Will you support us in producing #evidence based info? Easy to sign up to easyfundraising. Then shop with 8,000+ online retailers and brands which donate to us - no cost to you! Use the link below and easyfundraising will give us bonus donations. join.easyfundraising.org.uk/lyme-disease...

This is just "lab-confirmed acute"; does not include * those with the characteristic rash not needing a test * those late diagnosed by NHS lab test * a missed diagnosis - symptoms can be confusing. Summer 'flu? Check it out www.lymediseaseaction.org.uk

This is the reality of what a tick looks like to you. Would you spot it on your wrist? Best test, when feeling a small scab, is to use your fingers to see if it rocks back and forth. If yes, then get your tick remover!

SW counties of England have the highest no. of confirmed #Lymedisease cases per population www.bbc.co.uk/news/article... If you live or go on holiday to the SW be aware! The ticks are a lot smaller than the BBC image suggests! @ukhsasouthwest.bsky.social

You do not want to contract #Lymedisease. Do you have a defence plan? www.lymediseaseaction.org.uk/what-we-are-...

Cooler weather and the #ticks are out looking for a meal. You won't feel them attach and they'll stay until you remove them. See how they cling! www.lymediseaseaction.org.uk/wp-content/u...

European #Tick-Borne Disease 2026- preliminary programme published. www.etbd.eu Anyone from @ukhsa.bsky.social or @hpruezi.bsky.social going? We need to find out about current research, and start collaborations, as #TBDs on the rise in the UK.

Thankyou @adamjamesdance.bsky.social for questioning Dept of Health re cases of #Lymedisease in #Somerset. NB their answer (cases not up over the last 7 years) is misleading as that only applies to what is classified as lab confirmed acute cases. www.theyworkforyou.com/wrans/?id=20...

2 trustees back from #NordTick2026, now have to write up a summary. Many interesting talks & posters. Always good to meet researchers, clinicians & patient orgs we only see at international conferences. Notable how #TBE & #Neoehrlichia are growing topics yet to be major problem in UK.

Printed poster from brill @SciencePosters: easy to pack for #NordTick 2026 next week. Hope for good discussions to inform UK research which seems not to respond to need #ticks - yes; #Lyme -not apparent @hpruezi.bsky.social Can Europe help? @francelyme.bsky.social @tekenbeetziekten.bsky.social

Lyme disease: what #pharmacists need to know when someone asks them about "this funny rash". www.thepharmacist.co.uk/clinical/vac... @pcpa-uk.bsky.social @drzoewaller.bsky.social @clairewynn.bsky.social

If you know you get #ticks attaching to you and you need some protection, why not try a repellent. Plant based, effective and easy to use. www.lymediseaseaction.org.uk/what-we-are-...

New figures on #Lyme disease cases highlights the rise in "longstanding" Lyme. @UKHSA says may be previous disease, not active. But these people had test because of illness. Want #PIFTick accredited info on this? www.lymediseaseaction.org.uk/about-lyme/c... @theguardian.com

Highest no of cases in the SW and SE, as in previous years. Awareness is needed as we move to peak tick activity. @forestresearchuk.bsky.social @royalforestrysoc.bsky.social @dartmoorac.bsky.social @newforestcommoner.bsky.social

Treating patients as partners, to contribute a new important perspective, is much more effective than simply using patients to tick a box. But how to make the change?!

This is for syphilis. Note single dose #doxycycline also found to be successful in preventing #Lyme borreliosis following a tick bite. www.journalofinfection.com/article/S016... Maybe worth it in areas of high infection in ticks, though that's few places in the UK.

As it's in the top 10, here's hoping it has raised awareness. A bit horrifying that only 42% English survey responders would have prescribed doxycycline at the right dose. But maybe when faced with a case now, they would consult @nicecomms.bsky.social. Have to hope!

If you shop online, you can help us raise funds for #research into #Lyme disease using @easyfundraising.bsky.social - it costs you zero as the retailer donates on your behalf. Over 8,000 retailers will donate incl Booking.com, eBay, M&S and more. Visit: www.easyfundraising.org.uk/causes/lyme-...

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Easter holidays, get out and about and enjoy the Spring! But don't forget to check for #ticks after your #walking #camping trip! @theroyalparks.bsky.social @ramblersscotland.bsky.social If you want any posters for noticeboards, just ask us and we can send.

Whose health matters in the countryside? During #TickBitePreventionWeek we’re exploring ticks, tick-borne diseases and the links between human, animal and environmental health. @lymediseaseaction.org.uk explains the One Health approach: c-js.uk/3Otu3lM

Just to remind you - #ticks are beginning to get more active. If you work or exercise in garden, woodland, even town park, it might be worth a refresher. How do you spot them? and then remove them? www.lymediseaseaction.org.uk

Pain Cafes are free to join across #Somerset to help you to have a better quality of life despite long-term pain. Find your nearest group: bit.ly/PainCafeSome... Mandy, our Engagement Officer, will be at Community Pain Hub on 10 Feb 1pm-3pm, Priorswood Community Centre, Taunton. #LiveWellWithPain

Thanks! We do not know much about the micro-ecology of vectors&reservoirs (Lyme). Using his-res vegetation does not work: researchers collected the tick at low res. for many years (eg. 1 km. res.). We need high-res records and data. Also, the lack of homogeneous data for hunting, conservation, etc.

Fascinating and with surprising UK results, though we notice the careful word "tendency"! Thank you for the work and glad you enjoyed it. The other factors such as nature conservation may be more difficult to analyse as I guess data harder to come by.

