🧵 ✨ We’re delighted to share that the Care Quality Commission (CQC) has awarded a three-year contract to the Voices for Health Equity Partnership to deliver its Public Engagement Network programme from 1 April. [1/6]

This month we have published new user-led information on assisted dying for our website. Here’s why (a thread) ⬇️ compassionindying.org.uk/blog-post/ne...

This week marks the next stage of our major public dialogue reviewing the 14-day rule for human embryo research, in partnership with @sciencewise.bsky.social and delivered by @ipsosintheuk.bsky.social, @nationalvoices.bsky.social and @theliminalspace.bsky.social. Find out more here:🔗 bit.ly/4rFZZ4B

📢 Beyond compliance: Why patient engagement must shape medical device design In this week's blog, Louis Horsley, National Voices' Research and Insight Manager, stresses the importance of medical device design being shaped by meaningful patient engagement. 🔗 tinyurl.com/2bdk3m42

🚀 Organising cancer care around people, not systems Earlier this week, the government launched its National Cancer Plan for England. In a new blog, @matt-heath.bsky.social, Policy and Comms Manager at National Voices, reflects on the Plan and its person-centred approach. 🔗 tinyurl.com/ye23uhwh

🚀 Turning lived experience into impact In this week’s blog, Katie-Rose, a National Voices' Lived Experience Partner, reflects on using her lived experience to help shape and analyse our research into patients’ experiences of medical devices outside hospital settings. 🔗 tinyurl.com/bp566t43

🧵 🚀 Today, we’ve published a new report with the Department of Health and Social Care, Patient views on medical devices prescribed to them outside of hospital in England, exploring people’s experiences of using medical devices prescribed under Part IX of the NHS Drug Tariff. 📄 tinyurl.com/ys754rbp

🚀 We’re pleased to announce the publication of our new report summarising a roundtable discussion we held with some of our member charities in mid-November. [1/4]

In this week’s blog, Tim Clarke shares how the NHS Transformation Directorate is tackling digital exclusion head-on, from library partnerships and free data schemes to inclusive design and accessibility testing across the NHS App and website. 🔗 tinyurl.com/4aefm427

📢 In this week’s blog, Jacob Lant, Chief Executive at National Voices, argues that the NHS doesn’t need more patient feedback, it needs to start listening to and acting on the vast experience data it already has. 👉 tinyurl.com/z62f8hbr

📢 In this week’s blog, Louis Horsley, National Voices’ Research and Insight Manager, shares new research commissioned by the Care Quality Commission (CQC) for the State of Care 2024/25 report, exploring people’s experiences of follow-up care after hospital discharge. 🔗 tinyurl.com/49skzzfu

🧵 📢 The British Medical Association (BMA) has announced industrial action by Resident Doctors at NHS organisations across England from 14 November to 19 November. Here’s our response. 1/5

🧵 💡 How do we get more health value from every pound invested in the NHS? National Voices is proud to be supporting @The Health Foundation with their new NHS Productivity Commission, which is asking this very question. [1/4]

📢 In this week’s blog, Catherine Jameson, Vikki Wylde, Emma Johnson and Kirsty Roberts, researchers from the @bristoluni.bsky.social, share how they co-produced an inclusive patient information leaflet (PIL) template to make research participation more accessible to everyone.

We recently said a fond farewell to Sharon Brennan, after two and a half years as Director of Policy & External Affairs. Before moving on, Sharon penned a thoughtful blog about her time at National Voices, and the impact of embedding lived experience in policy influencing. 🔗 tinyurl.com/yp9uxhmt

🧵 🚀 National Voices’ new research with the Care Quality Commission explores patients’ experiences of follow-up care after leaving hospital. 🔗 tinyurl.com/76nepdcx [1/4]

Unpaid carers are at breaking point. Our new #CostOfCaring report reveals a system stretched to its limit – and it’s carers who are paying the price. 52% are caring for longer hours 49% have cut back on essentials like food and heating 42% say their health has worsened

