Happy birthday!! The HD patient association of Valencia, Spain, just celebrated their 25th birthday at the Instituto de Investigación Sanitaria La Fe. Our Lanco Marta was there to discuss Enroll-HD. Find out more at iislafe.es. #HuntingtonsDisease #HuntingtonsDiseaseAwareness

Porta San Niccolò, in Florence, lit up for #Lightitup4HD! It was the kick-off of the festival #AREA4HD, organized by That Disorder. This festival brings art and science to raise education and awareness, building connections and using art as tool for advocacy. #HuntingtonsDiseaseAwareness

And that's a wrap for this Lanco meeting in Brussels. It was great seeing everyone and catching up on #enrollhd and #huntingtonsdisease science progress. See you all in Krakow at #EHDN2026

HD patients at Bellvitge Hospital in Barcelona took some time out between therapy sessions to raise awareness for HD. Looking good in this month’s colors: blue for Huntington’s Disease, purple for juvenile HD! #huntingtonsdiseaseawarenessmonth #huntingtonsdisease

Sant Pau Hospital, in Barcelona, is one of our biggest Enroll-HD sites in Spain. The movement disorders group has an annual video meeting and they took that time to celebrate the HD Awareness Month. #HuntingtonsDiseaseAwarenessMonth #HuntingtonsDisease

The clinical genetics & research team at Leeds, one of our Enroll-HD sites, is looking sharp wearing blue for HD and purple for juvenile HD. #HuntingtonsDiseaseAwarenessMonth #HuntingtonsDisease

This year, the European Academy of Neurology’s Congress will open with a true scientific highlight: the Brain Prize Lecture by Professor Frank Winkler, joint winner of the Brain Prize 2025. Find out more at www.ean.org/congress2026 #EANeurology #EAN2026 #Neurology

Spain is on fire on this Huntington’s Disease Awareness Month! The HD team at FINBA, in Asturias, Spain, had a meeting with families earlier this month. They had fruitful discussions, coffee, and some lighthearted hanging out. #HuntingtonsDiseaseAwarenessMonth #HuntingtonsDisease

EHDN's Occupational Therapy Working Group has published updated and expanded their Occupational Therapy Clinical Tips for Huntington's disease - Seating and Lying: www.hda.org.uk/seecmsfile/?... Find out more about joining EHDN working groups at ehdn.org @hdai-ie.bsky.social #HuntingtonsDisease

Today, on International Huntington’s Disease Awareness Day, our team is wearing purple for Juvenile HD and blue for Huntington’s Disease awareness💜💙 Learn more about HD and the support available through the Huntington’s Disease Association: www.hda.org.uk #InternationalHDAwarenessDay

For more than 15 years, Hospital Universitario Cruces, in Bilbao, Spain, has been supporting families living with Huntington’s Disease. This HD Awareness Month, they came together wearing blue, the color of HD awareness, and absolutely lit up the room! #hdawarenessmonth #huntingtonsdisease

In the spirit of HD Awareness Month, the Leicester team showed up to their team meeting in beautiful blue to help raise awareness of Huntington’s Disease! Some staff members are also taking part in HDWalk26. Go Leicester! #HDAwarenessMonth #HuntingtonsDisease

May is #HDAwarenessMonth, and the Enroll-HD centers and patient associations are already hard at work! Check out ASHUBI—Asociación Huntington Bizkaia (ashubi.org) rocking this month's colors while organizing their annual meeting: blue for HD and purple for juvenile HD. #HuntingtonsDisease

All sessions will be open to clinicians, scientists, advocates, and family members. There will be opportunities to connect, collaborate, and engage across the Huntington’s disease community. Find our more and at: ehdn.org/ehdn2026/ #HuntingtonsDisease

Today, the occupational therapy working group met to discuss future clinical tips to improve HD patients' care. There are great thing to come! There is a working group for every HD expert. Check it out on the EHDN webpage. #huntingtonsdisease #occupationaltherapy

Today is #hdgratitudeday ❤️ We are proud to stand with the global #HuntingtonsDisease community in recognising the unique and ongoing collaboration between HD families, clinicians, and scientists.

