Galen Warden
@galen2.bsky.social
đ€ 449
đ„ 359
đ 28
Artist, Author, Crafter, Caregiver, Mom to Six adults, a dog, & a cat.
I am heartbroken to report that my sweet son James Strazza left us on May 4, 2026. His third book, Lowcountry: For the Eyes of the World, will be published in time for Severe ME week in August. I will post excerpts from it until then.
7 days ago
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Galen Warden
over 1 year ago
Poor
#MEcfs
care in Sweden contributes to patients committing suicide At least 10,000 Swedish people with ME are bedridden and unable to leave their homes. There are many who are so sick that they see no other option but to take their own lives.
www.altinget.se/artikel/sver...
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Sveriges usla ME-vÄrd bidrar till att patienter begÄr sjÀlvmord
Minst 10 000 ME-sjuka svenskar Àr sÀngbundna och kan inte lÀmna sina hem. Det finns mÄnga som Àr sÄ sjuka att de inte ser nÄgon annan utvÀg Àn att ta sitt liv. Det skriver Jenny Lundgren, förbundsordf...
https://www.altinget.se/artikel/sveriges-usla-me-vaard-bidrar-till-att-patienter-begaar-sjalvmord
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Binita Kane
over 1 year ago
Beautifully written by
@drjogreer.bsky.social
a Mum caring for a daughter with severe ME.
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'The Red Tree' and M.E. - One leaf at a time
Images used with kind permission from Shaun Tan
https://theredtreeandme.substack.com/p/the-red-tree-and-me-one-leaf-at-a
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Excerpt from my forthcoming memoir about severe ME:
meglobalchronicle.wordpress.com/2024/12/06/t...
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The Dark and Silent Abyss
How do you care for someone when light and sound cause pain? This weekâs post comes from Galen Warden, whose adult son, James, has Very Severe ME. Like many with ME, he suffers from hypersensitivitâŠ
https://meglobalchronicle.wordpress.com/2024/12/06/the-dark-and-silent-abyss/
over 1 year ago
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In case youâre wondering whether you have ME, or whether your long COVID has progressed to become ME, here is a fantastic short explanation from the Bateman Horne Center.
#mecfs
#longcovid
#myalgicencephalomyelitis
How to diagnose ME
youtu.be/8LXIXx7woCo
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The Basics: Diagnosing ME/CFS
YouTube video by Bateman Horne Center
https://youtu.be/8LXIXx7woCo
over 1 year ago
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Billy Hanlon
over 1 year ago
Newsweek: 'Map Shows US States With Highest Levels Of Long COVID' 'Around 400 million people worldwide are believed to have long COVID, and 17.8 million of those are in the U.S., according to medical journal JAMA.'
www.newsweek.com/map-shows-us...
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Map shows US states with highest levels of Long COVID
Worldwide, the condition is estimated to have an annual economic impact of approximately $1 trillion, around 1 percent of the global economy.
https://www.newsweek.com/map-shows-us-states-highest-levels-long-covid-1978437
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Penny
over 1 year ago
The History of ME. How a serious physical disease was hijacked by powerful influential psychiatrists leading to neglect and abuse of an entire patient population. Deaths. Collusion with government. A story that urgently needs telling.
#ME
#MECFS
#LongCovid
#journalists
medium.com/@abrokenbatt...
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ME/CFS Scandal Explainer
https://youtu.be/e0FNw0z3PVw
https://medium.com/@abrokenbattery/me-cfs-scandal-explainer-eb4c1bfb7464
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Encephalogirl has published a chapter from my forthcoming book to educate about Severe Myalgic Encephalomyelitis.
#myalgicencephalomyelitis
#severeme
#severemecfs
open.substack.com/pub/encephal...
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Galen & James, a life of very severe ME
Caregiver and advocate, Galen's upcoming book shares it all
https://open.substack.com/pub/encephalogirl/p/galen-and-james-a-life-of-very-severe?r=17hcni&utm_campaign=post&utm_medium=web
over 1 year ago
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My son James with
#verysevereME
is doing poorly. Weâve begun communicating with hand signals assigned to just a handful of his needs. My little sister is visiting me now, which gives me an emotional lift. Here we are walking my dog and cat in Sunday.
over 1 year ago
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Learning Bluesky. My first video post.
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over 1 year ago
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Is there a group here of people with Severe or Very Severe ME? Iâd like to follow it, if so.
over 1 year ago
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