📢Patient Partners! Been asked to write a Letter of Support (LOS) and not entirely sure what that is? We co-created a resource with patient partners to explain about LOSs & offer some things you may think/ask about when approached: pxphub.org/a-resource-f... #PatientEngagement #PPI

Advocacy alert 📣 Until August 19, you can give input on a game-changing national standard requiring N95s & other respirators in healthcare (and beyond)! To make it easier to take part, we've created a plain-language explainer that includes some sample feedback: donoharmbc.ca/national-sta...

These creative questions are fun to answer and can help reveal people's personalities. Conflict resolution facilitator Priya Parker shares her favorites and explains how to come up with your own.

📢 Hope you’ll join this conference about #PatientEngagement in research. It’s open to everyone and completely designed by patient partners👇

Submissions for our Short Story Award competition open soon! First prize is €1000, second prize €500, as well as a €300 third prize. Guest judge @nualaoconnor.bsky.social @jmcm.bsky.social and I cannot wait to read your words. Send us your best! Rules below: open.substack.com/pub/authorjm...

It's International #ClinicalTrials Day. Thanks to everyone who contributes to clinical trials 🙏. And an article co-written with patients on the research ethics review in 🇨🇦 - our thoughts and hopes for the future - healthydebate.ca/2025/05/topi... @healthydebate.bsky.social

How about taking a break today and joining us for a @pxphub.bsky.social webinar on growing your influence as a patient partner in #PatientEngagement? Details 👇

The fact that @picardonhealth.bsky.social shared my essay is reward enough 🙏

Marisa McCrae & Sarah McCulloch are two student researchers from McMaster University who are working with CAPA for the next few months (check out the new blog to learn more about them! buff.ly/52VqoME). Use the following link buff.ly/bdbgaIO to get involved

"Patient and public involvement in research reporting" - and the case for why we need to do better www.bmj.com/content/389/.... Grateful to have been part of this editorial team with S. Staniszewska, S. Hopewell and R. Chidebe #PatientEngagement #PPI #ConsumerInvolvement

Peace By Chocolate comes through again with this maple cream ‘Elbows Up’ bar. We have to work hard NOW to keep our metaphorical Blue Sky. @peacebychocolate.bsky.social

An excellent read in support of patient partners as co-researchers from a unique perspective. (The "rethinking patient-oriented research" title had me on alert...) #ppi #patientengagement

Infographic on whether you need a measles booster.

I am presenting at an Open Science event on March 21st & would like to get the patient community involved & influencing how I present the patient perspective. If you have 5 minutes, please consider completing this survey to share your feedback: docs.google.com/forms/d/e/1F... Many thanks!

An opinion from @amyprice.bsky.social and me in @bmj.com on compensation of patient partners on research teams - pushing institutions to see how fair and transparent policies are part of their commitment to equity - www.bmj.com/content/388/.... #PatientEngagement #PPI #ConsumerInvolvement

Great advice on sharing your lives experience. I feel similarly about telling pieces yet that’s super challenging with everything I’ve been through.

A great read on power dynamics in patient engagement including some great advice for other patient partners who are often given many of the opportunities.

To all the research teams that engage patient partners in their work: pls budget for #PatientEngagement. There's already a power imbalance when patients are invited to a team - not supporting them with a budget makes that worse (whether or not they want compensation for their work) /1

The brave little boy having one of the first polio vaccines is me. At school I recall two pupils who had leg calipers because of #polio caught before they could be vaccinated and there even was an iron lung for emergency use. #Vaccination saves lives

Confused by labels, like Made in Canada or Product of Canada? So are we, so we dug a little deeper to try to find answers. Check out our next blog post to learn about the differences: https://buff.ly/4jDBzW2 #BuyTrueNorth #BuyCanadianMade #BuyCanada #BuyCanadian

Not everyone is convinced about #PatientEngagement in research - I get that. I wrote a letter to those folks to challenge some of their thoughts and in hopes of getting them to reflect on these a bit more - www.bmj.com/content/388/.... Thanks to @bmj.com for publishing.

Happy new year from our very distinguished Russian Blue, Smokey. Next pic will include a suit 😏 #CatsofBlueSky

My beautiful Russian Blue was trying to tell me something yesterday. I got up for a moment and there he was! #catsofbluesky

One of my ongoing projects with more to come in 2025!

I’m kind of loving my top 5 artists listened to on Spotify this year - a strong dose of Indie rock, French singer/songwriter Zaz, and good old Bach 😭

Not to mention the unpaid research, administrative and diagnostic labour of chronically ill people 👀

Compensating patient partners on #PatientEngagement teams is about equity. @kwaneleasante.bsky.social wrote this powerful piece about renumeration of African patient partners being about health justice www.bmj.com/content/387/.... Pls take a few mins to learn from this global patient leader

I'm thrilled that @amyprice.bsky.social is the new editor-in-chief of the Journal of Participatory Medicine. Amy has shared her vision and plans for innovations at the JoPM. Thanks to Sue Woods @ Matthew Hudson for their contributions as journal editors. participatorymedicine.org/2024/welcomi...

Watch out for signs of burnout! Set boundaries and take care of your mental (and physical) health. Great infographic by Dr. Carolyn Frost⬇️ #Academics #Academicsky #mentalhealth #worklife #worklifebalance

** PLEASE SHARE** Here is a public summary of main take-away points, with links to resources & talks of the public event on Workplace Experiences and Rights of Cancer patients in #NewfoundlandAndLabrador ❤️ www.saltwire.com/newfoundland... #WorkPlaceRights #Cancer #PublicOutreach

The UK buys 5 million doses of avian flu vaccine in anticipation of a possible pandemic. www.telegraph.co.uk/global-healt...

Have sciencey youth in your life? This is a pretty cool opportunity! 🧪Calling young leaders in Canada ! Are you 18-28 and passionate about science and society? Apply to join the Chief Science Advisor’s Youth Council!   🗓️ Deadline: Dec 15, 11:59 PM EST.  📄 ️ Apply here: science.gc.ca/site/science...

Today, on the International Day for Persons with Disabilities, I am beyond proud that the Canadian Institutes for Health Research have released their Anti-Ableism Action Plan, entitled "From Intention to Impact". 1/3 cihr-irsc.gc.ca/e/54121.html...

I am getting settled into BlueSky as I’m feeling lost on X these days 😔 I am all about listening to patients/people with lived experience and engaging them in a meaningful way in healthcare policy making and research. If you’re interested in these topics, let’s follow each other! #patientengagement

Resharing to the #PatientEngagement feed

This is so great to see! Did you know as someone with lived experience in some cases you can be a reviewer?