answers. Sharing a photo from early on in her ME journey. #ME #SevereME

13 yrs ago today Isla (6) and her sister (1) had tonsillitis. Isla was never well after this and was diagnosed with ME 14 months later. Years of deterioration culminated in her death last year. #ME/CFS #severeME

When life seems overwhelming and your cat knows just what you need #siblingloss #cattherapy #bereavement

Day 12 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to my daughter Isla who died in May. Isla loved all things prehistoric and would have loved this dinosaur. #severeME #dinosaurs #childbereavement

Day 11 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Brachiosaurus made by Isla's younger sister. #severeME #dinosaurs #siblingloss

Day 10 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a Baryonyx model. #severeME #dinosaurs #siblingloss

Day 9 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Brontosaurus made by Isla's younger sister. #severeME #crochet #siblingloss

Day 8 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Triceratops made by Isla's younger sister. #severeME #crochet #siblingloss

Day 7 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a cuddly Triceratops. #severeME #siblingloss #dinosaurs

Day 6 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla. Today's dinosaur is a bright sequinned Triceratops. Not sure Isla would approve of this one, she wasn't a fan of sequins but we needed more dinosaurs to fill the tree up! #severeME

Day 5 of our 12 Dinosaurs of Christmas from our 🦖 themed Christmas tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Plesiosaurus, made by Isla's younger sister. #severeME #mecfs #siblingloss #dinosaurs #crochet

Day 4 of our 12 Dinosaurs of Christmas from our 🦖 themed Christmas tree. Today's dinosaur is a felt Christmas TRex. #SevereME #Dinosaurs #Siblingloss #grief

Day 3 of our 12 Dinosaurs of Christmas from our 🦖 themed Christmas tree. Today's dinosaur is a cuddly Tyrannosaurus

It's now 7 months since Isla died and we're still waiting for Pathology results. No idea how much longer we'll have to wait. #severeME #mecfs #grief

Day 2 of our 12 Dinosaurs of Christmas is an Archaeopteryx that has been crocheted by my daughter in memory of her sister Isla. #severeme #mecfs #dinosaurs #siblingloss

My daughter wants to share 12 dinosaurs from our dinosaur 🦖 themed Christmas tree 🎄 in memory of her sister Isla who was fascinated by all things prehistoric. Dinosaur 1 is a felt Triceratops. #severeme #mecfs #dinosaurs #siblingloss

It's Children's Grief Awareness Week. The toddler here is now 14 & trying to deal with the loss of her sister Isla. Like Isla she has ME & POTS, a cruel twist of fate that these conditions make dealing with grief so much harder. Emotional energy causes so much PEM. #CGAW24 #ME

This is a lovely Etsy shop with beautiful pieces in it. Really recommend. I've purchased something for my daughter and she's going to love it. @craftymissb.bsky.social Thank you so much

@counsellingsam.bsky.social wrote a brilliant article on the canary - accurately reflecting how harmful all the labour rhetoric around benefits is. It just feels like tory rhetoric but this time with a red logo instead of a blue one. At which point are we just going to call this what it is: eugenics

Those who have been blessed enough to never have to deal with multiple #chronicillnesses usually give me the deer in the headlights look when I mention even one of my chronic illnesses.

Disturbing. It’s hard enough when the whole medical profession is against you, but now we can’t even trust our own charities. Reform the ME Association. Establish board term limits. Make them accountable. Until then, don’t donate. ME Research UK, MEAction, or the OMF are alternatives.

When you're feeling ill but need a distraction - cat cuddles and crochet are the way to go. #me/cfs #myalgicencephalomyelitis

Hello BlueSky. We had held off starting a dedicated channel to see how BlueSky evolved instead posting all of our 10 Bylines on @bylinesnetwork.bsky.social, but given how fast BlueSky is growing, now is the time to make the jump. Please help spread the word that Central Bylines are now here

It's 6 months today since my daughter Isla died. She had Severe ME, POTS & MCAS. Still waiting for a Pathology report, still waiting for answers. Sharing a happy photo from 10 years ago. #ME #SevereME #thegreatestmedicalscandal

My first post here so what better to post than a cute cat photo