Great connecting with fellow investigators at the HDClarity Investigator Meeting during the Clinical Research Congress in Nashville 🎶🧠 Insightful discussions, valuable collaboration, and exciting progress ahead! 📊 Presentations from the meeting are now available on the HDClarity.net website.

Big congratulations to Ramón y Cajal University Hospital in Madrid for completing their first successful sampling visit! 🎉 Want to learn more or take part in the HDClarity study? Head over to the HDClarity website for more details.

Different ways that HDClarity samples can be used in HD research:

Following on from last weeks exciting news, please visit this link for more information on the AMT-130 gene therapy trial, which was found to slow disease progression in Huntington's disease by 75% eur01.safelinks.protection.outlook.com?url=https%3A...

A major milestone was reached yesterday in neurodegenerative medicine, advancing hope for those affected by Huntington’s disease🧵

Exciting updates on the HDClarity study 🧵

HDClarity samples: storage, distribution and utility 🧵

Meet the team and recruitment success- HDClarity North York General Hospital site 🧵 Left to right: Clare Gibbons – Research Manager, Dr. Phillippe Rizek – Neurologist and PI, Rebecca Searles – Research Coordinator

Meet the team- HDClarity Hospital de la Santa Creu i Sant Pau site 🧵

CSF quality – what is it, why does it matter, how do we ensure it, and how it is checked? 🧵 #Huntingtonsdisease #HDClarity

Repeat Sampling – what is it, when is it done, and why is it useful 🧵 #HDClarity #Huntingtonsdisease

Upcoming Huntington’s Disease meetings🧵 #Huntingtonsdisease In mid-October 2025, the next HDClinical Research Congress will take place, in Nashville USA. The Congress will be being hosted jointly by CHDI and the Huntington Study Group (HSG).

Recruitment updates for the first half of 2025! 🧵 #HDClarity #Huntingtonsdisease

Clinical trials in HD 🧵 There are currently many exciting clinical trials underway with an aim of preventing or slowing down the progression of Huntington's disease #Huntingtonsdisease #HDClarity

Publications & Presentations powered by HDClarity 🧵 #Huntingtonsdisease #HDClarity Samples from the HDClarity study are widely used in publications and presentations surrounding Huntington’s disease.

How to participate in HDClarity?🧵 To take part, individuals must first already be enrolled in, or be recruited into, the Enroll-HD study. This study collects natural history data in HD individuals and controls, and this data is linked with the biosamples collected during HDClarity participation.

What are common side effects of having a lumbar puncture and how we reduce the chances of these occurring in the HDClarity study? 🧵 #Huntingtonsdisease #HDClarity

How does HDClarity work - and what is a lumbar puncture? 🧵 #Huntingtonsdisease #HDClarity

Exciting news regarding new study sites for the HDClarity study 🧵 #HuntingtonsDisease

What is cerebrospinal fluid (CSF) and why is it so valuable for #HuntingtonsDisease research? 🧵

Exciting updates for the HDClarity study 🧵 We have some exciting updates on the progression of the HDClarity study #HuntingtonsDisease #HDClarityStudy

What is HDClarity?🧵 HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease

What is HDClarity?🧵 HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease

Welcome to the new HDClarity Blue Sky account! We will be posting weekly updates and further information about our study #HuntingtonsDisease #HDClaritystudy