Dying people’s voices must be at the centre of design and delivery. Our latest blog responds to the government’s prioritisation and commitment to improve Palliative and End of Life Care through a new Modern Service Framework. compassionindying.org.uk/blog-post/tu...

The next stages of the SPR must incorporate people in the last year of life and include the option to complete advance care planning within the delivery of the NHS App.

It’s been almost two years since the HSJ published our piece highlighting how dying people are being failed by the NHS’s approach to sharing information. Unfortunately, from what we hear through the people we support, not much has changed.

Good to hear @sharonbrennan.bsky.social @nationalvoices.bsky.social championing the crucial role that VCSE’s will play in realising the shift to community and brilliantly making the point that the 10YP care plan target must not result in tokenistic recording of patient wishes. #LabourConference2025

Thanks @nationalvoices.bsky.social As assisted dying laws are being considered across the British Isles, our latest blog explores what information and support people need to understand the law and have conversations with healthcare professionals about assisted dying.

Usha: we are not talking about corralling people into a certain set of decisons...one size does not fit all.

How do you make culture change real?

📢 New webinar! Join us as @charlotteaugst.bsky.social chair’s a 60 minute solutions-focused webinar where we discuss what’s needed to build a successful public health campaign that helps people to make end-of-life decisions that are right for them. www.eventbrite.com/e/supporting...

🎙️ New episode in our #ACPDay2025 series! Dani, James & I talk: 🎯ADRTs @kitzingercelia.bsky.social 🎯LPAs 🎯How YOU can be part of the movement on 7 May & beyond 🎧 speakforme.co.uk/podcast-epis... 📣https://advancecareplanday.org/ #AdvanceCarePlanning #DyingMatters #LPA #ADRT #OpenJustice

This is a great example of what we do at Compassion in Dying - find practical solutions to help people navigate decisions when they're not being listened to. We see lots of examples that show how policy is good but the gap between that and practice can be vast.

This is such an important point. We can't 'sort' dying just by investing in services (important though that is). We need to invest in community: its understanding, choices and agency.

We need to make sure what comes out of the 10 year plan for end of life care includes a new focus on listening to and foregrounding the wishes of people. 👀 Some thoughts from me 👇

In 2023 my lovely former colleague, Pavi Brar, & I identified a gap – there was no space for those beginning their career in the VCSE sector to meet & grow together. This acted as the catalyst for @nationalvoices.bsky.social's Next Generation Network. www.nationalvoices.org.uk/project/nati...

New findings from @mariecurieuk.bsky.social @nuffieldtrust.bsky.social and Health Economics Unit make for an important read. Current health spending for people in their last year of life is disproportionately distributed towards hospital care rather than primary and community care services.

I agree with this wholeheartedly. We need both.