You may have noticed that it has been a little bit wet recently ☔ This shouldn't stop you from getting out into the parks to connect with nature, especially as it is one of the best things we can do for our physical and emotional wellbeing 🙌 Find out more by reading on below 🔽

Approach your GP carefully if worrying about #Lyme disease. They know there is a lot of poor info on the internet, so stick to facts and have a look here first www.lymediseaseaction.org.uk/resources/se...

Gosh - all those familiar faces who helped us from May 2010 all the way through to publication in Jan 2013! Huge thanks to you all for keeping going and growing and strengthening the JLA to where you are now.

Pain systems in the brain light up when people are rejected. Would this amplify pain of people with post treatment #Lyme disease? They are rejected, not investigated & not even considered to have a real problem. @liverpooluni.bsky.social seems to have abandoned the area. @benedictneuro.bsky.social

New blog on the hub this week - When lived experience is embedded at every stage of research. Link: www.pslhub.org/learn/patien... #patientsafety

Worth noting that health organisations accredited to the @pifonline.bsky.social #PIFTick have proved that they have "obtained, recorded and referenced up to date, relevant and trustworthy evidence sources".

🌟 @lymediseaseaction.org.uk is now PIF TICK re-certified. This means its health information continues to be: - Evidence-based - Up-to-date - Easy to use and understand Get PIF TICK certified: pifonline.org.uk/pif-tick/how... #HealthInformation #PIFTICK

Happy Christmas to everyone out there and here's looking forward to some research insights on #Lyme disease in 2026. If you didn't know how a sheep #tick could disguise itself at Christmas, try this jigsaw. Best on tablet or PC. www.lymediseaseaction.org.uk/what-you-can...

Don't know where we'd be without brilliant @pdfsam.org Just used it to split out #tick-borne disease specific parts of Chris Whitty's CMO annual report for circulation. Gets 38Mb into something more easily readable, esp on mobiles! www.gov.uk/government/p...

🌟 @encephalitisint.bsky.social is now PIF TICK re-certified. This means its health information continues to be: - Evidence-based - Up-to-date - Easy to use and understand Get PIF TICK certified: pifonline.org.uk/pif-tick/how... #HealthInformation #PIFTICK

A real challenge is the start of the journey. #Researchers are signposted by their university department interests. #Patients are signposted by their (sometimes desperate) needs for solutions. Often the paths never even cross. @jameslindalliance.bsky.social

Social media can be a great way to find health information, but there are risks when using and sharing content. Our updated guide for the public gives tips on how to find trusted health information on social media. Download at piftick.org.uk/guide/how-to... #PIFTICK #HealthInformation

Now we know when we have the best chance of collecting nymph #ticks for demo - at night, in November, when it's damp! Wonderful study - big thanks to the persisting researchers. @hannahvineer.bsky.social www.biorxiv.org/content/bior... Night hunting #cats need continued tick protection.

BBC World Service asks 4 experts about #Lyme disease. www.bbc.co.uk/sounds/play/... First quick summary fails to say it was a mother, Polly Murray, who pushed for investigation of the arthritis outbreak in Connecticut. Why are patients always brushed aside? @patients-association.org.uk

AI can gather stories in the blink of an eye. But from where? Only from stories all ready digitally told. Potentially useful (many of them) but potentially misleading, so safeguards on context and date are vital.

Topics from the use of health data for research to the medicines supply chain are explained in a new set of videos from @abpi.bsky.social. The series of short clips cover key topics central to the ABPI work and mission. Head to their YouTube page to see the full list here: lnkd.in/ecCH_hPN

To bring people outdoors is undoubtedly good for their mental health. We do need to make people aware of #ticks and #Lyme disease in a way that does not put them off outdoor activity @newforestnpa.bsky.social @saragandy.bsky.social @bethpurse.bsky.social

We are very happy to announce the new-look PIF TICK website is now live. The revamped PIF TICK website helps people find trusted health information and avoid dangerous misinformation. See the updated PIF TICK website here: piftick.org.uk Read the news story here: pifonline.org.uk/news/pif-tic...

Paper for consideration by those looking at post treatment #Lyme disease. #Lyme arthritis solved, so what about other manifestations caused by interaction of #Borrelia with #immune system? Any #research interest out there thinking of #PPIE? (said more in hope than expectation). @nihr.bsky.social

He also emphasised that uncertainties must be acknowledged, or trust is lost. You cannot reach people (to inform on misinformation) if they do not trust you.

A mistake to support it perhaps, as not fair to encourage people to spend money on those T-spot tests which have been shown not to be useful. A desperately sad story, and we do need more UK research.

It doesn't help, does it. Really sorry for the girl and her family. We have a Reality Check page which mentions that T-spot tests have been shown not to be useful. www.lymediseaseaction.org.uk/about-lyme/r... NB some late Lyme cases can test -ve if immunosuppression, or early inadequate treatment.

Quite right. That is why amoxicillin is recommended by NICE when a second treatment is needed. Point about doxycycline is that it penetrates spinal fluid well and sometimes that is needed. Need #research on UK patients, though, which is not happening @ukhsa.bsky.social @hpruezi.bsky.social

All change. Hope this new team can deliver www.gov.uk/government/n... @nationalvoices.bsky.social

Are you joining our webinar exploring best practice in multimedia health information on 15 October? Speakers include: - @josephfreeman.bsky.social from NHS England - The Worst Girl Gang Ever Foundation - @askawayhealth.bsky.social Book here: pifonline.org.uk/training-eve... #HealthInformation