Paper for consideration by those looking at post treatment #Lyme disease. #Lyme arthritis solved, so what about other manifestations caused by interaction of #Borrelia with #immune system? Any #research interest out there thinking of #PPIE? (said more in hope than expectation). @nihr.bsky.social

He also emphasised that uncertainties must be acknowledged, or trust is lost. You cannot reach people (to inform on misinformation) if they do not trust you.

A mistake to support it perhaps, as not fair to encourage people to spend money on those T-spot tests which have been shown not to be useful. A desperately sad story, and we do need more UK research.

It doesn't help, does it. Really sorry for the girl and her family. We have a Reality Check page which mentions that T-spot tests have been shown not to be useful. www.lymediseaseaction.org.uk/about-lyme/r... NB some late Lyme cases can test -ve if immunosuppression, or early inadequate treatment.

Quite right. That is why amoxicillin is recommended by NICE when a second treatment is needed. Point about doxycycline is that it penetrates spinal fluid well and sometimes that is needed. Need #research on UK patients, though, which is not happening @ukhsa.bsky.social @hpruezi.bsky.social

All change. Hope this new team can deliver www.gov.uk/government/n... @nationalvoices.bsky.social

Are you joining our webinar exploring best practice in multimedia health information on 15 October? Speakers include: - @josephfreeman.bsky.social from NHS England - The Worst Girl Gang Ever Foundation - @askawayhealth.bsky.social Book here: pifonline.org.uk/training-eve... #HealthInformation

For infected insect bites it is vital that #pharmacies carefully follow criteria & CKS guidance cks.nice.org.uk/topics/insec... in case of #Lyme disease rash. The antibiotics for infected bites will not cure #Lyme and may make diagnosis harder by affecting later blood test results.

Excellent talk by Prof Chris Whitty @lshtm.bsky.social Health #Misinformation event. Pointing out that doctors, academics, public health must say where there is uncertainty, or they lose trust. In UK #Lyme disease there is a lot of uncertainty and we must acknowledge it or we won't solve problems.

Interesting line up of speakers for this important topic. www.lshtm.ac.uk/newsevents/e... Something that @pifonline.bsky.social are tackling.

This was what we meant to repost. @ukceh.bsky.social @bethpurse.bsky.social @geoffreycoxmp.bsky.social @smhopkins.bsky.social #Ticks and #tick borne diseases next perhaps? TBDs on the rise and public and clinicians not fully aware. Research on UK patients is needed to inform guidelines.

#Ticks and #tick borne diseases next perhaps? @bethpurse.bsky.social @geoffreycoxmp.bsky.social @smhopkins

JLA final workshops are a collaborative space for patients, carers and healthcare professionals to agree on the research priorities that matter most to them. Feedback from participants highlights how valuable this process can be for individuals, and for shaping future research.

Really interesting study- thanks to all of the researchers. @royalforestrysoc.bsky.social @newforestcommoner.bsky.social @moorlandassoc.bsky.social

Need to find #ticks for tomorrow's #MelplashShow nr #Bridport. Land around is v dry but finally, one nymph! Need to show everyone how small a tick is so they can avoid #Lymedisease. Come and get some sane, #PIFTick (no pun!) accredited info. @georgemcgavin.bsky.social @milesking.bsky.social

A report from @ukhsa.bsky.social of a rare tick found in Oxford - Hyalloma marginatum. Climate change is bringing changes, so watch out for strange ticks. www.lymediseaseaction.org.uk/latest-news/...

Sounds as if could also apply to European Borrelia - @anjag-5342.bsky.social ?

Difficult for politicians to take on board that NHS organisations and health professionals do not always know best about health. Some aspects of it, yes, but others, definitely not.

At last stats for #Lyme disease reported cases in 2024. Slightly fewer than 2023, except East of England - big increase from 46 in 2023 to 77 in 2024- more awareness? SW had most cases per head of population by a long way. @ukhsasouthwest.bsky.social @lapdevon.bsky.social www.gov.uk/government/p...

Hope this was based on valid test and he has correct treatment. #Lyme disease is easily curable if treated early but can often be horrendous if not, and worse when you are not believed. Reality check Q&A here www.lymediseaseaction.org.uk/about-lyme/r... @erinbiba.bsky.social @emmajourno.bsky.social

Our library of #References is critical to our #evidence base & it is v good news that the superb #Mendeley Desktop, which we have used for 15 years, is here to stay blog.mendeley.com/2025/07/09/m....

Last week, we exhibited at #HSRUK25 and had a great time connecting with colleagues across the health and social care sector. Many attendees were already familiar with or involved in JLA PSPs, and it was a fantastic chance to introduce others to the impactful work of PSPs.

Not just an ethical imperative, but a clinical imperative that will accelerate research in the right direction @jameslindalliance.bsky.social @ippin.bsky.social @jamesfm55.bsky.social @penarc.bsky.social

Not yet circulating in the UK, but if you are going on holiday to Europe, or elsewhere overseas, be aware, and take an insect repellent with you. It will also deter #ticks!

A bit damper out there and the ticks are on the move. They are part of our #wildlife, but you don't want one on you! We can offer a choice of tools - take your pick. @moorlandassoc.bsky.social @richmondramblers.bsky.social @themessyecologist.bsky.social www.lymediseaseaction.org.uk/what-we-are-...

