Today is #hdgratitudeday ❤️ We are proud to stand with the global #HuntingtonsDisease community in recognising the unique and ongoing collaboration between HD families, clinicians, and scientists.

"Beyond the Frame, Within the Journey: Documenting Life with Movement Disorders" invites all to share visual stories about the human side of living with movement disorders. thatdisorder.org #BeyondTheFrame #PhotographyContest #MovementDisorders #HuntingtonsDisease

Join @factorh_org for this year's gratitude day on Sunday, March 22 | 9:00 AM PST | 12:00 PM EST| 16:00 PM GMT | 17:00 PM CET, livestreaming from Venezuela. Register on their webpage (www.factor-h.org). Also, post your picture with H-hands with the hashtag #hdgratitude.

Latest Newsletter now released! Highlights include the Path4HD-ISS2 initiative, a multidisciplinary educational course in Latin America, and the latest developments from EHDN-endorsed studies, as well as Enroll-HD and HDClarity. Read the full issue here: lnkd.in/eSWzMTPX

#LightUpForRare #HuntingtonsDisease @rarediseaseday.bsky.social

Enroll! Newsletter translations are on their way! You will soon be able to find them at enroll-hd.org/for-hd-famil... #EnrollHD #HuntingtonsDisease

EHDN Platform Meeting - Is it time to target inflammation in Huntington's disease?

"A love story in a scientific journal" - this is how Alex Fisher describes her article about the development of a Caregiver Programme in Barranquitas through Factor H. Read it at lnkd.in/eqGAUQk6 #FactorH #HuntingtonsDisease

Let's build on the success of 2025 to make even greater things happen in 2026!

Great connecting with fellow investigators at the HDClarity Investigator Meeting during the Clinical Research Congress in Nashville 🎶🧠 Insightful discussions, valuable collaboration, and exciting progress ahead! 📊 Presentations from the meeting are now available on the HDClarity.net website.

A new Swiss study provides important insight into how CAG repeats in the Huntington’s disease gene can grow or shrink within our cells over time, improving our understanding of the forces that shape HD progression. Full Article: en.hdbuzz.net/a-tug-of-war...

Last week's Platform meeting video is now available on youtube

[SP] En la reunión de la SEN se reunieron los 13 centros españoles de Enroll-HD, EHDN y FEPAEH para apoyar a la comunidad de la EH. [ENG] The 13 Spanish centers participating in Enroll-HD, EHDN, and FEPAEH met at the SEN conference aiming to support the HD community. #EnrollHD

IT]🎉 Il 23 marzo, in occasione dell’HD Gratitude Day, That Disorder ha organizzato un evento speciale. [ENG] On March 23, in honor of HD Gratitude Day, That Disorder organized a special event. #HDGratitudeDay #ThatDisorder #HuntingtonsDisease

Today is gratitude day!! The families around Lake Maracaibo worked with scientists for over 20 years and were crucial for the discovery of the HD gene, announced on March 23rd, 1993. Learn more: factor-h.org/gratitude-da... #HDGratitudeDay #factorh #HuntingtonsDisease

IT'S READY!!! The StreetArt4HD mural in Prague is finished. It was funded by Factor H in collaboration with HDYO in conjunction with their congress. AWARENESS IS THE SEED FOR CHANGE #streetartforhd #factorh #HuntingtonsDisease

Join us for the unveiling of the Art4HD Mural in Prague on March 13. This amazing work was created by DJLu Juegasiempre in collaboration with the HDYO. The Art4HD project is coordinated by #EnrollHD Global Manager, Selene Capodarca. #HuntingtonsDisease #Art4HD #HDYO #FactorH

[ENG] On March 3, 2025, our Lanco Marta was able to attend the first TERRETA (Treatments and rare diseases: advanced therapeutic strategies) conference in Valencia, Spain. The day had the participation of patients and their families. #EnrollHD #HuntingtonsDisease

[SP] El 03 Marzo de 2025 nuestra Lanco Marta ha podido asistir a las 1ras jornadas de TERRETA (Tratamientos y enfermedades raras: estrategias terapeuticas avanzadas) en Valencia, España. Una jornada con la participación de pacientes y sus familias. #EnrollHD #HuntingtonsDisease

[IT] Il 13 febbraio 2025, alla Fondazione Prada di Milano, si è tenuto un incontro sulla Malattia di Huntington. [ENG] On February 13, 2025, at Fondazione Prada in Milan, an event on Huntington’s Disease took place. #FondazionePrada #EnrollHD #HuntingtonsDisease

[SP] El equipo de EH de Burgos a recibido un reconocimiento por su trabajo multidisciplinar con los pacientes con EH. ¡¡Enhorabuena!! [ENG] The HD team at Burgos was awarded a recognition for their multidisciplinary work with HD patients. Congrats!! #EnrollHD #HuntingtonsDisease