"Beyond the Frame, Within the Journey: Documenting Life with Movement Disorders" invites all to share visual stories about the human side of living with movement disorders. thatdisorder.org #BeyondTheFrame #PhotographyContest #MovementDisorders #HuntingtonsDisease

Join @factorh_org for this year's gratitude day on Sunday, March 22 | 9:00 AM PST | 12:00 PM EST| 16:00 PM GMT | 17:00 PM CET, livestreaming from Venezuela. Register on their webpage (www.factor-h.org). Also, post your picture with H-hands with the hashtag #hdgratitude.

Latest Newsletter now released! Highlights include the Path4HD-ISS2 initiative, a multidisciplinary educational course in Latin America, and the latest developments from EHDN-endorsed studies, as well as Enroll-HD and HDClarity. Read the full issue here: lnkd.in/eSWzMTPX

#LightUpForRare #HuntingtonsDisease @rarediseaseday.bsky.social

Enroll! Newsletter translations are on their way! You will soon be able to find them at enroll-hd.org/for-hd-famil... #EnrollHD #HuntingtonsDisease

EHDN Platform Meeting - Is it time to target inflammation in Huntington's disease?

"A love story in a scientific journal" - this is how Alex Fisher describes her article about the development of a Caregiver Programme in Barranquitas through Factor H. Read it at lnkd.in/eqGAUQk6 #FactorH #HuntingtonsDisease

Let's build on the success of 2025 to make even greater things happen in 2026!

Great connecting with fellow investigators at the HDClarity Investigator Meeting during the Clinical Research Congress in Nashville 🎶🧠 Insightful discussions, valuable collaboration, and exciting progress ahead! 📊 Presentations from the meeting are now available on the HDClarity.net website.

A new Swiss study provides important insight into how CAG repeats in the Huntington’s disease gene can grow or shrink within our cells over time, improving our understanding of the forces that shape HD progression. Full Article: en.hdbuzz.net/a-tug-of-war...

Last week's Platform meeting video is now available on youtube

[SP] En la reunión de la SEN se reunieron los 13 centros españoles de Enroll-HD, EHDN y FEPAEH para apoyar a la comunidad de la EH. [ENG] The 13 Spanish centers participating in Enroll-HD, EHDN, and FEPAEH met at the SEN conference aiming to support the HD community. #EnrollHD

IT]🎉 Il 23 marzo, in occasione dell’HD Gratitude Day, That Disorder ha organizzato un evento speciale. [ENG] On March 23, in honor of HD Gratitude Day, That Disorder organized a special event. #HDGratitudeDay #ThatDisorder #HuntingtonsDisease

Today is gratitude day!! The families around Lake Maracaibo worked with scientists for over 20 years and were crucial for the discovery of the HD gene, announced on March 23rd, 1993. Learn more: factor-h.org/gratitude-da... #HDGratitudeDay #factorh #HuntingtonsDisease

IT'S READY!!! The StreetArt4HD mural in Prague is finished. It was funded by Factor H in collaboration with HDYO in conjunction with their congress. AWARENESS IS THE SEED FOR CHANGE #streetartforhd #factorh #HuntingtonsDisease

Join us for the unveiling of the Art4HD Mural in Prague on March 13. This amazing work was created by DJLu Juegasiempre in collaboration with the HDYO. The Art4HD project is coordinated by #EnrollHD Global Manager, Selene Capodarca. #HuntingtonsDisease #Art4HD #HDYO #FactorH

[ENG] On March 3, 2025, our Lanco Marta was able to attend the first TERRETA (Treatments and rare diseases: advanced therapeutic strategies) conference in Valencia, Spain. The day had the participation of patients and their families. #EnrollHD #HuntingtonsDisease

[SP] El 03 Marzo de 2025 nuestra Lanco Marta ha podido asistir a las 1ras jornadas de TERRETA (Tratamientos y enfermedades raras: estrategias terapeuticas avanzadas) en Valencia, España. Una jornada con la participación de pacientes y sus familias. #EnrollHD #HuntingtonsDisease

[IT] Il 13 febbraio 2025, alla Fondazione Prada di Milano, si è tenuto un incontro sulla Malattia di Huntington. [ENG] On February 13, 2025, at Fondazione Prada in Milan, an event on Huntington’s Disease took place. #FondazionePrada #EnrollHD #HuntingtonsDisease

[SP] El equipo de EH de Burgos a recibido un reconocimiento por su trabajo multidisciplinar con los pacientes con EH. ¡¡Enhorabuena!! [ENG] The HD team at Burgos was awarded a recognition for their multidisciplinary work with HD patients. Congrats!! #EnrollHD #HuntingtonsDisease