Today, the National Voices team had the pleasure of hearing from @tinukeawe.bsky.social , co-founder of Five X More, who shared the vital work she and Clotilde Abe are leading to improve the experiences and outcomes of Black maternal health in the UK. [1/5]

To mark #ChallengePoverty Week, Jamie Thunder, Senior Policy Manager at @mariecurieuk.bsky.social reflects in our latest blog on how poverty shapes people’s final months and highlights the action and support needed to end financial hardship at the end of life. 🔗 tinyurl.com/bdfpnjdf

In this week’s blog, Gethyn Williams, part of the GoVo Help Team at the Royal Voluntary Service, introduces GoVo, a new national volunteering platform designed to make finding and offering volunteering opportunities simpler, more flexible, and inclusive. 🔗 tinyurl.com/ym9ywy37

How far have we come in improving LGBTIQ+ cancer care? In this week’s blog, OUTpatients explores progress in LGBTIQ+ cancer care, from screening access to specialist guidance, and discusses what still needs to be done to achieve equity. 🔗 tinyurl.com/ycypmyaa

Good to hear @sharonbrennan.bsky.social @nationalvoices.bsky.social championing the crucial role that VCSE’s will play in realising the shift to community and brilliantly making the point that the 10YP care plan target must not result in tokenistic recording of patient wishes. #LabourConference2025

🧵 Why we’re speaking out: National Voices is committed to challenging inequality and discrimination – in access to health and social care, across the VCSE sector, and in wider society where we can. [1/4]

In her farewell blog, our Senior Policy and External Affairs Officer, @lucysey.bsky.social, reflects on three and a half years at National Voices, exploring how collaboration can turn individual stories into lasting system change. 🔗 tinyurl.com/58ssppne

🧵 Today is LGBT+ Parents and Carers Day 🌈 At National Voices, we stand with Proud 2 b Parents and all those celebrating. This year’s theme is Visibility — ensuring LGBT+ parents, carers and their children are seen, heard and valued. #LGBTQIAParentsCarersDay [1/3]

📢 EXCLUSIVE: Over a quarter (26%) of leukaemia patients in England experience avoidable delays in their diagnosis, resulting in a significant impact on patient outcomes and NHS resources, according to the results of a study commissioned by Leukaemia UK. 👇 (1/2)

Read more about the findings in our report: www.leukaemiauk.org.uk/news/1-in-4-... (2/2)

Last month @nationalvoices.bsky.social published a blog where we explored what information and support people need in order to understand assisted dying laws that are currently being considered across the British Isles. compassionindying.org.uk/blog-post/as...

📣 We’re hiring! National Voices is looking for a Project and Policy Officer to support our work advocating for inclusive and person-centred care. We welcome applications from people who want to make a real difference in policy and practice.

@nationalvoices.bsky.social are recruiting Lived Experience Partners to join their team. Lived Experience Partners will work with the team to inform and influence their work, providing unique insight and expertise. Apply for this role by 12th September. www.nationalvoices.org.uk/work-with-us...

🚀 New to the blog! Over 2300 people told @compassionindying.bsky.social what they need to make informed choices about assisted dying. Jemma Woodley shares their findings, and why the third sector must lead the way with clear information and supportive conversations. 👉 tinyurl.com/yhum8eyn

This looks like a timely report from the ever relevant @centreformh.bsky.social on the interface between the neighbourhood agenda and mental health. And it references a piece of work I did with them at @nationalvoices.bsky.social 'Ask me how I am'. www.centreformentalhealth.org.uk/publications...

🚀 We’re recruiting! National Voices is looking for more Lived Experience Partners to help shape and influence our work with their unique insights and expertise. 🔗 Find out more here: tinyurl.com/5n7xh4k8 📆 Apply by Friday 12 September.