🌟MISINFORMATION EVENT🌟 Join our @lshtm.bsky.social Health Misinformation: UNPACKED event to hear from leading voices on how to understand and combat the rising tide of health #misinformation in the UK 🗓️ 15 September 2025 ⏰ 13:00-17:00 GMT 📍 LSHTM Get tickets 👉 bit.ly/LSHTMHealthM...

MPs might be interested in a #PIFTick accredited UK charity's view of #Lyme disease. youtu.be/eXfo1DFoU-0 @chrisbloore.bsky.social and @lisasmartmp.bsky.social Maybe let colleagues & @commonshealth.bsky.social know that UK research is needed.

Putting to bed that 'anecdotal tale' especially here in Europe, and confirming for the naysayers that mosquitoes truly are not vectors for the Lyme Disease pathogen. parasitesandvectors.biomedcentral.com/articles/10....

Has our view as a patient organisation dealing with tick-borne diseases changed? When we look out at who we try to converse with, is our view A or have we changed it to B? Find out what we said at the European conference here www.lymediseaseaction.org.uk/latest-news/...

1 in 10 people have been harmed by health misinformation. We are proud to partner with @ipsosintheuk.bsky.social's Ethnography Centre of Excellence to highlight this important issue. Our new film explores the impact of health misinformation – and how we tackle it. www.youtube.com/watch?v=OpCX...

Outdoors in the New Forest, working or walking? You're invited to join @ukhsa.bsky.social study to look at possible exposure to Lyme disease and tick-borne encephalitis virus (TBE). @newforestcommoner.bsky.social @newforestnpa.bsky.social @forestresearchuk.bsky.social @royalforestrysoc.bsky.social

Definitely. The ratio in short-chain acids in the smell of our skin results more or less attractive for ticks. Attractiveness depends too on the starvation of the tick. A good repellent would mimic a “disgusting” combination. This is a fertile field for research

Think you know what a #tick looks like? would you spot this if behind your knee? Awareness is key to avoid #Lymedisease. Check your skin with fingertips! @frptweets.bsky.social @royalforestrysoc.bsky.social

Could this also apply to #ticks? Many people report differences between family or friends. @btschirren.bsky.social @saragandy.bsky.social @ticklethetick.bsky.social @ticks7.bsky.social

Continuing symptoms after #Lyme disease - key research questions from USA. Growing problem in the UK, why so little interest? @lanceturtle.bsky.social @smhopkins.bsky.social @caminfectdis.bsky.social @lshtm.bsky.social

A new USA study to start to investigate the evidence for diagnosis and treatment for continuing symptoms following Lyme disease. We need this in Europe too! @hpruezi.bsky.social @escmid.bsky.social

Everyone needs trustworthy health information. The #PIFTICK accreditation scheme has now been going for 5 years - congrats to everyone at @pifonline.bsky.social who have kept it going. Health professionals should know where to signpost their patients to avoid misinformation @bmj.com

Asking Google a health question? Beware of the #AI answer at the top. You are safer going direct to a #PIFTick accredited charity or NHS.UK. See @pifonline.bsky.social and @mariecurieuk.bsky.social report for worrying problems and errors. pifonline.org.uk/resources/go...

Great notice board in Richmond Park @frptweets.bsky.social raising awareness of #ticks and #Lyme disease @theroyalparks.bsky.social. Anyone else need leaflets or images? Just contact us.

If you go up to the Moor today You may not come home alone, If you've been up to the Moor today You'd better check skin and bone, Cos every tick that ever there was Is gathered there for no good because . . read the rest! www.lymediseaseaction.org.uk/latest-news/... @ramblersscotland.bsky.social

Thanks @realdomjoly.bsky.social and Alice Reeve for raising awareness of #ticks and #Lyme disease. Evidence based information is what we all need - public & health professionals need to be aware. cheltenhampost.co.uk/comedian-dom...

It helps mice, but will it help humans?

Larval stage of tick so tiny it is easy to miss until it itches about 12 hours after attaching, like this one did this a.m. You need a magnifier or short sight. Or feel it wobble. Check before scratching and remove carefully!

Out for a walk? Showers in a few places will bring the #ticks out looking for a meal. Awareness is key - check your skin after being out on the moors, woods, garden. Small scab rocking back and forth? Reach for the tick remover! @ramblersscotland.bsky.social @healthwatchsom.bsky.social

Pheasant shoots increase #Lyme disease bacteria in local #ticks. www.bbc.co.uk/news/article... Not surprising really, as any big increase in wildlife would do so - except ruminants which kill Borrelia. Don't suppose foresters would welcome deer as potential balance though! @btschirren.bsky.social

Ticks evolved to stay firmly attached for the duration of their meal - several days! Invest in a proper #tickremover now as their season is getting underway. #tickawareness www.lymediseaseaction.org.uk/what-we-are-...

First spot your tick. Would you notice it on your leg? It doesn't hurt or itch until it's been attached for about 12 hours. Remove it with a tick remover and send it to the tick surveillance team @ukhsa.bsky.social

Help build the data. Report your ticks here www.gov.uk/guidance/tic...

A free pack of awareness leaflets on its way to Richmond Park Visitor Centre @frptweets.bsky.social. Ticks starting to move! Would @theroyalparks.bsky.social like another batch? @pifonline.bsky.social #PIFTick accredited info that every park visitor needs.

"Patients need to be part of the conversation from the start." But what if patients start the conversation and no-one will listen? A specialised #Lyme clinic (as in many European countries) to develop clinical expertise and help patients. How about it @hiwessex.bsky.social? Would anyone listen?