🧵 📢 We’re delighted to announce our involvement in supporting a two-stage public dialogue on the future of the 14-day rule for human research with @nuffieldbioethics.bsky.social and @ipsosintheuk.bsky.social. 🔗 tinyurl.com/4rxyr9r7 1/4

🚀 New to the blog! @chiaradebiase.bsky.social, Director of Health Services, Equity and Improvement at @prostatecanceruk.bsky.social, shares how the charity is investing into advancing racial health equity, and the work that still needs to be done. 🔗 tinyurl.com/5ejtacd8

🧵 📢 We are delighted to share our new report: ‘How do Core20PLUS Connectors perceive their impact?’ The report explores the experiences of Core20PLUS Connectors and VCSE coordinators – capturing their reflections on the programme’s successes and impact. 👉 tinyurl.com/4nnsmsc3 1/4

📢 Our latest report-created with the Care Quality Commission (CQC), @healthwatchengland.bsky.social and other great partners- is now live! The report reflects on the Share for Better Care campaign and shares what we heard back from the public. 🔗 tinyurl.com/4km54hzt

🚨 A new joint policy paper from @centreformh.bsky.social and @prisonadvice.bsky.social highlights a growing mental health crisis in prisons and calls for urgent reform in how funding is allocated to support people with mental health needs. 🔗 tinyurl.com/43wr3s4s

🧵 🚨 New NHS data exposes inequalities in elective care access The Waiting List Minimum Data Set (WLMDS) was released yesterday. The WLMDS provides, for the first time, a demographic breakdown of who is waiting for NHS treatment and for how long. 1 /4

🧵 🚨 We’re excited to see the launch of ‘Diagnosis Connect’, a new service that will refer people diagnosed with long term health conditions to expert charities that can provide support, information, and guidance to help individuals better manage their condition. 1/5

As the NHS embarks on delivering its ambitious 10 Year Health Plan, success depends not just on what changes are made, but how they’re implemented.

🚀New to the blog! @lucysey.bsky.social, our Senior Policy & External Affairs Officer, shares insights on the refreshed Accessible Information Standard (AIS). 👉 tinyurl.com/ytnypxhj

'Politicians must stop their unthinking defence of hospital care', says National Voices' Chair Helen Buckingham. 🗞️HSJ article: tinyurl.com/5cp62pdh

NEW GP Patient Survey 2025 ⚪75% of patients had a good overall experience of their GP practice ⚪ Overall experience of using pharmacy and NHS dental services has increased since 2024 ⚪70% of patients had a good overall experience of contacting their GP 👉 gp-patient.co.uk/

🧵 🚨GP Patient Survey (GPPS) 2025 results are out! The results show an improvement on overall experience with GP practices. 🔷70% report a good overall experience of contacting their GP (67% in 2024) 🔷75% report a good overall experience with their GP (74% in 2024) GPPS 2025: tinyurl.com/mr4dehrn

🧵 🎊Last night, the Women in Charity Network (WICN) celebrated its first anniversary with a summer reception and panel discussion. Among the speakers was our Director of Policy and External Affairs, @sharonbrennan.bsky.social who raised the key question of, ‘What are we not going to do?’ 1/4

📢 National Voices reacts to the 10 Year Plan for the NHS Today, the government published its long-awaited 10 Year Plan, following eight months of work to set out a vision for how the NHS can evolve to meet “the changing needs of our changing population.”  Our response👉 tinyurl.com/10YearPlanRe...

It is great to see our call for a comprehensive, National CVD Plan amplified by our partners in this timely National Voices blog 🫀 We fully agree that prevention, health equity and patient voice must be at the centre of the forthcoming 10 Year Plan. Read below 🔗

Helen from @diabetesuk.bsky.social and I wrote a @nationalvoices.bsky.social blog about the top things we'll be looking out for in Thursday's #10YearHealthPlan. For millions of people with painful, complex health conditions "patient power" is a distant dream www.nationalvoices.org.uk/blogpost/the...

🚀 Expectations for this week’s 10 Year Health Plan are sky-high. In this blog, @clarewoodford.bsky.social (Stroke Association) & Helen Kirrane (Diabetes UK), singled out the four issues most vital to the people their charities support, which they are hoping to see addressed. 👉 tinyurl.com/5n7pz5s8